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  1. LostinTX

    Trigger Warning: My Friend's Husband Killed Her and Himself Because of His Severe Tinnitus

    Um, not sure what healing you think I'm looking for about this event? You have a serious lack of understanding regarding severe tinnitus and resulting insomnia and psychosis. Not that I need to explain anything to you, but he was actually a very kind, caring person and very devoted to his wife...
  2. LostinTX

    @SharonBell i no longer take it and haven't for maybe over 6 months. I now take one 300mg...

    @SharonBell i no longer take it and haven't for maybe over 6 months. I now take one 300mg gabapentin and 10-15mg of melatonin and I sleep solid 6-8 hours now
  3. LostinTX

    @SharonBell it does every now and then. Alcohol actually helps me sometimes lower it and calm me...

    @SharonBell it does every now and then. Alcohol actually helps me sometimes lower it and calm me down. I ate a bunch of sugar cookies yesterday which I haven't done in months and i woke up to louder buzzing. It's calmed back down now. Coffee doesn't affect me at all and I had given it up for...
  4. LostinTX

    @SharonBell no it did not make it permanently worse. Every time I've caught it I've taken...

    @SharonBell no it did not make it permanently worse. Every time I've caught it I've taken ivermectin and other antivirals like lysine, oil of oregano and cat's claw
  5. LostinTX

    Trigger Warning: My Friend's Husband Killed Her and Himself Because of His Severe Tinnitus

    I believe it was about 6 months that it was severe. My sister spoke with her friend and she said he would come into her office when she was trying to work and on video calls and he would cry and say it was like "he had a circus in his head". He did everything including expensive TMS therapy...
  6. LostinTX

    Trigger Warning: My Friend's Husband Killed Her and Himself Because of His Severe Tinnitus

    I asked this thread to be put back up again. I had previously asked for it to be hidden because the brother of the husband was upset, although I originally released no information on who they were. Well, my sister was listed as executor on the will and they lied and withheld that information for...
  7. LostinTX

    New University of Michigan Tinnitus Discovery — Signal Timing

    LOL. Did you think the Guinea pigs had somatic tinnitus? Hello Mr. Guinea pig, can you modulate your tinnitus with your neck? There is no way to tell if a Guinea pig has somatic tinnitus and there is no way to tell if a human has somatic tinnitus as you're taking their word for it. There is...
  8. LostinTX

    Did a self test this morning videoing myself turning left in bed and I still have slight...

    Did a self test this morning videoing myself turning left in bed and I still have slight nystagmus? Almost 3 years in?
  9. LostinTX

    I have checked the FDA site for medical devices awaiting approval 2x and have not seen Susan...

    I have checked the FDA site for medical devices awaiting approval 2x and have not seen Susan Shore's device there?
  10. LostinTX

    Feeling Great After 15 Clinical Low-Level Laser Treatments (LLLT)!

    I may have funds to do the combined treatment in a few months with the laser and stem cells. I am still on the fence but I wonder if it could help me get even a 50% improvement, which would be life changing. My tinnitus is mostly in my left ear and is about a 5-6 from previously being severe...
  11. LostinTX

    Trigger Warning: My Friend's Husband Killed Her and Himself Because of His Severe Tinnitus

    Not much is out media wise yet. Here is the link for the one my sister found: Jennifer Cobb EY found dead following murder-suicide in San Jose (snbc13.com) Here is the ME report showing cause of death and mentions his tinnitus as a "other significant condition", reports 23-00639 and 23-00640...
  12. LostinTX

    Trigger Warning: My Friend's Husband Killed Her and Himself Because of His Severe Tinnitus

    Hello, it's been a while since I have posted on Tinnitus Talk. I started here with severe tinnitus in 2020. A family friend of 35 years was killed this week by her husband who was suffering from severe tinnitus for a year, and then he killed himself. She was 46 and he was 50. We found out...
  13. LostinTX

    Retigabine (Trobalt, Potiga) — General Discussion

    I'm curious, when you say it "killed" your tinnitus while on it - Was it gone gone or at a really low level?
  14. LostinTX

    Hough Ear Institute's Hair Cell Regeneration Project

    It shows they did a Phase I trial already and are doing Phase II now. Not everything shows up on ClinicalTrials.gov I believe. But, I feel like they are going to be the underdog that hasn't been noticed much here next to all the Frequency Therapeutics talk on Tinnitus Talk. I consider it a...
  15. LostinTX

    Huge spike yesterday hormone change. In 2 years -4 light periods. Peri/Menopause. Oddly, started...

