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  • Users: AVIYT
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  1. AVIYT

    Stem Cell Secretome Treatment

    If it does, and you report back any positive news (I REALLY HOPE SO), count me in. I want my visual snow helped and even a slight reduction in tinnitus and sensitivity and any one of my countless health problems being helped... I sure as hell will sign up.
  2. AVIYT

    Pregabalin (Lyrica)

    I wouldn't take Pregabalin. I continue to blame it for my tinnitus. And even if I were to get tinnitus later in life, at least I'd just have that. Pregabalin also ruined my memory, vision, gave me terrible side effects and intrusive thoughts... terrible stuff.
  3. AVIYT

    Will My Tinnitus Get Worse?

    No apparent reason for many days. Some events like car horns, 2 dentist visits, loud exhausts on street (would cover ears), etc. normal activities but these would be rare events. Many times I'd wear earplugs or noise cancelling headphones on the street. I sit a lot at home. Maybe high blood...
  4. AVIYT

    Will My Tinnitus Get Worse?

    Mine keeps getting worse. I can't take it anymore. I think I have hyperacusis. I wear protection, try to avoid loud places, don't listen to music... I think one of my biggest setbacks was the dentist. I also worsened my tinnitus from an earwax cleaning. It was water as the doctor said she...
  5. AVIYT

    Warning for People with Noxacusis: For the Love of God, Protect Your Ears!

    I feel your pain. I'm 23 too, had this for 1,019 days now. These past few months, it's gotten very bad. This year in general my tinnitus has soared to new levels. Sometimes without any reason. Sometimes for reasons I couldn't really avoid.. like going to the dentist (2x this year and now will...
  6. AVIYT

    Stem Cell Secretome Treatment

    I'm currently saving up money for stem cells. I was inspired by @attheedgeofscience's posts last year. My tinnitus is getting worse, but mentally I'm okay I guess... Working hard to try stem cells in 2023-2024. The $20k cost is not great, hopefully it gets cheaper in the future.
  7. AVIYT

    Pregabalin Changed My Life Forever (Negatively)

    I'm now engaged, we won't have kids for the next decade that's for sure. I don't want kids ever, but we'll see. I now have a normal job in sales, it's quiet for the most part and I'm just saving up money for the future. Never know what can happen. I did get better in terms of mental health and...
  8. AVIYT

    Tinnitus & Hyperacusis Make It Impossible to Find a Girlfriend!

    There's plenty of girls understanding of it, and even some who suffer from it themselves. Some people have milder tinnitus but will understand. Focus on yourself, improve what you can, distract and Tinder or quiet places pickup is the best bet since clubs, festivals, events and bars are out of...
  9. AVIYT

    The Relief of Hearing Aids — Even with 0 Hearing Loss

    What kind of hearing aids did you go with? I've got ReSound Linx GN 3D's
  10. AVIYT

    Can Tinnitus ACTUALLY Drive You CRAZY?

    I put off taking MDMA again (only took it a few times prior to tinnitus) before the big S on my list. It would probably dissuade me from it. Psilocybin didn't help my tinnitus much, or Ketamine the depression but time has helped after a long grind. It took a good year for me to stop thinking...
  11. AVIYT

    I too have bad visual snow, floaters and light sensitivity, I basically got both T & VS from...

    I too have bad visual snow, floaters and light sensitivity, I basically got both T & VS from Pregabalin. My brain over time got used to VS much more than with T. I wear glasses, watch out for bad lighting and try to control my environment. VS gets bad when its dark outside for me. It gets better...
  12. AVIYT

    Maybe the eustachian tubes, I have ear fullness more often recently (mainly at evening and night...

    Maybe the eustachian tubes, I have ear fullness more often recently (mainly at evening and night time).
  13. AVIYT

    Non-Stop Tinnitus for 3 Days — It Started After I Took Out My Earphones After Listening to Music

    White noise helps for the most part, but I stopped using my machine as for some reason later on I had a strange feeling about it. It annoyed my tinnitus, not sure if it made it temporarily worse, but some people report it helps them while others prefer silence. My belief is that it helps at...
  14. AVIYT

    Frequency Therapeutics — Hearing Loss Regeneration

    I have a feeling today being July 4th, a few more people will join Tinnitus Talk over the next week. At least today, we're the closest we've ever been to a cure. And yet, so far away. I'm more than a year and a half with tinnitus so far, it's been one hell of a struggle... but I won't give up. I...
  15. AVIYT

    Antidepressant (Lexapro) Induced Tinnitus

    Antidepressants can cause a variety of symptoms. One of which could be tinnitus. I believe mine was triggered also from a psychiatrist's recommendation. Doctors are wrong, these drugs help but they can also do a lot of damage to otherwise healthy individuals.
  16. AVIYT

