Search results for query: *

No but I will definitely check it out. I absolutely love the game (PS4). From the original on the MegaDrive onwards. I find it distracting but also can be negative on my tinnitus if I get too much into the competitive side :) - I just wish they could sort the servers out, fingers crossed for 20.

I stopped at 18, button lag and too many issues caused by EA being too cheap to have quality servers. Although I still love the game. Kind of replaced it with Rocket League. Quality avatar, watched Joy Division documentary last week.

Yes they're mine, really pleased to hear that they help. I keep meaning to make more bell sounds, I'll gladly tailor something for you if you have requests for what sort of sounds you want to hear mixed?

Thanks. I've been working on other music projects but I do plan to put some more music ands sounds up there for tinnitus, plus I have some other tinnitus audio stuff in the pipe line that should launch in a few months at most. I've also got a selection of sounds up on streaming services...

I still love the neuromodulator, Stephane at MyNoise made something amazing from that simple sequence. @Jen10 I just uploaded a couple of new sequences, both 1hr long, have a listen and see if either helps you. If so I can send you the sound files. If not maybe I can make you something if you...

There was broadband noise in the selection that I listened to, across the spectrum (though I didn't get to test how far up there). They didn't calibrate it to my hearing. My understanding is that it is calibrated to your hearing profile, so people should hear the higher frequency sounds. Of...

Always start light and easy after a layoff, don't try and do too much as the strain will likely make your tinnitus louder. May be worth trying something dynamic like Pilates to stretch things out, as long as you don't overdo it. I also have increases with stretching in certain ways, but I...

Hi, I don't have anything firm on the listening times, but what I do say is no longer than 1 hour at any time and not for more than 4 hours per day. Listening for too long to noises like this seems to get in your brain. there is also the issue that over-listening to anything (for me)...

No, it spiked me which is enough to know that it isn't good for my ears. I play a lot with audio so I am familiar with what I can and can't listen to. A river noise isn't necessarily across the spectrum. I do audio recording and when you analyse the sound files you'd be surprised at the lack...

Headphones. As an experiment listen to a rain or water sound through the night instead that has energy across the audible spectrum and see if that also has similar results, ideally something that mixes and changes over time. I imagine that it may well do, but I am willing to be wrong :)

Against my better judgement I downloaded the sound file and listened. For me it was horrible, it spiked my tinnitus really loudly. It's now screaming away. Nothing works for everyone of course. In my opinion you are playing noise all across the audible spectrum, which is showing the brain...

That's one of my videos. It's an experiment. It may help or it may not, just try it out and see what happens. That's the thing with tinnitus, there isn't anything at all that we can say works, it's a case of if it works for you then it works. I always say that you have to experiment and...

Just reading through and it makes me think that maybe we should produce a video as something that news outlets can use. I think we need to do some myth busting and get some facts out there, on the common misconceptions and things that can do harm (mainly from a community perspective). Wouldn't...

I got the call Sunday night to say the correspondent was going to another story, instead of me on Monday morning. They did say that they wanted to come back to it at some point so hopefully that happens. I am unfortunately well aware that no matter what I say or how I put the message across, I...

Chances are it will help but I have often thought that even if you get the hearing loss sorted out (and it is the main issue) you may still need to give tinnitus a bit of a nudge to get it out of the brain.

I just made it! Kudos for getting this over the line, I know it's not been plain sailing. It's a really difficult choice because I can see merit in all 3 of the applications. #1 maybe does not have enough information on what the actual project is, although it does interest me a lot and feels...

The problem is that any dB measurement is subjective. There are so many variables that can affect a personal measurement. When I tried the device the tongue stimulation part of the unit came in its own bag. I imagine you would be able to purchase that separately.

I think it will be a good idea to grab some of the questions that maybe haven't been addressed and we can set up a brief text Q&A with Neuromod? There are things that can't be discussed but there are some questions I've noticed that it will be nice to have answered. On something that was...

