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  1. Samwise_The_Loud

    Experiencing the Worst Tinnitus Spike After a Live Music Concert — I Could Use Some Support

    Hello there, @RunningMan. I do use custom earplugs when I'm out and about, and as I say, I avoid loud places. However, I do know my soul; I do know myself. The most risk-averse approach would be to isolate 100% of the time. But I wonder if that's a life worth living for the rest of my long...
  2. Samwise_The_Loud

    I’ve Managed to Quieten Down My Tinnitus After 20 Years

    Interesting. I'm on Taurine and Magnesium myself, but that's more to build hearing protection. I might experiment with this. Thanks for sharing.
  3. Samwise_The_Loud

    Experiencing the Worst Tinnitus Spike After a Live Music Concert — I Could Use Some Support

    Hello, everyone (if anyone is even reading this). A minor update since June 2023 (time flies!). I've been trying to stay off Tinnitus Talk for recovery reasons. It's nothing personal, but I seem to get stuck reading the suicidal threads, which ultimately makes me worse. Things have been...
  4. Samwise_The_Loud

    Going to try taurine, for the GAINS but apparently good for ears too...

    Going to try taurine, for the GAINS but apparently good for ears too...
  5. Samwise_The_Loud

    Tinnitus Spike After a Combination of MRI / Head Injury / Loud Noise Exposure

    Agh, I live in London. I bloody hate the sirens and motorbikes. The bane of my existence. Do sirens need to be that loud? Not sure. @Gateway, stay strong. Probability suggests you will recover. Have a hot bath and relax, that usually helps me. Wishing you all well, Sam
  6. Samwise_The_Loud

    Loud Distressing Tinnitus After Open Air Concert: Is This a Spike or My New Normal?

    I'm afraid you've got to ride it out, Ernie. We've all been there and it sucks. However, just look after yourself and it should pass. Have hope. If you are in the US, getting Prednisolone isn't a bad idea, however some people find it makes their tinnitus worse. If you have used Prednisolone...
  7. Samwise_The_Loud

    Yeah this is what I meant by manual cleaning ^

    Yeah this is what I meant by manual cleaning ^
  8. Samwise_The_Loud

    I still play acoustic guitar and sing, and I'm actually not too bad if I say so myself. Suck on...

    I still play acoustic guitar and sing, and I'm actually not too bad if I say so myself. Suck on that, tinnitus!
  9. Samwise_The_Loud

    How Do You Handle Static-Hiss Tinnitus?

    I've been dealing with hissing and static in my left ear for 3 years now. I did experience brain fog badly for the first year but over time it went away. I did Lenire, which made it worse (bastards). I'm habituated to mine, but there are days where it bothers me or where it gets too much. I...
  10. Samwise_The_Loud

    I have to ask for manual cleaning. In a past life it would have been very difficult to endure...

    I have to ask for manual cleaning. In a past life it would have been very difficult to endure, nowadays it's child's play compare with what we must endure. This condition, whilst harrowing, also makes you strong. Stronger than you know.
  11. Samwise_The_Loud

    Best Hearing Protection for Flying with Tinnitus

    Hi Everyone, So I am generally a strange tinnitus case, I have somatic tinnitus in my left ear (a 3-4/10 usually) and I have non-somatic, or tonal tinnitus in my right ear (usually a 2-3/10). However, I am a big believer in us trying to enjoy our lives even with this condition, whilst trying...
  12. Samwise_The_Loud

    About to go on a 2 hour flight, taken NAC, experimenting with foam earplugs and Bose QC45 ANC...

    About to go on a 2 hour flight, taken NAC, experimenting with foam earplugs and Bose QC45 ANC headphones! Let's see how it goes.
  13. Samwise_The_Loud

    My Tinnitus Spikes from Online Meetings (Not Wearing Headset)

    Agreed, I don't use headphones. Stick with the job, but try to reduce unnecessary meetings. Give it some time for your ears to adjust, don't push it but also don't do zero exposure. Work from the bottom up, so try a week or so with earplugs, low volume + captions. Then try no earplugs, with...
  14. Samwise_The_Loud

    Indeed it is @Joe Cuber, but I'm getting used to it. Not sure it is improving per se, more that...

    Indeed it is @Joe Cuber, but I'm getting used to it. Not sure it is improving per se, more that my brain filters it out more as I get used to it. Stress/alcohol/lack of sleep (usual culprits) seems to make it worse. I figure I'm not blind (yet) so may as well live life.
  15. Samwise_The_Loud

    I've just been on a business trip for 3 days involving flights, lunches and dinners. Managed it...

