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stop masking your tinnitus, it won't help you at all. Accept it or find the cause.

I'm okay, ty. i don't visit this board/forum anymore rly, since i find it unnecessary. i don't rly give a fuck about my tinnitus anymore (im tired of calling it T.), it's still annoying, but mine i caused by some jaw thingy.. you're handsome :D

I'm a bit curious how you're tinnitus is like Dr. nagler? Does yours ever change or is it "stable" and all the same all time. Not to take the thread too much off-topic.

I know google is no doctor, i know i know. What i find a bit weird is that you without knowing me at all, think it's not related even though many people with TMD has recovered from their tinnitus when treated properly for their TMJD. I truely respect and accept your view on this and maybe i...

A study also posted here on the forums shows that that caffeine has not affect on tinnitus. I think it's a placebo effect that appears because a lot of T. sufferers think the caffeine will increase their tinnitus and therefor they really believe that their T. is increased and stop drinking...

I understand your point that because i developed what looks like some TMD, i doesn't mean it's connected to my T. But i would say it is anyways, for a long time i slept with my headset on watching movies and stuff before i fell asleep (as weird as it sounds) which i think could be the cause to...

Is sore tmj's and misalignment not a evidence of some issues? All my symptoms started at almost same time.

I think its either that or ETD. My guess would mainly be TMJ, also because X-rays showed misalignment in my jaw. I also tried attaching heat to my right side and the clicks and popping softened up a bit

Oh so it is a splint the dentist i talked to makes. This dentist is specialized in tmj. I dont know what a maxilliofacial dentist is.

So, i'm one with TMJ symptoms as well. I've spoken to a physo and dentist which specializes in jaw problems (TMJ). The dentist is making some sort of mouth guard, but i don't know the correct word because im Danish. What is the difference between a: Mouth guard Mouth splint neuromuscular...

Im no doctor but misaligned jaw could be some TMJ thing. I got a sound which is clicking, its not the clicks i hear when i swallow or move my jaw. I woke up a night 4 months ago with tinnitus, went away and got back the night after.. i've had it ever since :/

Yeah, since TMJ is not a one-fix solution thing, it can be hard to find the right treatment for sure. Another thing the physiotherapist told me was that a normal treatment period was around 2 years. So i guess you need to be patient with those kind of treatments. AND! finding the right doctor...

If i look the drug up on a Danish medicine site, it says 0,1%-1.0% of risk getting tinnitus.

The dentist asked me if i needed it. I said i had one night (which is rare) that i had bad pain. I don't have any pain currently, so i dont see any needs for it. And if Zitromax is a oxotoxic med, i'm just not happy taking it.

I found this, maybe it's helpful for any with TMJ issues. http://lisamorrone.com/wp-content/uploads/2010/09/TMD.pdf

It was Zitromax, not Zithromax - Sorry! I appreciate an answer from a real doctor :) Well i think i just "jumps" over the antibiotic, the dentist just prescribed it for me, to not have too much pain until he will fix the tooth. But i really don't have any pain, so i guess i don't need it. No...

I dont really have any real pain or problems moving my jaw, i think my TMJ is from chewing on one side and my hypermobility which the physiotherapist thinks can be fixed. My main frustration is the tinnitus. Im only a bit sore and got clicking when moving my jaw or swallowing. Tbh, when us with...

So, i went to a dentist today which took some X-rays of my jaw and teeths. On the X-ray we could see that my jaw was pushed up towards the ears more than "normally" Another thing is i've had a new "sound" which is a low clicking.. and after doing some research i found out that these low...

I'm a bit confused on whats your point here? :) after some research i can see the Antibiotic is a mycin oxotoxic. So i guess i should avoid this? Can any confirm this..

So I went to a dentist today which prescribed me Zithromax antibiotic which he wants me to take for 3 days a total of 3 pills. Is this antibiotic known for anything tinnitus related? Thanks.

You're probably right Anton. But this kept me from sleeping, now im just taking a 24+ hr. day :p lol I usually sleep a lot every night, so i guess it won't be a problem!

I must be honest and say that i hate to be back here and feel the need to make a thread... don't get me wrong! I finaly actually learned to accept my T. and coped with my "sound". Even better, i pretty much am sure that it's caused by some TMJ in jaw or neck and im going to a dentist to see if...

There's a lot of guessing here, in this thread :D i would go and read some of @benryu's post in the Retigabine thread.. he got some good points!

So i guess.. start october and end november? a 4 week trial period correct?

Im gonna be so sad if this doesn't work out as we hope.

Just to be clear, Phase-2 will test people with T. right?

Im not on this forum so much anymore, because i think too much on my T. when searching this board all day long. Because of that, i'm not really up-to-date on the Phase-1 trial. did it show any success results released to the public? does any know about that? :)

Still had it last night, it's weird because it's not the first 5 minutes when i lay down, it comes like 10-15 mins after.. then my body starts inner shaking like mad, at least i fell asleep fast. I'm gonna call my GP, and ask what i could be.. just to be sure!!

