Right, so this is nothing.Be kind, for everyone you meet is fighting a hard battle.
Right, so this is nothing.Be kind, for everyone you meet is fighting a hard battle.
Thank you Carlos for everything you bring to this community, as well.
That's the way (as you know has also been yours truly status for a long time). I don't know, maybe I take it to the extreme. I guess you could say I have a tendency of letting people abuse me and giving people the benefit of the doubt for longer than some other people would. It's soon my 9-year anniversary here and I've come across an assortment of individuals - most very kind and understanding. There's been some more difficult cases. People who take their frustration out at others. I've always tried to be as lenient as possible. I want to think showing people kindness even when they are very mean to you can have a net positive result in the end. In the majority of the cases, this has been true; I've seen some amazing transformations.Be kind, for everyone you meet is fighting a hard battle.
Glad to hear this. I want you to also know that your well-balanced and thoughtful contributions to the research section haven't gone unnoticed. You are an example of how a person can discuss - and disagree too - without taking it personal. It would be a pleasure to meet you for a coffee if our paths ever cross.Hi Markku and Hazel.
I would read his post but I can't because he is the one and only resident of my ignore list.
Posts like the one you describe are why.
I believe you are more than capable of running this forum. I've disagreed with some apparent moderation in the past. That's par for the course for a place like this.
Thanks for the time, energy and emotional positivity you put into it.
I believe staff on any other forum would have deleted John's post and banned him on the spot after his reactions today. I've been on various forums since the late 1990s and I honestly have not seen such behavior been acceptable anywhere.Ok, I have HAD IT! Every time I visit this site, there is always something going on! I know that I played a role in the past, and I'm sorry for my part, but can the nonsensical shit just stop already? This is supposed to be a support forum, but ALL I see is constant bickering, insults, slander, vulgarity, and it NEVER stops! Now this shit even featured in the home page? What has become of this place? It has gotten way out of control! The cycle of meanness needs to end!
John, I know Ed has approached his concerns poorly in the past, but do you have to respond with cruelty? To mock someone for going through a hardship is beneath you. I don't think Ed deserves that. I know you're better than that. If you don't like the way you've been treated, then how on Earth is constantly being antagonistic going to help you? It just adds fuel to the fire and puts it into an endless cycle. Please, try to approach things with grace. This argument might shift in a better direction if you try to handle the disagreements without the grudge fueled rage.
This has gotten ridiculous. At least someone be the better person for a change. Please! This is starting to feel like elementary school.
Thanks Glenn. I appreciate your viewpoint. I will take the notice off soon. I realize now it can also add unnecessary burden for struggling members, too, to be asked to take part in this kind of schism.I'm not going to comment on the particulars of whatever feud he's entered into with the Tinnitus Talk staff. Forum members should not be dragged into this sort of thing.
He has been a pioneer with regards to various experimental treatments.
I have undergone selfless surgery at my own cost making myself a lab rat and I have scars on my body from bone marrow extractions.I am pretty stunned at this.
When the banner address first displayed, it reminded me of those apocalypse news crawlers often seen in Hollywood disaster movies, suggestive of the fact that our tinnitus community was now in a parlous state; that a pirate element had seized the status quo controls and that the best recourse, and indeed my first impulse, would be to head to a silent, wooded glade and to wait in abject hope that the insurgency would soon be quelled.
Having said that and having read the post in contention, a few thoughts did indeed come to mind...
Firstly, @JohnAdams fair play for the skin you have put in the game. I'm not knocking your spirit or endeavour in investigating any option which may slay this vile ringing, hissing, whooshing or pulsatile beast. Or for your passion in desiring a cure and for articulating your frustration at those professionals who you feel are not pulling their weight in correctly investigating one or in spending the funding given to do so appropriately.
However, that said, insulting @Ed209 @Hazel and @Markku is nonsensical and, for me, pretty unforgivable. The forum we have here provides a focal point for us to interact and the opportunity to form a coherent, mutually beneficial community. With so few people in external society openly aware of the pain and suffering many of us endure, and indeed a lot of medical professionals still ignorant to the potential severity of our condition, it is a VITAL resource. It is very clear the selfless work that @Hazel and @Markku put into raising awareness, in advocacy, in moderating and maintaining this forum, as well as in many other ventures and avenues. Which, and I'm open to be corrected if I'm wrong, they mostly do voluntarily. Graceless ad hominem attacks regarding their intelligence is just ugly and dispiriting. What's the alternative you are suggesting? That they just don't bother? Or that they arrange to interview researchers and product developers and then just turn up to the interview and start insulting them? This doesn't seem much of a longitudinal plan and when and where else has it proven effective?
And as for the comments on @Ed209. I'm sure he doesn't need me to rise to his defence, but these vulgar solecisms are revolting. Ed essentially asked for proof of success regarding Minbo Shim's treatment. That's all. Scientific proof. This does not seem a significant ask, or a character assassination, when the prospect is spending thousands to access it. Ed was essentially protecting the vulnerable from exploitation, which seems commendable and compassionate, in my opinion. Furthermore, to critique the work he put into Danny's fund is abominable. Everything in that campaign was conducted openly, with sensitivity, tact and respect. The recipient of the money was also chosen by a community vote between those who donated, so how Ed can be blamed for where it ended up is illogical. Again, what do you suggest as an alternative? Inaction? Taking to the streets en masse and stabbing a DJ in the neck?
