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Agreed on both points!

My tinnitus usually is a steady-state high tone. I can think of a couple other more erratic manifestations I've had that blessedly so far are quite temporary. I'd rather have at least a slightly louder steady high tone than some of the other soft erratic ones for sure.

I don't have deep knowledge here, but it's common for drug trials to work in mice and fail in humans. The two are highly similar--many successful human drugs after all have started after successful trials in mice--but the differences are enough to make it a bit of crapshoot. Very sorry for all...

Research subjects are now being recruited for this device in the Boston area (Mass., USA): https://rally.massgeneralbrigham.org/study/tinnitus_research_study You can apply to enroll on that page. From that announcement: What we are studying We are doing this research study to evaluate a new...

You've had a tough road, best of luck to you and thanks for communicating what you can, when you can.

That's a fairly significant mistake! Good to hear, thanks for sharing.

Don't worry, they're not going to shut down the trial based on one possible NDA violation. Millions of dollars spent on drug development in general and double- or gazillion-blinded studies specifically would never be risked if those investments could be sunk by one person over-sharing their...

Will you let someone else focus on what I said, and not what you imagined I said? The distinctions I'm drawing are not complicated.

To be clear, I am not saying that the preliminary, promising results of this drug were the result of a placebo effect, or that this particular NDA-breaking participant (if it's for real) is just experiencing a placebo effect. I'm saying the placebo effect is possible, and that's one reason...

If you would like to learn more about placebo effects and hearing, googling up some studies isn't difficult. Especially in relation to hearing aid trials. Here's one: Placebo effects in hearing-aid trials are reliable "Participants compared two devices that were acoustically identical, except...

Actually, they could, that's part of how the placebo effect works. And the online hearing-challenged and tinnitus community is small and connected enough for this to spread like wildfire. And there's no way to determine if this is accurate and truthful. Of course we're human beings and many who...

I had never tried this before, but I get a very slight but definite reduction in volume by clenching my jaw. Certainly not something I could do enough to help. I agree that the latest exclusion-criteria list is awfully specific across an odd group of characteristics, and that by the time the...

It's a risk but it's not automatic. I needed an MRI to rule out acoustic neuroma last year. I did some research to find one of the quieter machines in my area (major metropolitan area, so I had more choices than many), had it done (no neuroma, yay!), and escaped without any increase in my...

That's great, so thanks for looking into this and thanks to the others who learned of this and proposed it.

When I had my steroid injection to see if it would recover any of my hearing (nope), talking didn't come up--and while I might have said a word or two when they left the room, I think any extensive talking would have drawn attention to my throat and thus swallowing--I'm finding it hard not to...

Yes, although it was the second antibiotic I was given--as planned--and I can't remember what the first one was. FWIW I'd taken Azithro before without any ill effects. I am not a doctor but I'll always feel my hearing loss and tinnitus was the result of the walking pneumonia lodging itself in...

Specifically in reference to this: If the theory is that tinnitus may improve by restoring hearing in the same frequency ranges as the tinnitus itself, why would this be any different to a hearing aid that had the capability to do the same thing? Some people do, in fact, experience less...

Many, you can count on it. I spend time at the Acoustic Guitar Forum and one popular thread currently has 52 comments and around 1,100 views.

Just jumping in here quick before I get to the end of the thread--in the U.S. it's very unusual for health insurance to cover all the cost of a hearing aid (the high end of standard aids can go up to $7000) and many plans don't cover it even partially. My own good plan covers up to $2000 or so...

Agreed. Having read the excerpt above, everything sounds like the same risk as the steroid injection I received in a failed attempt to restore some hearing loss. Didn't help my hearing but I suffered no ill effects.

I'm not sure if something is missing from the above--like maybe, you're talking about recovery after some type of damage. But I had one of these injections early this year for steroids. It was a late attempt to restore some of my hearing, and while it didn't help, it didn't damage anything...

Amazing interview! Cannot thank the Tinnitus Talk Podcast team enough. This is just so impressive.

A lot of truth to this. E.g., from the web, The first name for penicillin was “mould juice.” Scottish bacteriologist Alexander Fleming accidentally discovered the antibiotic in 1928, when he came back from a vacation and found that a green mold called Pennicilium notatum had contaminated Petri...

@Hazel and company, I'm so very grateful that you persisted and saw this through. THANK YOU! As a Patreon supporter I want to encourage anyone who is able to sign up if you are able--and I'm well aware and respect the fact that many are not in a position to do so. But this resource is...

I'd be interested in a more informed answer than what I'm about to share, but during the first four months or so when I experienced hearing loss and tinnitus, I practically lived at my ENT's office and eventually got sent to a super-duper specialist in the area. ENT put me on prednisone two or...

Hey, I think I read somewhere in here your tinnitus recently increased significantly. Hang in there, and thanks for participating here, it's uncommon and we appreciate it.

It's very hard to wait for something so long when it's so important, but there's no basis to say that at this time. Hang in there.

Dr. Cliff is a practicing, board-certified audiologist and an outstanding resource; his YouTube channel was a godsend when I started my hunt for hearing aids around the time I learned I had hearing loss and tinnitus. I saw the video around the time it came out and while I don't have the time...

