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  1. Jamclem

    Pulsatile Tinnitus Gone After Tenotomy of Middle Ear Muscles

    Hello Padraigh, thanks for sharing your very interesting messages and journey. My pulsatile tinnitus is also linked to blinking, pressing body parts etc etc. But I do also have quieter pulsatile tinnitus generally when I do not trigger it. Was this the same for you? I suspect mine is either TTTS...
  2. Jamclem

    Somatic Tinnitus

    Hello everyone, I am just wondering if anyone has similar symptoms of tinnitus where you can push your jaw left and right and other directions and moderate the sound? If so, have you tried a chiropractor or other treatment? Have you had any success? Hope you are all okay James
  3. Jamclem

    Should I Be Worried? Pulsatile Tinnitus Started in One Ear, and Is Now in Both

    @Karen Yes I think your symptons are similar. I do have PT and T aswell.My PT always stays in the right ear and I suspect my T (a dullish sound drifts to my left/centre when I sleep on the left said of my head. I think it is all been generated in the right ear only though. Have a nice...
  4. Jamclem

    Should I Be Worried? Pulsatile Tinnitus Started in One Ear, and Is Now in Both

    @Karen Hi Karen, just out of curiosity because you also have PT in just one ear. Do you have mild hyperacusis now and then in the same ear? (my H seems to be aggrivated more by vibrations than sounds i.e of a sitting in a train carriage with a diesel engine or a the vibrations of a bus...
  5. Jamclem

    My Trip to Bangkok: Stem Cell Treatment [Comments]

    @bill 112 I really hope it all goes well and make some improvement. It sounds like you have had a rollercoaster of a ride. Fingers crossed it will all work out next month for you :-D
  6. Jamclem

    My Trip to Bangkok: Stem Cell Treatment [Comments]

    @bill 112 Did i read rightly that you are going to Thailand and for stem cell treatment? When it is? I am genuinely really happy for you and I wish you the bestest of luck for this. I hope it all works well :)
  7. Jamclem

    My Tinnitus Seems Variable with External Sound?

    Hi Dave, Do you actually have T in your deaf or good ear? I am not sure if my case is similar. I just know that I have T (actually pulsilate tinnitus) in my right ear and if I am on the phone, I hear a buzzing from my left, which I assume to be my better ear. I sometimes use...
  8. Jamclem

    Video Giving Overview of Pharmaceutical Pipeline

    Thank you for this. It looks like there are a few drugs in the pipeline which could possibly reduce/stop tinnitus
  9. Jamclem

    Levetiracetam (Keppra) Worked for My Hyperacusis

    I would love to know how many people have tried Keppra; how many had success for H, how many did not. It is a pitty nothing is said about its benefits for hyperacusis, reactivity of T. Even the Tinnitus Talk survey which was really informative does not mention anything of it. Have a nice...
  10. Jamclem

    Hyperacusis — Anyone Has It Only in One Ear? Triggered by Vibrations?

    @buzztone Do you also have pulsilate tinnitus in that ear? Are you on any medication for your sitiation?
  11. Jamclem

    Hyperacusis — Anyone Has It Only in One Ear? Triggered by Vibrations?

    @lapidus thanks for your reply. Yes I have had PT for about a year but all of it including hypercusis is in the right ear. Was your hyperacusis also triggered by vibrations with no sounds?
  12. Jamclem

    Hyperacusis — Anyone Has It Only in One Ear? Triggered by Vibrations?

    Hello everyone, Just wondering if anyone else has hyperacusis (sensitivity to loud noises) only in one ear and it is actually triggered by vibrations such as a diesel car/train in the low gear, etc, etc? Hyperacusis goes away after I have rested and the vibrations have gone. FYI in this ear I...
  13. Jamclem

    Hi Guys, I Want Your Advice about Pulsatile Tinnitus

    @Karen Morning, thanks for your reply. It is really interesting to know that your PT started because of medicine. Mine was because of an excessive amount of pushups over a few days :-D.. I read on a other post that some study showed that CT, MRA/MRI scans are good but some doctors prefer to...
  14. Jamclem

    Hi Guys, I Want Your Advice about Pulsatile Tinnitus

    @Karen . Just a question about your PT because you said it might be similar to what I have in my right ear. Is your PT objective or subjective? Have you ever had a cerebral angiogram?
  15. Jamclem

    Further Investigation Possibilities?

