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Eight months later, I'll report that my spike did subside (it didn't take very long), but I don't recommend Minoxidil to anyone who is prone to tinnitus.

I had used Minoxidil / Rogaine in the past (pre-tinnitus), with no problem. A few days ago I tried it again, one single application (just the 2%), and within a few hours a spike began. Nothing else was going on, no noise exposure or new medications. I was just working quietly at home. I don't...

I have to take my son cross country to get to John Hopkins, where they have a Eustachian Tube clinic. There is nothing like that here in Texas. My son can't fly due to the disorder - his inner ear might get damaged due to the pressure changes. It's either drive, take a train or the bus. It's...

Prednisone should always be tapered, and it has consistently helped both my and my son's ear problems. It reduces inflammation and damage.

There was no noise exposure incident, no. My son has also never worn headphones. Right now, the tentative diagnoses are patulous Eustachian tube, and idiopathic intracranial hypertension.

I have a 16 year old son who is in terrible pain & unable to live a normal life. Doctors can't figure out why. He had normal ears until 10 months ago. He has never liked extreme noise but had no problem hearing occasional loud music at a party, a fireworks display, etc. In other words, he...

Can you please give me the phone number / department you called at Canon to find out where their machines are? I have not been able to get that info. I have called lots of radiology departments, and have only found those machines in a couple of hospitals across the country, not close to me at...

Has anyone had an MRI in a Toshiba Galan and can tell me where to go to get that machine, which is supposed to be the quietest? Calling Toshiba/Canon is pointless - I've tried & they won't tell where the machines are as they say it's a liability issue. Doctors are also clueless.

I recommend oral Methylprednisolone and/or intratympanic steroid injections into your eardrums if you haven't yet.

I'm so sorry to hear this. May God bless and protect you. May I ask, were you given any hearing protection in the MRI machine? If so, what kind? What was the scan for?

Where did you have a 3T Vantage MRI done? I have called them and the company will not share where the machines are. Where did you have this done? I've been looking all over trying to find a place.

How did it go for you in the long run?

Does the increased loudness only last during the injections, or also after?

My very anxious 16-year-old son has been prescribed steroid injections into the eardrums and is scared. I have a few questions for those of you who have experienced this procedure: 1. Has anyone ever been able to get it done under general anesthesia? Our doctor won't do this although I've read...

My 16 year-old son began having a lot of ear problems a few months ago, including ear pain, fullness, slightly muffled hearing (despite 2 normal hearing tests), tinnitus and hyperacusis. Doctors haven't pinpointed the cause (no medications before onset or extreme noise exposure), and he's tried...

I had longstanding mild tinnitus since adolescence (I'm in my 40's), and a few years ago my tinnitus became problematic after I took prescription megadoses of Ibuprofen & then sat too close to a fireworks show. After several months & multiple medications, my tinnitus went back to baseline. Then...

I will add that it is now over two weeks since my second Moderna shot. My tinnitus is at the same baseline that it was before I got any shots, despite it moderately rising for a couple of weeks after my first shot. The second shot had no effect on my tinnitus, although I did get mild, flu-like...

If you had no negative reaction after your first shot, it seems unlikely the second shot would cause you a problem. I'm 3 days past my second Moderna shot and haven't had any issues thus far. I got chills and a headache for a day after getting the 2nd shot, but no tinnitus spike. And that's...

Yes, this is the way I see it, too. As an in-person schoolteacher, I am at very high risk of getting the virus if unvaccinated. I'm actually currently teaching virtually from quarantine due to one of my students testing positive, and that happens at least once per week at my school. It's a...

I've love to hear from more people who got the second Moderna shot. I got the first Moderna shot a few weeks ago and my tinnitus seems to have increased a bit but is tolerable. I am a bit on the fence about getting the second shot. I feel like I have to get it though, because I work in a...

I thought I'd make a thread where people can share their experiences with getting the COVID-19 vaccine, and whether or not it seemed to have any effect on your tinnitus or hyperacusis. This thread is NOT a place to debate or preach about COVID-19 or vaccination in either direction. That would...

