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  1. Mikey Cliff

    It's Pretty Much Over! The Crickets Got Bored and Stopped

    2 years of hell and it keeps going. My eyes are having strong visual disturbances now. Thought I was doing better at one point but I am not. I just want to die. You are so lucky to have improvement. I pray every night I go to bed that I don't wake up
  2. Mikey Cliff

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    @RaZaH Google Normandy, boom there is your facts
  3. Mikey Cliff

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    @amandine "Not only the Nazis but the Americans have also had their fair share of experimenting on people including prisoners......and even quite recently too and even en masse.....frightening what goes on in the world....." That's a bold statement to not back it up with any facts. Way to...
  4. Mikey Cliff

    SAMe (S-adenosylmethinone) for Depression

    Well, I'm seeing a Naturapath and getting injected with all of those vitamins so I should be fine. All I know is that I am no longer suicidal and extremely depressed. This is why I try to spend less time on this site. Every time someone says something worked for them, 10 other people come...
  5. Mikey Cliff

    SAMe (S-adenosylmethinone) for Depression

    I use it every morning with several other supplements. When I started taking SAMe and Dopaboost I no longer wanted to kill myself. I've been taking them about 6 weeks.
  6. Mikey Cliff

    Not Fully Cured, but 99.99% There.

    Not necessarily, however mine never did until it t started. How are you doing @nills ?
  7. Mikey Cliff

    "Here" Active Listening Earbuds

    I've been watching these, very excited about the new technology coming out. It would be cool while working in quiet environments to turn a little ambient masking noise on.
  8. Mikey Cliff

    Popping of Soda Can

    Am-101... a bust. Wish I had never participated. I have used crickets and thanks for the link! Hit me up so I don't hijack the thread. @Danny Boy
  9. Mikey Cliff

    Popping of Soda Can

    I went through a rough patch last week, a little better the last two days. I got my wind chimes and waterfall music playing with the tv on in the background and am as happy as I ever was, at the moment. Starting acupuncture tomorrow with someone who has experience. Doubt it will help my T but...
  10. Mikey Cliff

    Popping of Soda Can

    I think the Doc is trying to say you will be just fine... Temporary spikes are very common with T and people without T
  11. Mikey Cliff

    What Is Working For Me

    When you have lost your ability to teach percussion which has been your life for 20 years it is certainly a bitch. Trying to find purpose again. @Dennis MacDonald
  12. Mikey Cliff

    What Is Working For Me

    This is difficult when it is loud ALL the time. I wish mine came in phases. I would say mine is just a Permanent spike. Constant torment.
  13. Mikey Cliff

    Neurofeedback Success Story

    I have had no change in my Tinnitus. I'm going tomorrow for an important session. I will try to update afterwards @Rube
  14. Mikey Cliff

    Tinnitus Is Much More Than an Inconvenience

    This makes me want to die
  15. Mikey Cliff

    Yoga Inversions

    Noise induced, allegedly... Seems stupid to have it like I do when I wore protection for years
  16. Mikey Cliff

    Ambient Mixer Online Masking Tool

    I didn't see where this was shared here, but maybe it has been. I use this everyday, my favorite is "book by the sea" under relaxing atmosphere. For a while, this website was a godsend. If you haven't seen it I hope you enjoy. There are lots of options and you can customize your mix and even...
  17. Mikey Cliff

    Lyme Disease?

    @amandine I apologize, as I had no idea that the polls were public. I swore the first poll was private, I guess that's why a new one was created. I also don't know what the blood was taken for. Seeing that my blood was taken more than once, I assume that they were looking for any changes. I...
  18. Mikey Cliff

    Yoga Inversions

    Since starting Yoga, I have been recently able to do inversions (head stands etc). I notice that when I do inversions during practice that it seems to help reduce slightly. Has anyone had a similar experience or tried inversion tables? Just curious
  19. Mikey Cliff

    Lyme Disease?

    @amandine, my left year was noticeably worse after am-101. I'm not familiar with what the blood test checked. Also, I have never publicly disclosed what my vote was. Meaning our private conversation has been disclosed which is a breach of netiquette
  20. Mikey Cliff

    I Did Something Incredibly Stupid

    I wore -30 db foam ear plugs for almost a decade and still got it bad. I was even wearing ear muffs over the foam plugs when it happened.
  21. Mikey Cliff

    Lyme Disease?

