Alex Matyjasek
Member
After reading all of your posts I'm sort of starting to loose hope that this device is going to get us anywhere... This is pathetic!
MuteButton
- Thread starter Jim
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MemberI haven't lost hope that it's going to get us somewhere. I've lost hope that it's getting us somewhere anytime soon.
Don't overthink it man. Time will tell and all this speculating isn't really helping anything.
Something is happening, that's for sure. Whether it will be enough and whether enough of us will benefit from it is still unknown. But we never had anything so tangible until now, so we need to wait and see for ourselves.
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
I suspect we got majorly played by our Irish saviours.
They drop a few testimonials and cosy up to us with a vague Q&A which gave us no fixed dates or prices and we all go in to a frenzy.
They then point investors they've been courting for a while to this forum to see the misery and desperation up close and voila they get another 24 million in investment.
With zero pressure from Shore and Minnesota who are busy arsing about with hamsters and raking in money from Chinese students, they are in no rush to market as they have a good 3 or 4 years before anything else comes even close to market. They'll go in to more trials and 'research' now.
- Apr 15, 2017
- 1,419
- Tinnitus Since
- 2008
- Cause of Tinnitus
- Noise
What concerns me is the interview with Dr. Rauschecker. He states that tinnitus is more complex (with the gates/Limbic system disorders). It's not as simple as neuromodulation to get it shut off. Very concerned at this minute.
I will admit the testimonials are shit and they have me concerned. But the trials did have good results so I say wait and see.
If people are concerned what is happening in Michigan with the money you can find that out. It's a public university. ALL financial transactions and budgets are published and available to anyone. The beauty of a public university...
Nothing much has changed for people to worry except for some slippage of dates potentially.
Good signs are that they just said that they are aiming for this quarter and that they just received an injection of cash.
Either they are getting cash because they are showing promising signs for returns in the future, or it's also possible they are getting cash because of cash flow issues but I won't go there
Nothing much has changed for people to worry except for some slippage of dates potentially.
Good signs are that they just said that they are aiming for this quarter and that they just received an injection of cash.
Either they are getting cash because they are showing promising signs for returns in the future, or it's also possible they are getting cash because of cash flow issues but I won't go there
Fabrikat
Member
- May 1, 2017
- 416
- Tinnitus Since
- 1973
- Cause of Tinnitus
- Otosclerosis then volume then viral infection
Rauschecker is speculating about a cure. Signal timing is a modulating treatment but not necessarily a cure.
What happened that makes you feel like that? I think we're still on track for a Q1/2019 release in Ireland and no reports have been released which question the very promising data that was in the clinical trials so I don't see why the situation is worse now than a few weeks ago.
I'm glad Dr. Rauschecker is working on his own path to solve tinnitus. We need people like him. However, he is not the end all be all in the world of tinnitus research. Right now he is a guy with a theory and a lack of funds. I certainly wouldn't wait around for his cure when other options may exist in the coming years.
- Dec 7, 2018
- 554
- Tinnitus Since
- 03/2018
- Cause of Tinnitus
- Unknown
I wouldn't be overly concerned over the status quo. Nothing in his interview made me feel worse, in fact, it made me feel better that we are on a track for a more complete understanding of the full pathology. It is only logical giving the statistics surrounding people with hearing loss who have tinnitus and the people with tinnitus who having hearing loss that there could be an additional factor involved that could allow for the awareness of tinnitus into the conscience perception.
In fact, what Neuromod is doing is attempting to address the issue of tinnitus on one end of the proposed pathology and Dr. Rauscheckers theory does not contradict this.
For now, we should keep advocating and wait and see the results of the Neuromod trials and testimonials from people here on this forum.
- Apr 15, 2017
- 1,419
- Tinnitus Since
- 2008
- Cause of Tinnitus
- Noise
I wonder, as many people have allegedly reported an improvement in tinnitus with this device, that using it for a longer period of time or more than 1 hour a day, if it could offer further benefit? What do you think?
It is very much possible - it works by training neurons and more training is often better than less.
