Search results for query: Myoclonus

What is the thumping like? For me, with (suspected) Stapedial Myoclonus, my right ear reacts to some sounds with some sort of high frequency distortion. Ever since this started, I've noticed that my right ear also doesn't hear some high frequency sounds as well as my left.

I haven’t looked into that. Thanks for the suggestion. I do have TTTS thumping. Yeah, trying to get help is frustrating hopeless it seems. My surgeon/ENT just seems dismissive and somewhat defensive whenever I’ve brought it up with him. I think he’s worried I’ll try to sue him or something. I...

...to be hormonal. I have birth in June and stayed on the diuretics and LDN during pregnancy. Towards the end, I had some MEM (Middle Ear Myoclonus), but that has settled and stopped for about 2 months. I haven’t tried anything else as I’ve been stable. I will read about Singulair though...

As you are describing it, it could be anything. It could eustachian tube pressure, or some middle ear muscle playing up, plus some inflammation. I bet no doctor will be able to tell. Actually, the way middle ear muscles work is not fully understood.

...forget about it. We have some members here that feel the same way as you. Maybe reach out to them. My main problem is my heart failure, but I've got a big list of health problems now including stapedial myoclonus and tinnitus. Ive faced death several times and decided I want nothing to do...

Which would seem to illustrate escalation of an untreated primary disease process. Is this not our fundamental issue?

It is. Its also a presentation of myoclonus in that its a spasming muscle in action. Myo=muscle, clonus=spasm (rhythmic contraction). I've had symptoms consistent with Tensor tympani over-activity but sound as a trigger for it tends not to be there. That's one reason I wonder if its actually...

...facebook Hyperacusis sufferers group Ben Levy for now after a few weeks postop doesn't seem to be doing well but its too early to tell. I'm wondering if he has myoclonus or something, and I don't know how to tackle the situation. And again, everyone else with pure hyperacusis is happy with...

...will set my mind at ease. My doctor didn't think I would get offered it until around February anyhow. I've also had tinnitus now for over 30 years, and recently started having what I think is MEM (Middle Ear Myoclonus). I too hope that this vaccine doesn't make that worse. It is driving me mad.

Medical doctors are very little help for some reason... I don't quite understand why yet.

...become a new best friend of many. Billie you have given me pause and hope about my life. My T may or may not be a result of my middle ear myoclonus. I will have surgery jn two weeks to cut the muscles/tendons. The T may get worse but having your powerful message and p oisitive outlook, I...

...about exactly what I've been experiencing off and on over the past month or so. Lately though as it has turned into a more broad-movement myoclonus though, it's more that the convulsions in my ear that sync-up with the rhythm of motors and things(more percussive instead of tonal now). Like...

...near my nose and ears. I have had this for 1.5 years. I have been to a lot of ENT, no one could really heal me. I'm not sure this is Myoclonus (As some people cut all the tendons and still hear this crunchy noise). Even healthy people have stapedius contraction when they are about to talk...

It was under my impression that if the ear drum is tensed during the tympanometry measurements and reacts to sound something would show up. Decreased/increased compliance perhaps?

...many days when this is prevalent, particularly short sharp, high sounds like a light switch or even the press of computer keys. Some papers I've seen associate it with stapedial myoclonus, others just call it part of hyperacusis (which itself is a symptom, not a diagnosis as many seem to think).

...surgeries as implanting the cochlear implants etc., but it isn't able to solve the problems with seemingly "silly" thing as middle ear myoclonus (At least in my case the doctors weren't able to help me, and I know several similar stories of the people from my country, they have the same bad...

...The muscle tissue can absorb from outside pretty well. The eardrum does need to be moved to allow access, simply put its the only viable way in. Doing so allows the muscles to be seen, and the myoclonus to be identified. I think the lifting of the drum is the least of the issues involved.

...If I didn't use one of my remedies it would probably stay 24/7. I try to nip it in the bud as soon as I get it. I never heard of stapedial myoclonus. I goggled it and it sounds like that is what I might have. What kind of doctor gave you that diagnosis? I saw 3 ENT's and was not given a...

...long. The tinnitus community should be all over it like a rash :) The results are too good to be placebo and South Korea are well advanced in tinnitus research. Best papers I could find online on my condition of Middle Ear Myoclonus all came from South Korea. Appreciate your continued efforts.

How are things now? I recall you posting another thread on the tinnitus support forum after this surgery about an issue with hearing things going on in one ear in the other ear or something. Do you feel these issues are related to the surgery? Have you experienced any other issues?

I get waves of bad stuff (in 2020 I had a "regular" spike, a bout of pulsatile tinnitus and a bout of middle ear myoclonus AKA "clicking"). However, between the waves of crap, I also get good periods. Met a sweet girl, had some success with investments. Or just simpler stuff, like back-to-back...

