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  1. Neenie

    Tinnitus Management Strategies

    Dear Dr. Nagler, My name is Nina and I am studying Clinical Audiology at the moment. We have finally begun to cover my dream topic of tinnitus. We need to write an essay on tinnitus management options that Audiologists offer and also the management strategies of non-audiologists (such as...
  2. Neenie

    Those Who Have Had Tinnitus for at Least 1 Year: Does It Get Better at What % Rate?

    Sure it is. Tinnitus is a PERCEPTION. Its not really objectively measurable. You can "match" the loudness and the frequency, but again, that is just your perception of it. Most people with tinnitus have subjective tinnitus. Which means it is SUBJECTIVE. In the same way that I might love a movie...
  3. Neenie

    Those Who Have Had Tinnitus for at Least 1 Year: Does It Get Better at What % Rate?

    There is no "golden standard" as to when you learn to cope with your tinnitus better. I write "cope" because the tinnitus is there. It will remain the same. And if there are times in your life that you do not "hear" it, its only because during those times you are not focusing on it. I reiterate...
  4. Neenie

    Those Who Have Had Tinnitus for at Least 1 Year: Does It Get Better at What % Rate?

    No Amelia. Tinnitus is tinnitus. It is only classified in reference to the reaction you have towards it. Problematic or non-problematic. Tinnitus loudness is SUBJECTIVE. What you define as loud, someone else defines as quiet. What you define problematic, someone else defines as benign.
  5. Neenie

    Those Who Have Had Tinnitus for at Least 1 Year: Does It Get Better at What % Rate?

    If your tinnitus does "improve" in 12 months time then you are in the minority. Define "improvement". Most of you here on this forum equate "improvement" with decrease in volume. Don't worry, so did I. Not anymore though. What changes after 12 months is your REACTION to it. And if it hasn't...
  6. Neenie

    Merry Xmas Members!

    Hi, No no no, it hasn't faded at all. The tinnitus is just as loud and annoying as before. But meh, cant change that so why worry about it?
  7. Neenie

    Merry Xmas Members!

    Dear tinnitus members, Many of you dont know me, but I am the same as you. Just a regular person with tinnitus. When it first began I felt the same as you. Extreme distress, heightened emotions, despair, fear, anger, and many other negative emotions. I, like you, tried for months to find the...
  8. Neenie

    One Year with Tinnitus

    Hi Guys, Many of you probably dont remember me from before but I used to be a regular on this tinnitus site. One day, out of the blue, for absolutely no reason, I got unilateral tinnitus in my left ear. It drove me to the brink of suicide where one night I was so afraid I went to emergency and...
  9. Neenie

    Mental illness and tinnitus

    Also, some advice, take it or leave it. The day I stopped wishing my tinnitus away was the day it got better. Actually, no. I rephrase. It did NOT get better, my anxiety got better. My tinnitus is still exactly the same and unless you're really lucky your tinnitus will also remain the same. I...
  10. Neenie

    Mental illness and tinnitus

    Hi guys, Its me again. I'm still doing Audiology and its going well. Anyway, we have to do a year long project starting next year. I want to do something on tinnitus. I was tentitively thinking I would research the connection between mental illness and tinnitus distress. I was thinking, just...
  11. Neenie

    Souvenaid and Tinnitus

    Just get it at the pharmacy Deb. Its around $17 for a set of 4. Worth a shot. Oh and dont get strawberry, its liquid poison, vanilla is drinkable
  12. Neenie

    Souvenaid and Tinnitus

    So, I've been drinking the Souvenaid for about 1.5 months now and I think it's working. Placebo effect? Perhaps, but in the end does it matter if its placebo or not? If you perceive it as less, then it is less!
  13. Neenie

    What Do You THINK Is Causing Your Tinnitus?

