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  1. ChrisJ

    Please Tell Me It Will Stop

    There is hope because it hasn't been very long and it could be temporary. I'd echo the other suggestions of Prednisone as that has been shown to work and I have seen it mentioned in seminars by audiologists. Other suggestions are to see your GP as soon as possible. If they are dismissive don't...
  2. ChrisJ

    Patulous Eustachian Tube

    How did you get on with this? We are discussing Patulous Eustachian Tube over here as well: https://www.tinnitustalk.com/threads/pulsatile-tinnitus-patulous-eustachian-tubes-vibrations-and-many-other-things.14754/#post-199812 If you say that your ET wouldn't open for an hour then it sounds...
  3. ChrisJ

    Pulsatile Tinnitus, Patulous Eustachian Tubes, Vibrations and Many Other Things...

    How did you get on? I finally got my Patulous Eustachian Tube diagnosis confirmed. This was after some time of doctors writing to each other debating whether I had it based on case history; eventually my GP just sent me to an ENT and after asking about my symptoms and running a standard hearing...
  4. ChrisJ

    A Cure for Hearing Loss and Tinnitus Is Possible in 10 Years

    Healthcare has infinite demand at the point of use because people will pay a high price to have their pain go away. In business it's often said: you're either selling vitamin or aspirin. Selling a positive lifestyle or removing a pain point. People tend to pay more for the removal of pain than...
  5. ChrisJ

    Pulsatile Tinnitus, Patulous Eustachian Tubes, Vibrations and Many Other Things...

    You don't have to have all of them, I think the condition can range from mild to severe. I had mine for 20 years and had no idea it was a medical problem. It was only when the symptoms got a lot worse. The main thing is whether your E Tube is opening up more than it should and air is getting in...
  6. ChrisJ

    Pulsatile Tinnitus, Patulous Eustachian Tubes, Vibrations and Many Other Things...

    I think there are many people in here with this condition. I have recently determined that this is what I have based on what others have said and going back through my notes. This is a helpful Wikipedia article on Patulous Eustachian Tube or PET. This condition explains the following symptoms I...
  7. ChrisJ

    Feeling Like I Can't Do This

    It sounds like we have identical symptoms, I have had mine now for 14 months and counting. I have been on klonopin on and off during that time and have developed a strategy for taking it in such a way that I don't get dependent. When coming off of it after a stint it made my symptoms worse for a...
  8. ChrisJ

    Tinnitus Upper Cervical Testimony St Petersburg, FL

    I had two sessions of upper cervical chiro and it made mine a lot worse. When I came out the second time my left eye was bloodshot and my T was at full blast. I don't know if I just got unlucky with that particular practitioner but it has put me off chiros for a while. I still have regular neck...
  9. ChrisJ

    Gabapentin (Neurontin)

    I came off Lyrica, I felt bad for about a week with headaches and low appetite. I found it hard to sleep but eventually I was okay. It gave me a nice 'high' while I was on it but it didn't work as well as the clonazepam. It didn't reduce my T or H, it just made me feel high similar to a pain...
  10. ChrisJ

    Angry!

    One of the guilt trips a registrar at the Royal Ear Nose and Throat hospital gave me was: "Millions of people have got what you have and don't even know it." Implying that the problem was with me for just not being able to cope with it. And this was the UK's most reputable hospital for ENT...
  11. ChrisJ

    Intermittent Hyperacusis

    @Natalie Roberts as well as all the other good advice above if you are having to pop your ears and it is Eustachian Tube related you can see this epic post here: Here Is How I Solved My Tinnitus — New Protocols and Supplements To Try. It involves clearing your sinuses. You can also try...
  12. ChrisJ

    Chapter 3: Visiting the Doctor

    Exactly my experience too. I went to great lengths and did what @The Red Viper did, printing out all my symptoms, putting all my scans on to memory sticks. Nobody was interested. As soon as they see Tinnitus their minds are made up.
  13. ChrisJ

    Intermittent Hyperacusis

    It's a branch of neurology in which the doctor has a specialism in the ears as well. You should be able to get a referral from a general physician or an ENT. If you are having to do the valsalva then it does sound like your have Eustachian Tube problems. A regular ENT should be able to help you...
  14. ChrisJ

    Intermittent Hyperacusis

    Oh I just read this. You shouldn't talk while wearing ear plugs because you will get what's called the occlusion effect. You might want to see a neuro-otologist, that's my next plan of action. I also had a CT scan of my head and temporal bone to check for any dents or chips as sometimes that...
  15. ChrisJ

