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@derpytia did you stop taking remeron or are you still on it?

How did you invent it?

No I didn't. I didn't read the article properly and didn't notice that you had to take it with melatonin... hahaha. My t got worse a couple of weeks ago and I'm considering trying that again. Do any of you live in Spain by chance? Sulodexide is only sold in Spain so I'd need to find someone who...

Here's a quick note on those who plan to edit the WAV file: Sunday 9 days ago I edited the Tinnitus Mix in Audacity and saved it as mp3. Next my tinnitus became way worse on the very high tones. I continued for three days and it was still really bad. On Wednesday night I realized that MP3 cuts...

Yes, that's exactly what I did using Audacity. I increased the volume on higher frequencies starting 8 kHz an saved it as an mp3. I also swapped the stereo channels because I noticed in the first 15 minutes there a stronger high pitched sound on the right, which I wanted to have on the left ear...

... Or is it possible to edit the sound to include more frequencies around 15-16 kHz? Can I edit it in any way? I hope I'm not too nosey, I just wanna try out what could help.

@R. David Case I wonder if it would be possible to do an assessment of whom Tinnitus Mix helped and whom it didn't help, e.g. by asking people whether it helped and asking whether their tinnitus was/is high or low pitched and left or right-sided and whether they were able to fully mask their...

By accident I bough the KTX PRO1T instead of PRO1. The T stands for titanium. It says that the membrane is coated with titanium. Are those the wrong headphones then? Should I go with the KTX PRO1 without the titanium?

First of all, thanks @R. David Case for making this sound! 4 nights in. Unfortunately my tinnitus hasn't changed - if anything it has gotten somewhat worse. My tinnitus is very high pitched - maybe that has to do with it. I can sometimes even hear my tinnitus on the higher frequency while...

@Tinnitard how have you been doing? Since you didn't post anything yet I assume you haven't gotten better since returning?

@pinklights98 18.000 USD??? Seriously? About 2 years ago it was 7.000 USD? How did the price go up this much??? 2.5 times? It seems like a ripoff. @JohnAdams how much did you pay for your treatment?

I bought three boxes of Aterina in Spain. Aterina is the brand name of sulodexide as its sold in Spain and you can get it without a prescription. It cost me about 45 €. I took 30g 2x per day. My dose was somewhat higher than the dose in one of the studies. I stayed on that dose for about 45...

After reviewing Sulodexide and its potential side effects in detail, I decided to give it a try. I've been taking it for about a week. My dosage is 60 mg per day, which makes it a little higher than that used in the study. On day 3-4 I've had some pain in the hip and upper leg area. Other than...

@dj_newark I also have some weird health issues that appeared a couple of months after taking retigabine. About 2 months after stopping my initially very mild visual snow got much stronger and my light sensitivity too. I went to see an ophthalmologist and she told me that my visual nerve is a...

It seems this guy has been getting a lot of email requests these last couple of days. His replies to my emails were also very blunt. He didn't seem desperate at all and wouldn't even respond to my questions. Very similar to what you wrote.

The CM clinic looks very interesting. I'm curious to see what kind of treatment procedure they propose.... It appears they are currently getting a lot of requests from people via the TT forum. I also wrote them. Let's see what this brings.

Just an additional thought on this: he posted pictures of the doctor thawing the stem cells right before injecting them. Using cryo-stored cells, according to wikipedia, diminishes the effectiveness of the treatment. Hence, this may have contributed to him not having any significant results.

I've been in touch with @whiskeykonteq sporadically and let me know that he didn't have any major improvements in his T. But he's become more accustomed to it.

Auris Medical published a new patent for tinnitus... not sure if this was posted before. I haven't read it yet. Maybe someone wants to have a go at it. Cheers! https://www.google.com/patents/US20160271098

Besides injections, it's also possible to buy IGF-1 in the form of a spray (I found it on amazon). I guess you could try spraying it inside your ears or into the Eustachian tube via the nose by holding the spray horizontally in your nose. Since there is research evidence on the topical...

This one hasn't been posted before (at least not to my knowledge), so I thought it might be interesting for you guys. http://www.ncbi.nlm.nih.gov/pubmed/23165382 By the way, this is the paper that inspired the Baumgartners to conduct their hearing loss trial in Florida.

Not sure if this was shared yet. It's a small study on 40 patients. 20 with only lipoflavonoids and 20 with lipoflavonoids plus manganese. No notable changes in t. http://www.ingentaconnect.com/contentone/aaa/jaaa/2016/00000027/00000008/art00005

@Marlino Thanks for reporting in such a transparent way. Makes it a lot easier for everyone else to be part of your progress.

just a quick re-check on the math: I think 200 mg per kg makes 17 gram for a 85kg man.

Does anyone know what the pathophysiological differences between noise-induced hearing loss and sudden hearing loss caused by stress are? I suffer from the latter. At the time cortisone injections helped a lot. Still, my t is so strong that I'm looking into stem cell treatments and wondering...

I understand your desire to get a 100% clarification and assurance of people's honesty when they report stem cell treatments. But whiskeyconteq he said he was gonna go off TT for a while even before the video was posted. He said so right in this thread. Let's just look at all of the facts before...

@Marlino a few studies that have been done on the risks: http://www.startstemcells.com/stem-cells-treatment-safety.html https://www.researchgate.net/publication/232975053_Safety_of_Cell_Therapy_with_Mesenchymal_Stromal_Cells_SafeCell_A_Systematic_Review_and_Meta-Analysis_of_Clinical_Trials

If this is the case, then the laser treatment for removing floaters (as described on wikipedia) could work, or am I missing something?

Thanks for the info. Did he say anything about stress-related hearing loss? There you have a reduction in hearing. Is it caused by or related to inner ear issues as well or not at all?

What makes you say that?

