Search results for query: *

I had a few episodes of seeing bright flashes of light, sleep paralysis, and brain zaps while I was asleep. They subsided over time. Don’t know what caused it. Best to just not think about it. I sleep like a baby usually now.

I read this every day. Thank you

Is it true some members here cured their reactive tinnitus and hyperacusis with Keppra and/or other seizure medications? My neurologist prescribed it to me but I don’t have insurance. So it’s $800 for one bottle. I don’t have that kind of money at all. I’m hesitant to sell my possessions for...

I am in the exact same boat as you. For me it has been 6 months since I’ve left my home. My parents also do not understand at all. I’ve cut off contact with my sister. Save your energy on arguing with them. I don’t have any advice on how to make them understand besides just choose your...

It’s okay! That answers my question. Thank you.

The one from Ireland? I live in the US so I don’t think it’s available to me. @JohnAdams

I am like Gaby and losing hope. I’ve read a lot on her story. Her tinnitus and hyperacusis is very similar to mine. But exact in severity. I’m 23. Though I also have visual snow and brain zaps. I just want to know if she ever tried any form of TRT or sound therapy. I know it’s a joke therapy...

Was it ever reactive ?

I’ve spent the last 2 years worth of holidays alone. And I’m 23. It only bothered me on New Year’s Eve. That was hard. But I try to tell myself it’s just a man made milestone. And it’s worth missing those experiences to recover my health. So that one day I’ll be able to go.....well anywhere...

I can translate for you if you ever need it.

My reactive tinnitus gets so loud that I can’t hear my own voice sometimes. And the sounds come from my head moreso than my ears. And then it usually goes back down once I’m in a quiet room again. I thought I was the only one but it seems there’s a lot of us out here. For me, my reactive...

My reactive tinnitus is spot on to this video (except for the underwater scene... I’ve never heard a sound like that). Supposedly Zoe Cartwright has had very loud reactive tinnitus like this for 10 years. And has thrived :) But does anyone know how she is now? I can’t find her social media...

That’s the thing. My reactive T used to react to pink and white noise....so I never used it. Now my reactive T doesn’t react to white noise. HUGE accomplishment that took 4 months. But now white noise aggravates my baseline T......or maybe it always did but now I’m noticing it because the super...

I’m finally about to start TRT. For practice, I’ve been listening to pink and white noise. I didn’t listen to it very loud but now I’m having my worst baseline T spike in 4 months. Am I doing something wrong? Is white/pink noise not for everyone? Isn’t that what TRT therapy is?

I bought her book too a while ago. She is very inspiring. Especially because she too started to go through her ordeal at a young age (like me).

@Red What were your levels?

Update: I was finally able to leave my house to go to a neurologist. Turns out I have a B12 deficiency. Please look up “Could it be B12?” on Google and educate yourselves on all of the life long neurological ramifications from not having enough B12. Tinnitus, visual snow, and nerve pain are...

@cantletgo Any update? I also have all of your symptoms

****correction**** I try my best to not fear my H/ other symptoms There are days where they completely break me down. Where I feel completely lost and desperate. Wanted to make that clear. I definitely don’t blame you a single bit for feeling intense fear. I’m right there with you. I’m just...

Whoops I accidentally deleted my post @Red I won’t repeat it but ultimately please listen to your body. Your symptoms and triggers will be different than mine. So no matter what advice I give, it might not help you. Shoot it might even hurt you. So listen to your own body.

@Red That’s one aspect I do agree with TRT therapy (among a few other things). You have to let go of that fear as much as you can. I protect myself from loud sounds (lower than what TRT recommends but I don’t care since it has helped me) but I don’t fear my H.

@Red Long long long story. And you can get better. Not even just habituation but actually get better. But if you’re not careful and become complacent you can also get so much worse. That’s the point I want to get across. And that for me personally I don’t expose myself to constant sounds...

I strongly feel like the advice on these forums ruined my life. I was always a passive person so when I read veterans posting things like “it gets better and don’t over protect” I listened because I didn’t have the guts to listen to my own intuition. That’s what a passive person does....they...

That’s a good point. And to be transparent, I’ve never taken steroids (I wanted to but my doctor refused at the time of onset). I just take curcumin. It’s just a spice. It’s not a medicine. But it’s known to reduce inflammation. It’s even used on cancer patients because it can cross the blood...

Reducing inflammation isn’t a cure. But it can most certainly help. There’s too many neurological studies that talk about this. Just not in terms of hyperacusis. But the mechanisms are similar. Look up the words “sterile brain inflammation”. @Liam_Cairns

Do you mind elaborating on the eyeball part? What do you mean by the tinnitus noise hurts your eyes? @Telis I know you feel pain there (doesn’t surprise me since my own eyes were affected as well even if it wasn’t in terms of pain) but you described it as the tinnitus sound specifically hurting...

It’s not strange or too rare unfortunately @Red Multiple people have been permanently harmed by MRI’s https://www.google.com/amp/s/people.com/health/texas-woman-mri-ear-damage/amp/ Kathy is in our Facebook group. She’s had it for a couple of years after an MRI but she said she’s doing better...

