Search results for query: Myoclonus

One month ago I got a sudden onset of palatal myoclonus because of Amoxicillin (within an hour of taking it). So now, the twitching is still here, and I have been prescribed Clonazepam. I hope it helps. Has anyone tried Clonazepam for myoclonus? I'm not sure how well it works for...

...ear. I talked to Myriam Wescott, she mentioned TTTS, but since I don't have fluttering of the eardrum, I suspect rather Stapedial Tendon Myoclonus. The vibrations are not the problem themselves, but they are likely the cause of my extreme fatigue and dizziness, that is why I'm considering...

Hello. I am a palatal myoclonus sufferer for almost 6 years now but it has developed so gradually that I realized something was going wrong when I was 14. Doctors could diagnose my disease 4 years ago. I live in Turkey by the way. I researched everything about palatal myoclonus, went to lots...

...periodically, thinking it is a non-malignant glioma or MVNT.) The ENT then sent me to a neurologist. The neurologist almost immediately diagnosed palatal myoclonus and put me on 250 mg of Depakote. Within 4 days, the persistent noise of 5+ months went silent. I am so grateful for this...

Hello Amongst all the other kinds of T I have developed myoclonus. Its triggered by my left (deaf) ear starting with a fullness and a roar and then the myoclonus occurs on the right ear. IT hapenns between 1 and 6 times in 24 hours. Night or day, sleep or awake. I am finding it difficult. I...

There is someone that had the surgery to solve the myoclonus in the ears? Why I have a special myoclonus it's like a vibrations of the eardrum when I speak. The cause is probably an accident with the headphones!

I am suspecting the medication I took- olanzapine - is not so much ototoxic, as it might have induced middle ear myoclonus. The head tinnitus is causing me to believe this. I just wanted to see if this is a far fetched suggestion. Can drugs cause you to have myoclonus of the tympani or...

Hello! Male, in my early 50s. I'm seeking advice on how to treat essential palatal myoclonus. I've read a lot of the threads here, but I didn't know if there is anyone who here who has gone through it and recovered. Mine is quite bad. The story on how I acquired it is long and complicated, so I...

Tonic Tensor Tympani Syndrome. I have the exact same thing. You are mixing in with the middle ear myoclonus, which is constant.

Has anyone used Botox to confirm a diagnosis of middle ear myoclonus? My MEM is not consistent enough (although it happens everyday with some days being very difficult) to get a confirmed diagnosis. My neurotologist is willing to perform surgery where he cuts a small muscle that covers my...

The following is a search on any discussions on Middle Ear Myoclonus. Check out the posts to see if there are helpful information. https://www.tinnitustalk.com/search/8779886/?q=Middle+ear+myoclonus&t=post&o=relevance&c[node]=11

I think I have myoclonus. My left ear thumps and my left shoulder and left side of my neck have been jerking non stop for the last 3 weeks.

...(both ears, severe multiple electrical frequencies) Hyperacusis (both ears, worse in left) And I have been diagnosed with: Middle Ear Myoclonus (left ear) Eustachian Tube Dysfunction (both ears) Retracted Ear Drums (both ears) I have many other debilitating symptoms including: Pulling...

...miserable ear condition there is? It just thumps away, not triggered by noise..My h is currently horrific (going on 2 years of ups and downs) blasted by a train the other day about 100 ft away..who knows what is going on.. Anyways, anyone else go on to develop Myoclonus? maybe its tmj...

I have seen a lot of threads here mention Myoclonus as soon as someone reveals they have a low pitched sound. Can't regular tinnitus be low pitched too?

Middle Ear Myoclonus: A Treatable Cause of Objective Tinnitus Caroline M. Kolb, (presenter) Denby Fukuda David Y. Healy, MD Abstract Objective: 1) Describe the presentation of an underdiagnosed cause of objective tinnitus. 2) Review the current literature and present an algorithm on diagnosis...

...causing this, or is it literally a thumping beat? A private consultation might be worth exploring other possible causes, such as middle ear myoclonus. Professor Bance is the go-to expert for this. As I understand it, pulsatile tinnitus is not usually connected to hearing loss, so I'm unsure...

