Search results for query: Myoclonus

Sounds like you may have middle ear myoclonus. This is where either the tensor tympani or stapedius taps against the eardrum. I had it for 3 months last year. Counted 6000 taps in one day. It went away. Now I have it in my left ear and sporadically in my right. Just have to live with it. Take...

This does not make any sense. The second M stands for myoclonus; I guess you mean middle ear muscles? By the way, I've been thump-free for 7 days now. Longest break since it started again two months ago. I appreciate the hiatus. I still experience myoclonus of random body muscles, but it seems...

I dont think you should take it upon yourself to bear the full responsibility for Padraigh. I have found myself to think and say things + react in ways I would not normally do after I got 3+ years in with this nonsensical condition. Lack of sleep over a long, long time and just generally the...

My surgeon is Dr.Mathew Hanson. There is a website that lists the names and state location of doctors familiar with middle ear myoclonus and can perform the surgery. My doctor is on this list although he was referred by my ENT, an old timer who knows something or two. Perhaps you can ask for...

I have no wax, I thought I had ETD but both ENTs I saw say no. I was reading a fair bit about stapedial myoclonus last night, looks like it could mimic a lot of other things. I read about one person who had the procedure to cut the muscle. Once it was cut they no longer had the flutter / safety...

Wait, facial nerve damage? I have bass like tinnitus and severe ear myoclonus, I know those muscles are innervated by facial nerve, but... I had some jaw nerve damage (paralyzis) before... Can that cause permanent dysfunction? I mean, can't the nerve pathways fully regain their previous state...

uh that is called middle ear myoclonus. (bones in the middle ear malfunction) and no evidence suggest that relates to noise induced tinnitus. Not saying tinnitus can't be caused from MEM. Let's classify things so we know what we are talking about Types of Involuntary noises perceived in the...

...to get it fixed? My tinnitus seems to come from TMJ/neck issues as well nowadays. Even my left side (which isn't affected by tinnitus) gets fleeting rings sometimes if I don't take care of my posture, etc. Stretching my neck makes it go away. Also, is yours because of TTTS or Stapedial...

I hope you recover soon. That's why I did not get vaccinated...

...muscle relaxer) that seems to help. Not sure if it works on the brain or muscles in your neck that could be in spasm. Another post where a person named Tim got results from Flexeril...

Does this surgery not prevent the ear muscles from protecting itself ? What are your symptoms? Is the muscle hyperactive around everyday noise? I have problems with my left side, spasms with pretty much any sound.

well it'sbeen about 4 days of low carb high fat with plentiful coconut milk. but I'm sad to say my tinnitus and myoclonus has been absolutely awful. on positive note I have loads of energy despite the usual sleep deprivation. on goes the search. why does . it seem to go through these phases??? I...

No, my myoclonus is only in my right ear. And no, I didn't have my cyst removed. The doctors were of the opinion that there is no need to do that kind of surgery. They have never connected my symptoms with this cyst, though I suggested them that possibility. But they were all ENTs or...

...sounds like a constant drumbeat in the background. I think you're right, in spite of what your doctor says. It sounds more like stapedial myoclonus to me. You could try going to another doctor for a second opinion, but this time, you might consider going to another type of doctor rather...

...Saturday 6/10, today a massive big fat 10/10. It can change inter day as well. No predictability and different tones. I have Middle Ear Myoclonus as well as ‘normal’ tinnitus. If I lived in a country where it’s available, I’d probably apply for VAD. Last throw of dice is psych hospital and...

...feel like a fluttering/thumping and it's very annoying to say the least. I went to an ENT but unlike you I wasn't diagnosed with Palatal Myoclonus since at least for my understanding PM is visible (try looking it up on YouTube you can actually see the muscle moving when you open your mouth...

Hello girls :) I have a new trail to determine what could be a possible cause of my myoclonus/burning pain in my ear. Three years ago I did MRI of my brain and it showed a 12/14 mm cyst of pineal gland. The doctors I met didn't connect my symptoms with the cyst of pineal but as I've recently...

My dad had ablation surgery three times for his arrhythmia (it's a family issue, his mother had it as well). First two times the arrhythmia came back eventually, the third time he switched doctors and it worked (the new one was one of the top doctors for ablation surgery in the country). He...

When I drink alcohol, depending on how much I drink, the distortions become less noticeable. Like if I get tipsy for example, then music sounds better and the reactive tinnitus becomes less noticeable.

