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I take a natural product called policosanol and get no tinnitus spikes.

Update from Bionics:

Just a FYI: My naturopath, who is also a Chinese herbalist, prepared a mix using the herbs mentioned in this study, except for tansy. The active ingredient in tansy is thujone, which is toxic to the liver and brain. Instead, he replaced it with feverfew, a relative of tansy. I’ve been taking...

I'll second that.

My tinnitus has worsened twice: after taking Cephalexin and Amoxicillin. I don't believe it's due to ototoxicity. I think it's more likely related to mast cell activation syndrome (MCAS) and/or gut dysbiosis.

I’m pretty sure @ErikaS posted an algorithm that included adding Topamax if the patient is already on an antidepressant, such as Nortriptyline.

Is the NeuroMed Tinnitus Program available to international patients?

I am sorry about your spikes. This is a guess, but looking at your ingredients, I think it could be L-theanine. The literature refers to L-theanine as a partial agonist of the NMDA receptor, which exerts its effects by modulating GlunN2A and GluN2B gene expression. I hope the Melatonin helps...

I have never taken Azithromycin, but I have experienced two significant relapses in my tinnitus since taking Cephalosporins and Penicillins. I recall reading a paper demonstrating that the gut microbiome could influence brain neurotransmitters and inflammation. I have just completed a gut...

I'm glad it all worked out, Sam. Hopefully, she will be able to return to school. Good luck with the run!

Did you ever manage to source these strains? I have depleted lactobacillus and bifido strains. I'm starting probiotics, prebiotics, sodium butyrate, and colostrum.

May I ask which Curcumin you are taking? I can't find the one you mention on your profile. Is it still working?

Good idea! You need to find someone who is skilled and compassionate.

Yes, I've used laser to revise a root canal. I had a heavily filled tooth, that needed a revision of a broken filling. It wasn't loud at all, only some zap sounds. I just wore earplugs. There was no pain - so no need for drugs.

You could consider laser - no need for drugs.

I didn't think Dextromethorphan was indicated for ADHD? Are you confusing it with Dextroamphetamine? Enlighten me.

I understand. What frightens you about this drug?

I am responding to this older post as I am now considering trialing Dextromethorphan myself. Did you ever try this, and if so, what kind of dosage were you trialing? Results?

I have been following Dr. Shore's device since 2013. Why would you state that you are very skeptical about the device? We have been enlightened that Auricle has the financial resources to market the device, so that is not a valid concern.

I think if exercise makes your tinnitus worse, it might be a defect in your Krebs cycle, responsible for lactic acid metabolism?

Either way, most of this thread is speculation. We have no choice but to sit tight and hope we hear something soon.

How did you arrive at the doses you take?

The L-Citrulline has antiviral effects and improves nitric oxide. Taurine is a precursor to GABA. Magnesium blocks NMDA, stabilizes mast cells (lowers histamine), and relaxes smooth muscle. Glycine, from memory, is a partial antagonist of NMDA. I'm unsure about Leucine.

Hey Ed! I am sorry you are experiencing ocular hypertension. My mother suffered with this, but was managed with laser treatment - successfully. Late last year, I noticed a large mobile C shaped floater in my right eye out of nowhere. Immediately, my anxiety spiked. I had been aware of small...

I recently received this invite from the FDA to attend the following: Attending will unlikely uncover information about the burning question around Dr. Shore's submission, but it might be helpful.

I have pondered this myself, though it isn't my experience at 2 mg/daily. I do know that LDN inhibits microglial activation, and suppresses NMDA receptors; hence inhibits Glutamate. I was warned by someone well known to this community about taking LDN because of its ability to increase...

Update: The Governor of Victoria is hosting an event for the Bionics Institute on July 2 to celebrate 45 years since the first cochlear implant. The Bionics Institute has invited me, but I am waiting for an official invite from the Governor of Victoria since they are hosting. Once my invite...

I don't believe in interstitial cystitis anymore. After a lifetime of suffering, I learnt about biofilm / embedded UTIs, and have successfully treated it with Chinese medicine (initially under the guidance of Prof. Malone Lee). Diagnostics are unreliable. Under the guidance of Prof. Malone...

I want to understand why did Auricle announce back in 2021 that they are nearly market ready?

I would be interested in your results if you went ahead with NO2 supplements. I suspect NO2 has something to do with the fluctuations in my tinnitus (I have Babesia, which feeds off NO2). My tinnitus is consistently worse with rising air pressure. I have been scouring the net to find links...

Update: The Bionics Institute are extending their algorithms to include a trial at an unnamed audiology practice. More updates to come apparently, as per Dr. Mehrnaz Shoushtarian.

How did dahlia extract help?

No. Fluctuating head noise is the same. Worse with changes in barometric pressure. An OATS test (metabolic testing) has revealed high levels of quinolinic acid (biomarker for neuroinflammation). I have confirmed mycotoxin illness, so taking binders for liver support. One of the moulds I've...

Update: I have received an email response from Alex Galazyuk regarding Eglumegad. Eglumegad activates group 2 metabotropic glutamate receptors - suppresses hyperactive neuronal activity. The director of a USA based pharmaceutical company (who suffers with bothersome tinnitus himself) has...

Is this speculation?

I am sorry you have Lyme, along with tinnitus and MEM. I was diagnosed with Lyme and several coinfections in 2017, which I have since eradicated except for Borrelia (as per ArminLabs) with the use of traditional Chinese herbs (following Buhner protocol). I tried Doxycycline and...

Any update?

I presume international patients would be excluded from compassionate use?

I think it was the MSG in soy that might have caused your spike, not gluten.

I appreciate your post. Would you mind sharing your source and dosage?

I hope you're ok. Are you still using LDN?

Hi Erika, Just read your story. Thankyou for sharing. Just wondered if you've ever thought to try ldn? My friend ( SamanthaR) developed head hissing with her first ivf pregnancy, then cochlea hydrops with a subsequent ivf pregnancy ( responded to curcumin, pred, and ldn) You'll find her story...

Does that mean it wasn't a Weiss ring? I have a confirmed PVD with a Weiss ring since last week. Very upset. I believe, from reading, Weiss rings respond well to laser, but too scared to try it. I have read a few accounts of Weiss rings breaking up and moving to periphery, along with...

YES! I have Lyme, coinfections, and mould (and menopause). Get an OATS test, which will include mould and oxolates Mould will drive up histamine by increasing oxolates Low histamine and low oxolate diet Get off gluten, casein, eggs, sugar (if problematic for you) Address source of mould You'll...

Consider apricot kernels and soursop.

Further to this, I reached out to a former PhD student of Dr. Shore's today (who was involved in an earlier trial). Here are her speculations:

Maybe ask someone on BenzoBuddies.

It'll be rolled out via audiologists.

Sounds like residual inhibition to me.

If you're sensitive to salicylates, Turmeric might not agree with you.

I found your post interesting. I am in the throes of another relapse following taking Amoxicillin. I am nearing menopause, so I believe hormones have something to do with this too (as I have noticed my hormones have dropped since taking Amoxicillin). Long term elevated cholesterol - not...

I wonder if you've considered low dose Naltrexone to treat the vessel inflammation?

I'm praying for you now.

Acupuncture TMJ massage TCM Heat therapy Infrared therapy

Have you ever had higher doses, longer courses of Amoxicillin?

Me again. Tinnitus has been with me since 2013. I have described and lived through several relapses. The most recent one in 2021 was associated with perimenopause/antibiotics. After a year long struggle - and addition of bioidentical hormone replacement therapy (BHRT) - I finally reached a...

Some species can cause spikes in histamine.