Search results for query: Myoclonus

...yours, but extreme. Two acoustic traumas, a year apart. Don't go to places with loud sounds, because the second night club I went to turned my ear from only thumping at the sound of a school alarm to thumping to every single sound shift reflex startle whatever. It looks like middle ear...

Stapedial myoclonus has been treated in China using a type of compress to apply Botox directly to the muscle which then absorbs it. It was passed via an already ruptured eardrum. It apparently worked, which would make it an excellent diagnostic tool. The Stap is to small to inject. I...

I have a bass like sound in my ears, but mine is caused by a combination of 2 conditions.. patulous eustachian tubes and ear myoclonus. My eustachian tubes are unable to close so I hear a rhythmic bass like thumping, caused by my own heartbeat. And my heartbeat seems to set off the ear muscle...

In a way you are sort of demonstrating how TRT principles supposedly apply to Middle ear myoclonus. Theoretically it should be possible to retrain involuntary muscles to respond/not respond to stimulus based on what the brain accepts that stimulus as representing. At least that's what "they"...

...needs to visualize the area and identify the structures and to do so has to get past the drum. I think Chelles may be right about palatal myoclonus, but that is pretty rare (but then they tell us hyperacusis is rare don't they). I think any procedure involving the TT or the Stap. requires...

You may be experiencing middle ear myoclonus which is when the muscles in your ear are sensitive to certain sounds. This started happening to me after my tinnitus spiked over the summer inexplicably. They can flutter or in worse cases then can cause clicking sounds. I am dealing with some sound...

@PaulBe I don't have hyperacusis and only mild hearing loss. The main symptom is that main eardrum vibrating a littelbit when a sound impact with it for this reason I think no one will perform a surgery (tenetomy) on my ears even in USA. I think my condition is permanent! Only a trembling no...

Can't it be MEM, especially stapedial myoclonus? The clicking does sound like it. I am yet to find a method to diagnose MEM, all the doctors I asked was either dismissive or said that basically I could have my ear muscles cut and if the sound stops, that's my answer of the diagnosis, but I...

...A lot of it was probably my fault. Loud stereos and concerts. I also used to sunbathe a lot too and developed skin cancer. My stapedial myoclonus is what is new. Luckily it seems to have mostly stopped! That started about 1 months ago after another trip to the ER to get defibrillated. They...

...dissolved the salts. Unfortunately, I was left with this fluttering sensation that has persisted to now. I believe it to be MEM (Middle Ear Myoclonus). My grave mistake was when I had this sensation of fullness in my ear. Thinking it was a build up of wax, I used Otex ear drops. I let the...

My dad has advanced heart failure and he’s had the Pfizer vaccine.

...but continuous? Or bee like beehive continuous... And by Sismanis and ''the fails he had'', what do you mean? He definitely said possible myoclonus to me and he told me the only way to get rid of my condition was tenotomy, but then he just went weird, making neutral statements on what H and...

I did not have hyperacusis officially but the myoclonus was so severe in both ears from tensor tampani and stapedial tendons, my ears became sensitive to sound. I also suffer with a little bit of T. My neurotologist examined my ears and confirmed TTS once he saw the ear drums dimple. MRI came...

Hi There, Yes I have middle ear myoclonus and this was diagnosed by my ENT by doing a long term Tympanometry test. Basically its a device that goes right to the back of your ear drum and records the movement. You need to be having an attack for this to work. I was offered surgery as soon as it...

...a little bit of sleep. I was calmer this afternoon but noticed I got one too and couldn't take a nap. I think the hypnic jerks are called Myoclonus if anyone's interested looking it up. I have never had the brain zaps before. Do these go away? I hope I don't have to take some new kind of...

I don't think it is reactive to sounds. I'll have to pay more attention to the timing of it. I am more in shock about the sensation, so not focusing on what might be causing it. How did you realize your was set off by sound types?