It's exactly like this. The thing is I also got a medicine induced palatal myoclonus so now it clicks anyway... But prior to that, I felt exactly what you describe.

I feel the exact same, doctors have done nothing but destroy my mental health ever since I became ill with tinnitus etc... most of the time it is up to us. It is great to hear it is subsiding. I bet it will completely disappear over the next few weeks/months.

So you had both your stapedius and tensor tympani lasered. I suspect part of my pain is from one of those two muscles. Did you have any other symptoms like pain from swallowing, your voice sounding extremely loud and causing aching, fluttering to noise, hearing a twang or rumbling when yawning?

...reason, it’s really uncomfortable. The tinnitus also increases with sound, and stays loud after the sound has gone. I became aware of the myoclonus noise several hours before the change in hearing/tinnitus happened. I was having a Trigeminal neuralgia flare which had relapsed over 5 days...

...to hear the sound very well in my left ear, but not so clearly in my right. I'm currently going through what seems to be Stapedial Myoclonus/Dysacusis, which may or may not be because of Conductive Hearing Loss? I tested the sound in both ears, and my left ear definitely hears the static...

...and then I hope to worsen the already pathetic questions on the hyperacusis questionnaire, the ones that don't differentiate between myoclonus and hyperacusis, and in all this time couldn't even hypothesise about the involvement of middle ear muscles or a wiggy stapes or compressed nerves and...

...faith years ago) and let it go. So that's what I've been doing. It's been a battle but one I've been winning (mostly). So, that's why I haven't been around. Tinnitus is there, the clicking is there, but I'm coping and living my life. Oh, and it was confirmed that I do have Middle Ear Myoclonus.

...an otologist not an ENT. Option#2: if the sound is like a typewriter in you ear? Then it's tensor tympani muscle spasm aka tensor tympani myoclonus. I had this for months when I was super stressed about my tinnitus. Thinking about your ears causes muscles spasms which sound like a thumping...

Hi, I am new to this forum and would like to share something I've found that temporarily relieves the noise/sensation. Firstly, I have myoclonus in my right ear only. 24/7. I have had days of relief then sudden onset. I am starting a diary to analyse why. BUT I do find looking straight sharply...

So yes, because your eardrum was lifted, it is very possible that your eardrum may feel loose, precisely because they did lift it and reattach it. Do not let your doctor ever tell you what you feel. Those doctors are not worthy of holding a medical license. You are correct that because you do...

...level, considering whether to get vaccinated makes sense if you have tinnitus or other heath issues. I have been diagnosed with middle ear myoclonus which started after receiving my shot. I can't prove it's related to the vaccine and I can't prove it's not. Correlation does not equal...

...When I get up they are gone. I hear them 1-2 times during the day when I'm awake. Why do I hear them always upon waking up? Is this Pulsating tinnitus or myoclonus ? I really hope it goes away and doesn't get worse. I've been monitoring my blood pressure and it's never above 130/90. Please help

My thoughts and prayers are with you sonicboom2000. If it is myoclonus you have it can go away on its own.If not botox injections can help for a few months and people have had these muscles cut as a last resort. This can lead to hearing your voice a bit louder or being conscious of hearing...

...with @volsung37. My pulsatile tinnitus DID NOT start that way, and has not been like that at all. So, he may be correct that yours is the myoclonus. That seems more likely, and it may go away on its own, since it is intermittent. All my sympathies go out to you, and I totally understand...

@japongus what are your symptoms? I have myoclonus however it was diagnosed based on symptoms because the doctor cant see the muscles unless they cut your eardrum. My spasms are a loud thump that usually comes w every yawn, burp, hiccup or sometimes it can happen by itself. I hear the spasms...

...impact? If external sounds bothered you, what kind of sounds, what sensation did they create in your ear? Did the H cause referred pain elsewhere in the body? Did you have pain after sound or only with sound? If no sound sensitivity, did the myoclonus cause pain elsewhere or delayed pain?

...is bad I can press hard on the tragus of my outer ear, and everything inside clicks, snaps and crunches. When its not there this doesn't happen. The same thing just doesn't occur with my good ear no matter how hard I press. I suspect myoclonus affecting middle-ear ventilation somehow.

I don't have a diagnosis, just advice: Avoid whatever causes myoclonus-like symptoms; you don't want that stuff getting inflamed and hanging around. Talk on speakerphone. If it still happens, silence your phone and don't take calls; text-message your friends instead. Don't mess around with...

...just settles back to baseline for one to three days (four is the most) then it recurs. I can identify no cause and effect that explains it, but I lean toward a version of middle ear myoclonus as a likely culprit. When it happens my ear crackles like someone rolling on bubble wrap when I pop it.

Oh I've emailed him but time has passed and I doubt he'll respond. It's been exactly one year since I was sharing myoclonus info and books with PaulBe, I've been that indecisive and it's come to this. It's like frigging Dante's inferno. My biggest fear right now is that another otoneurotologist...