...are fine, and also to ENT. The ENT said that my ears look fine and my hearing was good. He said that it sounds like I have this palatal myoclonus, although as my palate was not twitching at this moment, he couldn't confirm. I take pregabalin already for pain relief and he said that this is...

...My issues are inflammation and hormonal cochlear hydrops. I don’t think she would have these issues at eight years old. The hydrops caused middle ear myoclonus for me, and I was worried that the marching sound could be middle ear myoclonus. Any help or reassurance would be appreciated. Samantha

...would spike, I noticed that my nose was clicking very fast, and when I looked in the mirror, it was almost the exact same situation. Needless to say it is also heard in the ears. Why is this happening, are antibiotics pro convulsant? I don't find anything about Amoxicillin and palatal...

Middle ear myoclonus experts, I am struggling to figure out what's going on and having a hard time understanding exactly what symptoms middle ear myoclonus has versus Eustachian tube dysfunction. I will try to describe what is going on as best I can. About 10 days ago, I woke up in the middle...

I got palatal myoclonus this April. Then a hellish series of doctors appointments ensued, where almost no one knew what to do, or what to prescribe me. I was on Clonazepam, Baclofen, Carbamazepine, Oxcarbazepine, Sodium Valproate and nothing was helping at all. I was getting very desperate...

...the best way I can describe it. It doesn’t seem to match the typical symptoms of TTTS (Tonic Tensor Tympani Syndrome) or MEM (Middle Ear Myoclonus). Does anyone have any ideas on what this could be? I was starting to feel a bit more positive these last few days, but now it feels like it’s...

I am scheduled to get the stapedius muscle cut to alleviate the constant clicking from middle ear myoclonus. Can someone who has had the surgery describe the recovery? Thank you. Don

Hi. I'm new to this site. I have been suffering from Inner ear myoclonus for 15 years now, and here is what I can tell you. It is episodic. It is 100% caused by STRESS, and no medications which suppress the CNS (Central Nervous System) work, as a matter of fact, it makes things much worse...

...nuts. I can feel the twitching in the ears as well – on both sides. I’m interested in Botox for MEM treatment. I must say, I have a Palate Myoclonus as well and for this Botox works really well. Does anyone here have experience of this? They write a lot about MEM and Botox...

I'm pretty sure I have myoclonus or TTTS, read all I can. It's in my good, non T ear. It comes and goes. It's worse in bed. I got it in February after an anaesthetic and heavy cold. Any ideas on diet changes that help, or treatment I can do. Has anybody had it go? I have H too right now and feel...

I have experienced what a neuro-surgeon diagnosed as right-ear stapedial and possibly tympanic tensor myoclonus in about five prolonged periods of two or three months each, over five or six years. I am currently into the fifth week of the latest spell of it. Does anyone else find it as...

...very mild, I habituated quickly and got on with my life. 2017-present: I started experiencing episodes of what I now suspect is Middle Ear Myoclonus. Sounds like someone tapping on a microphone in my right ear. At first it happened once or twice a year and went away after a couple of hours...

...for exactly 2 weeks and no relief. She then referred my to see another specialist and he said I possibly may have tensor tympani myoclonus. Recommendations were to take magnesium and B-2 supplement daily and to go on a migraine diet. Since I also suffer from migraines he thinks this could...

...like your eardrum is thumping or fluttering, that sounds like TTTS (Tonic Tensor Tympani Syndrome), which is a type of MEM (middle ear myoclonus). I don't get it from typing or any sounds except sometimes from voices, which results in my left ear fluttering when the voice is speaking. And my...

...my left ear for more than a month. There are two possible suspects according to the doctor. This could be either ETD issue or a middle ear myoclonus. I had an ETD issue earlier but I don't have it anymore. However, the doctor still thinks that I might have a very mild ETD. I can make the...

This doesn’t sound like dysacusis. Your symptoms are more in line with TTTS or Middle Ear Myoclonus. Dysacusis, or sound distortions, messes with how we perceive natural sounds or sounds in general. Simply put, it's like hearing things in a totally different way than most people are used to.

