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  1. MarkLud

    University of Minnesota Tinnitus Research with Acoustic and Body Stimulation

    I try to be positive with all of this stuff and have come a long way as far as getting used to my tinnitus, coping, etc. That said, this sounds pretty terrible on the surface lol. I had extremely high hopes for a Minnesota device based on Kelpie's success.
  2. MarkLud

    Overprotection Recovery with Pain Hyperacusis

    I can only speak for myself -- after my big "incident" that led to my tinnitus/hyperacusis combo, even the smallest sound hurt for the first couple of weeks. I then overprotected, which didn't help. The good news is, I found out what worked for me -- again, I can only stress that this worked...
  3. MarkLud

    Any Arthritis/Pain Reliever/Anti-Inflammation Meds That Are Safe with Tinnitus?

    Thanks ... I only wish it were that easy when it comes to finding the root cause. I've seen every possible doctor in my area, traveled to Cleveland Clinic three separate times. No dice so far. I've tried the intermittent fasting and ironically it was one of the few things that made my tinnitus...
  4. MarkLud

    Any Arthritis/Pain Reliever/Anti-Inflammation Meds That Are Safe with Tinnitus?

    Hey all. Have pretty bad tinnitus but am honestly coping well with it now that it's been 4-5 years. My big issue lately is I've got some form of arthritis/muscle neuropathy/etc. that doctors can't figure out; long story short, I'm so stiff in the morning I can't move and am constantly pulling...
  5. MarkLud

    Going on a Road Trip — Should I Wear Earplugs in the Car?

    Gotta go trial and error. I'd have them with you in your pockets but try not to use them unless you really need 'em -- in theory, driving at those levels shouldn't make things worse. Everybody's different but I've found if I protect my ears for anything under 85 decibels, my...
  6. MarkLud

    University of Minnesota Tinnitus Research with Acoustic and Body Stimulation

    So I'll be "that guy" ... any news or updates with this? Been off the boards for a few months and this remains the most intriguing/promising option to me. Anything we can do to find out more without bugging them?
  7. MarkLud

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Wow, that 15 percent discount for paying upfront is awesome! Man, if this didn't require multiple trips to Ireland I'd be on this so fast. I assumed it would cost up to twice as much. I'll take this minor victory for now!
  8. MarkLud

    Lenire — Bimodal Stimulation Treatment by Neuromod

    As someone who has both hyperacusis and reactive tinnitus, I'm dying to know this. (I'll power through either way but I'm hoping it's not too irritating to listen to for us hyperacusis folks).
  9. MarkLud

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I can definitely recommend bringing/wearing earplugs. I hadn't flown since getting my tinnitus until this April, and I was honestly surprised how loud/irritating the noise on the flight was before I put my plugs in (I do have hyperacusis too, though not as bad as a lot of folks). It was just a...
  10. MarkLud

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I know it's in our nature to be cautious and/or skeptical given the hell that most of us on here have gone through. But, I must admit, my response to this is simple: !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Thanks for sharing, and congrats. May we all get there soon enough.
  11. MarkLud

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Wow, I take a few days off from here and here we are! Awesome stuff. The four appointment thing is the only bummer because I'd honestly schedule stuff right now if it was, say, two appointments. Four flights to Dublin may be a bit much for now... though I'm gonna start checking it out, lol. I...
  12. MarkLud

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I don't want to get too ahead of myself, considering we all know how hard this journey has been. But I'd completely given up on my music career and was considering finally selling my drumset last week... it would be pretty neat if we got a second chance! :)
  13. MarkLud

    Lenire — Bimodal Stimulation Treatment by Neuromod

    I don't know if you can answer this, but might as well ask. My tinnitus is super reactive... and I've got decently bad enough hyperacusis. I still think this could help me tremendously (potential super responder!) but I do have some concerns that prolonged headphone use could make my tinnitus...
  14. MarkLud

    Lenire — Bimodal Stimulation Treatment by Neuromod

    This is the first time we have any type of statistical evidence of tinnitus levels decreasing. There have been studies and there is actual evidence to back it up. Unless I'm missing something, EVERY other "tinnitus treatment" that has been marketed or attempted to be sold has never had...
  15. MarkLud

    Screwed Up at a Concert — Recommendations for My Early Stage of Tinnitus?