Also, I know this is hard. I hear you. I’m sorry you’re going through this. I wish we all didn’t have to go through this. I believe you when you describe the severity of your symptoms. I’m keeping you in my thoughts!

I occasionally get woken up by my tinnitus too. It sometimes gets into my dreams even. I find it easier to fall asleep the more I detach myself emotionally from the sounds/being woken up. Sometimes I’m even woken up by what feels like violent brain vibrations (which didn’t happen till after my...

I’ve started having lucid nightmares that end in brain zaps after getting reactive tinnitus. I believe it’s because of what you posted. Here’s an interesting article explaining what I mean : Mind you I never had an issue with nightmares beforehand and I didn’t even know lucid dreaming was a...

Thank you for this post!!!

@Dginobile your tinnitus used to be reactive right? So did that get better or do you just ignore it? If I’m exposed to sounds louder than 70 decibels it becomes reacive/ loud enough to the point I can’t hear myself anymore. So I’m just curious if that is how your tinnitus is like. Thanks!

I live in Chicago. One of the noisiest cities in the world. A lot of you live in the suburbs or smaller cities or even small towns. It’s NOT the same thing going outside in a city like Chicago. There’s constant construction, sirens, music bass from peoples cars. Once the vibrations from a guy...

I specifically have tinnitus/hyperacusis/visual snow from a severe acoustic trauma. And I’ve met 4 other young people like me with the same symptoms all of us got it from noise. One already had tinnitus from bars but she got into an MRI and immediately developed severe reactive tinnitus. I do...

I’m 23 and I have been struggling leaving my home to go see doctors. If I’m around 70+ decibels (which is everything) especially if it’s a low sound like an engine sound or motorcycle or certain vacuum cleaners... I can still hear it in my brain clear as day even when I’m not near that sound...

My T always spikes during and after a nightmare. It’s probably your heartbeat triggering pulsatile T. I don’t have pulsatile T per say but my ears are so delicate now that nightmares do trigger T in me. Don’t worry you’re not the only one.

I’m so sorry to reply to an old thread but I am currently losing my vision to the “fireworks” and visual snow. I also have tinnitus and H from multiple acoustic traumas. How did you convince your doctors to treat your eyesight? I also believe it’s an issue of the myelin of the nerves. What...

I need to go to the ER today for some medical stuff but I haven’t left my home in 3 months because of reactive tinnitus, noise induced brain zaps, hyperacusis, and visual snow/floaters/after images. Just needing some positivity today. The ER is far and downtown Chicago is one of the loudest...

I used to have exploding head syndrome too. It sucked sooo bad. I’m always afraid it’ll come back but I try to not think about it.

I don’t have that but I can ask a friend about it (she has it and had to stop running because of it but is doing much better now)

Hey everyone. I had tinnitus for a year and then suddenly 3 months ago I developed reactive tinnitus, hyperacusis, brain zaps, exploding head syndrome, eye floaters, visual snow, seeing flashing white lights while waking up, among other symptoms. I thought I was the only one and it turns out...

Hi! I have a lot of your symptoms. Did your visual snow/floaters/other visual stuff get better?

@another sean ahhhh thank you. That’s super helpful. I was thinking of learning python but now I don’t know. Maybe go for something simpler first.

it’s okay! It is what it is. I’m signed up for stem cell therapy. I’m just saving up for it. But I also have eye issues from my T so that’s a completely different sorry. Thank you for sharing though :) Just because it didn’t work for me doesn’t mean it won’t work for someone else. @Uba

I don’t drink milk and I have severe severe severe reactive tinnitus. I’m glad it worked for you though :) You could have been sensitive to milk and not know it.

I have them indoors but those are not worth mentioning because those are easy to ignore and don’t fully obstruct my view. That’s what I meant. When I go outside I can’t see at all.

I am on a treatment plan to recover from my severe tinnitus and hyperacusis but right now working outside of my home is just not an option. Does anyone have any jobs they’d recommend working from home? I have a college degree. I’m trying to teach myself how to code but this comes with a whole...

@JasonP I’m 23 so I’m young. I’ve never had a problem with eye floaters before. I really think it’s my brain causing this. I have found many other people online with acoustic traumas that later developed visual snow and/or floaters. They got their eyes checked and they were fine. I’m just...

My hypothesis is that acoustic traumas demylienate neurons in the brain in the auditory circuitry (among many other issues that acoustic traumas cause). I think if the injury is so great....the damage sometimes spreads to other parts of the surface of the brain where myelination doesn’t repair...

Has curcumin helped you?

The floaters were this big but this picture is a joke in comparison. I mean there were so many that I could only see black. I’m not kidding. I felt blind. But once I’m not looking at anything bright I’m totally fine. I really don’t think there’s anything wrong with my eyes. I found another...

I don’t think people go into it expecting it to regenerate hair cells. I’m going into it hoping it’ll do some damage control for my Brain

I decided to get stem cells. Although I’m not just going for my tinnitus, reactive tinnitus, and hyperacusis. I’ve develooed a lot of other symptoms as well. Like floaters. I don’t expect it to fix my tinnitus or my cochlear hair cells. I hope it reduces some damage in my brain that is...