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Since I have not logged in for a couple of years, I thought I would post here since I did "come back" after remembering Tinnitus Talk after seeing it in an old email. And why did I forget about this site? Since my tinnitus doesn't bother me (I've had it for six years). It is still around, about...

First, let's remember that ten years ago 59 million Americans contracted H1N1, 250,000 were hospitalized, and 12,000 died. Just in the US: https://en.wikipedia.org/wiki/2009_flu_pandemic_in_the_United_States Remember how the market tanked, sports were cancelled, universities shuttered, toilet...

I originally took modafinil about a decade ago when I was doing super overseas traveling and frequent time zone adjusting and long before I had tinnitus brought on by TMJ. I continued it for the increased concentration and energy - like taking 10 cups of coffee - but stopped after about a year...

My T was supposedly caused by clenching plus bad orthodontics. The combination jammed my jaw up into its sockets, which are near the inner ears, causing T (so the theory goes). Over 2.5 years I have done bite plates at night plus 18 months of orthodontics to reset my bite relieve the stress...

So I saw this on an international plane trip this week and see now that it’s on Netflix. It’s an Indy movie that I’d put at 6/10 and was intrigued that the main character has “a thrumb in the (ear) drums” as Kevin Spacey says. Most movie tinnitus is dramatized after an explosion. There is a...

You have to self experiment since everyone is different. For example coffee makes some people spike and others not. Alcohol ditto. A beer makes mine go down quite a bit but many others spike. Since my tinnitus is related to TMJ I sometimes need something for jaw pain and I found the...

I thinks it’s safe to say T cuts across all personality types. However I think the same volume of T will affect some more than others. For example I loved loved loved silence and being alone (extreme introvert). T required a huge rewrite for me there - I am still introverted but I had to...

Val, most of us with pulsitile T don’t have serious conditions. In fact,a majority of us don’t even know for sure why we have it, or have at best, guesses. If you look at the stats a surprisingly high number of people have T, and I discovered two of my brother in laws have it once I started...

When my TMJ T started coffee/caffeine definitely raised it almost immediately, but after a year after night guards and braces lowered my T from a seven to a two, coffee has no effect at all.

I used to think ringing in the ears when you yawn was what everyone experienced I had it so long. I didn’t think about it and it only happened when I yawn. Then the T became all the time, and I found it was TMJ. So I would first see an ENT and if that checks out go get your jaw alignment...

Just as a counter point, I was put in braces to relieve my T, which has gone down because of them. The issue is not where your teeth are or the braces themselves, but how your jaw is aligned, especially how far the end of your jaw bone is coming into your head. Put your hand in front of your...

Do a search on my posts - your TMJ sounds a lot less severe than mine, but basically there are three areas to treat TMJ in general that also could relieve your T: 1. Relieve the joint - bite plates, stop clenching, soft diet, in severe cases braces, etc 2. Reduce pain/inflammation- ice, heat...

I have T caused by TMJ and the my TMJ doctor did this twice. I am pretty sure my TMJ is caused my inflammation around the joint which has improved in 18 months but not gone away (T has come down from a 7 to a 1, sometimes a 2). I believe the injection helps with the inflammation and I had one...

Josh, it is hard to say from a typed description, but I would say it was very high chance that it is TMD related. My advice on TMD treatments is: can it do any harm, and might it do good? In other words, a biteplate /night guard won't hurt anything, might as well try it. As you can see on this...

You have about 5 causes listed, but if it is TMJ related (like me), when you sleep your jaw relaxes, so loosens the ligaments and joints. As you go through the day your jaw is in constant use to talk, eat, emote (clenching when anxious or angry, and other facial expressions). Your jaw even...

Yes, you can adjust. I have had pulsatile tinnitus for almost 18 months, caused by TMJ disorder, and I have used braces and therapy to reduce it from VERY LOUD (7/10) to 2/10, so it has been easier lately. Now my pulsatile tinnitus is in sync with my heart beat, so when it was VERY LOUD I...

I have TMJ tinnitus, so electric brushing - and especially my water pick - feel really really good on my poor jaw. Neither affect my T one way or the other, but my T-source is in the minority on this board, so as with most things T YMMV.

It sounds like you have tinnitus, but earplugs won't cause tinnitus. You might want to see if you have night bruxism (grinding or biting down while sleeping), which can cause TMJ, which can lead to tinnitus.

I didn't go, but I talked to them and wrote about my experience here: https://www.tinnitustalk.com/posts/200930/ They actually called me back 6 months later to check up if I wanted to go in, but said I would wait another 9-12 months with my current treatment. Note you basically need to have...