    Sort of a wavy vision, and muscle spasms when I over work my body. Spasms are not that bad. Just curious as I did get a bug bite 5 years ago then soon after some eustachian tube and vertigo problems. Also, I got bad eye floaters. I don't have any real pain though. Just trying to rule out...
  22. Mikey Cliff

    Lyme Disease?

    Thanks, I haven't been diagnosed, however I'm seeing a neurologist next week. I wish T was a low complaint for me. Not saying I want worse things...
  23. Mikey Cliff

    Lyme Disease?

    Has anyone heard of T and H being caused by Lyme disease?
  24. Mikey Cliff

    Low Energy Neurofeedback System

    I am currently on my 6th trial of LENS neurofeedback. The T is pretty much the same however at times I manage much better than when I first went in. I am showing some improvement in my brain scans. I don't travel everywhere with my ear buds anymore which I use for masking music, so that is a...
  25. Mikey Cliff

    Neurofeedback Success Story

    Are you doing traditional Neuro feedback or LENS neuro feedback?
  26. Mikey Cliff

    Neurofeedback Success Story

    The first QEEG test is 799.00. Each visit thereafter is 125.00 a pop
  27. Mikey Cliff

    Lipoflavonoid for Tinnitus? Helps or Not?

    So what about people who get rid of their T? I talked to a gentleman who suffered since the 60's and says he can't hear it anymore after he started taking COQ-10 last year. Or what about the people who have made theirs better? I was seeing a therapist who had it for a few years after the...
  28. Mikey Cliff

    Neurofeedback Success Story

    Thanks for Sharing! I am currently in my 4th session of Neurofeedback, and I have had some small successes. It make sense to do this therapy as Tinnitus is a brain issue. Neurofeedback specializes in brain dysfunction. I was told that my Delta waves were in a heightened state, which caused...
  29. Mikey Cliff

    AM-101 Clinical Trial — Participants Updates and Discussion

    @earsnohappy thanks for the clarification. stress could make sense, there is no wavy vision in either eye when singled out. I don't see how seeing a less advanced doctor would help, but I guess the only thing it could hurt is my wallet.
  30. Mikey Cliff

    AM-101 Clinical Trial — Participants Updates and Discussion

    It's a light test, they put goggles over your face and look into your eyes
  31. Mikey Cliff

    AM-101 Clinical Trial — Participants Updates and Discussion

    I would suggest staying away from this drug. It is definitely not safe, as no drug is safe that hasn't been on the market for at least 2 years. It can make your T worse and for me, I believe it has screwed my vision as well. Horrible because I am in extreme suffering every day. When you go...
  32. Mikey Cliff

    Not Fully Cured, but 99.99% There.

    I'm committed to believing it can get better and I can get my life back. Even though today's like today suck
  33. Mikey Cliff

    Not Fully Cured, but 99.99% There.

    Careful! I didn't mean to make it worse! Great story, a one would be wonderful. I'm musician myself. I've been pursuing a splint and chiropractic help.
  34. Mikey Cliff

    Tinnoxyl

    Likely a scam, they have been putting adds on Sirius radio. B vitamins, ginkgo, stativa , melatonin and other herbs. Called just to find out as they offer a free trial. Anyone heard of it?
  35. Mikey Cliff

    Not Fully Cured, but 99.99% There.

    This is great news! So you mind me asking if you are/were able to manipulate the pitch by clenching your jaw?
  36. Mikey Cliff

    My Positive Yoga Experience

    Not at all, I got a lot to learn. The last two days have been great! Thanks
  37. Mikey Cliff

    My Positive Yoga Experience

    I absolutely will! Thanks for the support! Can't wait till this yoga becomes a lifestyle.
  38. Mikey Cliff

    My Positive Yoga Experience

    An awesome morning! I went to my first Vinyasa Yoga Class this morning. It was an amazing experience. I remember telling myself as I was going this morning that "It won't help your tinnitus today but it could in the future". I was wrong, it was wonderful for my T! Must be all of the...
  39. Mikey Cliff