Yes, sorry for the confusion, it's also called tensor tympani myoclonus.

...a stressful situation and that mechanical stimuli seem to pause it somehow. It seems there are some similarities between how inner ear myoclonus and your tinnitus manifest. You feel a vibration, which suggests it's objective tinnitus. Stress might be causing muscles to become more tense...

...it's bad for your tinnitus). The thing is, I have been having spasms in my ears, or at least it feels like spasms. I think I'd want this examined, and hopefully I don't have myoclonus. I want to ask, do you need to be have a spasm outbreak for the tympanometer to detect this or not? Thank...

It's been about a month and a half since I started having Middle Ear Myoclonus (MEM). Not confirmed by doctor, but signs seem to point to it. I'm having what seems to be Dysacusis because of it. Supposedly have conductive hearing loss, but I guess my MEM could be the cause. If you have or had...

I also have ear muscle twitching (ear myoclonus).

I've suffered from hyperacusis in my left ear for over 12 years now. The severity comes and goes, but it's more or less always there. Sometimes it's not bad enough that I can kind of forget about it for a period, the length of which is highly variable. When it's bad, I really can't even...

Middle Ear Myoclonus. Love you too.

Hi all. Just found this group online so yay for that. I started having what has now been diagnosed as palatal myoclonus just since June of 2015. It started with a huge yawn and a CRACK of the corner of my jaw, not painful at all, and then an odd fluttering behind the eardrum of the opposite side...

...ENT was anticlimactic at best. I went to HUP, the best place in town. The Dr literally just listened to my ear, said "you have middle ear myoclonus", explained the difference between the TT & stapes muscles, and gave me an Rx for muscle relaxers (Baclofen). This is the extent of medical...

I've been looking into myoclonus of the middle ear and there is a lot of literature about it and how it can cause tinnitus. I know there is a surgery where they cut the muscle so it cant contract and spasm. I wonder if that would improve some people's tinnitus. A lot of times when this is the...

Phase 1b underway for AUT00201 in myoclonus epilepsy & ataxia: Autifony Therapeutics announces commencement of a US Phase Ib study of AUT00201, a novel Kv3 modulator, in Progressive Myoclonic Epilepsy-7 (EPM7)

Hello, I am a fellow Palatal Myoclonus/Middle Ear Myoclonus sufferer. It’s been 9 years since the ear started, 8 for the palate. I am about to undergo a Tenotomy surgery for the Stapedius & Tensor Tympani muscles. I’ve been given a 50%-60% chance it will resolve it. Doubt it will work but I’ve...

...distortion, or is it also known to be another form of tinnitus? What I'm going through is essentially dysacusis, although Stapedial Myoclonus seems to be the reason why I have it. With that said, Can a sore/irritated/possibly injured neck/jaw cause Stapedial Myoclonus? I've taken note that...

Great news! Glad it cleared. Your condition, palatal myoclonus, seems to be exceptionally rare. It can result in objective tinnitus. Glad you got the accurate diagnosis.

That does sounds like Tensor Tympani Myoclonus Syndrome (TTTS), which is a type of Middle Ear Myoclonus (MEM). It can react to sounds, to movement, touching face, and spontaneously. I experience it to each of those occasionally. I first experienced it once about 18 months ago (in response to...

Several months ago I was on the Introduce Yourself page, saying hi and describing my problem. I was originally diagnosed with palatal myoclonus by two different ENTs. I did not agree with that dx, mainly because there were no palatal spasms to be seen by either doctor. One did say that it was...

Yes middle ear myoclonus, a type of tinnitus. <3

...2015. It's been almost 4 years since I submerged my head underwater. What scares me more is the fact that I'm currently having Middle Ear Myoclonus (MEM), most likely Dysacusis. Couple that with my ETD which was already caused by water in the ear, you can imagine how thrilled I am about this...

I think you guys may be describing Middle Ear Myoclonus (MEM). A rare form of tinnitus.