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.. hearing loss at 16k. Wearing "HEARING aids without hearing loss... Noisers? Sure Really? Guys, sorry, but I'm out of here.

This board is to 95% ridiculous. Perfect or near perfect audiogramms, a tiny dip calling severe, test for 20khz "oh I got" severe"...

Looks like mine in both ears, but I'm 20 years younger :) And yes, I would kill for most of the audiograms here too.

I'm experiencing it too. Since 2 or 3 years. I'm 20 years in.

At the hospital for 5 days getting IVIGs. Not because of tinnitus, so far no effect on T. and H.

New loud eeeeuuuuu eeeeruuuuuu uuuuuuu Whoopi eee uuuuuuu. What are people without hearing loss afraid of?

I'm experiencing the same thing, quite often lately. It's frightening and a very weird feeling. As you said, it's totally different than fleeting tinnitus. Worse actually.

It did nothing for me. I did that years ago for weeks.

Why do you need a high end clinic for that? Basically every ENT or ENTs at a random university clinic should be able to do that.

- ☠️

No. I'm a 5 max with 2-3 interruptions. For months.

I had/have fleeting tinnitus with all possible sounds someone can think of. Static, drone, eeeeeeeee, uhhhh, many more. It's not always a high pitched eeeeeeeee :)

Nah, I already know that both facial nerves are damaged, and both vestibulochochlearis. So I know exactly what's causing my problems :)

Yep, with 3-4 tones, always while sleeping. It's definitely a challenge

Maybe things are different in your country but in case of SSNHL, it sounds like it, or any significant loss of hearing, you don't need an appointment. Just pop up at the nearest ENT. That's what I've done and is common practice here.

Isn't that exactly what we're calling fleeting tinnitus? I have those multiple times a day, both ears.

I'm disabled, what's your point? Little whiney aren't you?

Maybe it has to something with the vestibular system in general. Not necessarily fluid. SSNHL. I know it well. Sucks hard, doesn't it?

He should. Better safe than sorry, could be SSNHL. Also Prednisone isn't as bad as people think it is. Visiting an ENT should be obligatory.

I do. The same pressure problems. ENTs can't find anything causing this. Eardrums are fine, no fluid, tympanograms are fine. I'm always having pressure, it varies but it's always there. Right now it feels like my head would explode.

3x 250 mg are the guidelines in Germany for acute tinnitus and SSNHL. No tapering. Studies showed lower doses don't do much or anything at all in those two cases, higher doses don't increase the benefit. So, at least here, that's standard procedure :) You got the part where I said I had 5x...

Mhmmm, 40 mg of Prednisone is basically nothing. I doubt such a low dose does anything at all for tinnitus or SSNHL. It isn't even necessary to taper it out. I had Prednisone several times, always 3 days at 250 mg, IV or oral. Sometimes it helped, sometimes not, but it never made anything...

On top on my usual 7-10 sounds: lightsaber fights and something that sound like someone moving heavy furniture downstairs... Weird

Spikes... Fleeting T....Spikes... Fleeting T.... Fleeting T. Fleeting T. Fleeting T. Fleeting T. Fleeting T. Fleeting T.

Being deaf won't help you though. Tinnitus will stay.

For now it's been private organizations, because the government didn't set up infrastructure for it. But it's been done by real doctors, also some states changed the medical professional code, so doctors don't have to worry. www.dghs.de for example.

Lately I'm having fleeting T. 20+ times a day. Wtf?!

Where do you get this number from? That would be nice. I mostly read it's working for around 5%. To be fair, that was some years ago.

I don't. I can't. It's the sum of it all. ‍♂️ If it would just be the, severe and surely hell of tinnitus, I could live with it. Luckily VAD is now legal here in Germany too. Even more liberal than Swiss because you don't have to be sick/disabled. If there's anything physically wrong with...

A few thoughts. There are only two types of tinnitus: objective and subjective. The other things are possible causes. Meniere's is definitely not a neurological disease.

