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  • Users: Shem
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  1. Shem

    Hearing Aids

    Hearing aids were a huge help for me. Got hit with severe sudden single sided hearing loss (unknown cause, happened overnight), and as a result had pretty bad tinnitus from the effected ear. After about a year, I tried a hearing aid, figuring that increasing the hearing signal might improve...
  2. Shem

    Hyperbaric Oxygen Therapy

    There is plenty of hard evidence that a timely application of HBOT can help with sudden severe hearing loss. Just do a search on Pubmed. https://www.ncbi.nlm.nih.gov/pubmed/28555597 https://www.ncbi.nlm.nih.gov/pubmed/30267033 https://www.ncbi.nlm.nih.gov/pubmed/24272206...
  3. Shem

    Poll: Have You Ever Had Intratympanic Injections?

    It was awhile back, so not sure of the exact number, but IIRC I think I had about 5 shots, starting from onset, over the next month or so. This was in response to Sudden Single Sided Deafness (overnight one sided deafness). My hearing did improve some, but not clear whether that was from the...
  4. Shem

    Sudden Deafness and Tinnitus

    Hi Louise, I also woke up one morning with profound SSHL in my left ear and severe ringing. My initial audiogram looked alot like yours, but I was lucky enough to recover partial hearing over the next 4 months, to the point where my hearing up until 2K is normal, and above that my thresholds...
  5. Shem

    Hearing Aids

    Sure. I actually created a chart to trace the results over time. The vertical axis is the DB level, the horizontal is the date the test was performed, and each line on the graph is a different frequency. As an FYI, started HBOT around 10/20 IIRC. Been pretty much flat since the end date of...
  6. Shem

    Hearing Aids

    I'll throw my own data point in there in case it's helpful to somebody. Hearing aid has helped my tinnitus substantially. I had severe single sided sudden hearing loss (idiopathic, just woke up one morning not able to hear out of my left ear) accompanied by tinnitus. Hearing loss was in the...
  7. Shem

    4 Days In

    Hopefully this quickly resolves naturally, but I agree with Nike - see an ENT ASAP. Some of the possible treatments are time sensitive, such as steroid treatments (oral and intratympanic), HBOT, etc.
  8. Shem

    My Story — Some Positivity for You

    You make some fair points. I probably should have framed it more in terms of what worked "for me" as oppose to framing it like I did. Understand that my intentions are in the right place. When I wrote it, I knew what was working for me, and was simply trying to share that with others who...
  9. Shem

    My Story — Some Positivity for You

    Thanks for the comment, and I agree 100%. Everybody has to figure out what works or them. I'm sure some people have it way worse than me. For myself, masking gave me immediate relief, but there was a significant rebound effect as soon as I removed the masking. As soon as the background noise...
  10. Shem

    Audiogram and Other Hearing Test Results

    My initial scan (10/03) after sudden overnight hearing loss in my left ear, pretty bleak, and then my most recent from last week (much improved). This is after steroids (prednisone and intratympanic) and 23 sessions of HBOT(started on 10/24). Major improvement, although feels like it is...
  11. Shem

    My Story — Some Positivity for You

    Just a small note to pass on some positivity - I'm fairly new to tinnitus as well, I've had it for 2 months now following sudden unexplained severe hearing loss in one ear. Basically woke up one morning with a very loud ringing and no hearing in one ear. Like most of you, I was very...
  12. Shem

    Hyperbaric Oxygen Therapy

    Actually, what I meant is that intratympanic injections are mainstream, not HBOT. In the US it's not very common. As far as intratympanic injections, there is plenty of literature on both sides, some saying it is not more effective than oral steroids alone, others claiming the opposite...
  13. Shem

    Hyperbaric Oxygen Therapy

    Not that I know of but ask your Doc. It's probably a tiny hole, so I wouldn't think it would cause any measurable hearing loss. I did not notice any difference, but my hearing was pretty much shot so I don't think I would have noticed. Keep in mind that this is a pretty mainstream treatment...
  14. Shem

    Hyperbaric Oxygen Therapy

    I'm not a Dr, so take it for what it's worth, but intratympanic steroid injection which is part of the standard treatment, also leaves a small hole in the eardrum (which I had). It actually helps with HBOT since there is no need to equalize pressure in the ear that has the small hole. It heals...
  15. Shem

    Hyperbaric Oxygen Therapy

    They will go over it with you I'm sure. Probably depends on what type of chamber they are using. For the full body chamber, no lotions/deodorants/jewelry. You should not be smoking over the course of the treatment as it impacts the effectiveness. They also check my ears before and after each...
  16. Shem

