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But I must say it's tragic to come back here every year and see that none of these "treatments" ever work out.

I've been doing much better (with regards to my tinnitus) since 2020, when I finally began therapy.

I'm not totally out of the woods, mentally. Even now I still have infrequent periods where I am more annoyed - bordering on worry - about if my tinnitus is worsening or not. In the last 2 weeks I've been on Amitriptyline for gastric issues. Even though the dose is relatively small (50 mg), I...

Increase in volume? Decrease? I can't say for certain. When my tinnitus first started I could hear it while driving on the highway. It is still that loud, but "mentally" it is not so loud, it seems to fade into the background when I am doing anything.

I wouldn't say it was entirely habituation. I needed therapy as well as time. It's still an annoyance for me as well as something I need to be worried about constantly with regards to potentially making it worse via loud noise or medication. However, moving back to the suburbs has made the...

Apologies for bringing this old thread back from the grave. I haven't been back here for a year and a half at least. I figured I should do a five year anniversary post but forgot at some point. It's been six years for me. Kind of amazed I'm still here, the first two years were so difficult and...

You think it's possible that the combination of both medications led to a perceived increase in tinnitus volume? I've not had issues with one or the other in the past.

No, I was not. An ENT saw me shortly after developing tinnitus and when I asked her if there was anything she could do, she only shook her head. A year later I asked her why she didn't give me prednisone and she said it was because emotionally, I was a wreck, and she didn't want to make things...

@Lurius, @GlennS, I mean this with as much respect as humanly possible, but guys, we're talking about medical professionals here. Any time a person in their care so much as mentions suicide or the possibility of no longer continuing life, the programming kicks in. They can't exactly ignore a...

Hi people. Long time no see. I've been taking Phentermine to help with weight loss (also known as Adipex-P) since May 18 and twice now had noticeable increases in tinnitus. The first time coincided with a day of louder than normal activities, so I did not consider Phentermine to be the cause of...

Apologies if this isn't the place to do it. I haven't monitored this thread in close to two and a half years. Can anyone point me to the post(s) that give some of the more current information, what we know, about Lenire? It seems like they are continuing to do trials but are not seeking FDA...

They've been doing trials with this exact type of "therapy" for almost 25 years. It really helped me! But no, they're not selling it or anything like that. I'm not sure where I would even start. I could ask the researchers if I dug through my old emails where to get something similar if you'd...

Always ignore the doctors when they say you have "normal" hearing. Normal hearing in the US is up to 25 dB lost, which is very noticeable. I personally have 15 dB across most frequencies and quite noisy tinnitus. Yes, the Prednisone is rarely, if ever, permanently effective if taken after the...

Sorry to resurrect this dead thread. I've been away for a while. Would I purchase one of these devices? Probably but there are some serious downsides, at least for me. One of my devices was probably damaged at some point and when it picked up the tiniest bit of wind noise it would create a...

So, big correction I have to make. I still have hyperacusis. That much is obvious. However, I went in for my final test this last week and the difference was dramatic. In all fields I had between a 10 and 25 dB increase in all thresholds. I am waiting for more official results but this was what...

They are still recruiting, however, I must warn you that it did not do as much as I expected. The devices are very effective at blocking out painfully loud sounds and the masking sounds are very good. Maybe they will work better for you guys.

hey man, still with us?

Welcome. I recommend you see an actual ENT ASAP.

Hi everyone and @Lucifer (sorry for the delay, I never got a notification) Long story very short. I'm sorry. I went into the initial appt on the 7th thinking I had a fix for my hyperacusis. There was some concern over a possible infection and by the 15th I was given a clean bill of health. On...

The recommended course for a true acoustic trauma (gunfire etc) is two weeks- 60mg for 7 days followed by a taper beginning at 60. Sleep can become an issue at first.... once your body gets used to it you'll be fine.

So what was the treatment my friend? Any luck with sleep?

When you say Acoustic neuromodulation, you mean ACRN? Have you tried the program itself?

Also my left ear continues to hiss and ring like a mother fucker every day since that idiot whistled into it. ENT says mild inflammation, even after 6 days prednisone, and tons of ear wax at the entrance. Nothing else.

Still with us cabbie?

Thought I would give an update, think I could use some advice in this regard. I have been trying to get a hold of some sort of tinnitus management/counseling for the last few weeks now. My parents, who are both psychiatrists, recommended I visit a family friend, (who is also a psych, though...

I'm taking prednisone right now (was supposed to start yesterday) and will be on it till the 15th or so. But it definitely did not calm down on its own after 6 days.

"I should go to a community night and hang out with some of my friends, it's been a month since one was organized as classes have been out for break." "Oh, here's my buddy from the Army. He has tinnitus also, so he should be aware of my discomfort around loud sounds." Proceeds to whistle at...

That's exactly what I said to myself when this first happened... still here unfortunately.

No, thanks to @lymebite I actually found out about this. I actually attend a university right down the street and didn't know about this trial.

Oh, my hearing test. Yeah, it's still a mystery as to how I have tinnitus this bothersome and hyperacusis bad enough to give me headaches at cocktail parties if this is what my range looks like. They even offered to test to 20k hz at a later date. Keep in mind this isn't the official reading...

OK! So, good news and bad. The good news is I am all but definitely "eligible" to continue. I had the full range of tests done (standard air conduction, bone conduction, LDLs) and I'll have the results below. As part of the testing I also sat in the booth as they cranked up the noise until I was...

