Search results for query: Myoclonus

Mine have improved a lot. It didn't cross my mind at first. Someone else mentioned that their ENT said it would though, due to the stimulation of the trigeminal nerve.

Yes, that is a very weird symptom, but as you mentioned, it could be stapedial myoclonus. If I were you, I'd hold off pushing for more tests right now, and see if the symptoms subside any. Then, if it is still bothering you, you could seek out a second opinion. If you do go for that second...

I sometimes experience the same in both ears. But only after my NIHL. I can feel and hear my eardrums being moved by (what I assume) the small muscles.

Also by the way, have they talked about botoxing the muscle? I know a lot of people on here and everywhere hate the idea of botox because it is a toxin. If I had Palatal Myoclonus I wouldn't mind trying botox. I have had it before for other reasons and didn't have any side effects.

...some kid screamed next to me in a pharmacy queue six weeks ago. Life destroyed. Does anyone know whether an operation for Tonic Tensor Tympani Syndrome eliminates the odd sensation/clogged feeling in the ear? How can we differentiate between Middle Ear Myoclonus and Tonic Tensor Tympani...

Hello. I have intermittent tinnitus in my left ear of 9 month's standing, following an accident. I hear fine - then static/vibration and pain. I am being treated for possible Middle Ear Myoclonus. Does anyone else have pain with their sound? what are you being treated for? With thanks.

I think it's cool and relieving that there are gamers out there that are victims to a similar terrible disorder. Gaming is the one place where my mind is at ease and I don't worry or stress over my middle ear myoclonus and tinnitus :)

...is somewhere in the middle ear, anything from the eustachian to the tensor tympani to the veli palatini, it could be a form of middle ear myoclonus, or a form of veli palatini myoclonus, it could not, it could be a tonic muscle, making the ear tense. Nobody is sure what works for it but there...

@Greg Sacramento If only my jaw nerves were affected, would it be possible that once they are fully healed, and if I can get my patulous eustachian tubes fixed, my ear myoclonus would be cured? I have noticed that the ear muscles are worse after eating... And talking...

If you are able to stop or change your Tinnitus through external stimulus to your ear, as you describe, you may have a curable condition called a myoclonus. Go to a specialist ASAP. They can help verify if what you are experiencing is subjective or objective.

I have musclespasms in my ear that sound like thumping, so the ent said it was myoclonus of the tensor tympani, So after reading a lot of the same symptoms on the net i guess thats the only label you can put on it.

@japongus my ENT diagnosed me with myoclonus you need to find a neuro-otologist they are more familiar with this condition. I found a doctor who does the surgery without cutting into your ear she goes in endoscopic through the nose so its less invasive. I think ive read the posts you are...

Funny how some say I can live with anything but T or anything but H or anything but myoclonus...I feel genuinely sorry for people who have all 3 in severe form, as I find it hard to live with just 1 thing, my T.

@Jokko how long have you had these symptoms? Check out this thread. I am not cured but I'm doing better then I was. https://www.tinnitustalk.com/threads/myoclonus-of-the-middle-ear-stapedius-muscle-and-tensor-tympani-surgery.3924/#post-98624

Give it a try. Every med is different for every person. When it was thought that I might have myoclonus in my mouth, the movement specialist in Boston at Bringham and Women's wanted me on Keppra. Give that a try maybe as a second med. I don't know if I have ever seen anybody say that increases...

Hello everyone. I just wanted to give a quick update: I have been put on Baclofen (a muscle relaxant) and it IS controlling the myoclonus. It has considerably subsided, but the movement was so strong to begin with, it is not gone yet. I hope it will be eventually. Thank you, hope everyone is...

When I searched for middle ear myoclonus on net, I found another option to probe for possible muscles involved without cutting them - botox injections to the suspected muscles through eardrum or by throat depending on their location. Botox would totally disable the muscle for a duration of a...

If it's the bones in the middle ear it should be audible by an outside person aka your primary Doctor. This is not tinnitus if you truely have muscle and bone spasms it's called myoclonus, and it's treatable today! Go see you doc. And a good chiropractor.

PoodleChick have you recovered from MEM surgery? Did the procedure provide relief from myoclonus symptoms? I am especially curious if the post surgery T in fact did subside or go away? How are you doing? I suffer from the same disorder and considering having the surgery done.