    @billy43 Thanks for the advice. I mght contact him at some point. I have actually found a directory of other recommended specialists in Switzerland where I live, so I am going to book an appointment with a professor doctor of tinnitus, not just a ENT doctor. I did find a PT clinic at the...
  16. Jamclem

    A Recommended Doctor for Pulsatile Tinnitus?

    Hello everyone, Does anyone know of any really recommended doctors who specialise in PT? I had an MRI and CT and the results were inconclusive. It would be helpful if perhaps a specialist PT doctor checked them out or could recommend further diagnosis. Thanks James
  17. Jamclem

    Please Help. A Huge Setback.

    I know it is really hard for you. But you will get through it. There are loads of possibilities of diagnosis and possible causes as well as solutions. Just stick in there.
  18. Jamclem

    Further Investigation Possibilities?

    Hello everyone Thank you all for your advice. Hi @Lola in Ohio Thanks for your advice. Although you did not receive the best answer from your cerebral angiogram, I am really pleased that someone actually told you a cause for your PT and that is actually worth so much to find out that you are...
  19. Jamclem

    Further Investigation Possibilities?

    Thank you for your replies. I guess I would rather find the cause and a solution for it before I consider any medication. I just cannot believe that more cannot be done after a MRT and CT showing nothing unusual. Do anyone know anything about http://thetinnitusclinic.co.uk and if there is...
  20. Jamclem

    Further Investigation Possibilities?

    Hi @billy43 Thanks for your reply.. What sort of invasive tests do you mean? Do you also have PT? I think I have read about some clinic opening up in US but probably is not much use when I live in Europe. :-)
  21. Jamclem

    Further Investigation Possibilities?

    Hello everyone, Just wondering if anyone knows of any further investigation or therapies that would be good for pulsatile tinnitus (unilateral)? I have had an MRI and now an CT scan, both found nothing unusual. The doctor now seems reluctant to try anything else. Are they any clinics...
  22. Jamclem

    Got Captured in Hospital

    Hang in there. You are in the right place to get better. Get well soon :)
  23. Jamclem

    Recommendations for Diagnostic Tests?

    Thanks everyone for their replies. I wrote my doctor a list of all the possible ways of PT diagnosis I could find online. She replied and suggested an ultrasound with doppler. Thanks for the tip @The Red Viper :)... Oh well I think it is worth trying out everything. PT doesnt come from nothing...
  24. Jamclem

    Recommendations for Diagnostic Tests?

    Hello everyone, I have been to the T doctor and she said that there is not much more investigating available for pulsatile tinnitus as they did not find anything of the MRI scan apart from no tumours. Would any of you recommend any further ways of diagnostic, ie CT scans etc? Thanks J
  25. Jamclem

    Pulsatile Tinnitus, Stops When Pressure Is on Back of Neck/Head?

    Hi everyone.. just an update really. I continued to learn about how my pt. Perhaps some of you have same thing? When i press in front of my ear on one point my pt goes louder. When i push hard on that point and work my hard around to behind the ear, the pt part goes away and i have very low...
  26. Jamclem

    Pulsatile Tinnitus (Almost Goes When Pressing Behind Ear But Goes Louder When Pressing In Front)

    Hello everyone, I know I have asked a similar question before but I would like to know if anyone else has similar PT as myself. I have PT in one ear, when I press the bone/veins behind my ear my PT goes much quieter (also completely goes). However when I press infront of my ear (possibly around...
  27. Jamclem

    Pulsatile Tinnitus, Stops When Pressure Is on Back of Neck/Head?

    @Kelvin that is also excellent news especially since you have been able to reduce it so much through a chiropractor. Glad you decided to try it out. It is mad how these things can be solved once you find the cause. Hope it continues to get better. :) J
  28. Jamclem

    Pulsatile Tinnitus, Stops When Pressure Is on Back of Neck/Head?