    Intermittent Hyperacusis

    Hi, My voice also hurts my head. I have been told it's because of the airflow in the middle ear. Sometimes if you have Rhinitis, Sinitis, or Eustachian Tube Dysfunction, the airflow behind the ear drum is disturbed. Sound from inside your body can make its way in to the middle ear. I have had...
  16. ChrisJ

    B12 Shots Increasing Tinnitus

    I have been having 1mg B12 injections once a week for 9 weeks now. I have noticed no difference in my T or H one way or another. How many have they got you down for? Have you tried doing the sublingual tablets as an alternative? Solgar make 1mg tablets, if you try one of those you can work out...
  17. ChrisJ

    Does Anyone with Hearing Loss Also Have Somatic Tinnitus?

    Hi, I know this topic has been discussed in the past on here, I have read the posts many times. I am just trying to get some clarification because I have seen many doctors now who are contradicting each other and it's driving me a bit mad. I have been told I have slight hearing loss in my...
  18. ChrisJ

    Craniosacral Therapy (Julian Cowan Hill, etc.)

    I have been having Cranial Sacral Therapy now for almost a year. It's probably the one treatment I have stuck with the most. Even though it doesn't cure the problem it does help manage the symptoms. I have found it very relaxing and am lucky enough to have a therapist who also knows how to do...
  19. ChrisJ

    Pregabalin (Lyrica)

    Because I have a disabling headache that hasn't stopped for 13months. I don't really want the morphine but it's got to the point where I am pretty much useless to the world. Nonestop pain 24/7, especially when I talk has really taken its toll on me and changed my personality altogether.
  20. ChrisJ

    Pregabalin (Lyrica)

    I was put on Pregabalin for about 2 months. I was started off on 1x 25mg tablet a day for about 2 weeks and told to increase gradually if tolerated. I was then taken up to 150mg three times a day and then told I could take up to 600mg per day but only if needed. Overall it made me feel very...
  21. ChrisJ

    Oral Steroids (Can It Make Tinnitus Worse? Share Your Experiences!)

    I have been on 30mg Prednisone per day for last 5 days and it hasn't made my T worse.
  22. ChrisJ

    Forward Head Posture and Tinnitus

    Hey how did you get on with this? I am currently having cranial and am investigating neck problems and correcting my posture. We have similar symptoms.
  23. ChrisJ

    Tinnitus and Your Eyes

    I've definitely noticed time looking at computer screens have made my eye and headaches worse. I wear polarising lenses now that have a yellow tint and try to reduce time on these devices. How do you take Hydrogen??
  24. ChrisJ

    Tinnitus and Your Eyes

    Yes! I have this too. Blood shot eye and tinnitus both on the left side. I thought I was going mad. A few months after my tinnitus started I noticed blurry vision in my left eye, I now have to wear glasses but only for the left side, the right side is just plain glass with no correction. I...
  25. ChrisJ

    Got Some Blood Test Results

    I don't see those mentioned in my doctor's report but I don't have a copy of the full rundown. They have referred me to an immunologist and I will ask about these. If you have reason to believe that this would be important enough to get checked I could try and push for a test. I appreciate your...
  26. ChrisJ

    Got Some Blood Test Results

    Oops, my mistake. The pain killer I was given was Naproxen, an anti inflammatory. I have 250mg tablets and take one tablet twice a day. The Lansoprazole is taken at the same time to protect the lining in the gut. Here's one report on it: http://www.ncbi.nlm.nih.gov/pubmed/9819544
  27. ChrisJ

    Got Some Blood Test Results

    Hello friends. I just wanted to put a general update. Well my condition has gone from bad to worse. I have been in pain now for 10 months and progressively the headaches are getting worse. Left side of my head and face and in constant pain as well as my ear drum. I got some blood test results...
  28. ChrisJ

    They said there is no known cure, they can't find the cause. They recommend I try mindfulness...

    They said there is no known cure, they can't find the cause. They recommend I try mindfulness and do things to take my mind off the pain. No medication offered aside from anti depressants which I refused.
  29. ChrisJ

    Yeah it could have been a 100 I suppose. But that's the limit. I have a permanent headache now...

