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Hello, I would like to know if anyone has seen Dr. Manovar Bance, an ENT in the UK, and what they thought of him?

Hi Alice, I dont know why I cant sent private message using this web. I writte here. After a lot of doctors, dont undertand about this patology. Except one doctor but that man finished work in the hospital and is not posible surgery in his clínic, Im trying cirugury outside. Cut both (TT and...

Hello Alice,Im sorry for the delete. Since a few years Im more active un a facebook group called: Tonic tensor tympanic support group. My cooments there are using muy nickname un facebook: Sei ei Actually Im trying convince my family pay a doctor in UK for a the surgery

Thanks for the replays and help. Yes, the schools should be willing to contribute to the cost... Also the schools should be more educative... for example like Flandes schools which explain about hearing disability. In any case... I think is more interesting a voluntary membre of tinnitus...

Hello friends, I would need the english subtitles of this film. Someone have? I need this information for a project...some schools in my country could be interested in this film. thanks ;)

Hi Mermaid, Me not... a lot of years with this... My doctor say probably I have stapediu myoclonus...perhaps... But I think have a problem with my Tensor tympatic because I feel my drum fly easy with the noise or when I speak (Hearing unbalanced pressure). Furthermore when I closed my ears...

@Jokko Do you know his name?

Perhaps. If your ear fail you ear is ill. If your ear is ill your ear became old.

I had a acoustic traumatism... I think is a ear problem. You?

We are a few people who have this problem or similar.. Is not easy to find a good professional who really knows about this condition and what is the best for the suffer. Probably in the world exist a professional who knows what is the best solution for our ears/our person. I would like to...

Hi Mad, do you have a diagnostic and a solution for your middle ear problem?

Exist in Europe or in EUA some doctor who have experience about middle ear problems (specially about stapedium myocloni) and what is the best solucion? Thanks

Passame tu email si quieres y hablamos en calma en privado. Aparte de la hiperacusia no me queda claro si tienes problemes musculares (TTTS o mioclonia estapediana) del oïdo medio tambien, Gracias

The study (66) Liu HB, Fan JP, LIN SZ, Zhao SW, Lin Z. Botox transient treatment of tinnitus due to stapedius myoclonus: case report. Clin Neurol Neurosurg 2011;113:57-8

https://mega.co.nz/#!LNQzBDiI!Ctb9_RX7WJWnf-7k3dmr3l_NfaIMdpG0ByZepE9YR4E : Palatal and stapedius myoclonus: Palatal myoclonus is characterized by involuntary palatal contractions, causing clicking tinnitus due to the action of soft palate muscles on the membranous Eustachian tuble...

Hi Paul can you put the link about this summary.... Thanks

Hi friends, A companion said this in the forum while we was talking about middle ear myoclonus (estapedium myocloni): "I saw mention of a procedure once where someone had sort of compress for topical application of botox to the stapedius". Someone knows more about this? thanks.

There are studies about middle ear...There are his names on the top. Perhaps they are the uniques doctors who know more about it. Mars or Jupiter sounds very disappointing... I need to be more optimist. Is difficult think that nobody can help your condition...

If I move the palatine muscles rather than my eardrum I undertand I need palatal botox. But who knows if my problem is this. Before you speak about topic botox for a stapedium myocloni... I have to look more information about it. My crackle (only if I do vansalva) I think is the membrane...

How I can know if I have palatal myoclonus or stapedium myocloni. I haven't the palatal myocloni of this vídeo (youtubbe). I feel a mosquito=fly=butterfly. Which doctor know about it? thanks

I'm also be able to move my eardrum voluntary by Valsalva maneuver, I feel a crackle in my myoclonic ear when the air arrives there. Apart from I think I can move my TT.

Im loocking for a middle ear myoclonus specialist

I had a acoustic traumatism. In my case I think the problem is muscular not neurological.

Hi Mad maggot, In your case doctors will do any test for have a good diagnosis? thanks

Hi people, I think I have a stapedium myocloni I'm not sure... For this reaseon I'm looking for an a speacilist, expert.. about this problem, wherever. I need a good diagnosis for know what muscle works bad (stapedium, hammer...) and need to be cut. My problem sound like a fly/butterfly try...

It not metallic my sound. My problem sound like a fly/butterfly try to fly inside my ear or a speaker crashed. Furthermore cause pain in the place (where middle muscles live I think and If the sound persists (depends of the extern noise or my sound voice) inclusive I have pain in the top of...

Im not a doctor I don't know how I can be sure. For this reason im loocking for a good specialist who make me a good diagnòstic and treatment. Wherever. I imagine somewhere exist a professional who knows about it. A few days ago I went to visit the Clíniques-causse in France (dr. Fontaine)and...

Five years with myocloni...

I have a very small tinnitus, no problem. Yes, I have a: myoclonic contraction of the muscle of the stirrup. He said this without see inside my ear. In a few days Im going to France to visit a Doctor FONTAINE in a clinique-causse.com. Who knows...