    I've just been on a business trip for 3 days involving flights, lunches and dinners. Managed it okay with strategic protection. Have hope!
  16. Samwise_The_Loud

    Hey @tiniturk I'm doing okay, thanks for asking! The spike went down (or I adjusted, hard to...

    Hey @tiniturk I'm doing okay, thanks for asking! The spike went down (or I adjusted, hard to tell nowadays?). Currently about to board a flight so we'll see how that goes... Hope all is good with you!
  17. Samwise_The_Loud

    Ah good to hear @Joe Cuber! It is indeed unfortunately, especially with things like VSS. I have...

    Ah good to hear @Joe Cuber! It is indeed unfortunately, especially with things like VSS. I have been adjusting to it so it doesn't bother me too much now, but my night vision is practically non-existent which can be annoying!
  18. Samwise_The_Loud

    Sorry to hear that @Joe Cuber! Hope things have improved! It must be very difficult dealing with...

    Sorry to hear that @Joe Cuber! Hope things have improved! It must be very difficult dealing with other ailments in addition to tinnitus. My health other than the tinnitus/VSS is fortunately well, I'm exercising regularly, sleeping okay and eating well (mostly). Right now I'm having problems with...
  19. Samwise_The_Loud

    Thanks @Joe Cuber, appreciate it! Hope you're doing alright.

    Thanks @Joe Cuber, appreciate it! Hope you're doing alright.
  20. Samwise_The_Loud

    Experiencing a Tinnitus Spike from Quinine in Gin & Tonic— In Need of Support/Guidance

    Certainly possible, although agreed as to finding a quiet bar nowadays! I never remembered them being so loud in my past, they all seem to love blasting music :D
  21. Samwise_The_Loud

    Experiencing the Worst Tinnitus Spike After a Live Music Concert — I Could Use Some Support

    Hey, thanks for your message @Ngo13! Quite possibly, it definitely feels somatic and I could physically feel the muscles move in and around my ear for a couple of days after. My friend spoke to me in a car and my muscles all tensed up. It is a very strange sensation. The spike did settle...
  22. Samwise_The_Loud

    This condition stops you from doing everything, and tortures you when you do nothing.

    This condition stops you from doing everything, and tortures you when you do nothing.
  23. Samwise_The_Loud

    Thanks @Joe Cuber for your support! It did in the end, but every time it takes it out of me.

    Thanks @Joe Cuber for your support! It did in the end, but every time it takes it out of me.
  24. Samwise_The_Loud

    Woah my tonal tinnitus (non-somatic) just ramped-up! This is another level

    Woah my tonal tinnitus (non-somatic) just ramped-up! This is another level
  25. Samwise_The_Loud

    Experiencing the Worst Tinnitus Spike After a Live Music Concert — I Could Use Some Support

    Hi all, Another update. Not sure how I'm here as there have not been any really loud noises following the scream but my left ear is going wild. I keep feeling a tightening or pressure in the muscles around the ear? Someone was talking to me the other day (normal speaking level) and I felt...
  26. Samwise_The_Loud

    All I Wanted Was to Be a Mom — My Vent Story of How Tinnitus Has Broken My Life

    Us diehard LOTR fans need to stick together! :) Even through the most difficult and testing of circumstances which you are currently enduring with grace and dignity, and for the resolution of which I will pray for. One of my favourite LOTR quotes to keep back the tides of darkness is: “It is...
  27. Samwise_The_Loud

    All I Wanted Was to Be a Mom — My Vent Story of How Tinnitus Has Broken My Life

    It was said by Seneca that "Sometimes even to live is an act of courage". I believe this quote applies here more than ever, just hang in there day by day and await the dawn. It will rise eventually, and only when the night is darkest. We're all with you. Wishing you all well, Sam
  28. Samwise_The_Loud

    He got spiked by a scream?

    He got spiked by a scream?
  29. Samwise_The_Loud

    Tinnitus and visual snow are at an all-time high. Life is starting to chafe my soul but I will...

    Tinnitus and visual snow are at an all-time high. Life is starting to chafe my soul but I will not break. Kick life in the teeth.
  30. Samwise_The_Loud

    Experiencing the Worst Tinnitus Spike After a Live Music Concert — I Could Use Some Support

    Hi all, A somewhat brief and unfortunate update. I was playing Monopoly with some friends when a girl landed on Mayfair and decided to let out the loudest banshee scream for maybe 2 seconds. I wasn't wearing protection, because I thought playing a board game would be harmless. Lesson...
  31. Samwise_The_Loud

    Had a worsening: a girl screamed during a game of monopoly. Feeling quite frustrated with it all :/

    Had a worsening: a girl screamed during a game of monopoly. Feeling quite frustrated with it all :/
  32. Samwise_The_Loud