    Coronavirus (SARS-CoV-2 / COVID-19) and Tinnitus

    I have experienced a huge spike in my tinnitus from 2 days ago. I took a bath, got out and immediately felt weak. My neck muscles got tense and I soon experienced a fever. I measured my temperature and it was well above 37 degrees celsius. Shortly after it was 37.8 which is 100.04 f. I read it...
  17. AVIYT

    22, New to Tinnitus, Pretty Damn Sad Right Now

    I'm 22, had tinnitus begin for me right before my 21st birthday. It's been 461 days now, approaching 462 in a few hours. It's tough but there's good moments. Main thing is how it affects careers, and then when you're left without money and forced to cough up hundreds of dollars for treatments...
  18. AVIYT

    Coronavirus (SARS-CoV-2 / COVID-19) and Tinnitus

    Yes, Denmark is the 2nd country to do full lockdown. Unfortunately I feel even though Poland's cases are minimal (31 currently) there are talks of quarantine for entire cities (the major ones being Warsaw, Krakow, Wrocław). As of today there are 2 week quarantines in place for all schools...
  19. AVIYT

    Shooting Rifles with Silencers While Having Chronic Tinnitus?

    Honestly, hearing protection + suppressors should be okay. Just shoot small caliber
  20. AVIYT

    Pregabalin Changed My Life Forever (Negatively)

    It has been 423 days since I got tinnitus. Since then a lot has happened. I've tried many things, I wear hearing aids now, I've lost a lot of money and I'm dead broke again. I had work but decided to go back to my main skilled area, marketing. The major problem is that I have to be at home with...
  21. AVIYT

    Tinnitus Week 2020: Focus on Research — Get Involved!

    Hi Hazel, How could I help out? Thanks.
  22. AVIYT

    Tinnitus Week 2020: Focus on Research — Get Involved!

    How would we even go about a US based petition with the ATA on board or some other organization? How many signings would be needed for there to be an open debate on the matter? Which politicians should be reached out to? I'd love for Americans to get some extra funding too.
  23. AVIYT

    98k for petition!

    98k for petition!
  24. AVIYT

    Hough Ear Institute's Hair Cell Regeneration Project

    Every bit helps, although more would be better. In comparison, the BTA is now giving out a grant worth up to £125,000 (= around $161,600 currently).
  25. AVIYT

    I Was Watching "The Good Place" and Found This Inspiring Story About Tahini

    Jameela Jamil who plays Tahini al-Jamil in The Good Place is one of us. Even better, she has achieved success despite the odds being against her. ("She told the podcast Films To Be Buried With: “I was disabled as a child. I was deaf until I was 12. I went to a special needs school until I was...
  26. AVIYT

    Cannabinoid That Causes Temporary Tinnitus/Deafness

    Vice's Hamilton Morris discusses drugs, one of which is a cannabinoid that causes temporary tinnitus and/or deafness. This may be one of the substances that in the future can help fight against tinnitus.
  27. AVIYT

    What Jobs Can People with Tinnitus & Hyperacusis Do?

    My new job at a warehouse in IKEA keeps me distracted. It's not too loud, for the most part I can control it. It helps me keep my mind off things. They treat employees well, but there's plenty of jobs at IKEA that are quieter than in the warehouse.
  28. AVIYT

    Russian Slap Contest Videos and Risk of Getting Hearing Loss, Tinnitus and Hyperacusis

    I saw it a few weeks back, very stupid. Same thought I had.
  29. AVIYT

    Tinnitus Week 2020: Help JimH Fly Us to Vancouver

    Sadly it performed 4x worse than any video I have recently posted... but it got some signatures. I chipped in $8 for Change.org so it can hit a potential of 100 people. Maybe a few will sign. Worth it to try 1x. It's okay, I'll post the video on a few subreddits and it will at least get 1,500...
  30. AVIYT

    Tinnitus Week 2020: Focus on Research — Get Involved!

    You can't DM users who don't follow you or have it turned off for privacy reasons. Best chance is tweeting at her and followers of her. I did so.
  31. AVIYT

    Tinnitus Week 2020: Help JimH Fly Us to Vancouver

    Donated, shared the petition and will make a video up later today :) As long as YouTube doesn't demonetize + limit the video (both will mean less people will see it recommended in their sub boxes and recommended on the platform) then we should get a steady 2K+ views within 30 or so hours...
  32. AVIYT

    Tinnitus Week 2020: Help JimH Fly Us to Vancouver

    Will donate later tonight :) This is a great idea, I may not make much money anymore but I want to do everything to help find a cure.
  33. AVIYT

    Tinnitus & The Body: Take the Survey

    Hope it helps, finished mine.
  34. AVIYT

    In Loving Memory of Allan1967

    I actually have made a video about it, but then realized it'd be silly to publish without having all details confirmed in respect to Allan's family. I may release a partial video, or videos on other confirmed deaths in relation to tinnitus and/or hyperacusis in order to raise awareness for this...
  35. AVIYT

