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  1. AuntSally

    Some Hope

    That sounds like very good news all round! I am pleased for you. Can you describe what your tinnitus was like? Did it pulsate? Or woosh in time with your heartbeat? I only ask because I know pulsating tinnitus can be caused by high blood pressure. I have pulsating tinnitus in both ears. 11...
  2. AuntSally

    I Developed SSHL and Severe Tinnitus on 4/3/2016

    Well that sounds like good news to me Dom. I was just wondering how you were the other day when I came across an older post. You sound like you are coping much better. How is the sleep? I meant to ask about your T sound a while ago. You said it's like a washing machine sound. Does that mean it's...
  3. AuntSally

    Another Random Success Story

    Yes. Absolutely I need to hear these stories. Thank you. It's what keeps me going. I am struggling to stay positive at the moment. Maybe its just a Sunday downer but thanks anyway.
  4. AuntSally

    Recently Developed Pulsatile Tinnitus

    @Scared111 yes both sides. its different on each side. the right is louder and wooshes 24/7 more often like a pulsating hiss. the left is higher pitched, kind of like cymbals or sleigh bells, not so loud usually, and more intermittent. I have had blood pressure checked. it's normal. I have had...
  5. AuntSally

    Recently Developed Pulsatile Tinnitus

    Hello @kaylarose43 I have pulsatile tinnitus. I had an mri scan and the ent specialist ruled everything out but noted I had a couple of vascular loops, but they were unlikely to be if any significance. I wonder if that is why I have pulsatile tinnitus. I think I might go back and see if this...
  6. AuntSally

    18 Months Later — What Does That Feel Like?

    Thank you for your story. I'm still suffering nine months in and need to read success stories like yours. I've only managed to actually speak to two other people who had tinnitus though. One got a lot better after 8 months and the other still has it but like you said doesn't care about it. I...
  7. AuntSally

    Pulsatile Tinnitus Mystery

    @Paul13 me too. Just wondering about the prospect of having to live with my ears pulsating for the rest of my life. I'm 58. Some days I'm nearly ok and think to myself ok I can do this! Others I wonder how it's going to be possible to live any sort of normal life or sleep properly again. It's...
  8. AuntSally

    Pulsatile Tinnitus Mystery

    I find it helpful to hear peoples experiences of PT so thank you everyone. Otherwise I would think I'm totally alone with this distressing condition. I find it a little easier during the afternoons and evening and sometimes, depending on how much sleep I had the night before, can feel almost...
  9. AuntSally

    Pulsatile Tinnitus Mystery

    When I discussed the results of my MRI scan the ENT said it showed I had a couple of vascular loops, which are blood vessels looped around your inner ear. I guess all it takes is some inflammation or changes in there to be able to hear those blood vessels. I don't know how common they are. He...
  10. AuntSally

    Hello from Geneva, Switzerland! :)

    Hello @kgrandchamp thanks for your story. you mention swishing noises in your ears. Is there a pulsating element to your tinnitus? In time with your heartbeat?
  11. AuntSally

    Pulsatile Tinnitus Mystery

    Hello. That's interesting. I developed PT several months ago and have not yet found a cause. Unlike normal T I think that PT must have a physical cause. I'd be interested in knowing where you found out that a lot of PT isn't vascular. I've had diddley squat from GPs ENTs and suchlike and have...
  12. AuntSally

    I Developed SSHL and Severe Tinnitus on 4/3/2016

    Try not to get too despondent. Maybe it's just a setback and things will improve again. My T sounds like a washing machine too. I've had it about 8 month. Sleep is still very difficult. Just a thought... have you checked your blood pressure?
  13. AuntSally

    So, Three Years On...

    Kopesy thank you for posting your story and telling us of your journey. I hope things continue to get even better for you.
  14. AuntSally

    Horrific State — Need Help

    Hello Alex. I would just like to empathise as I'm going through similar. I had a lot of hissing tinnitus which seems to have subsided but I'm left with wooshing PT which is very difficult to deal with and my ears pop and crack a lot when I swallow or even move my jaw. Since everything else has...
  15. AuntSally

    I Developed SSHL and Severe Tinnitus on 4/3/2016

    This is good news! There is hope. I do hope things continue to get better for you and that you enjoy that holiday.
  16. AuntSally

    Three Year Anniversary and So Much Better

    I've just seen this story Lorac. And it's just what I needed to hear justnow. That healing and improvmement does happen.... slowly. Thanks for posting it.
  17. AuntSally

    Please Help. A Huge Setback.