    Lenire — Bimodal Stimulation Treatment by Neuromod

    In the same way that shooting a target range with a wide-spread shotgun does something. But it doesn't hit the target accurately. There are success stories, but also a hell of a lot of failure stories including me. Ultimately, if you want to take the 50/50 gamble, that's your choice. If I had...
  33. Samwise_The_Loud

    Lenire — Bimodal Stimulation Treatment by Neuromod

    As someone who had their tinnitus get worse due to Lenire, the fact it's getting approved in the USA is very worrying. Thousands of vulnerable people are going to have a bad time. I only purchased it because I was desperate and distressed without proper knowledge of this condition.
  34. Samwise_The_Loud

    Suicidal

    Come on chaps, life is already horrible for a lot of us - can't we put aside our differences in mutual acceptance and support of each other (even those we disagree with)?
  35. Samwise_The_Loud

    Experiencing a Tinnitus Spike from Quinine in Gin & Tonic— In Need of Support/Guidance

    Thanks both for your kind words! Really appreciate you taking the time :) The spike has gone down a bit, as you say I think it lasts in your system for maybe 48 hours? In any case, it really helped having support from people who know exactly what I'm going through. Wishing you all well, Sam
  36. Samwise_The_Loud

    Experiencing a Tinnitus Spike from Quinine in Gin & Tonic— In Need of Support/Guidance

    Hi All, This is a quick one. I was recently out with a friend, and I had 3 gin and tonics. Each drink with one of those small bottles of fever tree tonic water. I take usual precautions, but I honestly had no idea about the side effects of Quinine found in tonic water. Immediately after...
  37. Samwise_The_Loud

    I know what you mean with the fear of worsening, it is just a matter of balance with remaining...

    I know what you mean with the fear of worsening, it is just a matter of balance with remaining vigilant whilst also allowing yourself to relax. It takes time to adjust, and for a long time I did not want to accept it. I avoid obviously loud places but still lead a (relatively) normal life. Stay...
  38. Samwise_The_Loud

    Christmas may have spiked my T, but seeing family was worth it

    Christmas may have spiked my T, but seeing family was worth it
  39. Samwise_The_Loud

    Experiencing the Worst Tinnitus Spike After a Live Music Concert — I Could Use Some Support

    Hey @tiniturk! I've been enjoying Christmas! Hope you have too! Hey snap on the tinnitus! That's similar to what mine is! Left ear 5/10 and right 2-3/10. My tinnitus definitely spiked over Christmas (crackers, screaming children etc). I used ear protection but nowadays I don't react so...
  40. Samwise_The_Loud

    Tinnitus Spike After Swimming in a Quiet Pool with High Chlorine Levels

    Thanks for the reply @Lane! That seems to be a logical conclusion regarding chlorine levels. To update you, my tinnitus did go back to baseline (although it is now spiking due to screaming children at Christmas). In terms of STS, that's certainly on my radar! Might give it a try. Thank you...
  41. Samwise_The_Loud

    Tinnitus Spike After Swimming in a Quiet Pool with High Chlorine Levels

    Hi Everyone, I've always had problems with pressure and my ears (on airplanes etc), and my eardrums do have scarring on them since childhood (not sure how). Anyway, I've always swum a lot. It relaxes me and is good exercise, and I've never had a problem swimming without earbuds. However...
  42. Samwise_The_Loud

    New University of Michigan Tinnitus Discovery — Signal Timing

    In honesty, I don't think so. Getting a good night's sleep can work wonders for the mind and I think, with the serotonin boost of having no tinnitus, I couldn't care less if I had cognitive decline... Sorry, I don't mean to be a downer. Bad tinnitus day. I think the results are promising...
  43. Samwise_The_Loud

    New University of Michigan Tinnitus Discovery — Signal Timing

    Not going to lie, that does worry me. I have not had the best of luck on these types of devices so I'll probably fall into an outlier group. It seems the left side is the 'better' side to be in. BUT somehow you can have a dB increase, but a TFI decrease? Trying to work that one out. That graph...
  44. Samwise_The_Loud

    New University of Michigan Tinnitus Discovery — Signal Timing

    My thoughts are with @AfroSnowman on the TFI point, I think dB reduction is a far more reliable metric to use and the incorporation of TFI is likely to assist on the FDA approval process. For what it's worth, I don't believe this is a sham. Trust me, I actually bought and used Lenire. It made...
  45. Samwise_The_Loud

    Palm Springs Hearing Seminar December 2022: Coverage

    Amazing work and some very exciting developments! I think I can speak for all of us when I say what you both have built here is such an important lifeline for so many! I remain thankful and grateful for everything you do, come what may. This has definitely sold me on donating to keep this vital...
  46. Samwise_The_Loud