...sounds? I have at times had a pronounced thumping/fluttering in one ear - and it took me a long time to realize it wasn't random, but caused by sounds like the bathroom fan or a spot in my kitchen that reflected the fan in the fridge.. Pretty sure this is myoclonus or some tympanic disease..

Would you classify this ''pressure'' as a tympani drum that jumps zaps you with a small latency just after a sound begins to hit you?

...like the sound when you smash your car door hard, but then very fast after each other. After reading on the internet I thought it was ear myoclonus and hold on to that. He said in all his academic career he has never had someone with these symptoms... Ok so this is it for me then if he...

...Perhaps to see if this has to do with my tubes. I took the spray last night and things seemed to improve but it's back today. The ENT mentioned myoclonus as a possibility. Can't get a second appointment for 6 weeks. Seems like I can't win. This just appeared out of nowhere. Any ideas? Thanks.

...though no one is listening to me. So far I have had specialists say its my TMJ joint clicking (it's not my jaw, its in my ear), a palatal myoclonus (again, its not in my mouth its in my ear), some other myoclonus, possibly the stapedius muscle contracting (this cant be because it doesnt occur...

...this is different. Humming and talking during the day is possible, but when I'd like to sleep it's more problematic. :) MEM is middle ear myoclonus. It's when the muscles in your middle ear spasm. So my theory is that I have two different kind of tinnitus, the low humming/buzzing and the...

Strange. I don’t have any hearing loss, but I do believe I have some type of very very mild hyperacusis or some moderate TTTS/myoclonus. Sometimes the crackling in my left ear happens at the same time as the TTTS in my right, but I can feel it deep in my Eustachian tube. How long have you had...

...low frequency tinnitus in my left ear. It feels like something is actually vibrating in my ear but I'm not sure. Could be stapedial myoclonus but it's hard to tell. At first I only noticed it at night where it would be intermittent (zzz,zzzzzzz,z,zzzzzz,zzz...) with no particular pattern...

Hey, So palatal myoclonus is hell, slowly driving me crazy(er). When I was first diagnosed I was prescribed Clonazepam and that sorta worked, but in the sense that I couldn't feel anything anymore. couldn't stay awake for longer than 3 hours, and I lost my memory for 4 months forcing me to drop...

...doing simple things we can no longer do. It has stolen her life too. I have sound sensitivity, and the tinnitus especially the middle ear myoclonus reacts to it. I can’t watch TV, listen to music, be around household equipment, go in the car somewhere, go shopping, or to a coffee shop...

...that gets much worse when lying down? I have this problem also, in one ear. I think it's likely a form of an inner ear spasm (stapedial myoclonus). The buzzing can also start up, when I'm in a very quiet room. I've been using a silicon ear plug at night, and also in noisy environments...

...But here I am again at 2.30 am in the morning with all this noise in my ears. The ‘normal’ tinnitus is bad enough but the middle ear myoclonus is so loud it’s distressing, it’s reverberating on my ear drum and skull, it not possible to ignore it. And because my Eustachian tubes aren’t...

Clicking noises might be a sign of Eustachian Tube Dysfunction. It's usually not bad though, so you might not have much to worry about. My right ear(the affected one) reacts to some sounds, such as my own voice or a chair being dragged across the floor. It seems to be a distortion of some kind...

...results had a number "55" in a table for my right ear. What does that mean? I also suffer from ETD, but a test for my eardrum reflex/reaction(whatever it is called) turned out fine. So I don't seem to have TTTS. It most likely is Stapedial Myoclonus, since my ear reacts to some sounds as well.

Hi There, I suffer from middle ear myoclonus and my doctor is trying to sort out tests to see what muscle is going into spasm. I have had this one and off for a few years and its awful. I am so sorry to hear you are also suffering from this. I am on an amazing facebook page called tonic tensor...

Your comments are a bit vague to me.... The evidence behind what i said is in below link..... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4208401/ Can you provide any evidence to back what you say???