And vestibular damage/vertigo + hyperacusis going stronger

A lot of Spikes and fleeting Ts with and without muffled hearing these days/weeks.

But hair dye doesn't enter your system/body :)

I was told it's never above 10-20 dB above your hearing threshold... But that also means if you have a loss of, let's say, 40-50 dB, the tinnitus could actually be perceived as 60-70 dB and so on. At least that's what those ENT guys and professors told me. So with severe hearing loss, tinnitus...

If the oral/IV didn't help, injections won't work either. Intratympanic injection doesn't work better, they just have less systemic stress and are basically an alternative for people who can't take it systemically, like diabetes patients for example. Sure, try it. But it's not a miracle cure...

Why and how should a hair dye affect tinnitus?

I whish I had that audiogram. That's basically nothing. Also I'm wondering why a lot of people are getting such low doses of Prednisone? Several studies, at least the German ones I was reading, and how it's done here, it's usually 250 mg for 3 days and done, no need to taper off. Everything...

Nope, not the first one. I did that too and survived. If my tinnitus gets worse, I prefer death anyway.

That's all low doses. The standard course for SSNHL and ACUTE tinnitus is 250 mg for 3 days. Because of that short term use, tapering off isn't needed. I only had spikes and extra sounds at 5 days x 1000 mg, that wasn't for tinnitus though :)

Only 3 tones? Let's hope you won't develop 6-10 tones. For 20 years. Oh, and quite a bunch of hearing loss, deaf over 4 kHz... Reactive tinnitus. Of course. Combination and intensity varies every hour or minutes. Depends. The baseline is like 100 out of ten since 2018. Yep, sucks. Throw in...

True, but tbh, I don't feel much difference. Because of my "normal" tinnitus I was always kinda sensitive to loud noise anyway. Now the other ear is acting up too. If it should become a frequent problem there too, I would do it again. In my experience, and from talking with others gone through...

Cut the tendons of both, stapedius and tympani and the problem is solved forever.

0 shots here ‍♂️

How do you define "severe" here? What kind of dry eye do you have? Lack of tears in general (Schirmer's zero here) or components missing ones? I have to drop both eyes with the thick gel ones 2 x an hour, 2x a day Ikervis (Cyclosporine), ointment and eyeshields at night. If you need eye drops...

I had the caloric test with air. And I already had/have severe tinnitus with 6-10 sounds, fleeting tinnitus and whatnot and moderate-severe hearing loss... At least the caloric test while video-oculography showed damage at the vestibular organs and nystagmus. So it was definitely worth it and no...

* waking up with SSNHL (this is the only thing that has real good data for oral corticosteroids being useful) Even in these cases it seems like trial and error, works for some for some not. That's what I gathered from some different SSNHL groups/boards. I've had 3 times SSNHL and was always...

I'm hearing my 6-10 plus random ones even in the shower. Always, everywhere.

Dude, that's mild to moderate. 60-70-80 dB is severe. 90 dB is in the near deaf range.

Actually it could also have been sudden hearing loss. Weird you didn't go to an ENT immediately. To sounds: all of my 6-10 are louder than traffic or anything else. I hear them over everything, every single one of them. So, it could be worse :)

So, I've got all of the above. What now?

Progressive bilateral vestibulopathy here. Yeah, it's annoying with VSS and oscillopsia, vertigo, hell of a tinnitus (6-9 sounds) and severe hearing loss. But well, just have to live with this.

I kept a journal too, recently. Every day for maybe a year. I couldn't find any pattern at all. It was a lot of work though, because my sounds change every hour, sometimes every few minutes. In intensity, combinations, some come and go, then those fleeting tinnitus episodes and whatnot. I want...

One sound? One ear? Constant? Even if it is very very loud, that's not that bad. The chances are good that you'll get used to it. Define loud? I could stand in front of a train passing by and still all my sounds are louder than that. Sucks.