Yeah you got a point. I doubt my GP will ever prescribe it to me, she is more like the "learn to live with it"-type, and i've had her as a doctor since i was a little boy, and because of that i doubt she will prescribe Trobalt for me, and she doesn't know anything about T. at all.

Thanks for your answer :) @Teri

Yeah, could be.. as i said i had this a few years back as well, it's still kinda unpleasant mixed with T. = more insomnia. Thank you for answering!

So, last night, i tried yet another night, to get to a proper sleep. I noticed a weird shaking inside my body, in arms and the sides. It was like my inner muscles was shaking.. I've tried this 4-5 years back when i had some problems with anxiety or stuff... so i was wondering if this 'thing'...

@attheedgeofscience - im sure you mentioned that you would try to get it in Germany, but it was taken off the market, but i guess you're still a Danish citizen? why don't you just go to Denmark and try and get it :) I really consider trying it out, and speak to my ENT about it.

Still, i would say 9/10 i've seen writing about smoking while having T. - says that if they smoke their T increases! So for most i think it's not worth it.. i for sure slept a lot better, but the increase in T. makes it not worth in the end, at least for me.

Yeah but, what im asking is.. when you were ON retigabine, was your T. gone or just very low? :)

Im really sad to hear this friend! but was your T. gone? or just very low?

When is a realistic time we could expect an answer on how this 'drug' will work? half a year or later?

I used to smoke a lot as well, i'm starting to think i also got insomnia, since i've always have had hard times getting into sleep, and T. for sure doesn't help it out. I smoked for many years, and really helped me sleep, but now if i smoke i get a massive spike in my T. - it like increases 100%...

Haha great!

We all here more or less suffer the same condition friend. By constantly being negative and not have a uplifiting positive attitude your T. for sure won't get better! I know it's hard, we all do, but it is manageable to live with it! and this maybe sound rather strange, but this time is not the...

Well, I live in Denmark. To my knowledge there are no trials going on in this country. And taking the trip to the UK or something like it sounds a bit crazy to me.. yes i hate my T. but still :)

I'm in almost same position as @Eric Fridley. I still don't know how i got my T, i'm going through a longer test at my ENT the 18th this month. I also mainly (90%) of the time got it in my left ear, and probably 100% of the time, but sometimes it feels like it's in my right as well.. Could be my...

I consider more and more to ask my ENT for Trobalt. I'm just a little scared of the side-effects, i might wait for AUT00063, or the other drug like Trobalt, just without the side-effects. Im actually doing OK during the day, but my nights keep to vary a lot. Sometimes i just can't sleep even im...

Damn, im excited to hear some results from the trial ! EDIT: is there any period of time they will run the trial? like 3 months or a year something..

Oh thanks for letting me know! :) So, am AUT00063 in pill form correct?

Let's all hope that! Little off-topic here, and sorry i guess this has been asked before.. but two questions. Is autifony the same as aut00063? or is autifony the ones who make aut00063? Are there currently trials going on with autifony/aut00063?

i doubt it tho ;)

What should that do? change my normal T or just the fleeting ones?

Well i know that sound, and this was a very different sound... when i get fleeting T, it's mostly in my right ear (weird actually, since my "normal" is 90% of the time only in left). This was another sound, and im not quite sure it's gone, it's just very very low. Off-topic: @lapidus where are...

Okay this is very strange, i had the "new" sound for like an hour and now it's gone again :/ i don't like this at all, it kinda means that new sounds can come and go as they like...

Now i've suddenly got a new and second sound in my ear (left). It sounds like a deep but low sound. Is that "normal" that you can suddenly get a new sound? i can only hear it if i put my fingers in the ears, but i would still prefer only to have one damn sound :/

If your doctor says so, i would do it.

Thanks everyone for your opinions and answers. I'm actually doing pretty ok with the habituation, i'm not feeling as bad as the first weeks of my T. That doesn't mean tho that i won't like to find my reason for my T. About the TMJ/TMJD issues, should i go to a dentist first and they should be...

My biggest wish currently, is that i will find out how i got my T. My own idea is that i have some sort of TMJ issue, my symptoms is: Tinnitus in left ear (Low-medium, rarely high-pitched) - very rarely in right ear. Clicking when i move my jaw and chew can be a little sore in the sides of my...

Don't take my word for granted. but if you read the internet some see there will go away, and some wont.. Take it easy friend, ending your life is not a answer to this stupid sound we got. My life has changed as well, but for every day that passes by i start to accept my condition and i really...

So has your T changed or is it the same? i hope you will recover, but not all with TMJ induced T. will recover 100%, as far as i know.. Good luck friend

That might be true, yes. what is your point? that going into a trial should be considered twice or?

As far as i know, he is currently on 900mg/day

I've seen more and more people wanting to take retigabine/trobalt, but which there T. came from hearing loss or medication withdrawal. I still don't know how i've got mine, maybe some TMJ issue.. But what is the thoughts that a drug like this or AUT00063 can help my T. as well than people who...

Many people in here won't agree with that. Aut00063 will might do this job, the AM-101 will probably only target acute T. but that doesn't mean it won't help.. I'm not much into this stuff, but you could read in the am-101 thread and Retigabine thread