Search results for query: Myoclonus

Hello everyone, I'm a 20 year old male college student and back in December of 2019, I was officially diagnosed with Middle Ear Myoclonus. This post will be all over the place, but I hope the amount of detail that I provide may help find the source/cure as I await a contrast MRI scan. I believe...

...the high frequency of the tinnitus I am used to having the past 32 years. I went to an ENT and asked him if he thought it was Middle Ear Myoclonus and he said yes, since it's not going along with my heartbeat. So it is a muscle in the middle ear bones twitching out of control. My ear of...

Lots of ear issues this year. In the beginning of the year, I had a tinnitus spike caused by Lenire. That mercifully ceased a few weeks after I stopped the Lenire treatment. Then I had an episode of pulsatile tinnitus. Also cleared up after I got new mattresses/pillow/standing desk, was probably...

A few months ago I developed MEM, though I’m not sure which muscle is the problem. But I have a pretty much constant flutter inside my ears that get worse after burping and I also wake up from it at night a lot. Sometimes it’s more of a ”thump” kind of sound. It’s escalated the past 2 weeks...

All, I am scheduled to have the stapedius and tensor tympani muscles cut within the next week. Does anyone have feedback on the recovery related to the surgery? How much pain? How soon can I get back to work and driving? Exercise? Also, any downsides like increased ringing or loss of...

...I saw a specialist last week and am now being referred to a super-duper specialist, although not holding out any hope. P.S. One of the many health professionals I've seen in the last year has put me forward for physiotherapy. What kind of physiotherapy is there for Middle Ear Myoclonus...

...going through that kind of crap. No one deserves such an ailment. I've got a question though. How did they decide on the Middle Ear Myoclonus (MEM) diagnosis? Do you have thumping/fluttering/spasming in the ear? Sorry if you mentioned it in the above conversation and I missed it. I mean...

Around 2016 I developed palatal myoclonus symptom (soft palate tremors). Could there be a relation between palatal myoclonus and tinnitus?

First of all, I am really sorry that you are dealing with this. Have Middle Ear Myoclonus or Palatal Myoclonus been ruled out by your doctors? To me, the audio you attached does not sound like a textbook case, but maybe you can ask for opinions on here or on social media platforms of people who...

Is there any connection between tinnitus and palatal myoclonus? I forgot to mention it before; I have suffered from palatal myoclonus since 2015. Maybe it caused my tinnitus?

Hi there, I wanted to reach out to you. You posted four years ago that ritrovil helped resolve your middle ear myoclonus, can I ask what your symptoms were that it helped resolve and how long it took, do you still take it? Thanks so much, also if you have tinitus what medications or treatments...

This just sounds like MEM (Middle Ear Myoclonus) to me...

It doesn't work for me. Made my now diagnosed middle ear myoclonus worse. Keep away is my advice.

The symptoms he’s describing sounds like a syndrome called “MEM” (Middle Ear Myoclonus).

So far I haven't heard a good case with Botox, except when the ear spasm happens due to Palatal Myoclonus where Botox does help. I heard that doctors are scared to put Botox in the ear muscles because they don't know what issues it can cause.

Does anybody have their eardrum vibrating? One month after I got T my ear drum in my left ear started to vibrate off and on and now its constant. It feels like engine vibration from a car on idle or someone playing drums on my eardrum :P. I can handle the T for the most part but this vibration...

May have other causes, burping can be a trigger for MEM (middle ear myoclonus) or even palatal myoclonus. Both can induce clicking/popping/thudding in the ears.

...at UCH London ENT department last week. I got a phone call follow-up appointment today and was told they think I've got Middle Ear Myoclonus. My tinnitus has been off the scale and now things make sense as to why it's so bad. I don't know what's next. I'm so desperate I can't explain. I...

I have some questions as someone who seems to be having it for the past month. Mine seems to have started quite randomly, although I may have experienced certain events that led to this happening. How did it happen to you? How long has it been? Has it gotten better? What steps do you take to...

I know Middle Ear Myoclonus (MEM) appears to be quite rare. Mine is pretty bad right now. Is there anything I can try such as muscle relaxers or supplements to try and reduce it? It's been crazy for 2 weeks non-stop.

Did your myoclonus ever improve?

Stapedius muscle myoclonus doesn't cause a fluttering of eardrum as far as I know. The term "middle ear myoclonus" contains both tensor tympani myoclonus (fluttering of the eardrum) and stapedius muscle myoclonus.

My name is Emma and I live in Sweden. I’m new here and thought I’d say hi. I’ve had ringing in my ears since 2016 which can be tough at times. But just recently I’ve developed MEM, which is honestly ruining my life and sleep. Very little is known about this condition in my country. So a bit...

Have you found relief for this horrible condition? Mine has been going on for almost 2 years. It got better for a few weeks and now it's back full force! I'm thinking of going with the surgery option but I have been reading conflicting feedback about it here. For those of us with MEM, how do...

Hi Pulsing Ear, is your myoclonus totally gone now?

Hello, I am in the same boat. I am taking Mysoline for my Palatal Myoclonus and it does decrease it, however, it doesn't stop it. I am going absolutely insane that this is going to be a permanent condition. I cannot live with this.

Only here, my ENT hasn't even mentioned it. Another personal hell with no treatment? Who would test for this? My GP? ENT? Lord I hope it's not the latter, they didn't even mention it. All they want to do now is get me to come in for an allergy test.

Have you heard about different kinds of myoclonus? Either in the middle ear or palatal myoclonus?

I have an unusual form of tinnitus. It is in my right ear only. It sounds like water dropping on my eardrum - click, click, click all day and night. It is called tensor tympani myoclonus. It responds to Amitriptyline.