    Auditory Deprivation. I wore earplugs to bed every night for about 5 years and I was in bed for 10 hours and at home studying mainly were I swear its more silent than a sound proof room, haha So because I was getting zero input sound, my brain decided to make its own. Yay. But yer, either that...
  14. Neenie

    GABA Supplements (Including Picamilon)

    Sooooo, yay, I just received Picamilon from Ebay but it came in 25g satchets and the instructions say to take 150mg 3 times daily. What is that? How do I measure out 150mg? All I know is 1 tsp is 5g approx but obviously thats not even weight dependent. So how much do I take and how if I'm meant...
  15. Neenie

    Fundraising for Tinnitus Research

    Hi gang, So i've decided to do some fundraising. I'm going to ride 30km every day for a month, maybe 2. I want to set up a fundraising page, I have no idea how to do this. Do you guys know of an organisation that I should raise money for? Thanks Nina
  16. Neenie

    How to Reduce Your Tinnitus

    thanks, this is exactly what I needed to hear. :) I'll check in on you guys later again but for now, goodbye and goodluck!
  17. Neenie

    Taurine and Tinnitus

    ive been taking 4g but the study says to take 294mg/kg so about 16g, which is a hell of a lot!
  18. Neenie

    How to Reduce Your Tinnitus

    Just sitting in a quiet room listening to it at the moment when I realise, actually, it hasnt gone down at all. Its exactly the same as before. What's changed? I dont know. My reaction? I'm still super annoyed that I can even hear it at all, and long for the days that I had silence and was...
  19. Neenie

    How to Reduce Your Tinnitus

    Cool, just ordered it from Ebay. Are you sure it crosses the BBB because I read that nutritional GABA molecules are too large to permeate into the brain so how would B3 help that?
  20. Neenie

    How to Reduce Your Tinnitus

    The GABA I take has 2mg B6 in it. Is this is the same thing? If so how much do you take?
  21. Neenie

    How to Reduce Your Tinnitus

    Hi gang, I'm back! I still have tinnitus but in the last week it's gone down so I am so happy that I could jump up and down all day. I can sit in a silent room again, ALMOST! It's still there but only in complete silence. Here are some of the things I've been trialing for about the last 3...
  22. Neenie

    Souvenaid and Tinnitus

    Oh man, I just drank one. That stuff is poison! Ahaha
  23. Neenie

    Tinnitus and Dreaming

    Hi all. Still here. Still got tinnitus. Still just as annoyed as before. Ah well. Lets move on. I sure as hell want to! haha, sigh
  24. Neenie

    Souvenaid and Tinnitus

    Souvenaid is used for early Alzeihmers diease and works on memory and in slowing progression to Alzheimer's dementia. If Souvenaid induces synaptogenesis and improved synaptic function, it may provide benefits in other clinical conditions characterised by neurodegeneration. Seeing that...
  25. Neenie

    Taurine and Tinnitus

    damn! Thanks for trying it out for me though! Now I dont have to do it!
  26. Neenie

    Taurine and Tinnitus

    Hmm, the study says to take 294mg/kg, which would be around 16g for me. The bottle says to take 2g. So i'd be taking 8 times the recommended dosage. Should I do it anyway?
  27. Neenie

    Tinnitus and Dreaming

    Do you have tinnitus when you dream? I don't. Does this mean it's possible somehow to suppress it if you train your mind?
  28. Neenie

    Taurine and Tinnitus

    Read this: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2997922/ If you want to try taurine you can get it real cheap from here: iHerb.com Give it a go, you never know! GOOD LUCK
  29. Neenie

    Annoyance is a Factor of Loudness

    Hi, I know you're about to tell me I'm wrong, but I really do think that people that suffer with tinnitus compared to people that dont have a difference in the LOUDNESS of their tinnitus. I know that study, where normal people were placed in a sound proof room and 94% of them had tinnitus. This...
  30. Neenie

    Katy Perry Concert and Earplugs

    i going to go. Even though its the day before an exam. And even though I have screaming tinnitus. I'm just gonna look like an absolute dork and wear foam plugs plus im gonna buy what those construction workers wear, those massive ear muffs. I found some class 5 ones on Ebay for $25. Cant lose...
  31. Neenie

