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Well then we need to beam Captain Kirk over there and let him be our advocate.

According to their working theory, yes. You may have to get multiple treatments though if the hair cells doe back off.

Friggin motorcycles

This is just making me mad at people that are working for a cure and not sharing their results more frequently.

No answer back. Maybe this person is cured and uninterested in this site anymore. Or maybe its BS. I have noticed there are a million articles about experimental treatments out there and almost none with follow ups as if they're too prideful to admit failure. Something weird is certainly up with...

Yeah William Shartner isnt claiming to be cured. Not only is he probably rich, he was Captain of the Starship Enterprise. He lived in the Nexus for like 70 years and still never cured his T. I think our only hope for a cure is that cochlear hair regrowing goop.

In my mind if they have the solution and are withholding it because it's not as profitable then that's a conspiracy and these people deserve to be thrown in a gulag and worked to death.

Right. There is enough research in "get used to it". No amount of money is going to improve that. I totally agree. I honestly feel like I'd be more likely to figure out the cure if there is one than waiting on big pharma. The question becomes how do you fix a microphone that's inside your head?

Why do you think 5-15 years?

https://newyork.cbslocal.com/2018/05/01/tinnitus-levo-system-ringing-in-the-ears-cedars-sinai-medical-center/ Seriously, I'm finding all kinds of treatments out there and talk of treatments. Why are there no people on this forum that have tried any of this stuff?

Lol I already thought about this.

I think these youtubers that push fake cures for views that are monetizing their channels should be put in prison. Any thoughts?

At first I liked the Susan Shore team. Now I think they're kinda whack because they wont explain how their machine works. I know enough about microcontrollers, computer programming, and electronics to easily replicate their device and ease my discomfort. I think they're just waiting around...

Maybe because there is a conspiracy in the medical industry to not cure anything and use our diseases as a way to milk us for cash.

That's what I think.

Wtf

I feel like there is a evil team of villains going around and trying as hard as possible to limit tinnitus research and access to information about it. For instance, that Susan Shore device, if they can help us what is the f'ing hold up? All they have to do is explain how their method works and...

While I agree that the focus needs to be on a cure, if someone can regain their life with habituation then that is a good thing. It's better than sitting around focusing on their tinnitus and waiting for the cure.

The susan shore device or at least the recipe for what they are doing should be coming somewhat soon I'd think. I know how to design and fabricate electronics so if I knew how they were timing the sounds and electrical impulses then I could make one myself in less than a day.

I'm a software developer by trade but I hold a BS degree in biomedical engineering technology and my best guess would be no, however this is unknown territory and the true answer is probably beyond even the people developing this technology. I would honestly think that they may even unlock the...

Just dont stress out. That makes it 10x worse. We all know, it is a day to day struggle. There is an electronic device being developed by Susan Shore that has already been proven to work that will be out soon. There are also multiple companies moving quickly towards a drug/stem cell based cure...

Honestly, I just want an injection/pill cure.

yeah f that, id rather have tinnitus.

well, shit.

Please tell me if I'm wrong. I have researched as much as I can and the most promising hope for a cure seems to be technology to regrow cochlear hair cells. The two main companies with serious financing seem to be Frequency Therapeutics and Decibel Therapeutics. The last meaningful news from...

yeah, that's about where I'm at. I'm totally bewildered.

I'm not exactly sure of I got my T from very loud music or NSAIDs because I was doing both. I've been noticing overall improvements for about 2 weeks, but I've still had 2 days since then where it kinda came back.

I'm in a similar situation and I'm dumbfounded.

I have a very low ~6 kHz tone in my left ear that I can only hear if I plug my ear. In both ears I have a ~15 kHz electrical, pulsatile sound that sometimes gets noticeable even over traffic while driving down the interstate with the windows down. I sleep until about 9:30 in the morning. I...

. I agree. There should a way for sufferers to contribute financially and make the knowledge open source.

Can someone help me out? I have had tinnitus now for almost 3 months and I don't have any perceivable hearing loss or hyperacusis. Sometimes it is so quiet that I feel like I'm healing, but then it comes back for a day or so. Also, when I drink a little vodka at night I feel like it helps...

I understand. My sentiment is that we are all in this boat together. Hope you have a good day.

I really hope you're right. It was basically down to a 0-1 for two days and I thought I was better but then yesterday it was back. The ratio of quiet days to loud days is increasing though in favor of quiet days.

I agree. They need to come off with more information.

I want to think playing guitar too loud caused my tinnitus but I don't seem to have ANY hearing loss AND I've noticed moving my eyes and bending over can make the tinnitus louder. I also feel like I can move muscles inside my head and change the loudness/frequency of my tinnitus. ALSO the...

Why do you think it will take so long? We dont know what happened with the last fx 322 test. What if they cured the person entirely and the drug gets fast tracked?

I float around 1-2 on good days and 3-4 on bad days. This is what I take everyday. Zinc 200% vitamin B Biotin CBD oil - expensive :( Apple cider vinegar with the mother A huge mouthful of fish oil - yuck I really feel like it does something. I could be wrong. If I'm feeling good by the end of...

So then what is different about pusatile tinnitus?

What if someday within a few years a complete cure happens? Will we continue communicating on this site? If Frequency Therapeutics or Decibel Therapeutics get their cures to work we need to plan a giant week-long party at some fancy resort or on a cruise ship. Anybody else agree?

Just stay preoccupied and have hope. The Susan Shore device should be out relatively soon and it has been proven to be effective, and then there are two golden possibilities coming from Frequency Therapeutics and Decibel Therapeutics that may even restore our hearing entirely. We are all in this...

I just want to say that you're cool. If and when they offer the hair regeneration technology we should all rent out a marriot or something and have a huge party.

Have strength. You're in my thoughts and prayers.

We are in the same boat my friend.

Anyone else tried this? I've been taking it and I just can't tell. I wanna say yeah. The FDA just approved CBD oil for seizures, which if I am to understand correctly, is the same thing as what is going on in our dorsal cochlear nuclei, crazy firing uncontrolled impulses. I felt better after...

I'm ready to find out how Frequency Therapeutics are making the FX-322 LGR5+ stuff and make my own and inject myself in my eardrums. Any ideas????

One thing about having this condition is that you learn to be positive and thankful about the good things in life. We are strengthened by our suffering. Don't put all of your stock in mankind's ingenuity, BUT we may be just a few years off from a cure, maybe even sooner. I love you all, you are...

Before I read this forum I also felt like there was something off about the ATA. When mine first started I found that site and to be honest, it crushed my hopes. I have since then regained my hopes of being totally cured either by that Susan Shore machine, OR that FX-322 LGR5+ goop. My T has...

Yeah what in the world?

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