...the tensor tympani and the stapedius. Could spasms of these muscles be a source of pain in hyperacusis? Not likely: Tensor tympani spasm—myoclonus—results in pulsing tinnitus; and since stapedius contracts during speech, we’d expect that if it was a source of pain, we’d notice it when...

...result of emotional tension). Both of them went away with time and taking care of the primary cause. Also, I'd like to give you my opinion, myoclonus is usually affected by cyclobenzaprine, which is a muscle relaxer, and it acts on the central nervous system not the muscles itself. Mainly by...

...eustachian tubes and they make my tinnitus unbearable. I constantly hear my own breath and heartbeat in my ears and PET also worsens my ear myoclonus... I contacted my ENT and I'll see him in 5-6 weeks and we'll discuss more about possible treatments for my eustachian tubes (fat injections...

This one has some potential, but it is more about chronic middle ear myoclonus that can't be settled by non-invasive means. It may have some overall impact on tinnitus if part of that tinnitus is being caused by the deranged action of either of the main middle ear muscles (I would call this...

Well you could have myoclonus due to neck tension, tmjd, vestibular neuritis, metabolic, acoustic, idiopathic etc... but if you have neck tension you could have a winner. have you tried a chiropractor, acupuncture or muscle relaxants? maybe even applying a laser on the tense areas of your neck.

An ear surgeon in Norway is going to operate on me, he has good knowledge of this. I am waiting for the operation now, and hopefully it will be in August or September.

Yours is the same as maz1 in the sense that after the sound finishes the contraction themselves start is what you're saying? During the external sound you have no contraction? Do you also feel the contraction? Or do you only hear the contraction?

Good points. While I can find some pretty negative experiences with tenotomies for myoclonus over at hyperacusis chat network, I can't find anything specific about operation conditions. Could you give me the links here? thanks

Maybe the dystonia/myoclonus that's giving her sound sensitivity has progressed, as often happens in myoclonus and dystonia. Maybe you should research on dystonia, instead of falling for stupid habituation rhetoric from the sound therapy panhandlers.

No @Chelles ...it just started. I take clonazepam 2mg a day. I believe I read benzos are sometimes effective but not on me. Can't do surgery (if it came to that) I have H. I am veing referred to ENT and my Neuro is checking me for SCDS. My ears have gone bananas now...I'm almost laughing...

That all depends, @Chelles. If the severity and frequency is high, prednisone might provide short-term relief (but note, that prednisone's effects tend to always be temporary, because as soon as the treatment wears off - and most treatment is usually under 30-days - the underlying condition...

Hi Chelles, did you get this diagnosis from a doctor? I feel like something is poking into my eardrum but it could be a muscle spasm, a 5 month long muscle spasm. I was reading about the surgery for this and it doesn't sound too pleasant. I'm doing physio and acupuncture right now. I'm thinking...

...misophonia nor hyperacusis? Did he go to the chicago dizziness and vertigo center? I was speaking to a guy who the past decade had myoclonus and he was very happy about it, BUT he did not have hyperacusis he claims, so that has to be beared in mind. He was from the same forum where Astrid...

...that can be heard externally (through amplification). It's caused by muscle spasms in the inner ear. I have a type of this called Palatal Myoclonus - the act of yawning causes this spasm which i perceive as a "crackling" . I don't know how common this is, but I've had patients in my practice...

...until now....I just hope that my flutter/clicking is a one time thing not a 24/7 type. Does anybody here has tensor tympani/middle myoclonus disorder? I know it is rare thing to happen, so I guess if it comes back then I have the double whammy of having subjective (high pitch ringing) and...

...not recover; yet. ~ That might interst you Chelles, CASE REPORTS We present three cases of bilateral tinnitus caused by middle-ear myoclonus. In two cases, the etiology might have been exposure to intense sudden noise or a stress reaction to this exposure. In one case, the cause could...