Hi tinnitus friends, Me and my especialist are thinking I have stapedium myocloni. External noise and my Voice (normal-hight) also cause vibration. Also I feel my myocloni if I'm wearing earplugs or I'm speaking while I'm wearing headphones . My specialist advises surgery.. . Im not...

Hello I have hyperacusis and stapedius myoclonus from 2010. Someone have visited this clinic? I don't know is be worth the effort travel there. I need to know if I need a surgery or botox or... for my stapedius myoclonus. http://www.clinique-causse.com/ thanks and a hug

I think the symptoms of TTS and stapedium myocloni are differents. Stapedium myocloni: you feel a smoth trapped not in TTS

I eat grains, plant and legumes very often. I imagine this ir more biodisponible than suplements but I should to try but I have read Mg suplements .. not usually stop myocloni.

The vibrations comes when appears noise and this is constant, for fatigue. I think I haven't autophony but Im not sure... I need use earplugs but after a time using it the muscles becames tired, inflamed, be tense and start to fluttering. Which kind of earpluggs do you use? Do you had...

Hi, I have the same. 5 years with this. I haven't any problem in thyroidor or in my mouth. I think took this for acoustic traumatism. Now I should eat Valium. My vibrations/fluterings are bad and they cause to me inflamation in my ear. About Botox i don't know... Surgery.. my doctor could...

Hello, could be stapedium myocloni?

TTTS or Stapedium myocloni. I dont' understand about: "I can also press on the area right below my right ear and have the same thing happen". I think I have stapedium myocloni..I'm very tired of this condition..

I'm agree with Haru. I also think that fluterring is only due psychological reasons. The muscle becomes tired (why?)and inflamed. Adrian, stapedium myocloni is especially upset and can be a little painful (inflamation)

I have fluttering because of a stapedium myocloni. Usually forum speak about TTTS...

Happy new (coffee stain) ear ? Im not a profesional hehe

Lets go! everybody smoke weed! This is the final :p

Thanks for your contribution Dana. Its help me.(y)

Hy Jay, my eustachian tube don't work good normaly but when I have a hypercusis setbaback I have some blood in saliva or a blood taste. Could you say the link of this vídeo? Thanks. My tympanometres are goods but I feel my ET don't work good. Normaly in the mornings and after setbacks after...

I have Hiperacusis and TTTS from 2010. I recomended you to find a GOOD phsicologist who can help you in the begining. You haven't live with anxiety and you haven't made mistakes in my recuperation. You can.

I started with very low hyperacusis in very very acute sounds a lot of years ago. After started this fluttering... and then bad bad hyperacusis. Now, four years after I have this fluttering (autophony) in the ear where my hyperacusis is lower. Is annoying but...perhaps valium help, sport... I'm...

Who is Tim? Is dead?... More information about this study.. but someone have complet study? http://oto.sagepub.com/content/145/2_suppl/P98.1.full.pdf+html Thanks

Thanks Just1. Yes, I need some criteria before consider cutting stapedius muscle, is only information. I wish you a good recuperation with your doctor this friday. I understand what you mean. Euncourage! ;)

Hi, I have this flutering also hyperacusis. In a few days I will write my clinical presentation. Two questions: Middle Ear Myoclonus is the same of TTTS (tonic tensor tympani syndrome) ? Someone can explain more about "There is a treatment for chronic Stapedius problems--the muscle needs...

No problem, I can understand you... but I think we have to discovered things and be optimist

I don't know Shambles, you know? In Pubmed you can find a lot of scientific studies about donkey milk properties and some indications for disesases. Also for Mare's milk or camel milk. Not exist any study correlating Tinnitus-Donkey milk.. but means nothing. I know some people who drinks this...

Looks better

Encouragement and kisses Lynn

Hi Magpie, in "hyperacusis reserach" I have read: the results suggest a role for cochlear primary neuronal degeneration. Gradual desensitisation or gradual nerve regeneration? You have the text here: Hyperacusis Research Lunch with Charlie Liberman, Ann Hickox, and Amanda Lauer at ARO...

Seems that in hyperacusis we have a permanent cochlear nerve damage. Donkey milk is rich in essential aminoacids...could be useful for regenerated nerve damage? I drink sometimes but I should drink more often...

I wish you a good recuperation Lynn. Yes, the sea is very soothing... and when wind became hard you can protect. Oceans seems very quiet... not motorbikes, not cars, not dogs, not children, not doctors.. An hyperacusis boat could be funny which going arround the world taking us and make...

I want to start kitesurfing, the sound of the sea is good for my hypercusis and for this moment I think also can be good for my knee injured. Also I like fishing but is too much static and girls don't like worms. Someone practise kiktesurfing as a therapy for hyperacusis? What do you prefer...

Try practise sport, endorfins are good.