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Hi all, In my story I forgot to add that I had greatly underestimated the effect of my behaviour. Searching on the internet, reading books about tinnitus, talking to people about tinnitus, going to a quiet place when I noticed a new sound to check whether it was actually coming from inside my...

I developed a new tone almost on a daily basis and it changed constantly. I could no longer concentrate on the things that mattered. It was extremely loud. I feel as if I have skipped a whole year of my life. I hereby stop my discussion with you, Autumnly. Which is probably for the best for...

ACT sounds very interesting. Thanks a lot for mentioning it. I will look into it. Perhaps it can help my wife (fibromyalgia / depression).

And how do you plan to combat something you do not have control over? There might not be a scientific breakthrough within decades. I have heard a few things about this Neuromod, but what if it is available for you and does not help you? Sure, you should keep pushing scientists to discover a...

So referring to tinnitus as being boiled alive is not negative to you? I'd say go sit in a bath of boiling water and see what kills you first; your tinnitus or the heat. Of course it is not a sprained finger, but being boiled till Death comes to get you is yet another extreme! Yes tinnitus can...

Hej der, I am very sorry that you feel this way. I just want to say that I feel for you and I hope that things get better. Life isn't easy, that's certain. I have similar nihilistic thoughts, but they do not disrupt me as much anymore. I have come to use them to my benefit. Yes, life is...

Unfortunately there is always a lag between science and medical care. I guess in the end everyone has no choice but to find their own way in this mess. I picked a combination of (or pieces of) CBT, TRT and mindfulness and it has helped me tremendously. Why should they compete really? It makes...

Of course my tinnitus has never been as severe as theirs, but it did drive me insane. There was hardly anything else I could think of or focus on. The loudness was unbearable. These were extremely dark times for me. So I get it that tinnitus can be devastating, delibitating, w/e. I have been...

And these positive optimistic people, they still suffer from tinnitus? If so, then I wonder what causes those people to suffer. I guess this is one of the riddles that still needs to be unraveled?

Hi Allen Y., Thanks for your post. Habituation means: 'decrease in responsiveness upon repeated exposure to a stimulus.' If someone 'only habituates', then, in your eyes, what changes for this person? In mine it is the negative reaction that causes the person with tinnitus to suffer. Thus if...

I do not know whether the bullet points above are referring to what Jastreboff actually states in his book or that is derived from my posts. In the latter case, all that I have said about TRT is merely my interpretation of it. It might not be completely in line with TRT.

About false hope. If something you try does not bring relief, then that can bring disappointment. But there is only disappointment if you had expectations. In the beginning I was often disappointed. That cost me a lot of energy. But then I started to manage my expectations. I tried and did my...

That is a pity. Still, many people benefit from it. I find it sad that so many people on this forum write in a negative way about possible paths to relief. I just don't hope that it withholds other sufferers from trying them out. Due to such negative posts they might lack the determination...

Sigh, not all suffering of course. Pain will not go away but mindfulness can make it easier to bear.

Have you followed a mindfulness course? And if so, did you keep training yourself afterwards?

Yes I am indeed quite convinced that the attitude towards tinnitus plays a large role in the suffering (not so sure about hyperacusis though). A negative attitude comes with negative thoughts and those negative thoughts trigger negative emotions. What do you think causes the suffering? I think...

Thank you dayma! I always kept in mind that there are so many people on the forums that recover but do not share their story (I hate to admit that I was almost one of them). This leads people to think that those people are still suffering and that it is perhaps their destiny to do so too...

Yes of course, I did know that. Thanks for sharing. My high pitched tinnitus also gets significantly louder when I clench my teeth and that indeed has nothing to do with my perception.

Going to sleep now. It's quiet in my bedroom. All I hear is my tinnitus. I like to focus on the morse code sound because it's the most entertaining one. I have searched for that part of my tinnitus so many times that I can summon it whenever I like. Whilst listening to it I relax my muscles. I...

Also, I like to believe that people are fundamentally good. You do not become an ENT to become rich. TRT does not necessarily require hearing aids, you also choose to mask otherwise. Hearing aids however have the big advantage that you do not notice them that much. And the less you notice your...

To imagine that I masked with $2 earbuds, haha! I remember that Jastreboff says in his book that hyperacusis in combination with tinnitus is very difficult to treat with TRT. So I wonder why they are so biased against him.

Hi Lynn, I am glad that I could help. I hope that my story will give hope to people. I am sorry to hear that you are in such a state right now. I don't have OCD but I can imagine that this makes things a lot more difficult. A friend of mine also has OCD+hypochondria+depression+suicidal...

Bu But even if the problem is within the chochlea, TRT should still help. It doesn't matter what causes tinnitus, it is only our attitude towards it that determines whether we suffer or not. My wife has chronic pain (fibromyalgia). What we have is in a sense not so different. The brain...

I believe that unhabituated people per definition still have a negative reaction towards their tinnitus. It being a 'nuisance' means that they still have a negative attitude towards it, doesn't it?

I forgot to write about two other very important aspects that helped me recover: - I stopped searching on the internet about tinnitus (related) topics - I stopped talking about tinnitus I tried to live my life like I used to before tinnitus as well as I could (except for the negative part of...

Hi Bob, I find it awesome that your hyperacusis faded away so fast, by simply learning how the brains works. That is truly amazing. It took me a few week to get rid of the hyperacusis, after learning the brain process behind it. But why should there be a cure if there is no disease to cure...

