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@carlover no sorry you misunderstood me....i meant i dont believe it as in an expression like Victor Mildrew used in the UK tv comedy series.....i dont believe this is in how small the world is as I know harrow leisure centre and used to go there and lived really near there - and you know harrow...

@carlover gosh i dont believe this....i know harrow leisure centre very well and used to live near there....please can i pm you?

point is that no one knows.....there are people who have had it a short time and it has not helped and others had it a short time and it helped....also people who had it longer and it helped and others longer who it didnt help....that is the point....

Yes exactly - I was referring to the video only and not to the other comments......thanks...

Got no problem with the success stories....if you read my post you will see that i was referring to the american tv video posted which can only be viewed now on youtube....it is just a sale of neuromonics. Old news...been around for ages.....People have posted on here that it either did nothing...

This is just another sale of neuromonics - rubbish!

have no problems with hearing or balance so guess that wont help me then? love?

why dont we just accept that this stuff doesnt work....even danny boy is still on it....and he started back in november 2015 and is now on two anti epileptic drugs that he takes one of which is trobalt.....the new trobalt will be out in a few years maybe which will probably work... this...

Are they still supplying these WNG's on the NHS Glynis...do you know please? If so how long does it take to get them from the NHS? thanks

why when the ent can remove it there and then without softening it too

Thats brilliant Cheza. Sorry but that wasnt clear to me when I read your post...Sorry for the intrusion on your post to engineer.

Sorry but didnt see your post asking me so that is why I didnt respond. If I had seen it I would have responded. I havent done TRT....dont know why you assumed that I had done it. Further to your post I dont take Xanax or any other kind of medication. There are many assumptions and statements re...

You can go and have a tiny day operation performed by ent surgeon which is a tiny cut in the ear allowing fluid to drain out of the inner ear.....they put in the equivalent of a small tube also known as a grommet which normally stays in place for around 9 months I think before surgical removal...

I know this is terribly hard to live with cos I am trying to live with it myself. But I get to thinking - how did the victims of the concentration camps during the second world war cope with it all....surely their suffering was unbearable....just imagine.....and it went on for many for...

Thanks Markku - well done thats brilliant! Sadly it looks like the magnesium didnt make any difference......:(

Who cares until they come up with a drug to help us? What is the point of the conversation?

This seems to tie in with what @preslys said about taking a combination of trobalt and Neurontin - that seems to gotten rid of his T completely which he had for over a year.....

Yes I understand this but I am concerned about the fact reported to me by Danny Boy that Trobalt raises the white blood cells count which can of course in turn cause potentially cancer? Also have an ongoing problem of overproduction of earwax in the T ear only. This ear was cleaned out last year...

I took 100mgs of trobalt today and it had no effect whatsoever. About a week ago or more i took 50mgs of trobalt and it sent me to sleep. Today nothing at all.....

Are there any results from this trial @Markku please ? thanks

Do we know which group (acute, chronic) they are aiming for? Do we know anything? - like criteria for involvement - yet another injection into the ear treatment....

there is no proof anywhere that stress causes T.....there are a lot of people on here who say that their T started due to stress - but they are guessing and there is no proof that is the case....so please dont say known cause as it is not known but assumed which is different.....

Just saw this article and thought it worth adding here showing a real need for awareness: http://pix11.com/2015/11/13/loud-music-in-spinning-classes-linked-to-hearing-damage-concerns/

@attheedgeofscience please may i ask two simple questions? Why are you taking trobalt when your T volume is so low and why cant you use and complete the retigabene users form like everyone else on here?

Have you tried any drugs to alleviate it.....

Where is your evidence for saying that please?

You must have it bad like me - no escape! No sleep more than 4 or 5 hours! I am exactly like you yes........

So what is wrong with it? It is the truth - isn't it?! Except I thought that you didn't stop taking it completely the trobalt but maybe I am mistaken. Why does the truth need to be taken down? I did not see it before but just now and I cannot see why it is not allowed on here? He Danny Boy...

Preslys got his T in May 2014 and started to take Trobalt I think around July or August this year....and ended up with a complete cure. How long is early on to T onset?

Thank you for your post. And most importantly and the reason for taking this stuff is - has your T lowered at all or is it so low normally that you wouldn't notice a difference?