What I do know is, when I've been broken and beaten by this condition, Ed has been there to help and to pick me up and to offer counsel, support and advice. This has been in some of the darkest times I have ever endured and when he himself is also walking through struggles and exacting tribulations. The character you are so at odds with is seemingly a projection of your dislike towards him. It doesn't resonate with the actual experience of talking to him and knowing him on a human level. The guy's generosity and kindness are rare traits in today's cynical postmodern world. Fundamentally, he's just a thoroughly decent bloke.
In the interests of community, shared suffering and both inter-mutual empathy and compassion, please desist John in lashing out at those who are only trying to help. Air disagreements by all means, but please do it tastefully and with an appreciable level of respect.
...I'll take myself off to the wooded glade now...
We need fire.It just adds fuel to the fire
I think John in particular demonstrates a consistent pattern of sweeping through the forum and kicking up drama, typically with rude dismissive one-liners. My opinion is that he enjoys the drama because it makes him the center of attention. It doesn't matter whether the attention is positive or negative. Even his revolving Ren & Stimpy avatar tells the world that he is desperately seeking attention. ...... When he's trolling, his posts drive me insane but I've dropped enough Lighten Up Francis GIFs and it seems to do nothing to cause him to self-reflect and moderate his tone...
Firstly, @JohnAdams However, that said, insulting @Ed209 @Hazel and @Markku is nonsensical and, for me, pretty unforgivable. ... Graceless ad hominem attacks regarding their intelligence is just ugly and dispiriting. ...... And as for the comments on @Ed209. I'm sure he doesn't need me to rise to his defence, but these vulgar solecisms are revolting. ...... In the interests of community, shared suffering and both inter-mutual empathy and compassion, please desist John in lashing out at those who are only trying to help. Air disagreements by all means, but please do it tastefully and with an appreciable level of respect.
So what's your next move, John? Pressure-cooker bombs?We need fire. There is a medication that should be available right now that lost funding because investors don't think it is profitable. Hug emojis and 50% success stories aren't really advancing our cause.
How are we supposed to achieve this? Shouting at professionals or inside an echo chamber isn't going to advance our cause.We need fire.
There is a medication that should be available right now that lost funding because investors don't think it is profitable.
Hug emojis and 50% success stories aren't really advancing our cause.
Lane... I have to admit it... I haven't submitted a message to here in quite some time because of JohnAdams. I see people getting ripped apart by him all the time and it makes me feel, well... insecure. I hope he takes your message to heart.Thanks @GlennS and @Elfin for your honest appraisals, which I unfortunately have to agree with. I don't have too much to add, except to say that JohnAdams' presence on this forum has become utterly exhausting. His posts are continually (many times a day!) filled with so much anger, denigration, personal attacks (which often includes outright fabrications and misrepresentation), name calling, extremely judgmental attitudes, and more. -- And yet he seems to hold himself up somehow as the only one who knows "truth". If he wants to rage away at the world on Twitter or some other place, so be it. But when it comes to raging out at the very people who keep this forum running, and who are doing the most for the tinnitus community at large, then that's totally acceptable.
@JohnAdams, don't you think it's about time for you to clean up your act? If I may ask, would you want your children to be modeling the behavior you continually exhibit on this forum? Don't you think teaching them how to demonstrate kindness to their fellow human beings would be a better route to go? -- I too hope you would desist in your lashing out at others, because like others have posted, I believe you have much to offer. But you seem to continually, and unnecessarily, make mountains out of molehills. I think your greatest contributions will only come when you learn how to treat others with greater tolerance, respect, kindness, and compassion.
Tony,Lane... I have to admit it... I haven't submitted a message to here in quite some time because of JohnAdams. I see people getting ripped apart by him all the time and it makes me feel, well... insecure. I hope he takes your message to heart.
Despite him, this is still the best tinnitus community by far! I am very thankful for everything Hazel and Markku do here.
Never Split the Difference: Negotiating As If Your Life Depended On ItWe need fire.
There is a medication that should be available right now that lost funding because investors don't think it is profitable.
Hug emojis and 50% success stories aren't really advancing our cause.
Three very important things Lane, especially on a support forum.respect, kindness, and compassion.
Oh agreed. The first sentence is why I muted you, John, within two days after my arrival here. The second is why I unmuted you--with Markku's help ironically enough, since I was having tech issues. I'd seen some of your comments on a browser where I wasn't logged in and decided I'd try to benefit from your intelligence and, frankly, bravery.And let me end this by saying that while I would lie if I said I didn't think John has treated us kind of awfully at times, and has a bit of a temper, he also has a very bright and intelligent mind.
Which medication lost funding?We need fire.
There is a medication that should be available right now that lost funding because investors don't think it is profitable.
Hug emojis and 50% success stories aren't really advancing our cause.
"Truth is false in the mouths of certain people even when objectively true."@Markku, I am on the side of truth and justice.