    Huge spike yesterday hormone change. In 2 years -4 light periods. Peri/Menopause. Oddly, started a heavy period. T was louder than traffic
  16. LostinTX

    It's like knowing you have a grenade in your head that can go off anytime the rest of your life...

    It's like knowing you have a grenade in your head that can go off anytime the rest of your life. I was that person that slept in complete dark and silence every night and you grieve all the moments you took for granted.
  17. LostinTX

    I keep trying but it's hard. I even try to see the bright side that it has gone down in volume...

    I keep trying but it's hard. I even try to see the bright side that it has gone down in volume monumentally from the beginning. But I started out severe/catastrophic and now completely feel I have PTSD from it knowing how LOUD it can go.
  18. LostinTX

    Really down today. I am no longer the person I was and this constant buzzing in my head has...

    Really down today. I am no longer the person I was and this constant buzzing in my head has destroyed me. Some good moments but I want peace
  19. LostinTX

    I have had 2 times now eating out that I could not hear T the entire meal! Christmas Eve dinner...

    I have had 2 times now eating out that I could not hear T the entire meal! Christmas Eve dinner and I took my mom to breakfast this week.
  20. LostinTX

    14 Months with Tinnitus So Far — History of Using Oxycontin/Hydrocodone Recreationally

    Did you get tinnitus previously from opiates? Did it go away after a few years?
  21. LostinTX

    Still not ok with T! But, I went from hearing over EVERYTHING to some days I can't hear in the...

    Still not ok with T! But, I went from hearing over EVERYTHING to some days I can't hear in the store or driving. Another year maybe lower?!
  22. LostinTX

    Stellate Ganglion Block for Pain Hyperacusis (Noxacusis)

    I did my SGB months back. I don't have pain hyperacusis. But I did 2 shots and it spiked the tinnitus bad so I didn't go back for more. Give us an update on your tinnitus when you can. Thank you!
  23. LostinTX

    Ideas and Suggestions for Future Episodes

    @Markku, what about the doctors behind this study showing significant results and prototype in development? Assessment of Subjective Tinnitus Treatment Results Using a Prototype Device for Electrical and Magnetic Stimulation of the Ear-Preliminary Study. - Abstract - Europe PMC
  24. LostinTX

    Tinnitus Control by Dopamine Agonist Pramipexole in Presbycusis Patients

    Yes, I've had no improvement from the 2 stellate ganglion blocks I got. I was actually spiked for 2 days after and decided to not go back for any further.
  25. LostinTX

    Sleeping 8 hours nightly now with gabapentin, cyclobenzaprine and melatonin combo. I also take...

    Sleeping 8 hours nightly now with gabapentin, cyclobenzaprine and melatonin combo. I also take PNN NeuroAid I think is helping T/my brain.
  26. LostinTX

    https://medicine.umich.edu/dept/khri/faculty-labs/labs/miller-lab/research-projects/auditory-nerv...

    https://medicine.umich.edu/dept/khri/faculty-labs/labs/miller-lab/research-projects/auditory-nerve-survival-regrowth Hmmm.
  27. LostinTX

    Been using gabapentin regularly for sleep and my T is a lower hiss all day. I hope it keeps...

    Been using gabapentin regularly for sleep and my T is a lower hiss all day. I hope it keeps decreasing and disappears one day. Pray daily.
  28. LostinTX

    Tinnitus Control by Dopamine Agonist Pramipexole in Presbycusis Patients

    Tinnitus. No improvement from the two SGB's.
  29. LostinTX

    @BrOKeN_1 it's hard to get off SSRI's for sure. I've been on HRT (hormone replacement for...