    Thanks @Fungus . I read your story and know what you went through. I take heart that treatment worked well for you and you're ok now. Thanks a lot for being here. If you don't mind me asking, how long did you need medication for and how was it to discontinue it? I might be depressed. I'm not...
  18. AuntSally

    Please Help. A Huge Setback.

    Thanks @glynis and @Karen I have wondered about blood pressure. I do get it checked and it seems mostly normal but it might have been elevated at some point a few months ago. I also think I might have intercranial hypertension. The symptoms seem to fit. And I seem to have developed a horrible...
  19. AuntSally

    1 Year and Much Much Better

    I do hope it will get better and better for you and I think you are doing everything right :)
  20. AuntSally

    Please Help. A Huge Setback.

    I've had one sided pulsatile tinnitus for just six months now. After a horrible start I was just making some baby steps toward acceptance. Less anxiety a bit better sleep. I began to think I could cope with my soft pulsating in one ear. And now I seem to have developed pulsatile tinnitus in...
  21. AuntSally

    Acceptance of Pulsatile Tinnitus

    Me too. Thanks Karen. I also tend to have extreme reactions to meds and other stuff. And I do have lifelong eczema ocassional athsma and inflammatory conditions. I know ibuprofen is supposed to cause tinnitus but I wonder if some kinds of tinnitus might be helped by it. A bit scared to try.
  22. AuntSally

    Acceptance of Pulsatile Tinnitus

    Hello @Fungus thank you for this. I am still new to tinnitus and pulsatile tinnitus and still seeing ENT. It's uplifting to hear you got used to it. In my lowest times I think PT Must be harder than other T Sounds but I see it can be done. Did you ever discover the cause? On my MRI it showed I...
  23. AuntSally

    Acceptance of Pulsatile Tinnitus

    It is a low point for sure I know. Each of us finds our own path and way of coping through these rough times. Antidepressants are there if we decide we need them. And yes, are willing to take the risks and side effects that go with them. It's difficult. My own jury is still out on that, since...
  24. AuntSally

    Acceptance of Pulsatile Tinnitus

    I know how you feel. I also have pulsatile tinnitus. I had ordinary tinnitus back in june, just in my right ear. When the ordinary tinnitus subsided a bit I noticed pulsatile tinnitus in that ear. In august I developed a high pitched pulsatile tinnitus in my left ear, which can be piercing. i am...
  25. AuntSally

    St John's Wort for Depression

    Does anyone take St John's Wort? I am thinking of trying this for a while. I hear it can be an effective mood enhancer and is very safe.
  26. AuntSally

    Why My Volume Changes So Much and Why It's So Predictable?

    I think things do get easier in time, which brings improved sleep. although I'm not there myself. I've had tinnitus since june and still struggling with sleep. I find it helps to stay up later so I don't wake so early. I manage this by keeping a bit more active in the evenings. Also try...
  27. AuntSally

    Holy Basil Extract (Tulsi) for Anxiety and Better Sleep

    Thanks. I've ordered some online and will try it. I'm not taking anything else at the moment other than chamomile tea.
  28. AuntSally

    Holy Basil Extract (Tulsi) for Anxiety and Better Sleep

    @Karen I am thinking about taking Holy Basil. Can you remember how long you took it for? Do you know if it is safe for long term usage?
  29. AuntSally

    Ibuprofen for Inflammation?

    This might seem counter intuitive, but if pulsatile tinnitus is caused by ETD / inflammation, wouldn't an anti inflammatory such as a small dose of ibuprofen actually help? Used in conjunction with a steroid nasal spray. In reducing inflammation? What do people think? Or are all NSAIDS a...
  30. AuntSally

    Magnesium

    How long does it take to take effect? In a calming way l mean.
  31. AuntSally

    Magnesium

    Thanks again. I was going to ask about your experience of it if you are using it. I think I will give it a try. Someone said somewhere it us widely prescribed in Germany. And I think I will also try magnesium too.
  32. AuntSally

    Magnesium

    Yes thanks michael. I have also been thinking about st johns wort. Although I dont think I am depressed. Just anxious and tired.
  33. AuntSally