    Katy Perry Concert and Earplugs

    So i absolutely love Katy Perry. Like LOVE her and she's coming to Australia. Is going to her concert the dumbest idea I've ever had? Which earplugs attenuate the sound the most. I don't care about money. I just want the best ones in the world. But....is this enough to protect me? I could be a...
  32. Neenie

    Clicking and Tinnitus

    Hi, I have unilateral tinnitus which appeared suddenly one day 8 months ago. At the same time I developed a clicking crackling sound in the same ear which is audible to others and happens when I talk or yawn. It is uncomfortable and the tinnitus is also. I have an a few various feeble attempts...
  33. Neenie

    Gamma-Aminobutyric Acid-Benzodiazepine-Chloride Receptor (GABA/BZ/Cl)

    Read this? http://www.tinnitusformula.com/library/brain-receptors-and-tinnitus/ Whadayathink?
  34. Neenie

    WTF, It's a Symptom. Find Out the Cause, Coz That's Your Job

    Hello. Annoyed. Why can no one help us. It should be so easy. I hate that when you go to the doctor they tell you they have no idea and send you home. My partner is a lawyer. When a client comes to him and he has no idea, he goes home to research it and then tells the client the answer later...
  35. Neenie

    Antidepressants (SSRIs, SNRIs, MAOs, TCAs, TeCAs)

    haha, nah im hardcore, and I only weigh 48kg and i take much more than that and I dont even notice a change! Must be the German blood! :p
  36. Neenie

    Antidepressants (SSRIs, SNRIs, MAOs, TCAs, TeCAs)

    DW. I've been on none at all, ranging up to 400mg! I actually didn't notice any difference in anything at all. Start with 10mg, but that might help you sleep. If you're after an antidepressant, you're looking at the 150-200mg for it to reach threshold dosage for you. But either way, I dont think...
  37. Neenie

    Acoustic Reflex Measurement

    DW! The ART are specifically designed to stop at 105dB (in Australia anyway) and if your acoustic reflexes are normal, which im sure they are, they'd respond at around 90dB. It's nothing that'll give you tinnitus promise. And if you are experiencing a spike it is likely it is just caused by...
  38. Neenie

    Hearing Aids That Play Rain Noise

    Hi all, I just have a question. I have hearing aids (zero amplification, I have no hearing loss) that play white noise. It's better than living with tinnitus but it's also highly irritating and the volume needs to be up fairly high making it quite unpleasurable. Rain sound on the other hand is...
  39. Neenie

    I'm Back, but Just for Today

    Thanks guys. You're all awesome and I hope you know that! :)
  40. Neenie

    I'm Back, but Just for Today

    Guess what. I was just sitting in the library during a break and was browsing a book on tinnitus talks or articles given at a conference, I think at my uni, and found something written by you! Haha, I was like, WOW, I know this guy! Didnt get a chance to actually read it though! :)
  41. Neenie

    I'm Back, but Just for Today

    good to know. mine came on suddenly one afternoon, noticed it whilst watching TV so not even in a quiet room. Been 7 months now. Zero improvement. Zero habituation. I'm losing hope. Its only on the one ear. And there is a loud click everytime I talk which other people can hear. No one knows what...
  42. Neenie

    I'm Back, but Just for Today

    yer, got tinnitus. no one i went to could help me. thought "this is fucked" and decided to study it so i could find a better way. dunno if thats even possible but i gotta try
  43. Neenie

    I'm Back, but Just for Today

    Apparently "waiting" is the worst thing to do. But I'm with you, I'm also just waiting so I can start living again. Even though I know thats the worst thing to do. But I cant help it. It's like having a broken leg and not being able to do things until your bones heal. Hopefully our "bones" will...
  44. Neenie

    I'm Back, but Just for Today

    Yer, I'm gonna keep going. I can't not try everything. I'm literally going to try absolutely everything. I just can't see myself living this way forever. Most days I get up, go to Audiology, and then get sad because I'm wasting my time being there coz I can't imagine I'll still be alive to see...
  45. Neenie