This does't have much to do with the main point here, but there's a comment about how getting down to -20C for storage requires dry ice. That doesn't appear to be so. In my search for a small home freezer, since they're hard to get a hold of right now, I started stumbling across medical-grade...

Totally understandable and 100% the right thing to do.

Late responding to this but I pretty much agree. He's a great resource but this isn't as complete as I'd expected. On the other hand he doesn't like to overpromise things either, so I think this reflects that tendency. At this exact moment, that's not bad advice.

I'm jumping into the middle of this so pardon me if I'm missing a nuance, but I didn't have particular trouble getting an appointment with an ENT here in Northern Virginia USA--a week, maybe ten days, though it can take longer for more routine issues. He does those shots regularly and while he...

Major likelihood. I had hearing loss and tinnitus basically diagnosed at the same time. This followed my recovery from very severe walking pneumonia. My two ENTs said we'll never know for sure, but it was likely associated with that.

If you look just a few posts up, you'll find my detailed post about trying the device; it did not ease my tinnitus, and fellow community member Lilah said it didn't help her either. The Otolith employee who conducted the test on me said it had helped some; details in my Jan. 23 post. It's only...

Total speculation but it could just be to update their knowledge after initiating coverage on Oct. 28 ("JPMorgan analyst Anupam Rama initiated coverage of Frequency Therapeutics with an Overweight rating and $25 price target. The analyst believes early data for FX-322 set the stage for...

Donated (several days ago, didn't really follow the thread here).

That's great! I would like to specifically mention here how patient and persistent the Tinnitus Talk team has been while struggling with multiple technical issues. Thank you!

Wow I'll say! I posted it on my Facebook feed, signed the petition, and will donate. And I'm in the US (as I know many others who have or will participate are).

I'm not a scientist or researcher but this sound like a breakthrough.

Thanks for going & updating us. This may be a good time for me to say I completely recovered from any feeling of slight nausea or dizziness (dizziness is too strong a word for me but I can't think of anything else) later on that evening, and I've faced no further issues since then.

I've had that injection done for a steroidal infusion (didn't help hearing loss, sometimes it does if done quickly enough), and not swallowing for a half hour was the toughest part. The injection itself wasn't fun but honestly, half of it for me anyway was the notion of a needle there...

I'm just so grateful for your persistence and enterprise. Thank you so much.

I participated in the current Otolith trial at a Washington, D.C. location today. Headline: It didn't help me, but the guy running the test said it had helped some. Notably, he said the company had attended some local (Northern Virginia) meeting this week, and they tested it on 10 people, two...

True, and my impression is that Frequency Therapeutics has been among the least interested, period, in interacting with Tinnitus Talk.

I didn't realize any such drug could fully reach the apex, that's amazing, and great!

The joke I encountered when I first acquired hearing loss and tinnitus loss was something like, "a cure is just 5-10 years away, and always has been." But solid advances really are being made now. It's absolutely not gonna be 20 years and in my opinion not even ten. What's happening with FX-322...

The key word "trends" is something @FGG was referencing and that I didn't catch, FYI, so I'll have to go back for that. I mean it makes sense since they're testing for it, while it's clear they're talking only cautiously at this point about tinnitus.

I don't think so, though I'm planning to give the whole thing another listen. The speaker was talking about areas where improvements have already been measured, already discussed above. He's saying going forward, in addition to continuing those measurements, they're going to add: "ultra-high...

FWIW the exact quote from the stream is, “I think what they’ve clearly said was that, though this isn’t a life-threatening disease, it’s a life-altering disease, and they take this just as seriously.”

Thanks to all who followed this presentation summarized it and discussed its implications. Appreciate it.

I'm sorry to hear of your now additional health challenge. I had never heard of NC headphones creating tinnitus but looking around I can at least find a report or two of it aggravating existing tinnitus, at least temporarily. I wore such headphones a year an a half ago both ways on a DC-LA...

I haven't looked closely at stats like these for years, but as I recall it's long been true that men as group "successfully" commit suicide at higher rates than women, while women attempt suicide more frequently. And yes women have been closing the gap in completed suicides at least in Western...

As noted the first S stands for sudden. Various online definitions refer to loss over "several days" and "up to three days."

This shows how it's so hard to draw lines--I think a calm respectful approach is most of the solution though. I've solved other medical problems by going off the beaten path, and been darn near tortured by credentialed physicians taking me down other non-beaten paths. Years ago I was...

JohnAdams, master of understatement lol.

That is awesome news! Thank you!

I hope this thread can continue to turn away from, for example, a Hate John Adams forum, not least because John is a fellow-sufferer along with the rest of us, as unsupportable as I think his reaction to Hazel and Markku has been. This is part of what I mean when I say you can never expect exact...

Noooobody expects the Spanish Inquisition... Brits and Americans especially of a certain age may get that. I think lots of folks are on edge for all the obvious reasons and then some. I literally cannot imagine what I would do without this forum so I hope tempers can cool. I have been online...

Words are inadequate but I'm so very sorry to learn of this. God be with you Allan, and all your loved ones. Extra hugs for members of the community here who connected with him.

I don't speak for Hazel or Tinnitus Talk, but as I recall there was a scheduling issue that prevented the initial recording from taking place. I think the new goal was February or possibly March.