    New University of Michigan Tinnitus Discovery — Signal Timing

    To my mind this is fantastic news! Celebration! :rockingbanana:
  47. Samwise_The_Loud

    New University of Michigan Tinnitus Discovery — Signal Timing

    Sounds somewhat promising! Thank you @Hazel and @Markku for the invaluable work you do to aid our cause!
  48. Samwise_The_Loud

    Suicidal

    Hey All, I'm in the mild/severe camp of just tinnitus with a fresh spike underway, but I've certainly been suicidal at times even before tinnitus. Just wanted to say that I read what's posted on this thread, and I am sure I am not alone in my reading and in saying that each of you are counted...
  49. Samwise_The_Loud

    Experiencing the Worst Tinnitus Spike After a Live Music Concert — I Could Use Some Support

    Well, now I am in another spike. I was just driving back home yesterday (I have a 10 minute drive home from work) and a loud car went past me. Windows were up and all, so whilst loud, it was muffled. It cannot have been more than 85 dB. But nope, in my left ear my tonal tinnitus is louder than...
  50. Samwise_The_Loud

    Muffled Hearing and Loud Tinnitus After I Went Out Clubbing Last Night

    It's insane that this is the state of the UK. Having gone through the system myself, the fact that tinnitus sufferers have to lie to get the treatment they desperately need just adds insult to an already acute injury. Hope everything is settling @Pauli, I know how hard it can be but seems like...
  51. Samwise_The_Loud

    New University of Michigan Tinnitus Discovery — Signal Timing

    As someone based in the UK, I'd be keen to understand too. To be honest I'd be willing to travel to the US if needed.
  52. Samwise_The_Loud

    New University of Michigan Tinnitus Discovery — Signal Timing

    In Shore we trust! I think it only works if you can modulate your tinnitus. Joke's on them, I have both kinds!
  53. Samwise_The_Loud

    Exposed to Loud Noise While in the Process of Removing Earmuffs

    I think the sounds certainly may have seemed louder because they were previously being protected, and maybe an air gap, although I'm not sure this makes a huge difference in my opinion with regards to noise damage. Fundamentally you cannot increase the loudness of a particular event by air...
  54. Samwise_The_Loud

    Spike from KFC (MSG)

    Holy hell glad I am not alone. I just had KFC yesterday and suffered possibly one of the worst spikes ever. My normal 3-4/10 hissing jumped to like 8/10 unmaskable hell. I've had salty foods with maybe a small increase, but nothing like this. I can report after roughly 24 hours it has gone...
  55. Samwise_The_Loud

    Tinnitus of Unknown Cause Has Flipped My Life Upside Down

    Hi Jonnie, Welcome! There's some great advice given already, but number one I would say is not to panic. Tinnitus has a relationship with stress, so try to minimise stress where you can for now. Otherwise, try to use ear protection in loud places, and don't go anywhere that is crazy loud for...
  56. Samwise_The_Loud

    Sizzling/Hissing Noise in Head

    This has been my exact experience as well, in addition to noise having an effect as @Sugarpuddle mentioned.
  57. Samwise_The_Loud

    Sizzling/Hissing Noise in Head

    Thanks Sugarpuddle and Joe, I will look into the arthritis cream! My jaw muscles are very tender, this is made worse by caffeine. I got Botox injections which helped greatly, however, sadly it has worn off by now (this is normal after 3 months). It brings me great solace to know that I am not...
  58. Samwise_The_Loud

    Sizzling/Hissing Noise in Head

    I have this exact noise! It is certainly modulated by jaw movements, and I have been wearing a mandibular splint recently for the TMJ so I'll let you all know how that goes. I have also been to an osteopath. The hissing is not reactive, seems to get worse with stress/caffeine and the hissing...
  59. Samwise_The_Loud

    My Tinnitus Got Spiked by a Tower Fan?

    Hi Everyone, So currently a heatwave is happening, and being a normal person I decided to buy a fan. This fan, in fact: https://www.amazon.co.uk/gp/product/B08729TQKV/ref=ppx_yo_dt_b_asin_title_o01_s00?ie=UTF8&psc=1 I'm not sponsored or anything, and I'm not making any recommendations...
  60. Samwise_The_Loud

    Experiencing the Worst Tinnitus Spike After a Live Music Concert — I Could Use Some Support

    Hey Scott, Thanks for the comment, I'm very sorry to hear about your present circumstances. I pray for your health and recovery, and I'm sure time will heal your wounds. I shall protect my ears as best I can in this life until a cure is found. As a small update, my spike is slowly getting...
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