TTTS is supposedly more likely to produce objective tinnitus due to the size and attachment of the muscle involved. Stapedial myoclonus is less likely to produce an objective tinnitus, because it is much smaller and has a different attachment. Both muscles are found in the middle ear.

@Kevin08 yes I was diagnosed with stapedial myoclonus I've tried muscle relaxers but didn't seem to make a difference ( granted I tried a low dose and only for about 4 days) I found that magnesium has helped I've had it for 4.5 months.

...has been posted yet, but I tried it and was relieved of my TTTS pressure and fluttering in minutes. I will keep doing it--it is reported to result in long-term relief...

I feel for you Eric. I am worried that my ear issue might be myoclonus, though this is my conjecture, since nobody would be bothered to examine me for it. I'd hate to have this condition..... Generally.... I find low pitched tinnitus to be more intrusive and anxiety-inducing. Then again all...

...pointed out, I can definitely say without a word of doubt that an ENT doing microsuction caused my tinnitus, hearing loss, middle ear myoclonus and hyperacusis. It's a dangerous procedure which at best should be tighter regulated, at worst banned altogether. I'd prefer the latter...

...However, I had extremely somatic tinnitus where even a subtle movement of my lips would alter the pitch significantly. I had middle ear myoclonus and once I had my Tensor Tympani and Stapedius severed, the somatic tinnitus declined 95%+. I emailed Dr. Shore my case results but she was not...

Yeah, can they be fixed? And if so, if not treated for a year or so it very well may stick around.

I am trying different medications to stop DRUG-INDUCED palatal myoclonus. Now I'm on Carbamazepine, and I immediately noticed a side effect where the pitch of sounds is lowered. It's very annoying, because I'm a musician. Has anyone here experienced this side effect? It's listed as incredibly...

How can doctors see how the middle ear functions (stapes, bone chain, etc)? I mean, how it responds over time in the presence of noise? Is there a test for that other than, maybe, an MRI? What I feel after a single loud noise exposure is pressure and, after a few hours, I sometimes feel...

Looks like D is not sold for human consumption; only lab testing. L still had some results on the mice. I supose this could help people with myoclonus if it can be absorbed effectively enough when ingested--though it looks like D is the real deal.

Every time an audiologist or ENT has put something in my ears I have ended up with middle ear myoclonus. I will never let anyone suction my ears or alter pressure in my ears again. I am now 6 months into this hell. I now have at least 4 types of T - tonal, myoclonus, venous hum and occasionally...

...ENT is trying to work up my symptoms, I had an MRI yesterday and and my follow up appointment is in two weeks. I think it’s possibly a middle ear myoclonus that is contracting with my heartbeats but my ENT suspects a vascular cause. Does anybody have any advice or thoughts? Thanks in advance!

The "zygomatic maneuver"? Oh yeah. That was one of the first things I tried even before I seen any doctors. The main function of that is to relieve middle ear myoclonus...in layman's terms. I don't have mem. Couldn't have it if I wanted to now, that muscle was vaporized by 3 zaps of a laser.

Tendor tympani and stapes myoclonus cause the typewriter noise, you usually develope the myoclonus in response to intense fluctuating tinnitus that won't leave you alone, all this attenion focused on your inner ear for months without relent causes you to be able to start to activate your ear...

Hi everyone, I need some help. My boyfriend has Middle Ear Myoclonus and was wondering what he could take to help with the symptoms. If you have some suggestions of which medication he should take and at what dosage worked for you, that would be extremely helpful. Thanks.

...now, and two days ago, I noticed that the low rumbling that I despised, has returned! Do you think Baclofen is the cause? The problem is if it's not Baclofen then I have to take another muscle relaxant because I have palatal myoclonus. :cry: Thank you for the replies. Hope you are doing well.

My myoclonus is a furious mach-3 rush, and it never lets up. When I hear something rhythmic like a car indling or a refridgerator, it stays in my ear for a 15min-1week. The swishing/rattling takes on that rhythm. My pain only happes when I hear sounds that are in the same frequency range as the...

I'm trying to ascertain whether central gain diagnosis is overlapping with myoclonus diagnosis, in order to find out if I have the latter. It matters whether it can or can't be heard because very little has been written about myoclonus and many doctors give too much importance to its having to...

Did you have stapedial myoclonus like I do? I'm wondering what kind of results you got from having it done? Are you glad you had it done, or do you have regrets?