    @Kelvin @Karen hello, I just wanted to update you on my physiotheraphy experience. So far it is going pretty well. I have discovered my PT stops/is reduced when I press the veins on the bone behind my ear. Today the physiotherapist was really knowledgeable. He discovered my PT is much much...
  29. Jamclem

    Pulsatile Tinnitus, Stops When Pressure Is on Back of Neck/Head?

    Thanks for your comments. have any of you tried putting an ice pack on the back of your head and have noticd the pulses seem lower? I have noticed that my PT is not 100% in sinc with my heartbeat. Perhaps some of you have also discovered this?
  30. Jamclem

    Pulsatile Tinnitus, Stops When Pressure Is on Back of Neck/Head?

    @Kelvin good tips about the head massages and chiro. Perhaps t is a good idea to get some advice from a doctor for your type of PT?. Who knows they might find a cause and solution for it. I will keep you posted on if I see an improvement from Physio and Acupunture. ;)
  31. Jamclem

    Help Me and Describe Your Pulsatile Tinnitus for Me Please

    My PT is in my right ear. I used to have very mild T but it changed about excessive push ups. I am able to reduce the sound of PT by pressing on the back of my head. In the hearing test to find the T frequency it was mid range and low volume but when they tried to mask it it would now work...
  32. Jamclem

    Pulsatile Tinnitus, Stops When Pressure Is on Back of Neck/Head?

    @Kelvin Hey there, That's mad how yours started from just a dentist trip. Mine started through too many push ups which caused my previously very mild tinnitus in my right ear to change to PT. Is yours in both ears or just one? I also can lower my PT a lot when I put my hand(s) on the back of...
  33. Jamclem

    Pulsatile Tinnitus, Stops When Pressure Is on Back of Neck/Head?

    @Kelvin yop its sounds similiar. How did your PT come about? Through sport? Have you tried anything to get rid of completely?
  34. Jamclem

    What I Did to Cure My Tinnitus

    @Matterhorn This is really great to read. I am due to go to acupunture and physiotherapy next week. I have pulsatile and have just realised I can almost stop it completely when I put pressure on the back of my head/neck behind my ear (it ached a bit after mind). Perhaps this is similiar...
  35. Jamclem

    Pulsatile Tinnitus, Stops When Pressure Is on Back of Neck/Head?

    Hello everyone, I am just wondering if anyone else has pulsatile tinnitus that stops when you apply pressue to the back of your neck/head around the back your ear? I discovered this last night in bed on the right side of my ear when my T is. It actually aches a bit afterwards. It would be cool...
  36. Jamclem

    Visit to ENT Tinnitus Doctor

    @Gin Hey Sounds like you have had a bit of journey already looking for answers. I really hope you find something out from your neurologist. I haven't heard of the word Sternocleimastoid muscle before tonight, but I saw a video online and that was the same muscle area my T ENT doctor linked...
  37. Jamclem

    Visit to ENT Tinnitus Doctor

    Man ey, habs gelöscht. Danke
  38. Jamclem

    Visit to ENT Tinnitus Doctor

    Just thought I would let you how about my visit to the ENT / Tinnitus doctor today. Who knows, perhaps this information is useful to you. I have developed pulsilate tinnitus in my right ear after excess push ups (prev had mild t from sport probs). To cut a long story short, I have apparently...
  39. Jamclem

    optimistic :)

    optimistic :)
  40. Jamclem

    Going to the Doctors Next Week

    @glynis Thanks Glynis for the tip. I will have to see. Not sure if any further diagnostics possibilities exist for that. @fishbone thanks also for the advice. I would interested to now how you learnt to live with T without these actually. :)
  41. Jamclem

    Going to the Doctors Next Week

    Hello everyone, I am going to an ENT doctor this Friday who I have never been to. I have good hearing and got all clear inmy MRI. But my T has become somewhat pulsilate in one ear during the last two months. Any sort of things I should ask for while I am there regarding medication or...
  42. Jamclem

    One of the Largest Tinnitus Trials Yet

    @Cillian do they not show you the acceptance criteria before you apply?
  43. Jamclem

    One of the Largest Tinnitus Trials Yet

    @bill 112 yeah defos. Perhaps there is another trial somewhere where you could take part? So you know, I live in St Gallen, Switzerland so that trial in Dublin is too far from me I am afraid :)
  44. Jamclem