Not at all. It's an important question, just not one we can understand at this point in time. Yes. I believe that it has just about completed the trial stage. They will then have to complete the follow up data, looking up to 12 months.

This is just me talking so not any kind of official position. The way I read it is that they can't sell to a country where it isn't approved, so you would have to purchase it in a market where it is approved - be that Ireland, EU etc (as it is rolled out). Somebody will need to set it up, and...

I did ask that question. There isn’t anything to say that it will wear off and there isn’t anything to say that the effect should be any different. The official line from Neuromod can only be the data they have collected from the clinical trials - which is the 12 month follow up.

No pricing yet but come the Ireland launch you probably work from there on an anticipated price. That's a finding that surprised the researchers. We need to understand what it was, what the mechanism behind it could have been. That understanding could potentially open up some new knowledge on...

Yes, they said they are aiming for January. Yes, the customs thing would be an issue. It is a medical device and as it doesn't yet have FDA approval then you technically couldn't bring it in (technically :)). I imagine a convertor would work fine for charging it. It's in the video. Also...

It isn't so simple as "how much does it cost to produce". This is a new breed of treatment which has years of R&D and what must be the largest clinical trial for tinnitus behind it. If there was a new tinnitus drug you wouldn't expect to buy it at a shop for 60p a box. If we were talking...

@TheDanishGirl it was well tolerated by people with hyperacusis. There is more detail in the video, hopefully should be out fairly soon.

One thing the finding does is open up a new research question. If patients with hyperacusis have an especially significant reduction in their tinnitus, what is the mechanism at play? Could that mechanism give us a greater understanding of how to maximise the tinnitus treatment, and could...

It doesn’t treat hyperacusis. The effect that was observed was that in hyperacusis patients the reduction of their tinnitus was much greater than in other groups.

Yes he is still actively researching tinnitus. He doesn't have the greatest of resources to call on so his work isn't progressing as fast as I would like to see. In the field of tinnitus he is one of the researchers that excites me the most. I completely get the prediction model and it feels...

I have only read a few posts, mainly after being tagged. I don't have loads to say and I don't want to spend my weekend reading it all from what I've seen. The internet is full of people who are quick to criticise everything and do nothing. We have our share of that here. Leave this forum...

@kelpiemsp mentioned above the audiogram is up to 16kHz.

No it's set to the audiogram so it shouldn't matter. I wondered about the dip that I have because it is a very narrow one, you'd think I would have asked about that when I was there for several hours :banghead:

I suggest you read your own quote. You put it in a different way, I read "they aren't currently pursuing it but they are interested in it in the future". As it happens this is one of the questions asked in the Q&A so you'll be able to see the answer soon. It's not exactly front page news that...

Attached here is a video we did recently, with me and David Stockdale of BTA, discussing tinnitus research across 2018. We were (belatedly) picking up on the TRI conference and on different things happening in research this year that grabbed our interest. This was unscripted so it's just a...

2019 :) Now there's a question. Believe it or not I hadn't actually thought about it :D I know that I have hearing loss related to my tinnitus, and from my own extensive self-testing I also have a very strange dip at 10kHz in both ears, going back up where I can hear to around 14kHz. I have...

As @Markku has pointed out, we did get through quite a lot in the Q&A. The original plan had been to go to the clinic to try out a device but the time got eaten up so I tried it out less formally in the office. There was just so much that had been asked and we wanted to make sure we answered...

January next year is the plan. In Ireland first. Yes. The whole field of bi-modal stimulation excites me. It's the missing ingredient (even though it may not be for everyone), giving the brain a kick to say "hey, listen to this and stop making that bloody noise" This is addressed in the...

After trying the device I can give a little insight. It is supposed to be set to your audiogram. There were several sounds in the one that I tried out, which I believe is one of seven that you can choose from. Being an audio geek I can say that within the sound there were three separate audio...

