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I'm the same as you. When I lie down (or it used to be like that, I'm currently going through a really bad spike), my tinnitus calms down. As soon as I get up out of bed, boom, the hissing and ringing starts and stays that way for the entire day. What would a physical therapist do?

I have really loud hissing at the moment. It's usually never this loud and if my tinnitus is really bad, I don't hear the hissing at all, just a really loud high pitch tone in each ear.

Hey, yeah my T calmed down after the acupuncture, eventually. I stopped going though to be honest because after a few sessions I found it was affecting me mentally bc my T kept spiking, and I suppose it was doing the opposite of what acupuncture should do - relax you. So I gave it up. I tried...

OK. I missed that part. Anyway my point was more so for those who don't live in Ireland, it's not a case where it's going to be a lifetime away from releasing internationally. So to give them more hope.

Just because it's manufactured in Ireland doesn't necessarily mean it will be available in Ireland only, first. Many products are manufactured in Ireland and they are not available here. Most recently, a device to help Parkinson's disease; product was manufactured in Ireland, however then...

Yes, that's what my acupuncturist said too. The high pitch went down eventually. But ultimately, and in hindsight, I don't think acupuncture made any difference to be honest. Only burned a hole in my wallet.

Yes, I contacted them, they don't provide any info. They just say 'in the future'.

Man, you are not a nice person. The girl is only sharing her feedback and has said numerous times she doesn't know if it's a solution for all. Yet you come along and provide such a negative response. Also, I think it's absolutely ridiculous you're going on like 'Oh no one's tinnitus is worse...

Yes, I agree with you. When you're feeling low or anxious, T is heightened, meaning you're dealing with multiple issues at that point. And then of course the more you focus on the T the louder it gets. It's better to keep busy, but that's not always possible!

Hi, I am glad to hear it has calmed down since. Yes once you have your little baby it will be worth it. I know what it feels like as I already have a little girl. In fact my little girl is a blessing as sometimes when my T is really bad I just look at her and it makes me so happy. Also kids...

Hi Anusha, are you still experience really high T in your pregnancy? I too have T. Have it since May 2017. I have a little girl, and she was only 9months when T started. Thankfully in the beginning it wasn't too loud, but it has progressively gotten worse. That said, I have gotten to a stage...

My story is kind of similar, when I first got my T in the very beginning it didn't bother me that much. But over time it's gotten worse. I'm on mirap to help me sleep at night with it.

Well I wouldn't go as far as to say it's H, but maybe a mild form of H. It only lasts for a few hours. The noises that would be sensitive would be people talking loudly or my 2 yr old toddler screaming or shouting. I don't have it when I do not go to the gym. So it's only twice, three times a...

I'm all for that. I would be completely in agreement re. raising awareness and ultimately finding a solution rather than just having to live with this. It really is a terrible condition. I was distraught at first to hear there is no cure. You can have open heart surgery and transplants but you...

Thanks for your kind words. I see you have T since 2006. Does it still bother you 12 years later?

Thanks for this advice. I'll get my bloods checked with my GP to rule it out.

Hey, yeah possibly. But my gym is actually a really quiet gym. It's not really busy and is quite small. They play music but not really loud and the weights don't make too much noise. It's more of a leisure club so clients are more so the older generation. That's why it's quiet. I read something...

Hi, I feel your pain. I have a 2yr old. My baby was less than 1 when my T initially started. It was hell but I have to say my little one was a great distraction from my T and I think she helped in a way to take my mind off it. I recently habituated and life was good and I was happy again but...

Also wanted to add, fleeting T has been more frequent in both ears and a little more severe. I also have this weird 'wet clicking' noise every time I swallow. But have had this for as long as I can remember. That could be completely normal!

Hi guys, so looking for some advice please. I have had tinnitus since May 2017. The first few months were hell- anxiety, depression, feeling of no way out etc. but then it got easier after about 10 months. It's been over a year and I felt like I finally had my life back. Tinnitus didn't bother...

Yep, mine is getting worse. My T started 11 months ago, and was very mild for a good 6 months. I could sleep no problem. Since then it has increased every few months and is getting worse. I'm now on Mirap to help me sleep at night. My T is quite bizarre and it fluctuates. It can range from Mild...

I agree with the iMac assumption. I work in an office full of iMacs, but only for two days of the week, Monday and Friday, the rest of the days I work from home on a small Windows laptop. Every Monday and Friday I come home with louder high pitched T, every week, without fail. So for example I...

Just noticed the CBD oil is only 2.75%! You recommended 10% in earlier posts! Hmm this might not be strong enough! But will let you know!

@binsonica Yeah I actually purchased the CBD oil today so going to try it tonight. Fingers crossed it helps! My T has been absolutely horrendous for the past couple of weeks. I'm really struggling. I feel like I am where you were when yours got really bad after your neck treatment. As mine was...

Hi, that is so bizarre that you have the same pattern as me, quite for a few days a month. I definitely think it has something to do with the menstruation cycle. I am also on the pill, are you? In terms of a diary, I don't think it's beneficial for me to record everything I eat as I can find no...

You need to firstly try and calm your anxiety. You sound extremely stressed and wound up. Anxiety and depression heightens your T, big time. You should really go to a doctor and ask for some medication to help you get your head sorted firstly, then once you have your mental well-being on at...