    Hang in there. The cortisone/prednisone is one of the best/only things you can do at the moment (aside from taking it easy with more noise.) It sucks, and for a lot of us it's life-changing. But the worst part is now and in a few weeks or months or whatever you will get used to it mentally and...
  16. MarkLud

    MuteButton

    We have one person on here who was part of the trial and her tinnitus is now absolutely GONE. We have another member who took part in the Minnesota bimodal trial -- which uses a similar method/technique -- and his tinnitus went from super loud to barely noticeable. Sounds pretty good, eh? We...
  17. MarkLud

    MuteButton

    Until we find out more (and thanks to all who are trying to clean up this thread from constant and unfounded negativity), this remains one of the most interesting aspects to me. Have they tried using it on anyone for TWO hours a day? What about THREE? If the effects/changes in plasticity...
  18. MarkLud

    MuteButton

    Didn't say I was going to personally try all of them (though I am willing to spend whatever it takes to get rid of my tinnitus). But there's clearly something up with this approach to have so many legitimate groups working on it. My point is if Neuromod doesn't work for everyone, maybe Minnesota...
  19. MarkLud

    MuteButton

    I wouldn't say I've habituated but after three years of going through every stage possible, I'm at acceptance. When it doesn't spike, it's tolerable ... when it does spike it's insane but usually goes back to baseline soon enough. I still plan on traveling to Ireland the second this is...
  20. MarkLud

    MuteButton

    I won't pretend to be an expert (and anyone else feel free to explain better than me) but 10-12 DB is more of a difference than it sounds on paper. I saved this comment from the Minnesota thread a while back: If you got a page or two further on the Minnesota thread there's a link to a page that...
  21. MarkLud

    MuteButton

    Just read the highlights of that latest Susan Shore report... damn, 12.2 dB down in just four weeks? To think of the possibilities with these bimodal treatments to compound and continue to improve over time... 8 weeks... 12 weeks... 6 months... 3 years... :)
  22. MarkLud

    MuteButton

    No reason for the negativity, my man. Nothing has significantly changed in recent days/weeks. We have at least three different groups using some form of neuromodulation to treat tinnitus ... we wouldn't have so many if there weren't at least some good signs. We have first-hand accounts from two...
  23. MarkLud

    Crazy Spike After Working Out (Push-Ups)

    Can't say I have a radio sound but I did absolutely have a life-changing spike/change in my tinnitus while lifting weights back in September. I was doing pull-ups and I got a high-pitched tinnitus spike up to like 1,000, part of my face went numb and I couldn't hear out of my left ear. The...
  24. MarkLud

    University of Minnesota Tinnitus Research with Acoustic and Body Stimulation

    That is so awesome to hear, Kelpie. Thanks again for the update and soon-to-be congrats on the upcoming addition to the family. My friend's wife was due the other day and hasn't gone in yet but it's coming soon, lol. I get if you can't answer a lot of things due to the NDA but I guess I'll ask...
  25. MarkLud

    Q&A: Tinnitus Hub Meets Neuromod (Lenire)

    Look, we're all antsy but let's calm down with killing them right now and saying it's disrespectful. I want this thing out tomorrow just like the rest of us but there's probably a million little things that they can't talk about publicly that go into the release date. Let's be happy that it's...
  26. MarkLud

    University of Minnesota Tinnitus Research with Acoustic and Body Stimulation

    Sorry for three posts in a row but it won't let me edit the last one for some reason. I think I was mistaken and thinking of the Michigan trial with the not enough resources part. But for my follow-up -- it is confusing with these three different ones going on and trials and expected dates and...
  27. MarkLud

    University of Minnesota Tinnitus Research with Acoustic and Body Stimulation

    Last post aside, it feels like we're closer than freaking ever to finally getting some relief. Is there ANYTHING we can do to help speed along this Minnesota process? Try and find some wealthy donors to help out? GoFundMe to raise additional money? Anything? I thought I remember reading that it...
  28. MarkLud

    University of Minnesota Tinnitus Research with Acoustic and Body Stimulation

    Not meaning to jump in, all due respect, and I'm terribly sorry the trial didn't help you ... that really sucks ... but it does say under your name in the box on the left that your "cause of tinnitus" is Meniere's. So I'm sure that's where they thought that was the case.
  29. MarkLud

    Ototech

    Never heard of this before ... Interesting!
  30. MarkLud

    What Would You Do If Your Tinnitus Suddenly Stopped?