Hi @Audiophile_bg, I’m also in Bulgaria and I just got prescribed Carbamazepine by a neurologist here. I took one dose. My tinnitus seems weird today. I have a buzzing and high pitched tones and I can’t tell exactly what’s going on.

...doesn't sound central. When that sound reaches extreme my whole HF sound spectrum changes and becomes intolerable, and then it lets up for a day or two. Is this stapedial myoclonus? Why does it come and go? The best I've had as far as medical explanations go is "congratulations its a boy".

...saw this, it went to my Spam file. I just saw a new doctor, this one affiliated with Stanford Medical Center, and he suspects middle ear myoclonus as well. This is good news for me, since finding a Botox guy is not going well. I go back for a hearing test and then wait till my insurance...

...if the muscles are cut? How did they rule out that yours wasn't tensor tympani syndrome? What is the difference between that and middle ear myoclonus? Also have you heard of anybody having the condition resolve itself? Sadly, I cannot find any success stories. I'm so sorry if I'm bothering...

Ive been looking into myoclonus of the middle ear and there is a lot of literature about it and how it can cause tinnitus. I know there is a surgery where they cut the muscle so it cant contract and spasm. I wonder if that would improve some peoples t. A lot of times when this is the cause it...

...before. but today its back to normal again.i think it was because it was very swollen yesterday after extraction, so i think it pushed even more into my ear on my hearing nerve or something...cause the extraction was on the side where all my ear problems are (tinnitus, tensor tympani myoclonus)

So sorry to hear. I've had clicking off and on too. Not as often. What exactly do you hear? Does it pulsate/rumble the vibrating noise or just a solid low sound like regular tinnitus but just in lower frequency in sound? Mine I can actually feel when it gets back and it's a vibrating type hum...

...swallow and it’s just one pop. Sound like when you pop your ears in a plane or whatever normally swallow. You may have mem or middle ear myoclonus, luckily they can totally fix that if you have that. I myself have mem but only get a few thumps a day not hundreds. If it’s a thump you’ll...

In regards to inner ear issues (myoclonus/TTTS) this paper was interesting in terms of diagnostics. https://www.ncbi.nlm.nih.gov/pubmed/24232057 @Tinniger We do have to do everything ourselves including seeking out the right kind of help. The only urgency that exists for this condition is our...

...dimple as viewed by an otoscope? Have you had any adverse effects from the surgery ? I have been told that I may have TTTS middle ear myoclonus, but I am intrigued by your statement that tensor tympani reacts to internal sounds while stapedius reacts to external. The explosion/crunching...

I was asking you about MEM in a Research News thread, but didn’t want to tie up that thread so wanted to follow up with you here. You say your MEM was a buzzing sound. You also mentioned a loud hiss. Are you saying that having both your ears operated on eliminated both of these tinnitus “tones”...

...Again, thank you very much for sharing this compelling information. I entirely agree with her on her TTTS points. These periods of myoclonus are episodic and, given such a small muscle, can be difficult to measure. Stellate ganglion blocks are fairly routine outpatient procedures for...

I have no hearing loss either. I got tinnitus and some fullness back in January then the ETD symptoms came about a month or so later. It’s been about 5-6 months of these symptoms. I’m inclined to believe it’s ETD. I also have hyperacusis and the odd fluttering and low drone at morning and night...

...but now it goes into spasms for hours on end and effects both ears. Mine is also set off by a burp or hiccups too ! My ent says it's ear myoclonus. Basically muscle spasm which can be triggered by anxiety! I am on magnesium just now but if that does not work I am going to be given...

...It's taken me 16 months to figure out that my chirping sounds *may* be objective tinnitus. Mine is intermittent, and gets better/or worse with different head/neck positions. I've been reading lately about Palatal Myoclonus and Middle Ear Myoclonus. Still hopeful I'll find some kind of...

...two Fridays ago, end of November. I can't say I'm experiencing thumping, it's like reactive T. The cause could be ETD(which I know I have), Myoclonus, or TTTS. The links below are my most recent threads. Give them a read if you want to find out more. They are lengthy, though. Let me know...

Acoustic trauma has been linked to straight up myoclonus in some of the little pathetic literature we have on myoclonus. I believe correct me if I'm wrong that a few of the successful patients from Silverstein are from acoustic trauma. Of course the Silverstein institute isn't asking the...

I also feel a vibration in my right ear. I went to the ENT this morning , he removed earwax, but I still have it. Feels like a bug in ear crawling very fast. The ENT did not understand me, because I think I have ear myoclonus and tried to explain that to him.

...a case study. Tinnitus Concomitant With Eye Closure Treated by Tensor Tympani Tendon Resection and Cartilage Block Insertion Middle ear myoclonus (MEM) is a rare idiopathic clicking-type tinnitus attributed to abnormal contractions of the stapedius and/or tensor tympani muscles.1 Most cases...