    Magnesium

    My T Started with a VERY loud hissing, with a background pulsating. The hissing seems to have abated apart from occasional bouts. But the pulsating remains. Often it seems softer. I think its definitely softer overnight than it was at the start but enough to keep me awake once I wake up. I try...
  34. AuntSally

    Magnesium

    Question to anyone who supplements with magnesium. What is the best form / combination? And how long does it take to work? I understand it may help with pulsatile tinnitus but any reduction in anxiety would be good, and a bit more sleep. Thanks in advance for any views.
  35. AuntSally

    Increased Pulsatile Tinnitus Due to Virus?

    Yeah was only wondering if anyones else had experienced the same. Its the first time ive been ill since I contracted tinitus five months ago. That said, after this mornings jet engine things have settled a bit. Always paranoid during spikes.
  36. AuntSally

    No Sleep. Feeling Desperate.

    Meds or not? Having read around, success stories and the like. I wonder if just pushing through with the insomnia, assuming that sleep patterns will right themselves naturally in time will get to habituation in a shorter timescale. I don't work or anything. After five months I'm just amazed I...
  37. AuntSally

    Increased Pulsatile Tinnitus Due to Virus?

    I contracted a sickness bug off my family yesterday. Because I have pulsatile tinnitus I noticed an increase in my heart rate last evening when I didn't feel well. And then I was sick. I hardly slept last night as usual. Just one hour. I tried a strong brew of chamomile tea middle of the night...
  38. AuntSally

    No Sleep. Feeling Desperate.

    Can you use mirtazapine ocassionally as a sleep aid? I was prescribed this as im suffering terribly with anxiety and terrible insomnia now 5 months into T. I tried it but I think it caused a new electrical static kind of noise in my head that wasn't there before and it frightened me off staying...
  39. AuntSally

    Can Antidepressants and Other Medications Help Tinnitus?

    On the big issue of how to move forward if T sticks around a while......Everyone wants to habituate as quickly as possible. Or at least get to acceptance, and learn to adapt. Do antidepressants impede or help this process though? There is a school of thought that says they prevent or at least...
  40. AuntSally

    Can Antidepressants and Other Medications Help Tinnitus?

    Yes thanks for all this michael. I know. But I am equally afraid of meds now due to some bad experiences, and afraid of withdrawals. Also I'm thinking that t will still be there after taking antidepressants. Then what? And what if I'm stuck on them for life? I'm 58.
  41. AuntSally

    Can Antidepressants and Other Medications Help Tinnitus?

    I'm in such a dilemma with this. I'm suffering a lot of fear anxiety and insomnia since t started five months ago. I'm not averse to meds if they help but in this case (tinnitus) everything I've done with meds seems to have made the t a bit worse. I recently tried mirtazapine, for three weeks...
  42. AuntSally

    Unilateral Pulsatile Tinnitus

    I've had a wooshing tinnitus in my right ear since june. Goes in time with my heart beat. Never stops just gets softer or louder depending on.... I don't know what. However I've had a different kind recently started in or around my left ear. It's higher pitched and can be quite piercing...
  43. AuntSally

    No Sleep. Feeling Desperate.

    Ok I might try a glass of wine tonight and see what happens. I used to drink a lot if wine before this happened. Maybe it would do no harm..... ??? And more natural than psychoactive drugs. Lack of sleep has become a bigger issue than the tinnitus. If I could sleep I think I could cope.
  44. AuntSally

    No Sleep. Feeling Desperate.

    Has anyone ever had pulsatile tinnitus in both ears? My unilateral PT has recently worsened and gone bilateral. I can't cope with this. Do antidepressants really help?
  45. AuntSally

    Antidepressants (SSRIs, SNRIs, MAOs, TCAs, TeCAs)

    I've just been reading through this thread and just wondered how many people here are taking, or took Mirtazapine. How long did you take it? And was it easy to stop taking it? I would like to try it a while as I'm sleep deprived over months but don't relish a hellish withdrawal or the prospect...
  46. AuntSally

    No Sleep. Feeling Desperate.

    And I do believe a lot of my pulsatile tinnitus (now in both ears) is down to prolonged stress and anxiety. It's gradually gotten worse last few months. often my whole head is pounding, especially lying in bed at night. If I thought antidepressants would really genuinely work and not mess me up...
  47. AuntSally

    No Sleep. Feeling Desperate.