    I think I'd just lay in bed for a while and soak up the silence. Then read a book, which I haven't been able to successfully do since my T arrived. Then I'd test myself by listening to some music like I used to at reasonable/"safe" levels to see if I could handle it/no spikes. And then, just...
  31. MarkLud

    Q&A: Tinnitus Hub Meets Neuromod (Lenire)

    I've had two bad setbacks/increases in volume in the past couple of months and I must say I'm really clinging to this right now. The only bit of good news I've seen recently is this hyperacusis link, because my tinnitus is totally intertwined with the hyperacusis ... the fact that I may actually...
  32. MarkLud

    MuteButton

    This all seems a bit harsh. They didn't go out of their way to make a propaganda video, they were pursued and asked to do a Q and A about the product. Time will tell but Clare originally joined this forum years ago, well before she could've joined the trial. Just read her first ever post on here...
  33. MarkLud

    Q&A: Tinnitus Hub Meets Neuromod (Lenire)

    All due respect, it seems awfully rude to dismiss her by playing the "but mine is worse than yours" card and assume she wasn't suffering too. We're all on here because we have varying degrees of tinnitus. We're lucky enough to have someone who was in the trial discuss her (positive) experiences...
  34. MarkLud

    Q&A: Tinnitus Hub Meets Neuromod (Lenire)

    First, CONGRATULATIONS! :) That is so awesome to hear and I'm unbelievably happy for you. And second, thanks for passing along a lot of hope for the rest of us! :)
  35. MarkLud

    Q&A: Tinnitus Hub Meets Neuromod (Lenire)

    I hear ya. I mean, if these results are corroborated by people on here in the coming months I very well may be making a trip to Ireland soon, lol. But just my gut believes that the Minnesota stuff may be a bit ahead of Neuromod based on his experiences in that thread (and I just think that if...
  36. MarkLud

    Q&A: Tinnitus Hub Meets Neuromod (Lenire)

    There's a member on here that is in one of the trials and has posted about his significant improvements (tinnitus is like 10-12 dB down, no longer needing to use noise when he sleeps) ... based on his experiences it just seems a bit more definitive than this. Of course, nothing's set in stone...
  37. MarkLud

    Q&A: Tinnitus Hub Meets Neuromod (Lenire)

    I tend to agree with this sentiment at the moment, too, based on all that we know. Hoping it's even better than anticipated but until we know more I think like many of us I'll be pondering trying this or waiting for the Michigan/Minnesota devices (that may be better off) to come out.
  38. MarkLud

    Platelet Rich Plasma Injections

    This is interesting. I've gotten PRP before for my back before (and my dad gets prolotherapy injections every couple of months) but never looked into it for my tinnitus. Hmm ...
  39. MarkLud

    New University of Michigan Tinnitus Discovery — Signal Timing

    We have a member on here who posted in the Minnesota thread about being able to sleep with their head on a pillow and no masking for 10 straight days. That, to me, is anecdotal evidence that this type of treatment could be potentially life-changing for a lot of us. I don't see how anyone could...
  40. MarkLud

    New University of Michigan Tinnitus Discovery — Signal Timing

    As a follow-up -- long-time lurker, first-time poster. Wanted to publicly thank @kelpiemsp for all the posts on this thread and the Minnesota thread. I'd been largely avoiding monitoring these boards because that's what a bunch of specialists/audiologists advised (better not to dwell!), but...
  41. MarkLud

    New University of Michigan Tinnitus Discovery — Signal Timing

    Yup, how dare us get encouraged by something that has shown a ton of promise and may help us all out significantly. The nerve!