    One of the Largest Tinnitus Trials Yet

    @bill 112 eehh yeah thats probably the reason why you were refused you muppet :ROFL:. You will have to find something better then inside :-)
  45. Jamclem

    One of the Largest Tinnitus Trials Yet

    @bill 112 Hey, just out of curiosity why were you refused (again) for a trial? Am sure there is a trial somewhere you could do?
  46. Jamclem

    Barometric Pressure and Tinnitus

    Where I live in the Alps we have a weather change called the Föhn. Basically is a strong warm wind and it can cause headaches/migraines. Today there was no föhn (yesterday was a big storm) but my head was definitely buzzing more today than usual.
  47. Jamclem

    Xanax

    Hello everyone, Just wondering you any of you have tried Xanax and have experienced a reduction in tinnitus? I am going to ask for it from the doctors next week. It seems like a lot of people and reports have shown it to reduce tinnitus. At the moment I am on herbal tablets from anxiety and...
  48. Jamclem

    Tinnitus Hub / Talk Survey Results

    So by the looks for it Retigabine and Gaba drugs such as Xanax are probably most effective?? Interesting how rTMS is rated not highly in effectiveness. I am actually taking part in a clinical trial in February for deep brain stimulation tRNS2-tin but doubt it is the same as rTMS.
  49. Jamclem

    Advice on Medication / Therapies, etc etc.

    Hello everyone just wondering if you recommend any medication, therapies or further diagnostic in my situation? I have had T for 2 years (due to either flying or gym) but then last month it changed since doing excessive push ups :cat:. It used to be just in one ear but now it is somewhat more...
  50. Jamclem

    Trobalt/LLLT/AM-101/ACRN: Post Here If You Experienced a Reduction in Tinnitus

    If you mean ACRN that online sound generator then yes, temporarily but I sleep better with it and I wake up in the morning and do not hear T for a bit :)
  51. Jamclem

    Acoustic CR® Neuromodulation: a New Treatment for Tinnitus

    @monacco Hello :) Do you know if stem cell treatment is also for T people without hearing loss? Also what is DMS? Cheers
  52. Jamclem

    Retigabine (Trobalt, Potiga) — General Discussion

    @dj_newark I hope all goes well with your tRNS and Potiga. Keep us posted on your progress :)
  53. Jamclem

    Need Some Support

    @Anphonic You have managed all this time with T so you will manage in the future. Look for some therapy perhaps, spend time with friends and family who are there for you, go for a day out somewhere. Eventually it will get better again (speaking from experience) .
  54. Jamclem

    Exercise and Tinnitus

    @Steve Good advice! my T changed after doing an excessive push ups over a few days. I suspect mine is also to do with my neck because I used to now and then get trapped nerve feeling on the same side of my T. I reckon I am going to start doing gym stuff from Monday again :woot:
  55. Jamclem

    Hello :) Any Treatment/Further Diagnostic Recommendations?

    @Aussie Lea cheers for the tips. I am not sure if any of those drugs are available from chemists in Europe (Switzerland, England). Have you taken them before?
  56. Jamclem

    Hello :) Any Treatment/Further Diagnostic Recommendations?

    Hello everyone, Just wondering if anyone has any good recommendation for treatment, therapies or further diagnostic? So you know I am 30 years old, probably developed Tinnitus in my right ear through flying then excessive pushups a year later :-). Also I have had an MRI and nothing was found...
  57. Jamclem

    Hello Everyone :-D

    Thanks for your replies. Much appreciated :-). Tinnitus is a mad thing to have. I definitely think it could be a barotrauma what caused the whole thing. Sometime the intensity increases if I move my neck about. I have had an MRI but nothing foudn. Does anyone know of any good therapies or...
  58. Jamclem

    Tinnitus Research Initiative (TRI) 2016 Conference

    Wonderful to read about this. Something to be hopeful about :)
  59. Jamclem

    Hello Everyone :-D

    Hello everyone, I'm James and live in Switzerland. I hope you are all well! I have recently joined the site. I had tinnitus in my right ear but after doing (probably) too many pushups, it changed and became somewhat pulsile. Has anyone else developed T through sport?