    Yeah it could have been a 100 I suppose. But that's the limit. I have a permanent headache now. Doctors say it could last the rest of my life, maybe another 40 years. I am pretty low right now.
  30. ChrisJ

    My Tinnitus Handicap Inventory Score came back as 90/Grade 5/Catastrophic

    My Tinnitus Handicap Inventory Score came back as 90/Grade 5/Catastrophic
  31. ChrisJ

    I went to the Harrow MS Therapy Centre. They can only treat MS patients first but they do tend...

    I went to the Harrow MS Therapy Centre. They can only treat MS patients first but they do tend to have enough slots available for other conditions. Best of luck! Mine came back again after the treatment finished sadly.
  32. ChrisJ

    Having a Lot of Head and Sinus Pain

    Hey guys, So I can't write for too long as I am in a lot of pain at the moment but thought I would post an update. Since my Oxygen Therapy finished my condition has got worse. I went to see an Audiologist on the NHS who spent well over an hour with me. We did a bit of cognitive behaviour...
  33. ChrisJ

    Pu-Erh Tea and GABA

    So yesterday I might have OD'd on pu'er lol. It did give me some heart palpitations. I just drank lots of water. It was fine though, might need to not drink more than 4 litres of it a day!
  34. ChrisJ

    Pu-Erh Tea and GABA

    "Allegations" lol - how dare they accuse pu'erh of such crimes as these so called 'side effects'. Seriously though it looks like pretty much all the side effects listed are because of the caffeine and nothing exclusive about the tea itself. Quoting top section, emphasis mine: If you are...
  35. ChrisJ

    Pu-Erh Tea and GABA

    I have not come across any side effects in fact quite the opposite. I found a nice Chinese Tea shop in London where you can buy the high quality loose leaf stuff, some of the leaves are aged up to 40 years!! Anyway I am hooked on it now, it makes me feel very relaxed and although doesn't take...
  36. ChrisJ

    SaluSTIM — tVNS Therapy Device

    http://www.webmd.com/heart-disease/atrial-fibrillation/tc/vagal-maneuvers-for-a-fast-heart-rate-topic-overview Vagal maneuvers that you can try to slow your fast heart rate include: Gagging. Holding your breath and bearing down (Valsalva maneuver). Immersing your face in ice-cold water (diving...
  37. ChrisJ

    SaluSTIM — tVNS Therapy Device

    This thread has confirmed what I already thought. It would be good if someone could do a side by side comparison with a TENS unit and the TVNS device. Key points: This method will only work if the cause of the tinnitus is neurological (tinnitus has many causes) Tinnitus feeds on your...
  38. ChrisJ

    I haven't left, just very busy with work. I will return shortly with reports from my new...

    I haven't left, just very busy with work. I will return shortly with reports from my new treatment on the NHS.
  39. ChrisJ

    Fred Von Stieff — Brain in Balance / Benzos, GABA Information

    Neuroscience is a deeply complex area of medicine and research, we know very little about the brain, it's why brain surgeons get paid the big bucks. But in this thread, we have listed all the main ingredients so that people can try different things for themselves and see what works. What works...
  40. ChrisJ

    A few days after O2 treatment finished and loud head-ringing has gone down, H is down a lot and...

    A few days after O2 treatment finished and loud head-ringing has gone down, H is down a lot and feeling a bit better.
  41. ChrisJ

    Hyperbaric Oxygen Therapy

    I had my last treatment yesterday. I would love to tell you that today I woke up feeling great but sadly I didn't. The ringing came back on Monday morning then went after that day's oxygen treatment. Then I had my last one yesterday (warning video is loud)... As you can hear, it's quite loud...
  42. ChrisJ

    Hyperbaric Oxygen Therapy

    Did he say how?
  43. ChrisJ

    In pain today :(

    In pain today :(
  44. ChrisJ

    Hyperbaric Oxygen Therapy

    I decided to book another 2 sessions in the HBOT chamber for tomorrow and Tuesday at the deepest 36 feet. This will be days 18 and 19. My tinnitus is still low and this weekend there were moments where I couldn't hear it. Sometimes it will suddenly peak up a bit before settling down. It has...
  45. ChrisJ

    Headaches and Tinnitus

    I agree with what @erik said. What has worked for me is telling everyone I am ill and that I need time to recover so I don't get so many emails or requests for my time. Also Oxygen Therapy has helped as has exercise and the GABA stuff/Pu-erh Tea combo.
  46. ChrisJ

    I Don't Like This Article... Makes Me Angry!