I really don't know if Middle Ear Myoclonus is the same of TTTS (tonic tensor tympani syndrome) ? The only thing I know is I have a very loud disturbing hissing sound primarily in my left ear with possible " crossover noise" to my right ear. I am seeing a ENT D.O. this Friday and will update...

...your doctor determine whether you have hyperacusis and its extent if you do. Street Spirit and Tenna, The thumping may be tensor tympani myoclonus, which can be diagnosed by viewing the ear drum through an otoscope and observing what happens when the muscle contracts following exposure to a...

...that. Perhaps since it is a CNS depressant it suppresses the problem some. I have tinnitus but its not nearly as bad as yours, but I never noticed alcohol helping it any. Just one week ago another problem started for me, what I think is middle ear myoclonus. I wonder if alcohol would affect that.

No, actually it got worse now, because I got palatal myoclonus. So now I hear the clicking in my ears too. Also the muscle relaxant they prescribed me caused the subjective tinnitus to come back... It's been tough.

Hey, this is very interesting. Especially that video from the study. However, that example singer's stapedius only seemed to clench and release only as he was singing, but that doesn't mean there wouldn't be different forms of it. Many of us have had a similar experience with a low...

...Did they mean tensor tympani spasms as opposed to stapedial spasms? Or did they mean that TTS, as in tonic tensor tympani syndrome responds to external sounds whereas myoclonus goes off on its own? And if so, have any doctors with experience said this? I assume you can have both, but am I wrong?

Don't you have any pulling in your ear? What kind of symptoms do you have? Cochlea controls the middle ear, which it probably doesn't, as opposed to the middle ear, ie myoclonus or TTTS as being the source of pain. What's so hard to understand?

I seem to be going through the same things. Is there any way you cope with it/make it better? I'd love to know.

...to an otoneurologist from Greece/USA called Aristides Sismanis but he's retiring now so I'm screwed again for now, and he said possible myoclonus but he was so cryptic and I was so nervous I didn't find out how much he really knew. Another thing I'll say is that it isn't loud in my case...

I was fine with the first two vaccines. I had the booster vaccine followed by a headache that last many, many weeks. Unsure if the headaches are more frequent now or not, I am predisposed to them due to having TMD and light sensitivity from dry eyes. Tinnitus AFAIR stayed the same, but then my...

@Erin0830 in my case is not TTS. I have middle ear myoclonus. The condition is very rare so don't expect much from doctors :(. The magnesium helped me but the muscle relaxer didn't, however maybe it will work for you everyone is different. I know is tough :( I'm still an emotional mess...

Is your pulsatile tinnitus constant and match your heartbeat? I've also noticed as of late, I'm hearing my heartbeat more in my opposite good ear and I've been hearing a weird whoosing type flowing sound that seems to occur when I move my head to quickly in bed, or get up. I'm thinking it's...

...the muscles that link to the tendons which spasm and pull on your ossicles that cause the ear drum fluttering. Botox can help with palatal myoclonus. I've had my tendons cut in both ears, and in fact, the left ear's TT regrew twice. But now I believe I have some form of palatal or e-tube...

I'm going through Stapedial Myoclonus/Dysacusis in my right ear at the moment. A Weber Test revealed that my right ear is having conductive hearing loss. Attached is my hearing test results. My regular hearing on the right also seems to be "not so good". I recently found out that my right ear...

...tube and recommended nasal spray and decongestants. Found no relief and saw another specialist. Saw a specialist the other day and he diagnosed me with tympani myoclonus. Dr said this was a pretty rare condition. Now I'm feeling so anxious and worried.. Has anyone here ever experienced this?

Do you think Stapedial Myoclonus/Dysacusis can be caused by this? Especially when one seems to have neck/jaw issues?

Sorry to hear your tinnitus is so severe. I had Middle Ear Myoclonus in both ears since 2007 and it would drive me crazy. Episodes would last 14 to 16 hours. It would be off and on but in 2017 it got so bad I could barely stand it. I went to many doctors but got no relief. They prescribed...

Out of curiosity, has your eustachian tube been evaluated?

I knew I shouldn't have gone, my doctor said she wouldn't treat my palatal myoclonus without going to an MRI. So I had to go, but I knew in my gut it would be a disaster.

If you read the little crappy amount of academic literature on middle ear myoclonus and/or TTTS you begin to find patterns that point to peripheral instead of central hyperacusis. There has also been extended debate and personal testimonies over at chat-h or benzobuddies with botox and tenotomy...