    I am seeing my new doctor today where we will review my case. I get where you are coming from @Michael Leigh and yes, but I am so conflicted. I do want to help myself but drugs go against everything I believe in. Up till now I have lived my life as natural as possible. Cooked from scratch. Even...
  48. AuntSally

    No Sleep. Feeling Desperate.

    I tried benadryl too, which is called nytol here in britain and can be bought over the counter. Maybe it was a bad night when I tried it but it didn't work for me. Although I did find, quite by accident, that plain old paracetamol reduced my tinnitus and seemed to calm me and I slept a bit...
  49. AuntSally

    No Sleep. Feeling Desperate.

    Yeah I drank a strong brew of chamomile tea and slept for seven hours last night, although I woke a few times and went back off again. Probably due to having no sleep the night before. No way to know what will happen tonight. This T has turned me from loving my bed to being afraid of it. Some...
  50. AuntSally

    No Sleep. Feeling Desperate.

    Thanks Michael. I dont know what to do. Everything I did with medication seemed to add a new dimension to the original tinnitus problem. I recognise that I'm struggling and yet have become completely paranoid about medication. I expect I should sleep tonight but probably not much. The most sleep...
  51. AuntSally

    No Sleep. Feeling Desperate.

    How do you cope with no sleep? None last night. Not even 5 minutes. I feel wretched, like I can't go on with this torture anymore. I've been like this 5 months now. I get 4 hours max. I tried meds before but they created more problems than they solved. Lay awake all night listening to PT all...
  52. AuntSally

    Help Please from Tinnitus Sufferers in the UK

    I'm in Scotland. I just recently changed my GP because I felt he wasn't taking me seriously and just giving me the brush off. I think everyone has the right to do this. Take a look at this page. You just go to a new sugery and register. Thats what I did...
  53. AuntSally

    Pulsatile Tinnitus Quiet After Exercise

    My pulsatile tinnitus is in my right ear and it used to go away when I lay on my left side in bed. I wondered if the cause was fluid, which moved around depending on position.
  54. AuntSally

    Pulsatile Tinnitus Quiet After Exercise

    I have pulsatile tinnitus and while it's loud during excercise it goes away for a while after excercise. Almost silence! Although it comes back later. Does anyone else experience this? Or know why this is the case?
  55. AuntSally

    Please Help!! Freaking Out!!

    Hello from a fellow sufferer in scotland. I know its not much help but I have had similar syptoms for past 4 and a bit months. So I know how you feel. If its any help I went to my gp and got referred to a ENT specialist and had an MRI scan. It didn't show anything. I'd just like to reiterate...
  56. AuntSally

    Overwhelmed! Little Sleep. Not Coping.

    Thanks @Michael Leigh i re read the positivity bit. Don't have a printer though. On that note I'd also like to thank @billie48 again. From his wonderful story I took away with me the concept of the three As. Acknowledge, accept, adapt. I'm trying. I think I've acknowledged but there I am stuck...
  57. AuntSally

    Overwhelmed! Little Sleep. Not Coping.

    Yes I was thinking about st johns wort. I've used it before. Thanks for the reminder. Maybe best to give it a couple weeks to get the antidepressant out my system first. This has to be the toughest challenge of my whole life and sometimes I wonder if I'm going to make it. Im 58.
  58. AuntSally

    Overwhelmed! Little Sleep. Not Coping.

    I just want to know that things will improve in time. Or at least feel a bit confident that it might. Ive lost a lot of weight as well and it looks like im shedding a lot of hair. More fear.
  59. AuntSally

    Overwhelmed! Little Sleep. Not Coping.

    Yeah I have tried mirtazapine. I wish it were that simple. It gave me a reasonable night's (although broken) sleep for a few days then it got less and less and ended up with so little gain on my normal unmedicated three or four hours. Five if I'm lucky. And I think it might have added a new...
  60. AuntSally

    Overwhelmed! Little Sleep. Not Coping.

    @Samantha R I take my hat off to you managing this with two little ones to get up to on top of everything. I don't have that and I struggle. It must be hard. @Michael Leigh Thanks. I am just about to give up on docs though. Trying a massage on Tuesday. And off loading emotionally on various...