OK reporting back, and my T is back :(. Went for my 4th session of acupuncture so will wait again for a few days to see if it benefits me like the last time. I knew it was going to come back, it always does! :dunno:. Having trouble sleeping again too. Well I certainly enjoyed my week of...

Hi, yeah I think you're right. The acupuncture didn't make it worse, it was probably my self conscious thinking it made it worse. Well anyway, after 3 sessions of acupuncture, my T lowered in intensity for around 1 week but it's back to full swing again. Your T sounds very similar to mine in...

Mine was like that too after my 2nd the 3rd session of accupunture. It got worse but mine went down and it's been very low for the past few days. Stop panicking is the main thing. You are so new to T it's a shock to your system. Try and take it easy and try to relax. Worrying and stressing makes...

Also another important factor, I have been hectic busy with work this week and I have also been hectic with my wedding plans (more so than any other weeks) so it could also be simply the fact that I am so busy I just haven't had the time to focus or listen to the T. I'll report back in the next...

Hi, well would you believe my spike actually went down. I went for my third acupuncture session and my T again was blaring (it got even louder on the table and I got even more anxious!) so it was like the acupuncture was making it worse! That was last Friday, then last Sunday I woke up to a very...

Yeah ok perhaps it is a coincidence, but only I know my own body and mind and I feel that perhaps I was headed towards a spike but the accupunture further aggravated the T for some reason. @Ken219 I wish we all had the answer too. What I find most infuriating about T is the spikes. You know you...

So you aew So you are saying that it's not that it got worse with accupunture but that I think psychologically that it got worse?

I'm glad to hear yours calmed. And do you still go to accupunture?

I went to accupunture and it worsened my tinnitus big time. Now that could have just been my bad luck. So don't take my word that it doesn't work. It just didn't work for me. So far now I have only had 3 sessions so it's not as if I've been going a long time but it worsened my T so I'm not hopeful.

I found they sell CBD in my local Holland & Barrett so I'm going to buy a bottle this weekend and try it. I also tried gingko b. tabs but it had absolutely no affect on me. Well not that I noticed. I was only taking it for around 3 months though. Maybe I will try it again. I also have tried...

That's exactly what happened with me. It spiked in my right ear and the T in my right ear was always kind of low. The sound was kind of like a hissing noise which wasn't very distressing. But the noise after acupuncture is a really loud ring like 'eeeeeeeehhhhhh' which is just terrible. And the...

Thanks for your advice Glynis. I've read a lot of posts on this forum and you seem to always try and make people feel better and see the positive side of things. That is a special gift. We are lucky to have you on this forum. Nic

@binsonica Yeah, my T has gone down a little. I had an OK night's sleep last night. Think that's why it's gone down a little. Still loud though, just not as loud as yday. Had to take a Xanax to knock me out, but I can't be relying on those every night as they are highly addictive, but if you...

I have had spikes in the past but this one is off the scale. My tinnitus was mild before this episode. I could mask it, I could sleep. I can't do either now. :(. And I'm terrified the acupuncture made it worse. In relation to your other post, I called him and told him it was getting louder but...

Hi guys, So I've been suffering with tinnitus for the last 9-10 months, the beginning wasn't really too hard as the noise was quite low and I could only hear it in quiet rooms. As the months went on, it got a little louder and a little harder to manage, BUT, I slept like a baby all the time...

@Bleep Did you find when you got acupuncture your T got worse? I have had two sessions of acupuncture, first time I felt really relaxed although didn't really affect my T. Second session, my T went through the roof. It was unbearable! And there was a plethora of new sounds and I can't sleep with...

Hi guys, looking for some advice. I went to two sessions of acupuncture so far. First session didn't really have any effect on my T except I felt really relaxed. However second session made my T go through the roof! It was the loudest it ever was, so obviously so was my anxiety. Does anyone know...

Also one more question! Do you find your T bothers you as much now or is it really like others say you 'get used to it'? I've only had it for a few months so I'm a newbie!

So if you had the surgery, how would you say you still have O? Did surgery not resolve or help the issue? Because it may not be appropriate for you. It's a very heavy dose of fluoride and it is not without side effects. If you've ever heard about some people complaining that "the government is...

Oh you have O too? Do you find you sometimes have H (hyperacusis), I find sometimes my ears hurt a little if the conversation was too loud or I heard a bang. Nothing really really major but I still feel it! Re. Flurioid (sorry I can't seem to respond to each section like you can), my ENT is...

He did a hearing test on me and apparently based on the results (my hearing dipped at certain frequencies) he told me it is possible it's early signs of O. I also got a second opinion from an audiologist and he said the same. Yes I have read up about surgery, although I'm still in the early...

Hey guys, I'm in the same situation. Have had T for a few months, it started out as a hissing sound in my right ear, which is pretty annoying but somewhat bearable. This is due to hearing loss in my right ear. ENT confirmed I have early signs of otosclerosis :(. Anyway, one night the T started...

Yes, I have a hissing/static noise in my left ear and a ringing noise in my right ear. My T switches between ears too. I was just getting use (or at least trying to stay positive) to the hissing/static noise, but now I'm panicking about the ringing in the right ear as it's much more distracting...