Neuromod explained in the interview that they couldn't mess around with parameters, because that would have invalidated the study (they needed homogenous groups, down to the exact model of the headphones). But there will be an enormous room for experimentation once the basic tech is out. Different durations of use, different timing settings, volume settings, etc... The settings they've used for the trial was just one possibility out of an enormous range of possibilities. Very exciting!
As far as >1 hour I think there comes a point where using it becomes obtrusive to your life.
We're not talking about listening to smooth jazz here. It's a bunch of random tones and low-level shock therapy, basically. It's something I could handle as prescribed but would not want my daily life absorbed by it.
I mean, I once worked for a retailer that used to have scanners that beeped and after 8 hours a day of listening to beeps I would go to bed still hearing the beep beep beep because my short-term memory had been overloaded with repetition.
- Apr 15, 2017
- 1,419
- Tinnitus Since
- 2008
- Cause of Tinnitus
- Noise
I would go to the testimonial of that handsome young man, Hugh. He noticed a reduction in volume after 6 weeks, then after another 6 weeks noticed a further reduction in volume.
He did mention success with Deep Brain Stimulation, though to be honest I couldn't understand what was being said because I have tinnitus, conductive hearing loss that nobody wants to fix, can't wear a hearing aid and am pretty desperate these days.
Could someone who could understand the words in the podcast give me the name of the person doing the Deep Brain Stimulation? Thanks!
- Aug 21, 2014
- 5,049
- Tinnitus Since
- 1999
- Cause of Tinnitus
- karma
Why? We're not talking about a technology which has been claimed anywhere to "shut off tinnitus". This is about reducing the hyperactivity in the DCN that drives the phantom noise, not eliminating it. That's a very significant distinction.
Yes, people who think MuteButton or Shore Device are likely to return them to "perfect silence", they'll be disappointed. On the other hand, some of us will happily settle for any meaningful symptom reduction, and some subset of us appear likely to get that from these technologies, at least short term (since no one knows what happens after years of use).
No reason for the negativity, my man. Nothing has significantly changed in recent days/weeks. We have at least three different groups using some form of neuromodulation to treat tinnitus ... we wouldn't have so many if there weren't at least some good signs. We have first-hand accounts from two people who have used these devices (one from Neuromod, the other from the Minnesota trials) who have said their tinnitus is GONE. And Neuromod is still expected to come out within months ... and they just raised a ton of money in the process. This is a GOOD time for us, not a bad one!
Ha, I'd use it for 3 hours a day if it meant an extra 20-30%% reduction on top the 42%. Not like I'd have to use it again for another 1-2 years.
Alex Matyjasek
Member
Just trying to be neutral, I really hope it's all good and stuff but I swing neither way right now.
Yup, as long as we don't make it worse!
It's "funny" though how tinnitus changes after a certain period of time, and before then, they don't notice anything. It's like it's evolving by steps.
- Apr 15, 2017
- 1,419
- Tinnitus Since
- 2008
- Cause of Tinnitus
- Noise
What about those with mild or moderate tinnitus? More chance of achieving silence?
Also, we don't know if continued or longer use will increase those benefits?
If they start selling the device here, I will test it for a longer time than suggested.
- Dec 19, 2018
- 108
- Tinnitus Since
- 10/2018
- Cause of Tinnitus
- ETD possibly, or neck and jaw, or maybe anxiety?
I still think this will work with any kind of tinnitus. Overactive neural activity makes the most sense with this condition, and even in some ways fits Dr. Rauschecker's theory (only kind of, that is). I can tell when I get even mildly anxious, my tinnitus gets more high pitched. If I were to re-program these sporadic signals, I can make the phantom noise go away, or at least make my awareness of it much less.
Either way I'm trying this when it gets to America.
Either way I'm trying this when it gets to America.
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
We are so far at the bottom of the healthcare ladder nothing would surprise me. We are almost routinely scammed, robbed and treated like absolute shit.
Yes indeed. But maybe just this once we'll get a lucky break. Don't lose hope, friends. We'll know very soon. I expect Neuromod's "we're open to business" literally any day now and several people on this forum (including me) will immediately flock to them and bring to you honest reviews.
Alex Matyjasek
Member
If the thing really works and starts rolling I wouldn't be surprised if there was going to be a huge waiting list.
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