...you got a diagnosis so quickly. I think mine is a little different in that I hear that rumbling low humming too and doctors just kept calling it tinnnitus when it could be either pulsatile, myoclonus, or objective. I wonder if myoclonus, or these spasms are something you can habituate to...

...good for nerves, but helps me sleep. Maybe it has helped me, as per this thread. Also check out myclonus: https://en.m.wikipedia.org/wiki/Myoclonus Middle ear myoclonus occurs in the muscles of the middle ear. These muscles may include the tensor tympani and stapedius muscles. It can...

...it was only as of last month that my loudness hyperacusis stopped and my migraines from it reduced about 90%. I still have both constant and reactive spasms and trigeminal neuralgia from the TTTS and palatal myoclonus aspect but the pain has reduced and the majority of my balance has returned.

I admire your tenacity but after all the years this is the worst thing ever. I'm not being dramatic or seeking attention but I don't think I can go on any more :-(

Sounds like eustachian tube dysfunction and/or ear myoclonus. https://www.dizziness-and-balance.com/anatomy/ema.html Not sure about treatments, I have them both but not getting any treatment, muscle relaxants don't usually work because the muscles are so tiny and the spasms are local, meds...

I had an MRI with the exact same machine two weeks ago and still have elevated tinnitus. Claiming that it is quiet is just a joke.

What caused it? I don't really have T now. It's just some form of Middle Ear Myoclonus that I'm going through. Although, it seems to be affecting my hearing in some way.

If the noise is triggered by lifting you would not hear it in your sleep. Muscle spasms in your neck and around your ear can cause sharp clicking sounds. Also there is a condition called stapedium myoclonus that can cause this clicking in your ear. You could try researching that.

@truesilence sorry that you're having such a rough time but if you hear a clicking sound it's most likely stapedial myoclonus. You can goggle it more and they even have sample sounds online so you can compare if the noise you hear it's the same. Best of luck :)

Hey Razzy, your symptoms sound exactly like mine. I got middle ear Myoclonus out of the blue in early November. I also tied a major trigger to burping and the sensation of air pressure moving through the Eustachian tubes. Oddly though yawns don't trigger me at all (although it seems to...

...Tinnitus was gone. I had pulsing since July, 2020. Just a little note for anyone who thinks they might have other symptoms of Middle Ear Myoclonus. I won't be around to answer questions as early days in recovery and still have lots of tinnitus. Interestingly enough my ability to...

Hi, when you had MEM, did you have any reactive T/dysacusis along with it?

Middle ear myoclonus can cause tinnitus sounds, both continuous and discontinous. Peripheral nerves from, say, the neck can cause the nerve to make the muscles spasm just like problems in the brain can.

Five years with myocloni...

@mermaid my myoclonus sounds different I describe it like a hiccup feeling inside the ear canal it also sounds like a tympani drum or the sound of someone taping on a microphone very hard. The stapedial makes more of a clicking sound and is not as fast or loud.

No. I suffer from otosclerosis. I regained a good chunk of hearing (closing the air-bone gap). Lost a little bit in the high frequencies. Overall positive. The disease also stopped progressing after that, but I don't know if it's because of the surgery or the heavy doses of Fluoride that I'm...

Hi, I have this flutering also hyperacusis. In a few days I will write my clinical presentation. Two questions: Middle Ear Myoclonus is the same of TTTS (tonic tensor tympani syndrome) ? Someone can explain more about "There is a treatment for chronic Stapedius problems--the muscle needs...

How long did it take for you to see a change? Did it originally click along with the vibrating/bass sound? Or did the click come later?

...seems to fluctuate in volume some during the day. I'm having another problem in my ear in addition to tinnitus. I now have stapedial myoclonus in my left ear, and when it flares up it seems to make my tinnitus a lot louder in that one ear. It is louder all day now too, and loud enough that I...

Forgot to ask, what do you make of humming and talking stopping the vibration. Is that an indicator of what the root cause could be? Or why coming back from driving and noticing it big time once the cars off indicates something to do with pressure change of the car or perhaps the vibration of...

I had to start taking this stuff again since my myoclonus got loud again, and the hyperacusis came back a couple weeks ago. Taking it once a day and it is working to keep things quieter and to keep the hyperacusis away. Some days I go without and it comes back. It def helps me.

I think you mean a muscle of the middle ear. There is no muscle in the inner ear. There's a bunch of hair cells in there though.