    @BrOKeN_1 it's hard to get off SSRI's for sure. I've been on HRT (hormone replacement for several months but I've gained weight easily and thought I'd try being off it and see how it goes. I guess it helps the T too though, maybe? Thank God today was better but I've had 3 possible vestibular...
  30. LostinTX

    I had a huge spike today. A few things- I stopped HRT 3 days ago to see how it would go? Then...

    I had a huge spike today. A few things- I stopped HRT 3 days ago to see how it would go? Then got a possible vestibular migraine
  31. LostinTX

    @JPGL I reached out to the researcher. The study was unblinded and she was able to share with me...

    @JPGL I reached out to the researcher. The study was unblinded and she was able to share with me what I got.
  32. LostinTX

    University of Minnesota Tinnitus Research with Acoustic and Body Stimulation

    Congratulations! I really wish they would continue the research/trial that healed you to help us. Praying Dr. Susan Shore's device is up to par.
  33. LostinTX

    Just found out my OTO-313 was placebo! Kinda shocked. If I've been healing on my own I pray I...

    Just found out my OTO-313 was placebo! Kinda shocked. If I've been healing on my own I pray I continue to until it's mild or ignorable.
  34. LostinTX

    Favorite Movie Quotes -> Go!

    I loved Whiplash! Highly underrated movie!
  35. LostinTX

    22 months. Yesterday went to a friend's for small get together. Could hardly hear the T. Last...

    22 months. Yesterday went to a friend's for small get together. Could hardly hear the T. Last year there 10/21 I had to leave bc T was bad
  36. LostinTX

    Yesterday was a bad spike too. Went to flea market and could hear it over the mariachi music...

    Yesterday was a bad spike too. Went to flea market and could hear it over the mariachi music blaring. My mom's was spiked too Bar. Pressure?
  37. LostinTX

    Was let go from my job 8/24. I couldn't keep up my performance because of T and all the...

    Was let go from my job 8/24. I couldn't keep up my performance because of T and all the depression. Already have new certs for new jobs :)
  38. LostinTX

    New University of Michigan Tinnitus Discovery — Signal Timing

    Are you in Dallas? I'm here and saw that company at one point in my searches. Did they abandon the MicroTransponder?
  39. LostinTX

    @ZFire Yes, I think he is a great actor! Haha we should start a positive/funny thread. "What...

    @ZFire Yes, I think he is a great actor! Haha we should start a positive/funny thread. "What celebrity have you met? " The only one I've met was Pauly Shore as a teenager hahaha. But my cousin's brother-in-law is Nick Turturro lol. I didn't go to the wedding otherwise would have met him. He took...
  40. LostinTX

    @ZFire Life Itself, which was released a few years ago. But man, it had some lines that...

    @ZFire Life Itself, which was released a few years ago. But man, it had some lines that resonated with me. Especially when I was suicidal from dealing with this shit. Have you seen it? There's a scene he is speaking with his psychiatrist and talks about a guy he was inpatient with.
  41. LostinTX

    Last night I watched a movie without phone next to me playing masking noises. Little victories.

    Last night I watched a movie without phone next to me playing masking noises. Little victories.
  42. LostinTX

    @Wrfortiscue Umm Eyes Wide Shut kind of dreams lmao!

    @Wrfortiscue Umm Eyes Wide Shut kind of dreams lmao!
  43. LostinTX

    2 days in a row it's been pretty mild. Low level hissing. Took 2 gabapentin last night and...

    2 days in a row it's been pretty mild. Low level hissing. Took 2 gabapentin last night and dreams were crazy AF! Had watched Eyes Wide Shut
  44. LostinTX

    Cerebrolysin (BDNF - GDNF - NGF - CNTF)

    I found it in a few places like this. Mostly Nootropic sites. https://cosmicnootropic.com/products/cerebrolysin
  45. LostinTX

    Cerebrolysin (BDNF - GDNF - NGF - CNTF)

    Just saw this. No, I haven't tried this one yet but have come close to ordering it! I may order and try soon.
  46. LostinTX

    Otonomy OTO-313 — Treatment of Tinnitus

    No they didn't, but I discussed it with the researcher letting her know I felt like not discussing it until recruitment or the trial was over because I had seen people swayed away from it on the thread. So, it was my personal decision to not post until recruiting was closed. I wouldn't want my...
  47. LostinTX

    Otonomy OTO-313 — Treatment of Tinnitus

    I felt like a kick in the gut hearing the news about this. @Sentinel, I also reached out to the clinic and the researcher there said they will un-blind and she will contact me when they send the information to her (she doesn't have a timeline yet). I was hopeful that it would come to market...
  48. LostinTX

    @kingsfan i think i was given the drug but could be wrong. My T was loud over everything and i...