I'm glad my tinnitus isn't loud enough to ruin my life. I can totally understand how it feels though. My myoclonus was really bad a few weeks ago. That and the tinnitus combined was horrible. Then my heart got stuck in ventricular tachycardia and I had to get defibrillated. So many problems all...

...up the threads that discuss cutting the tendons of the middle ear muscles to stop their chronic spasm. Search terms may include tenotomy, myoclonus or just plain cutting. If you are in America you may have some chance of finding out more. No-one will discuss it let alone do it in Australia...

@japongus You mean that afferent nerves from, say, neck, can cause muscles spasms in (one of) the two tiny muscles within the middle ear, which can cause continuous/discontinous T? I just want to check if I understood correctly.

Do you also have sound sensitivity when you get the thumping? Is the thumping more of a blown speaker effect or is it so audible other people can hear it?

...window reinforcement... instead of plugging. I'll still like to know why stapedial resection was carried out because I read so much about ''myoclonus'' resections from a decade ago I'm wondering if Silverstein is closing the missing link between ''hyperacusis'' and ''myoclonus'' with this...

Hey I have the same middle ear myoclonus in both ears but mostly in my right ear. I've had it for about six months, is yours 24/7? I've tried muscle relaxers but they don't help. As far as I know they do need to cut the eardrum in order to access the muscles and like you this scares me too...

Yes, I had a good talk with the doctor. He confirmed the stapedial myoclonus diagnosis based on my symptoms. He did tell me that the problem usually goes away after some time, so I will just have to deal with it. Not really any way to treat it with drugs. He does the surgery himself if it comes...

Just a little update. Doctor has prescribed muscle relaxers, which greatly helped reduce my issues. I've been diagnosed with inner ear myoclonus. The doctor is a little concerned that I may possibly have MS, so I've been scheduled for an MRI. I stopped taking the muscle relaxers (I did not...

@Wolfears I know normally the ears can kind of protect themself from shouting by tightening the ear muscles etc but I have severe ear myoclonus so I'm afraid my ear muscles don't do their job.. they just spasm randomly and cause hyperacusis... And patulous eustachian tubes make the sound...

Sometime when I speak I feel a fly in my ear. I don't know if I have Tensor Tympani Syndrome, middle ear myoclonus or both, how I know? Is better feel this all my life or is better cut?

Yes that does make sense. I want to ask you some questions about this. I'll message you directly.

...day because my spike is so unbearably and painfully loud my ears are on fire and my hyperacusis doesn't let me even mask it.. got severe myoclonus probably because of the stress... I know oxidative stress etc is very bad for the ears I wonder how much (irreversible?) damage this crying and...

Mine gets worse when I eat and when I exercise. Also it gets worse if I have tension in the jaw and neck. I am thinking about doing a Doppler test. Scared about MRI (too noisy).

...the tensor tympani and stapedius. The only thing he told me was the effectiveness of the surgery being only a majority of the time because sometimes a third muscle is responsible sometimes for the myoclonus. I will be getting the surgery when I get the money or insurance that will cover it.

...MEM because he did not see the muscles actually twitching. But of course they weren’t when I went to see him. He just kept saying “if it’s myoclonus.“ I probably should’ve asked, well, what else would it be? Basically he strongly encouraged me to do nothing. Saying that it usually just goes...

Thank you. I’m taking a legal case here and not only that he dismissed my problem but he obviously has his wires crossed! His opinion counts in front of court and obviously he has provided faulse information. I think I have every right to challenge his decision.

...diagnosed me with Myo some seven or so years ago. It took me many years to find an ENT specialist (neuro-otologist) in my area w/ myoclonus middle ear experience. Both my ENT and neuro confirmed seeing my ear drums spasm during examination. I too have followed the threads of Lib, JoeM...

...on the H network and found these two threads, but japongus is much more informed than me about this. http://www.chat-hyperacusis.net/post/failed-surgeries-1076268?highlight=surgery http://www.chat-hyperacusis.net/post/relief-from-tensor-tympani-myoclonus-after-surgery-2417302?highlight=surgery

It's probably middle ear myoclonus. I have the same vibration feeling in my right ear.

...naming a cluster of symptoms as a specific disease seems to often hinder its proper study. I did see a paper implicating Middle Ear Myoclonus in Menierre's particular cluster of symptoms. The same paper also described visible inflammatory changes of the inner ear tissue when the tympanic...

...muscles ablated, which did not stop the clicking and did result in a year of food tasting funny. Have tried Botox for possible palatial myoclonus-without success. Recently had a temporal bone CT scan which showed no evidence of superior semicircular canal dehiscence. I’m considering...