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Hey guys I had disappeared for quite a while, and never delivered a final summary after my two rounds of AM-101. By now, it's been about 9 months since my last injections, and I cannot report any relevant or lasting improvement. Summed up, I would say that I came into the trial with...

Thanks for the advice Well, I decided to skip Ibuprofen, but went with half a dose of a mefenamic acid med. That was one week ago. Could not feel any effect in the first two days with regard to T, but am now having a pretty intense spike that has lasted since. Could be related, does not have...

Hi there Have been gone for quite a while, but am back with quite an urgent question. I have read many stories and opinions on the effect of various drugs on T. After getting T in 2015, I simply refused to take any drugs. Worked well until today. But now I am facing a problem: One of my finger...

Happy Birthday Glynis!!

I agree. At least in my case, I am sure that the worsening in T comes from the procedure itself (needle slip & intense suction), not the medicine. Dizziness is a different topic. IF it is related, then it is likely to be an unwanted side effect of the drug.

Yes, it does concern me as well. Or put less delicately; It scares the crap out of me! I have felt like hungover for two weeks (without a headache though). I already did go for an unplanned checkup last week. They ran a couple of standard tests and as a result, they believe that the vertigo does...

My story: https://www.tinnitustalk.com/threads/better-late-than-never.16147/

Hi Karel Very sorry to read about your struggles. I wish you lots of strength! It is hard to believe that a phone call (!) could cause any long-term negative impact. I believe that you have good chances that things will settle over the next days and weeks. I could not agree more. For me, with...

Overview of past updates: 24 hours after last injections 1 week after last injections 3 week after last injections (unplanned) 1 month after last injections 2 months after last injections 3 months after last injections (final update and summary) As I will publish my final update in about 3...

Well, to call him an expert is my personal opinion. He is a recognized specialist in this particular area and was recommended to my by both other doctors and fellow T sufferers. He has 20+ years experience, is the president of the country tinnitus association and a co-founder of the only...

Dear all After joining the forum last November and many posts since, I feel it's about time to introduce myself. And since it already been 10 months, it is quite a long introduction. I added titles so that it is easier to skip the parts that are not of interest. About me I am male and 30 years...

I knew about T as a condition (some friends suffer from it as well), had no clue about H tho. Although knowing that extended times at exessive volumes may trigger T, I did not expect it to come from 0 to 100 with a single stumble.

I have never heard of these devices. And as an engineer, I too am very sceptical about anything that magically eliminates invisible smog. However, quickly googled it and the reviews of these things on Amazon and Co. are suprisingly consistent - and very positive :cyclops:. I can definitely say...

Interesting to read about that. Wondering if the effect will last. May be a rip-off, but to be fair, the ingredients pretty much cover what I was recommended from the doctor (Ginkgo, Magnesium, Zinc) after cortisone didn't work. And at least the Ginkgo part was not much cheaper than the pills...

A bit overdue, but better late than never. Overview of past updates: 24 hours after last injections 1 week after last injections 3 week after last injections (unplanned) 1 month after last injections 2 months after last injections 3 months after last injections Will keep this one fairly short...

Glad that I found this thread. I am experiencing the same issue. I have had tinnitus for about 10 months now, and until last week, it had been in the high frequency range. Last Sunday, however, when I woke up, I noticed this low frequency hum (somewhere at 100...200 Hz, so very deep) in my...

I would say that yes, in my case driving makes is worse. But not while driving (i.e. it is ofen mostly masked during the drive) but with a delay. Worth mentioning that I feel the same effect in particular other locations. Until today, I have not been able to figure out what actually causes the...

May be a relevant factor or not. As long as experts cannot even agree on whether a tinnitus becomes chronic after few weeks or several years, I guess try and error is the only way to find out. On a different note, I have to say that I am getting increasingly worried about the development in my...

Yes, 6 months for the first shots (double-blind), 9 months for the second round (open-label).

Completely agree. It's the choice between taking a opportunity that includes risks, and doing nothing but knowing that there could have been a chance. However, I think it is important not to become too philosophic about it. It should remain a rational decision after all. There are so many...

Well, obviously the range of feedbacks here in the forum is quite broad. @PandorasHope has invested a lot of time and summarized people's experience in late 2015. He published a file with all his findings here here (Find the complete post on page 34, here) Summarized on what I read and based...

Good luck Alex & Co. and thanks for the updates! As I am 3 weeks ahead of Alex, and my one month checkup is in fact just after 5 weeks, I thought I quickly give some insights on my progress after the injections, before I forget all the details. Overview of past updates: 24 hours after last...

Overview of past updates: 24 hours after last injections 1 week after last injections 1 month after last injections 2 months after last injections 3 months after last injections So, my one-week update - which is in fact almost a two-week update by now. I wanted to wait a bit as things have been...

Friday evening it felt like there was a jackhammer in my head - absolutely unbearable. Saturday started better and I spent the whole day outdoors on the bike to take the attention away from T. Today same story, was outside most of the time. One severe spike during last night which woke me up...

Thanks for the support. It keeps me from totally losing it - for now. I went back to the clinic earlier today, and explained my situation. They took my concerns seriously, but there was not much they could do after all. So far, they assume that it is just a strong side effect from the treatment...

I am close to a complete breakdown by now. This has been very different from my phase III experience so far. The T increase in my right ear is far beyond what I usually get when I block my ears i.e. use ear plugs for a long period of time. I would rate it at 8/10. I can hear it in the shower...

Hello Denden. I have the same situation. Earplugs isolate but for whatever reason additionally amply the T. Either way, I recommend using them ;)

Here is my first update about the follow-up study. Overview of past updates: 24 hours after last injections 1 week after last injections 1 month after last injections 2 months after last injections 3 months after last injections This week, I had my second injections with the last treatment...