    @kingsfan i think i was given the drug but could be wrong. My T was loud over everything and i had horrible insomnia for a year no matter what i took! Ambien couldn't even knock me out for more than 2-3 hours. 2 weeks after the shot i started sleeping better and the volume went from severe to...
  49. LostinTX

    Will Shore's device help only people that can modulate their T? Please say it will include...

    Will Shore's device help only people that can modulate their T? Please say it will include regular T too! :(
  50. LostinTX

    The researcher for the OTO-313 study reached out to me and said they will unblind and I'll be...

    The researcher for the OTO-313 study reached out to me and said they will unblind and I'll be able to find out what I got at an unknown date
  51. LostinTX

    @Joe Cuber I'm sorry and know how you feel. I had to take 3/4 of a .5mg klonipin today. It...

    @Joe Cuber I'm sorry and know how you feel. I had to take 3/4 of a .5mg klonipin today. It helped and I was then able to get outside and walk my dogs a mile which I haven't done in weeks due to catching covid and being sick 2 weeks. Hope your day gets better too!
  52. LostinTX

    2 nights crap sleep again and my head is buzzing loud AF today. FML I am so sick of this. I...

    2 nights crap sleep again and my head is buzzing loud AF today. FML I am so sick of this. I can't do this the rest of my life. 20 months
  53. LostinTX

    Tinnitus and Insomnia for Months — CURED!

    Gabapentin has been used in clinical studies for tinnitus to lessen severity. No, my tinnitus is high frequency 12-13 kHz and was caused by vertigo episode and opioids. CBN is not ototoxic. It's an engineered form of CBD oil specifically for sleep. Short-Term Effect of Gabapentin on Subjective...
  54. LostinTX

    Still not 100% recovered from covid. The sinus congestion and crap coming up is just...

    Still not 100% recovered from covid. The sinus congestion and crap coming up is just neverending. 12 days now. Hopefully it fully goes soon
  55. LostinTX

    I feel ya! I had insomnia a year from this shit and can now at least sleep 7 hours (medicated of...

    I feel ya! I had insomnia a year from this shit and can now at least sleep 7 hours (medicated of course lol) I dream of a day of silence or waking up. Bam! Miracle gone! lol
  56. LostinTX

    Sad, Very Sad — Spoke to Someone Whose Family Member Killed Themselves Because of Tinnitus

    This is the only journalist that reported the full story from him contracting COVID-19 to reaching out to Hubert Lim, trying Lenire and to his return home and death. The founder and CEO of Texas Roadhouse caught COVID. 4 months later, he died by suicide. Family and colleagues detail his final...
  57. LostinTX

    Covid turned into MASSIVE sinus infection. Steroid shot, oral prednisone and amoxicillin. It's...

    Covid turned into MASSIVE sinus infection. Steroid shot, oral prednisone and amoxicillin. It's helping but I think I won't be 100% for weeks
  58. LostinTX

    AND it's COVID! Ugh! Last time I was asymptomatic. This time it's like the flu with a bad sinus...

    AND it's COVID! Ugh! Last time I was asymptomatic. This time it's like the flu with a bad sinus infection like I once had13 years ago.
  59. LostinTX

    Yeah I read those stories and made a point to not blow too hard, but the pressure was so bad

    Yeah I read those stories and made a point to not blow too hard, but the pressure was so bad
  60. LostinTX

    @Bambam0 TY I will pick some up! feels like a major sinus infection but probably Omnicron as...

    @Bambam0 TY I will pick some up! feels like a major sinus infection but probably Omnicron as Mom, daughter and myself have had all the symptoms of the variant. Daughter's test was "inconclusive" have to retake