Hey Cityjohn, 1st of all thank so much for all the information you post. Being a layman in electronics, I'm not able to find the right materials online. Any chance you could post links to the items as to where we could buy them?

here are three more research papers on MSCs for improving hearing http://www.sciencedirect.com/science/article/pii/S0006291X12018700 http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2567.2011.03421.x/full http://www.tandfonline.com/doi/abs/10.3109/00016489.2012.660731

A doctor from the clinic in Regensburg, Germany, also told me that they do Botox shots off-label on their colleagues who have t and apparently it helps in some cases. But probably it only works when your t is related to jaw and neck.

You're right, the article said they become tumorous, not cancerous. Basically I take away from it that embryonic stem cells are so potent that they can grow into a bunch of shit you don't actually want to have. That's why I don't get how a clinic got the idea to inject embryonic cells into an...

@Reinier @exodus The research papers that I’ve studied so far all said that embryonic / fetal stem cell are highly cancerous. The links you posted said that the 66-year old man received such stem cells. Therefore I'm not that surprised about the tumor growth. MSC stem cells, unlike fetal or...

@Orea Could you please elaborate a little on your treatment? what kind of treatment did you get? How many cells? Intravenous and / or local injections? What kind of tumor did you get? Where is it? What has been the response from the guys in Thailand when you told them about this? When did you...

apparently you can remove floaters with a relatively simple laser surgery.

@whiskeykonteq that's a pretty interesting description of the way nerves degenerate. I wonder, how would you explain what happend to attheedgeofscience with this description? 1. His hearing improved after LLLT, but not his tinnitus. 2. With stem cell treatment, he improved his tinnitus for the...

I contacted one in Potsdam called Klinik Sanssouci. They said hearing loss cannot be treated with stem cells. They focus on plastic surgery. I also contacted another one called ANOVA Institute for Regenerative Medicine two days ago. No reply so far.

@whiskeykonteq @bill 112 I'm also in touch with a few clinics. We should discuss more on our experiences with the clinics so that we can all make the best informed decisions. Regarding Stemcells21, these are my pros and cons: + They treated two people with (partial) success that we know of...

So, I'm also thinking about doing a stem cell treatment. Today I spoke with a doc from a stem cells clinic who said that he would recommend giving stem cells via injections into the ear + through nasal spray. Apparently administering stem cells via nasal spray gets more of them directly into the...

Progress Report Progress Report Date: Jun 6, 2016 Current Retigabine Dosage: 0mg Current Side Effects: Eye floaters This goes out as a word of caution: I was on RTG for ca. 6-8 weeks with only little effects lasting for ca. 30 minutes. My side effects, however, were quite strong at...

I spoke with a doctor friend of mine about the idea of doing stem cell treatment for hearing loss, who is in oncology where they offer stem cell treatments for cancer patients. Her words were: I'm less concerned about the side-effects of stem cell treatments than I am about the side effects of...

Bobby, where do you get that from? If you have bad audiograms, how can you know if your ears are perfect?

@Cityjohn Thanks for sharing all of this information. I'm super curious how your research will go. Please keep us updated and, if possible, post some pictures of your self-built device. Let me know if I can help in any way. I'm now considering buying the parts you posted and building my own...

@monacco I hope it'll all go very well and get some good results. My best wishes!

Worst website ever, but apparently they are researching drugs for preventing hearing loss (and maybe even treating it?): http://www.13therapeutics.com/noise-induced-hearing-loss.html

It's been done before: http://metro-md.com/a-new-treatment-to-correct-hearing-loss-deafness-through-stem-cell-medicine/

It appears that stemcells21 changed their treatment protocol in the last years: ATEOS (2013): only IV delivery into the blood system + peptide injections Fernando Gil (2014): IV delivery + peptides + stem cell injections below the ear Website description (2016): IV delivery + peptides + inner...

@everyone does anyone know what the risks associated with stem cell treatment are?

@jdjd09 don't know. I'm sending them a request asking about their treatment protocol.

Not sure if this was posted before. It's another case where stem cell treatment was applied successfully, this time in Texas. The doc injected the stem cell into the patient's inner ear. However, it doesn't say how big the improvement was in terms of db...

@dj_newark my doc told me that trns is only felt after several weeks. Sorry to hear that trobalt isn't helping. It's the same for me. It helped me a little after taking 300mg TID for 4-5 weeks.

I wonder why they say that it doesn't work while there have been other cases where it worked. And the protocol is not that different. The only difference is that at stemcells21 they take stem cells from you twice, so theoretically they would use twice the amount of stem cells. Maybe that is why...

@Jamclem DBS = deep brain stimulation https://www.tinnitustalk.com/threads/deep-brain-stimulation-dbs-for-tinnitus.3625/

Yes, but if I'm not mistaken, in the Adipose stem cell treatment you get like 10x the amount of stem cells injected into your body compared to the umbilical cord stem cells.

@sonicboom2000 the research was only done with people that have a t up to 10khz. to my knowledge it didn't make a statement as to whether it works above 10khz or not. This is a publication made by a team of researchers, including some that are not affiliated with the ANM company...

@Markku @Reinier Fernando Gil also reported success with a treatment from the same clinic as the one that ATEOS went to in Bangkok. https://www.tinnitustalk.com/threads/inner-ear-hair-cell-regeneration-—-maybe-we-can-know-more.3131/page-18#post-74662...

Progress Report Progress Report Date: Apr 9, 2016 Current Retigabine Dosage: 300mg TID Current Side Effects: dizziness, kind of feeling high, sometimes taking longer to find the right words when speaking, I'm kind of "high" at the moment. Usually the side effects last ca. 30 minutes. Only...

@RaZaH I'm very sorry to hear that. How long did you maintain RTG on a high dose? Has your eye twitching gotten better now?