Hi Contrast, I guess you are missing the point here. TRT has helped me a great deal and I do not care what you or other people (or scientists) say/believe about it. I get the feeling that you attempt to devalue my recovery post. Is it perhaps because you have tried TRT, but without luck so...

Hi Contrast, I will be honest with you: I don't care that his view on tinnitus hyperacusis is controversial. It has brought to where I am now and I am very happy with that. For me, tinnitus is just as he described it: a neutral signal in the brain unworthy of my attention. And I believe it is...

Hi all, It's been a LONG time since I have been last online on this forum. During the past year I have thought multiple times of posting my success story here, but I never took the time to write it. Why? Apparently I had better things to do. I have experienced tinnitus plenty of times before I...

I eventually chose a job in which I did not have to work with ultrasound as much (I still do though). So far, I have not noticed any consequences. I do believe that ultrasound can damage your hearing, but whether it does greatly depends on the ultrasound its intensity. The intensity of the...

My tinnitus has changed, a lot. Since the beginning (one high pitched pure tone), many other sounds have entered the scene, so now I hear many many pure tones on different pitches, white noise and morse code. I begin to wonder: what kind of sounds are not there in my head? Do any of you also...

Thank you all for your replies. I've been so busy that I did not take the time to visit the forum. Eventually I chose for the other job. Not because I was afraid of the ultrasonic sound, but for different reasons. It was a hard decision. I do believe that ultrasonic sound might effect T, but...

Life is more important indeed. I do not want my job to change my T and thereby effect my life and that is why I ask this question here. My T was purely caused by health anxiety. It was one of the symptoms and it got worse because I was anxious about my T too. My life is a lot better now. T is...

Hey there, I recently achieved my Master of Science degree in physics and soon I will have to choose between two jobs offers. :) One of them is a job as R&D scientist, in which I will work with ultrasound on a daily basis. I think that this job suits me best. Now, I can imagine that not many...

My tinnitus can change by the hour. The sounds jump from right to left and back. New sounds arise, others go. For me it's pretty normal.

It's the same for me, strangely.

Regarding your poll question: you mean louder while wearing the plugs? Then yes. Or do you mean that the tinnitus stays louder after having worn the plug? Then no. If I read your post, it seems you mean the latter question while the poll question seems to be more like first question to me...

I do not think EMDR can be used to treat T directly. It would only be useful if the source of the T is some traumatic experience (which still causes strong emotions when thought about) in the past. But I do not think that the T will decrease if the impact of the traumatic experience has been...

According to Jastreboff et al., about 50% of the tinnitus patients cannot mask their tinnitus at all. They have no other choice but to constantly hear it. And they still habituate to it. Someone probably already told you (I did not take the time to read all the reponses since I am at holiday...

It took me almost a year to habituate my reaction (anxiety/stress) to tinnitus. Now I can listen to the sound in silence without being distressed. It was not TRT alone that helped. It took a load of discipline and positive thinking too. For me it was all about the neuroplasticity of my brain...

Why not both? I do not see why you could not get both therapies at the same time.

I totally agree.

Hi Steve, Wow, six days without sleeping.... That's extreme. Good to hear that you've finally slept. Sleep is so important! I also have high frequency tinnitus (and low and mid and many other tones :p) and white noise does fortunately help masking the higher tones. Have you tried searching for...

Believe me, I've had many more symptoms in all my body parts. This can be stress related.

I admire your positive attitude towards the new sound. :)

The chances of having ALS or MS are extremely small!

Hi Mario, Judging from your post you seem to be in a lot of stress (which is of course no surprise seeing what you're going through). I've had similar symptoms and many more and was never diagnosed. Well, they did diagnose me with health anxiety. An overdose of stress and/or anxiety can give...

Tonight I woke up and heard a mosquito. I was annoyed by it, I thought: "Now already? The summer hasn't start yet. Go home mosquito!" Too lazy to search for it and kill it, I turned to my other side. The mosquito's sound suddenly originated from inside my pillow.... So it was just my tinnitus...

Ok, let's say our nerve fibres are damaged. What can we, at this point, do about it? Nothing, as far as I know. (sorry if my message is a bit harsh :p)

Np

I think that is a wise thing to do (especially if a large part of your spare time is spend on thinking about tinnitus). But keep in mind that there may be things that can help you find relief, such as sound enrichment (make sure you can still fully hear the tinnitus), meditation, moderate...

Do you know what caused it?

I have almost perfect hearing (way above average for my age) and tinnitus in both ears. What worked for me: a combination of TRT (learning what tinnitus is and using sound enrichment), Julian Cowan Hill's advices and mindfulness. It's all about teaching your brain about the unimportance of the...

Hi Greg, It could be the cause indeed. How it could be, I am not sure. Maybe the muscles in the jaw send neurological signals when they are tensed for too long. I was grinding my teeth too, but not so much. A guard did nothing for me. A few members of a tinnitus forum in my native language had...

I do not know whether smoking and tinnitus are directly related. I doubt it. But I can imagine that if you quit smoking, it will in long term give you many health benefits (such as more energy) - of course dependent on how much you smoke, the more you do the better you might feel after having...

Since when do you have tinnitus? Since May 2016, has never been gone since. How loud is your tinnitus? Honestly, I do not know. It has never been measured properly. The loudness varies. I used to be able to hear it over many things. Now that I am not hyper focusing on it anymore, I only hear it...

Very well said, Michael!