I also noticed stapedial myoclonus a few weeks back. Thankfully it's infrequent, often stays quiet for hours, and even when it comes on, the most I get are 5-10 clicks in one batch. I think it's related to face mask use. I'm using KN95 masks with ear savers, meaning they loop tightly around my...

...early and he wants me to discontinue a certain medication I've been on for over five years because he read somewhere it can cause myoclonus. If that doesn't work, he said we can try the Botox. I'll let everyone know how things go. I don't see him again for a few more months. This is where I...

...at 2 days). The episodes are all the same with a slow start, a peak of frequent clusters, then a slower taper. This is either middle ear myoclonus or myoclonus of the muscles around the eustachian tube (a form of palatal myoclonus with no movement visible or sensed within the palate)...

The crack/pop is the sound of a muscle. They are 3 possibilities: TTRS, palatal myoclonus, or stapedius muscle myoclonus spasm

I had never heard of NAC until I found this thread. My tinnitus came on from a middle ear surgery that I had to cure my middle ear myoclonus. My tensor tympani and stapedius muscle were cut in my right ear which has left me without protective muscles to dampen loud noises and makes me fearful of...

To be clear, I’m not trying to argue. Can you point me to the reports of resolution of hyperacusis, noxacusis, etc, as an outcome of the surgery? I’d like to read about them.

This study showed how treating palatial myoclonus treated a patient's depression so what did they conclude? (Discussion continued below)

Sounds like myoclonus. Stapedial or TTTS. Or some problem with your Eustachian Tube.

Diagnosis of Stapedial Myoclonus Using Endoscopic Visualization Abstract Background: Stapedial myoclonus is an uncommon condition involving the rhythmic contraction of the stapedial tendon that may result in a host of symptoms, including tinnitus (1–3). There is a dearth of robust diagnostic...

Thanks. So the myoclonus was gone all day yesterday until I woke up in the middle of the night to use the bathroom. It was banging away then. It was about 3:30 am. When I woke up it was gone! What a pleasant surprise. So far today it isn't back and it is after sundown too. Hoping this is a good...

I now believe this is middle ear myoclonus. Tympanic Resonance Hypothesis At times my voice, pulse, and head movements resonate from my neck to my ear. Does anyone get these symptoms and had a diagnosis / cure?

...your post. My first thought was why not first try some massage on the roof of the mouth. Anyway, after doing a quick search on "palatal myoclonus natural treatment", I came up with the following videos. I don't know what they will say, but I have to believe there are some very effective...

https://mega.co.nz/#!LNQzBDiI!Ctb9_RX7WJWnf-7k3dmr3l_NfaIMdpG0ByZepE9YR4E : Palatal and stapedius myoclonus: Palatal myoclonus is characterized by involuntary palatal contractions, causing clicking tinnitus due to the action of soft palate muscles on the membranous Eustachian tuble...

Hi people, I think I have a stapedium myocloni I'm not sure... For this reaseon I'm looking for an a speacilist, expert.. about this problem, wherever. I need a good diagnosis for know what muscle works bad (stapedium, hammer...) and need to be cut. My problem sound like a fly/butterfly try...

...been examined yet and I have no idea what I have beyond the multi rings/tones, high-squeals and ears cracking at sound, is it hearing loss, middle ear myoclonus, hyperacusis, etc? Does anyone here have any tips or advice for seeing him and getting to be a part of his clinical trials? Thank you.

So the roof of your mouth is spasming?

I suspect that. Plus the fact that I have seen other cases of palatal myoclonus from antibiotics (they are somewhat epileptogenic). I have seen reports of Ciprofloxacin causing palatal myoclonus. Combine that with the fact that last summer I had severe problems from a neuroleptic drug (they are...

Hope your myoclonus stays away! Tinnitus is a strange thing, does whatever it wants which makes it so unnerving... Plus we have zero control. My tinnitus has been terrible during lockdown but has calmed down a bit, giving way to the horrible myoclonus. Our brain is chief executive of our whole...

Myoclonus: Myo = muscle, clonus = spasm. TTTS is a myoclonus. Its a spasming muscle, the Tensor Tympani (hence Tonic Tensor Tympani Syndrome). The Stapedius muscle also spasms in similar circumstances but due to its different function and attachment it creates somewhat different symptoms...

Sorry I should’ve specified mem is middle ear myoclonus. I’m quite skeptical on trying the muscle relaxants because they indicate that it can cause ringing in the ears and I don’t want to make that worse. As for surgery it’d be very last resort but cutting the tensor tympani and stapedius. He...

That is very interesting. Hopefully “rare” not meaning untreatable? Do you have any good threads on finding more information on this? I have had a quick look myself. I don’t have tapping or thumping but I do experience it every couple of years.

I have taken it for cramping tensor tympani and it worked very well but with diminishing effect over time.

Went to the GP today. He was very cordial, but he denied the amoxicillin caused the myoclonus. He said that it was my anxiety disorder that caused it. I'm like WTF, he wanted to give me a referal to a psychiatrist, I was like "NO, THIS CALLS FOR А NEUROLOGIST", like are these doctors trying to...

I already tried Klonopin for the myoclonus, it didn't stop it. Baclofen controlled it, but it brought back the tinnitus. I take Klonopin 1 mg for sleep now, but unfortunately it doesn't control the myoclonus. I have no way of knowing if it is moving while I sleep, but my guess would be that it...

I did have a bad hyperacusis as well, but now it got better... Could you please tell me more about myoclonus?

JayG what you are describing is middle ear Myoclonus. Some of us on this forum have it. It's rare and difficult to treat. Please see this thread https://www.tinnitustalk.com/threads/for-those-with-middle-ear-myoclonus.16222/#post-300227 I actually don't think it's the middle ear muscles. I...