The appointment is in the later morning, and I should have results for you guys by 6pm EST.

I live in FL so it wouldn't arrive in time.

You've gotta be fucking joking man. I ended up right next to a parked car last afternoon when its panic alarm went off (a series of pretty loud honks). I immediately moved away from the scene but it hurt quite a bit afterwards, and I noticed as soon as I came inside that I had a new sound. I...

Yup, and I'm pretty sure I just damaged my hearing when the car alarm next to me went off. I have some sort of low frequency rumbling in both ears (sounds like horses running) and new ringing sounds the last 12 hours.

Hey, how have you been? I noticed you haven't posted since May and haven't been on for about two weeks.

Wait, did it go away or was it habituation? As in, that 4 year period where you said you didn't have it. I'm encouraged by the speed of medical progress but "a year or two" is a little optimistic when you consider the length of FDA trials. I've already had tinnitus over two years.

That's not very encouraging. I know people three times my age who either don't have tinnitus or have it but are apparently unbothered. The one upside of this is "I may hear silence again, if medical advances make it possible" but there is also the possibility that I might not ever again... which...

>never follows up wonder what happened to him?

Thanks for the info. I'm afraid the 40mg / 4 day taper is all I'm going to do for now. I don't necessarily want to lie to the staff when I come in on the 7th for my hyperacusis evaluation and they ask me if I have been taking prednisone. At least this way I am not taking pills immediately...

That's not a bad place to be in two months following onset, honestly. I'm 27 months in, and I maaaybe got to that point at my sixth month. Even now there are times I feel that way. But it's usually following a spike, be it in noise or anxiety.

that's considerably more than I've ever gotten. I typically get 60 mg taper packs- 60 mg per 1 day, then 50, then 40, etc.

Absolutely nothing about the eustachian tubes, though I am due in for a follow up on the 10th. The loudness has come back down significantly, though not to the level where it was, and there are definitely new tones that have stayed around. The fluid still refuses to fully drain and the crust...

I personally recommend wearing high end ear plugs (the ones that offer 30+ NRR db). The muffs will add protection on top of that, and that's what I do for most loud things, but I would prefer to not wear muffs to a wedding my own friend has told me will not be loud

Well, I'm having a good week so far. I went back to the ENT yesterday and she "found" a fungal infection on the right side too, and inflammation on the left ear drum (although it seems to be "improving"). So of course I need to be taking ear drops on the right side as well. I'll admit I had a...

Hi @AlbertJ , I went to the doctors as I said. Doc was overall dismissive of my problem but at least took a moment to hear my complaints. They insisted on a hearing test which revealed nothing abnormal (except for a +5 to some of my higher frequencies) and insisted on an ear cleaning as well...

Hey guys, I think I fucked up. Or at least my doctor did. I was given a hydrocortisone acetic acid solution for a fungal ear infection brought on by a treatment given for a normal ear infection in October/November. I poured the drops in at noon yesterday and immediately noticed I was not only...

Get the Impact Pros instead. They are $10 more on amazon and provide 30 db NRR, obviously don't wear glasses under the muffs.

As happy as I am for our German friends I'm starting to get the feeling (ok, I've been feeling this way for a couple of weeks now) that this isn't it. Thankfully no one's been messed up worse than they were, but at the same time there are way too many people reporting no effect at all. For...

He's such a visible scam artist it's not even funny. The above excerpt is the only part I agree with. You want masking to be very limited. It took me a year and a half to finally realize that, and once I did I immediately lowered all my masking noises to make my tinnitus audible but not...

What you're saying makes sense, but at the same time, doesn't. I did not immediately develop hyperacusis after getting tinnitus. I would estimate it took a month before the singing at church service began to bother me greatly. Then it seemed to improve quite a bit, especially after finding a...

Noise cancelling headphones do not offer actual protection as ear plugs and muffs do.

I wasn't there, and you can still be mad at his reaction, but ass slapping is not quite that loud. Source: slapped a lot of ass

Praying for you too, Chris. Next year please take electronic hearing protection... and a can, if possible.

Somehow I missed my two year anniversary of joining this site, but I thought I'd mark the occasion anyway. In the two years since I've had tinnitus, I've: - Went on a retreat with friends - Was baptized - Quit the job I was working when I got tinnitus - Cried more times than I can count -...

Thank you. I will be heading back January 6.

Thank you for your advice. Unfortunately I received an email from the "team" today, when they were supposed to call me this morning, saying that the initial prednisone course made me ineligible for an initial screening until January 2020. So yeah, now I'm feeling pretty fucking mad, not gonna...

Hi again guys, Some guidance would be greatly appreciated. It's been 9 days since the car stereo incident and I still get occasional fullness and pain in the ears. My tinnitus is, of course, worse than ever before and it's not just the loudness, it's the remarkable number of tones- at least...

Never ever try to drown out your tinnitus with "regular" sound. There's a good chance your hyperacusis will spike it temporarily or you'll just walk into harmful noise levels territory trying to cover it. I prefer fountains, ACRN protocol. Then again I avoid the quietest parts of the library...

As I mentioned in my last post the initial appointment (which was supposed to take place on the 25th?) was rescheduled after I informed the doctors I was given prednisone by my doctor.