They didn’t share the price, although we will know fairly soon when it launches in Ireland.

Yes. People with somatic modulations were on the trial. I think I started a big discussion by trying to get info out there but not triple checking what I wrote :D

It does still treat somatic. What I meant to say was that it won’t be a substitute where you need something more, like a dental or surgical intervention. I edited my original post to try and make that more clear.

I didn't hear that and I was there. NICE are not looking at it as far as I'm aware, nor do Neuromod claim they are. For every new treatment there is always a healthy rumour mill. Saying that we did discuss healthcare and insurance yesterday. They confirmed that they are going to be looking at...

Apologies to all for being slow - a day off work means more to come back to, and it's our year end so I have been busy tidying up invoicing (and being shouted at for being the last one :)) Markku will likely have access to the raw footage tomorrow morning, my fault. Sorry again... I'm out all...

A quick note... Day flew by, the Q&A lasted quite a while. Yes it’s legit, they are a proper company :) I tried out a demo device, quite an interesting sensation. Not for long enough to have any effect and it wasn’t calibrated to my hearing profile. The track I tested was white noise based...

Damnit, I've been rumbled...

Hi all, Q&A date has been set for 3rd December. Markku is going to set up a thread for questions. I imagine there will be a few :)

I chased them this weekend. They are going to fix a date very soon, once I know I'll post it and we can start to gather together questions. I've been a bit off-grid with work, sorry I haven't updated more.

Sorry nothing back yet. I've had a busy work week so I haven't chased. The results presented at the BTA conference from the first study stated that it worked especially well for reduction of hyperacusis. Need to see it replicated in the larger study but it was an interesting finding.

And of course other potential approaches to stimulate the brain combined with some form of tonal therapy, or maybe something other than sound as the companion to the brain "priming" element.

I received a reply yesterday evening. They are looking at the date for Q&A, slightly delayed on that because they are travelling all over the place with presentations right now. I promise to pin them down as soon as I can though :) Their response: Dear Steve We are very encouraged by the...

Nothing received yet :D - I promise as soon as I hear I will post. But this law is for terminal patients as I understand it? I know that it's frustrating, I feel it too. The thing is that if the research isn't done in a robust way it could potentially block off or throw things back in an...

That seems an unnecessarily aggressive statement. I'm not suggesting that someone would withhold a cure, especially because none of the things we're discussing are cures. It's a comment on the system; they plan things to last for the duration of the funding, if they have 4 years then they plan...

I think this is the difference between an academic project and a commercial project. The former gets funding and a budget so it inevitably will last for the length of the funding period - they wouldn't normally cut short a student's PhD or forgo department funding to launch a device. Obviously...

I'll have something hopefully on Monday as an update. They are going to look at what information they are able to share without compromising the peer review process and also look to program in a date for a Q&A.

You should try having it when the only things you find in your searches are TRT and Neuromonics... There is an awful lot going on now, the problem is that it takes such a long time to see results and bring treatments to market.

And herein lies the absolute centre of the debate. How do we best spend our time and (limited) resources? That's we as people with tinnitus, we as an organisation and patient advocacy platform, we as influencers to the policies of the representative charities. We need to understand what is...

The black album was the beginning of the end... :(

I think that it can be the most powerful if it's delivered in a "matter of fact" way. If there is an element of hysteria about the message or the person delivering it you often lose the room. The thing about the shock value is that it makes an initial impact but it doesn't stick. I think you...

Basic and all produced to sound like the last one that sold a load of records to kids and adults who think they're cool because they're down with the latest tunes...

All music apart from mainstream pop here. Can’t beat metal, although the ears aren’t as resilient for long term listening any more. And it’s a bugger for the TMJ.

@JohnAdams the peer review and publishing system is a complete joke unfortunately. It can often take a year at least to get published. The system is slow. It’s an academia problem rather than a Neuromod problem. It really holds research back because we don’t get to see things until a way after...