    Hyperbaric Oxygen Therapy

    Still ongoing, I've done 23 sessions so far. There was some improvement after about a week IIRC. MRI was normal. And yes, I don't think it's a given that the improvement is coming from HBOT. Could just be after effects of the steroids, or just time. I did not start the HBOT until after the...
  17. Shem

    Hyperbaric Oxygen Therapy

    20 days between onset and starting, which was a little slower than I would have liked. Hearing thresholds at onset - most frequencies was 115Db (1K to 8K), lower frequencies (0.25-0.5K) around 60-75dB. So not much getting through. Word distinction was 0%. Did a follow up test 3 days later...
  18. Shem

    Hyperbaric Oxygen Therapy

    Update for those interested: 18 treatments in. Significant improvement in hearing loss (idiopathic single sided profound hearing loss), no difference in tinnitus, although it bothers me less and less each day.
  19. Shem

    Hyperbaric Oxygen Therapy

    Thanks Codaz. Honestly, while the hearing loss is annoying, it's not that big a deal. The resulting tinnitus is far more annoying. And we did try the oral prednisone and intratympanic dexamethasone injections with not much success, which is why the whole hyperbaric oxygen treatment thing came up.
  20. Shem

    Hyperbaric Oxygen Therapy

    I'll add a data point as well. I'm 7 treatments in (scheduled for 30) to address profound hearing loss. I started 21 days after idiopathic sudden single sided profound hearing loss (80-100db loss). I am seeing some hearing gains after starting treatment, exclusively in the lower frequency...
  21. Shem

    Hyperbaric Oxygen Therapy

    I guess it depends what you mean exactly. There are many studies that show that HBOT is effective in treating sudden hearing loss when started fairly quickly (<14 days) after onset and in combination with standard steroid treatments. If the tinnitus is a result of the hearing loss, then...
  22. Shem

    Hyperbaric Oxygen Therapy

    From the research I have been looking at, HBOT seems to have some promising results to treat sever sudden hearing loss that does not resolve using the standard steroid treatment therapy. That's not the same as a treatment for tinnitus, it's a treatment for the hearing loss, but since the two...
  23. Shem

    New to Tinnitus — My Experience with Masking

    I'll provide a very limited experience data point so take it for what it's worth, but maybe it will be useful for somebody. So my story only started a little over two weeks ago, so I obviously don't have as much experience as many others here, but figured I would add my two cents on what I have...
  24. Shem

    Tinnitus Retraining Therapy

    Not sure if posted before, but as info: https://www.ncbi.nlm.nih.gov/pubmed/20238353/
  25. Shem

    Gabapentin (Neurontin)

    Not sure if this has been posted before, but as info: https://www.ncbi.nlm.nih.gov/pubmed/21735419/
  26. Shem

    Poll: Did ACRN (Acoustic Coordinated Reset Neuromodulation) Help You?

    Haven't done it, but would like to know the results of the poll. Will it be visible at some point?
  27. Shem

    Looking for Help in NYC/Philly Area

    Hi Chris, thanks for the response. Yes, "sudden" meaning I woke up with ringing and hearing loss. No acoustic trauma. Went to the ENT that day, and started the predisone that afternoon, followed a few days later with Dexamethasone injection, and have had a few of those since. That was 10...
  28. Shem

    Looking for Help in NYC/Philly Area

    Hi Folks, I was wondering if anybody had any positive experiences with Dr's in the New York or Philly area. I am located in central NJ, but would be willing to travel to find somebody who specializes in Tinnitus treatments and is up to date on the current treatment options. I am only going on...
  29. Shem

    Sudden Hearing Loss and Tinnitus

    Thanks for the kind words Fishbone. Much appreciated. Sorry to hear about your situation, I hope you can find relief as well.
  30. Shem

    Sudden Hearing Loss

    Hi Greg, I'm in exactly the same boat as you. See my post from a few minutes ago. Lost hearing in my left ear 7 days ago. Ringing developed into constant severe tinnitus after a couple of days, which is active right now. As I am sure you have been, I've been doing a ton of reading, with...
  31. Shem

    Sudden Hearing Loss and Tinnitus

    Hi everybody, My story mirrors a post a few lines down pretty much exactly - woke up a week ago with ringing and what I found out later that day to be profound hearing loss in my left ear. No discernible cause. I am getting the standard treatment course - prednisone and dexamethasone...