    Nails it! Is there a comprehensive list of all the underlying causes of tinnitus? Maybe some software which can walk you through automated triage and give you a probabilistic assessment so that you can prioritise your treatment. If some of the information on this forum was organised in to a...
  47. ChrisJ

    Fred Von Stieff — Brain in Balance / Benzos, GABA Information

    You're talking about the L-Glutamine? Only 3% crosses the blood brain barrier? Do you know about others like Theanine?
  48. ChrisJ

    Fred Von Stieff — Brain in Balance / Benzos, GABA Information

    @amandine Here's this: Solgar L-Glutamine they are a good brand and I use them a lot. There doesn't look like a great selection of teas on Amazon but there is this one: Lot de 4 Erh Pu imitation similicuir er Puer'er de thé pour perte de poids 100 sachets de thé minceur = 2 mois It's sold as...
  49. ChrisJ

    Fred Von Stieff — Brain in Balance / Benzos, GABA Information

    I got the Tea from a local health food shop called Holland and Barrett and it also looks like it's available on Amazon. If you have any chinese medicine shops maybe they will do it too. L-glutamine is a supplement used by athletes to help them recover from their workouts. And again you would...
  50. ChrisJ

    Fred Von Stieff — Brain in Balance / Benzos, GABA Information

    I understand your frustration, I felt it too while trawling through research papers, forums and videos. The TL;DR is that eating foods with Glutamate, GABA or Gluten is unlikely to affect your T because they do not cross the blood brain barrier. However L-Glutamine, L-Theanine and substances...
  51. ChrisJ

    Fred Von Stieff — Brain in Balance / Benzos, GABA Information

    To address this question specifically I think it would be worth a try, Gluten Free diets are very well documented and most supermarkets cater very well for it. My hypothesis though is that it won't make a difference based on the evidence I have read.
  52. ChrisJ

    Fred Von Stieff — Brain in Balance / Benzos, GABA Information

    Ah you're right, all these Glutens are so confusing. Yeah apparently free glutamate is a problem as mentioned in the video earlier but not for Gluten intolerance. Glutamate is made from Glutamine in the body which is a part of the protein Gluten. So they are all related but have different...
  53. ChrisJ

    Fred Von Stieff — Brain in Balance / Benzos, GABA Information

    Whoops, I meant I took 500mg of L-Glutamine with the tea. I did it to see what would happen. I got very mellow.
  54. ChrisJ

    Is This Permanent?

    Welcome to the forum. You're not alone, many here face the same problems. Tinnitus is not always permanent and many friends have told me they had it once but then it just went by itself. Nobody knows for sure and it's that uncertainty that often leads people to feel so anxious. One way you can...
  55. ChrisJ

    Fred Von Stieff — Brain in Balance / Benzos, GABA Information

    Oh okay now I get it, Glutamine produces both Glutamate and GABA Glutamine-induced alterations in the content of brain amino acid neurotransmitters in rats with different alcohol motivation But still I feel like I am going around in circles. I found this guy over on bluelight.org who sounds...
  56. ChrisJ

    Fred Von Stieff — Brain in Balance / Benzos, GABA Information

    Glutamine is not the same as Gluten, I got confused about this too... Glutamine vs Gluten What’s The Difference? Glutamine is a popular amino acid and because glutamine sounds like gluten, some athletes and health conscious individuals who are gluten-sensitive wonder if they can use glutamine...
  57. ChrisJ

    Fred Von Stieff — Brain in Balance / Benzos, GABA Information

    Yeah I agree @erik but even something to take the edge off would be nice. And of course it was @Danny Boy (again!) who recommended Pu-Erh Tea. So I went out, got some. Spent the whole afternoon drinking the stuff. I love it! It's like the magnesium, just very relaxing and another natural...
  58. ChrisJ

    Treatment Prospects: Vagus Nerve Stimulation

    Ok thanks. I haven't done anymore since.
  59. ChrisJ

    Hyperbaric Oxygen Therapy

    24hours after treatment and I am happy to report the T is still low. I don't have O2 therapy today because the centre is too busy with other patients but tomorrow will be my last scheduled appointment. I might book 2 more next week to take it up to a full 20 sessions as per the research. I will...
  60. ChrisJ

    Confirmed: L-glutamine 500mg with a cup of Pu-Erh Tea is very relaxing

    Confirmed: L-glutamine 500mg with a cup of Pu-Erh Tea is very relaxing