    Retigabine (Trobalt, Potiga) — General Discussion

    Thanks! This is all good news
  40. Mikey Cliff

    Retigabine (Trobalt, Potiga) — General Discussion

    I would think a majority does, I just haven't read anyone who mentioned it while taking retigabine
  41. Mikey Cliff

    Retigabine (Trobalt, Potiga) — General Discussion

    I'm going to assume no one has had relief with somatic T yet, or have tried it with this particular type of symptom.
  42. Mikey Cliff

    Retigabine (Trobalt, Potiga) — General Discussion

    I've read most of this thread and have started back at the beginning for a second time. Is there anyone trying this drug that had somatic symptoms or are able to manipulate the pitch though biting down on the jaw or bending their neck? If so, has retigabine helped? I'm trying to make a...
  43. Mikey Cliff

    Musicians with Tinnitus Support/Advice Thread

    Thanks for your reply! I did stop playing after the T started, I quit my gig and an audition I could have easily won that would have paid 20,000 a year. I taught a little through the summer but it was only drumlines from far away. I didn't play set for more than a few minutes until 6 months...
  44. Mikey Cliff

    Musicians with Tinnitus Support/Advice Thread

    Hey everyone, I'm a drummer and teacher. I've been playing in bands for years and teaching drum lines as well. I've been protecting my ears considerably over the last 8 years. Much like Soulstation, I would hardly go anywhere without my plugs. I've noticed that a lot of musicians say that...
  45. Mikey Cliff

    AM-101 Clinical Trial — Participants Updates and Discussion

    Update for me: I've had really 2 good days since my post. I relate it more to my psychological state. I don't think the T is any lower, I think I FINALLY got tired of listening for it and being upset about it 24/7. I would rate my day at work yesterday as a good day at work before I had T...
  46. Mikey Cliff

    AM-101 Clinical Trial — Participants Updates and Discussion

    Just to clarify worse for me: my left ear seems to have gotten a new tone during the second visit for the real drug. It's difficult to tell if it was completely new or just exacerbated by the procedure. Like I said previously, if I didn't hear certain sounds differently I would have voted...
  47. Mikey Cliff

    AM-101 Clinical Trial — Participants Updates and Discussion

    It was very difficult for me to come out with that post as I don't want anyone to refuse getting the injections because of my experience. I really wanted to say no change or unsure but I would be lying if I said other. All I can say is that it has been well over a month since the real drug so...
  48. Mikey Cliff

    Finally Stopped Lurking

    Doctor said my ears healed up perfectly fine.
  49. Mikey Cliff

    AM-101 Clinical Trial — Participants Updates and Discussion

    I lost my career in drumming.I wore ear protections for years much more so than any of the other teachers I worked with or musicians I played with. I always wore protection, probably would have been better off if I hadn't. I would like to think you are right, but unfortunately I feel it is...
  50. Mikey Cliff

    AM-101 Clinical Trial — Participants Updates and Discussion

    I didn't vote a lot worse, just worse. More or less not as good as I was before the real drug.
  51. Mikey Cliff

    AM-101 Clinical Trial — Participants Updates and Discussion

    I have participated in the tact-1 and 2 of phase 3. I got got three injections after 2.5 months of T, and also received the real drug (3 months later) where I got 3 more injections. I regret my decision to take part in the trial after the second round and will not be participating in any more...
  52. Mikey Cliff

    Finally Stopped Lurking

    @amandine sorry I wish you could get out of that situation. No one deserves to be treated like that
  53. Mikey Cliff

    Finally Stopped Lurking

    Hi, I plan on putting that information up. I can't give to many details yet because I don't want my information to get DQ from the trial. I will be done soon. In fact, the trial coordinators thought I was going to withdraw but did not on my last follow up. I couldn't imagine going through...
  54. Mikey Cliff

    Finally Stopped Lurking

    I went through 2 rounds. Not sure I got the placebo or not the first round and for sure got the drug the second round. Thank you Karen, it has been difficult especially since I was doing much better right before I got the real drug. Then boom!! super loud and right back into depression...
  55. Mikey Cliff

    Finally Stopped Lurking

    Hey everyone, my name is new but I've been reading and lurking since my T started in April this year. It has been pretty devastating for me. As a drummer I have pretty much lost my career so far. I am hoping I find more ways to cope so I don't lose it completely. I have been playing and...