I have been wondering about the same. Managed to convinced the doctor to not use the device for my set of injections yesterday, but simply dry it with a tissue instead. Thought I got away with it for this round, but during the 2nd set today, they somehow hurt my eardrum, which then filled with...

@Charlie396 looks like we are in exact the same place. 24h post 1st injections, 2h post 2nd injections. Needles were mosty painless, but now I feel pain and a sore feeling in both of my ears, combined with a terrible headache. Last set in 22h (and really not looking forward to it...)

After a few weeks of absence, I am back with the final update for round I. Overview of past updates: 24 hours after last injection 1 week after last injection 1 month after last injection 6 weeks after the update (unplanned) 3 months after last injection I can keep my summary quite short...

Been absent for the last week, quite busy these days, so I am not sure if the following has been discussed in depth. Getting back to the topic for the follow-up trials, I have been thinking about it, and gotta admit that I am feeling (and this is purely emotional) cheated by the new...

Unplanned update from my side. Will add it to the list of my previous updates: 24 hours after last injection 1 week after last injections 1 month after last injections 6 weeks after the update (unplanned) 2 months after last injections (newly added) 3 months after last injections In my case...

It is quite a global study. All locations here: http://www.tinnitus-study.info

That's odd. I am sure that I did not misunderstand it, the message from the doctor was very clear. Either it is only valid for the institution I went to, or the information flow with the test centres is not as smoothly as it should be. As some people are due with their post-injections, I hope...

Acute: 0...3 months after onset (major target group of phase III) Post-Acute: 3...6 months after onset More participants are allowed in the first category. Don't recall the actual numbers, but it was something like a 3:1 ratio.

Some new infos about the follow-up rounds: As I was informed by the doctor, the number of follow-up rounds has been limited to 1 set of 3 injections after the end of phase III with immediate effect. Apparently the reason is not that it has been restricted for Auris Medical's sake, but because...

Alright, time for my 1 month update after I had the 4 week checkup last Monday. Sequence of updates: 24 hours after last injection 1 week after last injections 1 month after last injections 2 months after last injections (newly added) 3 months after last injections So in order to give the best...

I second that. As a participant of phase III, you are entitled to the real drug as a "goodie" for participating after 90 days. I tried to find out whether new injections may be postponed for a certain period after the 90d checkup, but did not receive any clonclusive answer, so I assume that not...

I understand your concerns, been there myself. A few times after the injections I even got scared that I would go deaf any minute now because the gel had such a massive impact on my hearing perception. But if you look at it objectively, it makes absolute sense that T has increased, as you are...

For me, the fullness lasted for about a week. After 7-8 days it had recovered partially (i.e. temporarily during the day) and after about 2 weeks it was back to normal. Same for sore feeling and T loudness. But all this is temporary, I would not worry much. Good luck!

I agree. Generally I feel that this has gone a bit off-topic. A support forum should not be the place for finger-poining However, I have to admit that it does suprise me how many people (and this is not directed at anyone specifically, there have many people stating their intentions to "sneak"...

Here, as promised, my summary of the last 7 days. Sequence of updates: 24 hours after last injection 1 week after last injections 1 month after last injections 3 months after last injections 7 days after my final set of injections, I would sum up with: "So far, so good" By now, the clogged...

Well, I am not much of a poet. And it may sound like a super lame proposal, but have you considered getting yourself a pillow filled with millet? That's quite common where I am from. I know that in other countries, wheat fillings are more popular. Both would probably help you a bit, as they...

Hi Chris I understand your disappointment. But look at it from a different angle. Auris Medical is currently in the final phase, trying to get the approval for the AM-101 treatment. In phase III of the legalisation, lots of restrictions apply to potential participants. Some make more sense...

Haha, thanks for the award @Joe Bananas :D Well, the last injections were just on Monday, so I am still in the "full and muffled" phase. I have noticed some change, but this could be a side effect of the procedure. I will give an update once things have settled, by now every conclusion would be...

Hi there. After being absent for a few weeks, now it is my time to contribute something. Over the last week, I had my phase III injections with the last treatment done yesterday. To me, it seems that I go along with the established pattern described here. Injections went well but were...

Actually, I too initially believed that the changes were depending on my personal perception - but by now I can cleary tell that they are not. I have experienced the same pattern e.g when switching on the computer, the T triples within few minutes. Best example was a fridge in the living room of...

Thanks for your response! The "2/10 baseline part" isn't my motivation to participate, the increase during the day is. I spend about 10h a day at the office where the volume increases to about 5/10 on a constant base. Happened to go up to an approximate reception of 7/10 during one day two...

I was/am 29

Hello I need some advice regarding phase III of the AM-101 study. As described in my post here, I am experiencing a high pitched CRT-TV-like sound which originated in a loud wedding party 3 months ago. I have had much improvement since the event, however, a baseline (loudness of about 2/10) is...

By improved I mean that the volume of T has gone down significantly since the event. So by now, quiet places are usually not an issue. The main concern in my case is that the perception is depending on outside noises. As I learned here in the forum, I have had a "reactive T" which is stimulated...

Hello Jaw yas Your case sounds familiar. Been there exactly 3 months ago and know the desperate feeling, so I felt I should respond to your post. In my case the background was the same. Had always taken very well care of my ears until I attended a wedding with super loud music all over the...

Thank you very much for the swift responses! This information help me a lot. I was aware that some people experience fluctuating T, but did not know that this is often influenced by external factors. Will search the forum for threads with "reactive tinnitus". One thing which puzzles me...