    I'm Back, but Just for Today

    Hi family, How are you. I've really been missing you. I'm still doing Audiology and am on placement at the moment in a mining company. There's so much to learn. Before starting I thought the ear would be pretty easy, I mean it is just an ear after all. But, no, there's so much more to it than...
  46. Neenie

    Goodbye

    Thanks guys. I will be back, I promise, and will tell you how it went and whether Neuromonics is something you guys should look into! So far I think its a big mp3 plAyer but I am patiently going to wait for results anyway, signing off, Nina
  47. Neenie

    Goodbye

    And a special thank you to Markku who is absolutely amazing!
  48. Neenie

    Goodbye

    Dear friends, Thank you so much for all your continued support over this last 6 months. It meant a lot to me. Today I am started Neuromonics Oasis treatment. I really hope it will work. I am going to try my absolute hardest to make this happen. I will therefore not be able to talk to you anymore...
  49. Neenie

    Angry, Can't Believe It — What Kind of Tinnitus Is It That You Don't Even Know You Have It?

    these people must have rediculously quiet tinnitus then, if they can only hear it in a quiet room. I hear mine over everything except the shower, and that EVEN if I'm actively trying to not focus on it by thinking about other things
  50. Neenie

    Angry, Can't Believe It — What Kind of Tinnitus Is It That You Don't Even Know You Have It?

    So just quicky, coz I deliberately set my alarm for 4am to study, but anyway, we were talking about unilateral tinnitus in class yesterday so after I went up to the lecturer and said "look, I've got unilateral tinnitus and blah, blah...." and she says back "Oh you dont have a problem then, I...
  51. Neenie

    Need Some Quick Help (Seeing a GP for Help With My Anxiety)

    And also, dont let yourself be bullied into doing something you dont want to do. YOU are the boss
  52. Neenie

    Need Some Quick Help (Seeing a GP for Help With My Anxiety)

    If you're really worried and you want to make sure you get the "right" medication then I recommend when you go to your GP, ask for a referral to a psychiatrist. Then the world opens up to you a little more and there's a million medications that you can take and you can be sure that the psyc...
  53. Neenie

    Need Some Quick Help (Seeing a GP for Help With My Anxiety)

    I dunno, I take a lot of medication, but you know what, i dont actually care. So what if it's addictive? If it calms you down, it calms you down. I know this opinion is the polar opposite to what all the other comments will say, but medication helps me. I still feel crap, but without it, I'd...
  54. Neenie

    Voltage Gated Channel and Tinnitus

    hahahaha, same! my brain must be eeny teeny tiny!
  55. Neenie

    Voltage Gated Channel and Tinnitus

    Yer i was going to ask today, but we were so busy with other stuff and yer, i still dont quite know how the voltage gated channels work in relation to neural misfiring causing tinnitus so i wanted to read up a little more before i ask a totally uninformed question!
  56. Neenie

    A Little Scared — Anyone Feel Off Balance?

    You need to go to a doctor. Being off balance can be due to a vestibular disorder. You have three inputs for balance. 1. sight. 2. stretch receptors (muscles in your leg tell you you're upright) and 3. vestibular. Being dizzy is different from vertigo. Often if you lie down in a dark room the...
  57. Neenie

    Voltage Gated Channel and Tinnitus

    ive read that, its amazing, i prolly should reread it!
  58. Neenie

    Voltage Gated Channel and Tinnitus

    The bad thing is that every bit of new research i read is how to fix NIHL (noise induced hearing loss) and subsequently tinnitus. I wonder whether the mechanisms of tinnitus are different depending on what caused your tinnitus. For example, do people that get tinnitus from ototoxic medication...
  59. Neenie

    Neuromonics

    the sanctuary is not a treatment device. It actually says that in the information you get when you buy it! So agreed, its really just a big heavy chunky mp3 player
  60. Neenie

    Voltage Gated Channel and Tinnitus

    omg thats it! i was thinking the exact same thing! i bet ya its the way of the future!