Thanks for bringing this up - liked and shared.

Well anyway how are you getting along with the trobalt? Have you noticed any effect on your T yet and any noticeable side effects? What dose are you on now? and how quickly are you tapering up? thanks as ever

I mean who needs to listen for it - it is always there! So no having to go to a quiet room to ''listen for it''. And the panic is always there too!

But your T was low from using Trobalt so how do you know that it is low from using these supplements - I mean you say your T is low from everything you take - the latest thing i think was moringa? thanks

That is amazing - thank you for posting this. His last words were Wow!

Just read this that you wrote back in June of this year..bit confused as you said that you had reactive T and H way way back and any sound made your T go back up really loud competing with the sound and that is why you could not use the white sound generators given to you, But here you say that...

Danny hi! Forgive me for asking this but you stopped taking Trobalt for one week some months ago when you were in hospital for a nasty kidney infection which was thankfully sorted out. Anyhow during that time your T did not go back up but in fact went back up later on for some unknown reason and...

From what I understood this whatever it is called comes from eggs too so eating eggs will do the same so does it really work?

Yes it is.

@Markku this is exactly the bit that I find so difficult to cope with.......I mean if Larry with his loving family and successful home and working life couldn't make it .....makes one wonder what chance do those who have less than him (for example not such a strong family or support unit round...

Actually I discussed with markku whether it may be possible to have a remembrance or commemoration for Larry on TT and he said that we need the agreement of Larry's family first. I posted on his facebook page plus sent a message to his sister (dont know if she ever saw it (tried sending a...

And as you know you could not get to see a neurologist in the UK and probably same situation in many other countries. You could not get anything prescribed for you and you bought it from another country without any prescription or medical supervision or assistance. This was because you had no...

With all due respect I also was and am really upset by what happened with Larry.....he had many friends who knew him personally and posted on his fb page - at least that way we knew it was genuine! Not forgetting his boys who he left behind and now have to live with this for the rest of their...

What if the machine that you are using switches off whilst you are asleep and so you end up sleeping in silence and wake up to silence......till you put on some noise......does that work too?

Until you receive a better answer I can tell you that Danny Boy had beneficial effects with Keppra.

Danny Boy has but not as an aspirin but consistently

I didnt forget Mpt - I said those trobalt users who are continuing to post here and have not disappeared which was my point. Mpt does not post here anymore so we dont know where he is at with T do we? I also didn't say cured - I said significant relief Locoyeti and Juan Carlos are similar = 1...

Does it say anything like that on the side effects of the drug looking on line?

I have been asking for this for ages and totally agree with you. Rather than just a users experience form but a conclusion form - yes very much required. @preslys and @Danny Boy and perhaps @locoyeti and @Juan Carlos who got significant relief from Trobalt (and yes with Neurontin) and keep...

I have posted on the back to silence thread and suggested this to @I who love music

That is fantastic and you will be the first real person that we know of who was cured of his T by using Trobalt and of course a little Neurontin too at the same time.....fantastic news!

Hi Phil - therefore my idea of a webinar may be a good idea and allow us to meet at the same time?

@LetyO perhaps instead of trazadone an AD...you could try two anti e That is great news Preslys! Is yout T still zero? thanks

I agree with your post regarding the practicalities of things. Skype group? That is already going on - people here on TT have set up their own skype groups which inevitably end up going very quiet to non active whatsoever.....there is also already the chat area on here. Far more...

Translation into english: @Danny Boy another thing - are you continuing to take Keppra. If your H has disappeared do you still have a need to continue to take Keppra? Hope the translation helps?

A study conducted by researchers at the New York University School of Medicine, and funded by the National Institute of Health, found that those with post-traumatic stress disorder (PTSD) had a lower number of active cannabinoid receptors in the brain. According to researchers, this study paves...

She is trying to get rid of her T and she wants to sleep - how will AD's lower her T? AD's are addictive and she will end up not able to sleep without them...and will have to raise the dose. She has already said she doesnt want to take meds and is only taking Trobalt for obvious reasons...

@Geo Glad to hear you are ok - we were all worried for you!

How do you know this? thanks!

@LetyO Sorry for the above post - I can see that you have answered all my questions already in the post you made in Retigabene - users experiences Thank you