I suffer from chronic constipation and am considering using MiraLAX daily. My doctor says it’s safe for my gut, but I’m more concerned about any potential effects it could have on my ears. Is MiraLAX safe for regular use, in your experience? Does anyone here take it regularly? Have you noticed...

I now only get wax removed by a hearing aid specialist who uses a microscope to visualize the wax, then a very small plastic device to manually remove the wax. He is very kind and effective and charges so little. When I developed further ear problems (not tinnitus) after a series of flights...

How did the Diamox work for you over the long term? Were there any side effects? My doctor wants me to take it but I'm hesitant.

Could you also please PM me that contact information? Thank you very much!

I'm pretty unhappy with doctors as a group. My condition was initiated by one of the "harmless" prescriptions they told me to take (megadose ibuprofin), then after it settled down it returned full blast after I was given an MRI. Doctors need to be better-educated about tinnitus risks. It's a...

How did your surgery go? Did it cure you?

You can get or worsen tinnitus via an MRI, so the MRI is not particularly safe for us as a subgroup of patients. The MRI they put me into was as loud as a sawmill. You don't want to subject your ears to that for 20-40 minutes unless there is absolutely no alternative, believe me.

They wouldn't let me use my own earplugs, just the ones they gave me. Did you have your MRI before or after the onset of your tinnitus?

Avoid MRI's if at all possible. My tinnitus worsened significantly after an MRI (even though I wore earplugs) over a year ago and never went back to pre-MRI levels. If you absolutely must have one for some reason, insist on the doctor finding a quiet one, even if you have to travel for it.

Are you still on Nicergoline? If so, is it still helping you?

Megadose ibuprofin prescribed by a podiatrist and promised to be totally safe. Not.

They had no problem approving the med that helped cause my tinnitus, but the med that might help treat it? Noooo...

I'm considering it because it's been reported to help some people.

Does anyone know how to get Nicergoline (brand name is Sermion)? It isn't available in the US yet, as the FDA hasn't approved it. I've begun to really dislike the FDA as I've been on my search for effective treatments... Is it available in Canada? Does anyone know if Americans with a valid...

Did you ever try the Sermion? Did it help? You're in Canada, it seems. I suppose it's available there? It isn't available in the US.

What country do you live in, that you were able to get Sermion? I'm in the USA and my alternative doctor was willing to write a prescription for it, but it isn't FDA-approved in the US. I'm trying to find another country that I can get it from.

I would like to buy some retigabine from you, as well, and would be happy to pay upfront.

By "shortly after finishing", do you mean a few days or a few weeks?

I also recently took ibuprofin before my T increased. Did yours ever decrease?

Did your tinnitus go back to baseline after the prednisolone?

I recommend asking for a referral to a neurologist as well as an ENT.

@quietatnight, did your tinnitus get back down to baseline eventually?

Did Medrol cause a permanent or temporary increase in your tinnitus?

How did the prednisone work for your T?

Thanks for sharing the details, and please do keep us updated with your continued progress.

This is very useful information. Could you possibly share the details of your Retigabine taper, both up and down?

It's a neurological disorder in that the brain is manufacturing non-existent sounds. It can be triggered by many things (noise, medications, injury, infection, etc.), but the perception of non-existant sound is a sensory processing disorder and occurs within the brain. This is why most people...

When you said you feel better, did you mean your T was quieter? How long have you been taking it?

What brand and strength are you taking?

I would be happy to take or buy your boxes.

That is a scare tactic and should be ignored. T is a neurological disorder, but is not indicative of your brain deteriorating or you dying. Notched white noise is one treatment that works for some people. Maybe check out a treatment thread on that?

Thanks for sharing.

Has anyone here tried the OTC lidocaine patch?

Is Zicam still helpful for you?

What type and brand of magnesium do you take?

What kind of magnesium?

If you would like to share or sell any of those boxes, I would greatly appreciate it.

Yes, it does seem that medications are a major trigger. There should be more awareness and warnings about that.

The first step to getting past this "There is no cure" mentality in the medical community is to build understanding that T is a neurological disorder, not an ear disorder. Medications exist to treat psychoses, seizures, and a host of other problems that originate in the brain. There undoubtably...