A few thoughts on my 1-year tinniversary. I have been treating it as a TMJ problem, and had improvement from a 7/10 to a 2/10 after eight months, but seem stalled at 2/10, with hours here and there of 1's and hours of 3's occasionally. A few thoughts that I thought I might share: - I used to...

This post is just trolling. Just because there is less funding overall doesn't mean any specific disease gets less money. That is not how government or business works. A overall budget could get cut, and specific funding in an area could actually go up. The better tactic would be to lobby...

First, let me say that I have pulsatile T brought on by TMJ Disorder, so I am part of a minority on this board that doesn't have nerve damage or hearing loss in my ears, so have more avenues for improvement. I am also not "zero" yet, so not quite "success", but I wanted to share my improvement...

All I related is what the TMJ guy told me, and after half a year of bite plates, soft food and now braces, my T went down from scary levels to manageable (note my audiogram came back perfect, so they knew up-front it was not nerve damage). So releasing TMJ stress has helped , even if he is...

A few drinks brings my T down a notch immediately, but too much makes it spike the next day, probably due to poor sleep. So this reaction actually helps me moderate how much I take in, but does make me take in a couple of drinks each evening.

21. (for PT sufferers) We have a free, built-in heart monitor, always know what our pulse is.

Hello Fellow PT Sufferers, Six months I ago I woke up to constant ringing in my ears. While that is my "start date", the fact of the matter is that T had been sneaking up on me for years. For a long time: - When I yawned I heard a high-pitched whine. It had gone on so long (years) I thought...

Ryand, I do many of the same things but found I had to go to zero caffeine (which causes almost an immediate spike) but I do occasional IPA and light carbs. And I do refer to "my T" as it is something personal that I work to get rid of like my extra 5 lbs of weight. :-) I also went from 100%...

Hi Mussie, we are similar in that my T started 6 months ago, but I was diagnosed as TMJ disorder in a month, and orthotics for three months and now with braces to reset my bite, have lowered my T from a 7 to a 2 over the last 5 months. In my opinion, if your T is not caused by hearing loss or...

Haven't seen the movie, but follows up on ideas that solitude is becoming a luxury item. I find this is pretty true - even in far away national parks, I have been swarmed by other tourists. You have to get to more and more exclusive areas to get away from the "madding crowd". The funny thing...

As an update I took Aleve (naproxen) for a shoulder problem, and it actually took my T down a notch. Will keep up with it, hope this stays the same.

I think how it affects you also depends on your introversion/extroversion spectrum. I am an extreme introvert, so loved basking in my own thoughts to complete silence or a quiet nature setting. I think the first two months was the hardest, realizing that I might never have silence again; that...

What I did was effectively experiment on myself, knowing that I might have to deal with a spike. For me Ibuprofen seems to spike my T, although my T is caused by TMJ, which means inflamed jaw joints. So I find this odd, but accept it. I instead use one does of Aspirin a day, which eases my...

Actually it's the opposite for me - I choose to look at hearing my constant heart-beat as confirmation I am alive and going. And with my high pitch, it actually sounds a lot like a hospital heart monitor!

I am on this (brand name Remeron) as a sleep aid for four months and haven't had any appetite or weight problems, although my doctor warned me it was a potential side affect. The pill not only helps me sleep but keeps me pretty chilled out the morning after, so I think it keeps my anxiety low...

Good summary about half way through on this thread: https://www.tinnitustalk.com/threads/high-pitch-pulsatile-tinnitus.8856/

I had the same symptoms - high T, normal audiogram, normal ear pressure. But I had two other symptoms: my T changed when I turned my neck/head, and T would go down with alcohol (or any depressant). Based on this they said I had TMJ and put me in bite plates. If four months T has gone from 7...

Christmas is coming, so catalogs are hitting the mailbox. While browsing Hammacher (a general gadget catlogue), I was amused to find a "Tinnitus Wand": http://www.hammacher.com/Product/88273 "Applied to four points on the outer ear and surrounding bones, the wand’s gentle vibration stimulates...

Most people on this forum had to go to multiple doctors and many still don't know what the cause is. In my case I saw three doctors before I got to an ENT who diagnosed me correctly (TMJ). In my case I am "lucky" since my T is somatic and not nerve damaged based. But it took the ENT to figure...

AuntSally, I have pulsatile tinnitus in both ears, caused by TMJ and bruxism. If you think yours is stress related, make sure you are not biting down/grinding during the day, and (assuming you do sleep), making sure you do not grind or bind at night. Your dentist should be able to look into...

Your profile says you got it from a burglar alarm...so you're a burglar? :) My TMJ tinnitus was caused by faulty orthodontics when I was a kid (plus bruxism as an adult), but I don't blame either the ortho who did the treatment, nor my parents who sent me to him. There are hundreds on this...

I also have T caused by bruxism + TMJ - a very high pitched whine at 9 KHz. I brought the volume from a 6/10 to about 3/10 in three months with bite-plates. But I also cut out caffeine when the T first started - went cold turkey down from 2-3 cups in the morning, but it was easy to do since I...

Shari, do you have any other symptoms? I also went to an ENT and had a good hearing test. But I had other symptoms: pressing on my neck tendons changed the pitch or tone, as did moving my head around. It was these, and the fact that sedatives (in my case alcohol), lowered the loudness that...

If your hearing test shows high pitch hearing loss, then that is a reasonable diagnosis. It is when you have "perfect" hearing (like mine), but still have tinnitus that they start looking for somatic reasons. They should also look if you have any other symptoms or causes: dizziness, vertigo...

First, make sure your T is indeed virus induced. Get a hearing test as well as an ear pressure test from an ENT. They chased my T for a month as an ear infection. And while an ear infection may have been the "trigger", the cause of my T was actually TMJ (so maybe my ear infection made me...

Yes. My T is in rhythm with my heartbeat, except when I walk/run, which then goes with my pace. My T is caused by TMJ, so I am assuming even the slight movement of my TMJ creates a pressure spike that overcomes the heartbeat. Also, as I posted elsewhere, the beating (whether my heart or legs)...

No - I have a constant 9KHz whine in both ears, like the old sign-off signal on TV. At first it also had my heartbeat in there, so it "beaded" with my heartbeat, but that seems to be less now that the volume is lowering. I have occasional "fliers" which are different pitches that come in very...

Hi everyone. It's been about three months since my T started, and two months of treatment, so thought I would provide a positive update about my improvement. When I started I was at a steady 5 with panic peaks of 7 when I thought I was going to lose my mind. My T is a very high-pitched whine...

Although my T is being treated as a TMJ disorder, I am looking at "back up" in case my mode of treatment doesn't work after a few months (although I will probably keep the head/neck massages anyway as they are quite awesome for just feeling good and taking the mind off the T for a bit). Here is...

@whale Hang in there. For me when I was that high Robaxin (muscle relaxer) brought it down a notch or two. Alcohol did early, but now it doesn't do anything if at all. I read someone on this board Valium or similar drugs helped (I haven't tried yet), but this long in I am going to guess you...

@whale Okay had my second trigger point injections, going from the base of the back of my head down to the shoulder. He uses a topical freeze before the injection and uses lydocaine as the injection itself. His theory is that the TMJ and grinding binds everything up, and just giving splints...

@whale No sleep apnea although I've had insomnia for years. I am wondering if the unknown grinding was a cause. I'm only two weeks into having my night splint but I do think the sleep is a bit better. I am not sure what is used for trigger point injections but will find out Tuesday and post.

Hi everyone, glad I found this thread since what I have is very similar: pulsating T with heartbeat (95% of the time) that can be "turned" up or down by pushing on portions of my neck or turning my head. Most of the time my T can be turned down to almost off with large amounts of muscle relaxer...

I had trigger point injections yesterday on the side of neck and upper shoulders. Before the injections when I turned by head to the left or right my T increased. After, now turning my head doesn't change it at all, which I see as an improvement. Next week he will increase the number of...

My symptoms are similar, but as a guy I have never been pregnant. :) I can stop my T temporarily or change the tone by pressing on my neck or sometimes even my face. When I look up it goes up and when I look way down (chin on chest) it almost goes away. I joke that I can play a tune only I...

I'm no doctor, but my understanding for ototoxisity is that it takes heavy doses over long periods of time, not just a few days or weeks. And for most, but not all of these drugs, T stops once the drug is out of your blood stream. Also, for my T methocarbinol (Robaxin) significantly reduces...

I just started Remeron this week for sleep for T. My first day after I actually had a few hours of quiet in the afternoon with T about zero. Unfortunately the quiet did not come back on the next two days, but it definitely hasn't increased. For my T I find I can sometimes beat it to almost...

These three symptoms together are often TMJ/TMD. I would have that checked out.

My story to date: T minus 1 month - My cousin had a virus which ended up permanently damaging 90% of his hearing in his left ear. So I was already worried about him and freaked out. He had been misdiagnosed, and if they had treated him correctly they could have saved his hearing. Week 1 -...