    2020 US Presidential Election

    I used to own a porn website and wanted to film pornographic material legally by establishing a company in Eastern Europe. I've discussed with many cam-girls, pornstars and prostitutes about why they do what they do. Many of the higher end ones do it for the money and because they choose to do...
  36. AVIYT

    Suicidal

    I feel you. I too was ambitious, now I've lost almost all hope. Every day is an absolute challenge. I gained weight to 300 lbs, I lost all my money, my relationship fell apart and now my second one is doing well but still my girlfriend suffers every day hearing to me moan about this, school is...
  37. AVIYT

    In Loving Memory of Allan1967

    It's sad that only with time will people realize how severe tinnitus and/or hyperacusis can get. Shame Lenire didn't work for Allan.
  38. AVIYT

    I Wrote My Car Off on Christmas Eve

    I was involved in a car crash in early November. Around 40 or so km/h when my Volvo impacted a BMW which later hit a Toyota SUV. Thankfully very little damage to the car thanks to the sturdy build, but the airbags went off. I was immediately paranoid about tinnitus, but everything was fine. No...
  39. AVIYT

    Hough Ear Institute's Hair Cell Regeneration Project

    Wrong. LSD did not kill the elephant. Most likely an overdose of 2 other drugs that are sedatives did. Although we won't know, because the experiment was messed up and the scientists did not record the exact amount used. First of all, the dose was HUGE. "About 100-200 micrograms (.1 – .2...
  40. AVIYT

    Announcement Merry Christmas and a Happy New Year 2020!

    Be safe on New Year's Eve. Cheers.
  41. AVIYT

    Tinnitus Started Two Weeks After Going on Statins

    Yeah, I'm now a few pounds away from 300. Within a year I gained like 100 pounds. From my lowest weight, it's a 130+ lb difference. My cholesterol levels jumped, I don't have diabetes yet but I know I can't take any meds for many things. Even the PPIs I received for my acid reflux (new problem...
  42. AVIYT

    Stigma Around Deaf / Tinnitus Sufferers and Disability Benefits

    I've not posted in a while, but I just couldn't stand this any longer. I ranted for half an hour to my current partner about the state of deaf disability benefits. I do not collect, although I may in the future because my financial situation has definitely been affected by having to spend...
  43. AVIYT

    Pregabalin Changed My Life Forever (Negatively)

    No. In fact it's worse than it was when it first arrived. I have hearing aids which have helped, but life is torture. And of course I didn't have money for the hearing aids, so I used crowdfunding which helped with 70% of the fees, but then had to take the other $1,000 out of other important...
  44. AVIYT

    I Think It's a Mistake to Bank on a Cure

    Mostly high tones, but it varies. I now have hearing aids that help with general paranoia, but with the actual tinnitus itself doesn't do much. Approaching steadily 1 full year with tinnitus. Around 50 days remain
  45. AVIYT

    The Cause Was Generalized Anxiety Disorder — I've Recovered from My Tinnitus

    My doctor prescribed it for GAD. I went to a psych because my neurologist was worried by me experiencing depersonalization. It was probably from a few situational things: Lost a bunch of money ($100K+, $70K in a single week earlier in the year), then fell $50K in debt, had to sell everything I...
  46. AVIYT

    Hough Ear Institute's Hair Cell Regeneration Project

    Medication? No. Xanax 2-4x a month for really bad days, but nothing on the constant. Medicines do not help me, and xanax more often than what I take also worsens tinnitus. Sometimes I take Kratom or Phenibut as well, but that does nothing for tinnitus. Rather helps my mood. I do take...
  47. AVIYT

    Hough Ear Institute's Hair Cell Regeneration Project

    A lot of respect for your work. Personally, if there was a pill that wasn't the cure to tinnitus but helped reduce it.. however I'd have to wait 2-3 years for it or more, I'd put aside all ethics and just swallow it. I'd take the risks. But that's me.
  48. AVIYT

    Hough Ear Institute's Hair Cell Regeneration Project

    Sounds interesting, I've been given a bit of hope. I've been taking some time off of Tinnitus Talk and this year seems to have a lot going for it. It's still brutally painful every single day, I'm not sure how I'll be able to pay for my life next week let alone wait 5-10 years for a better...
  49. AVIYT

    Complete Tinnitus Handicap Inventory

    I went to a tinnitus clinic and got hearing aids recently. I was honest and only marked one 'sometimes' while all the rest were 'yes'. I got a 98/100. They were so stunned they asked me if my health insurance would cover a 2 day stay at the hospital.. "for further tests and examination". I told...
  50. AVIYT

    Deep Brain Stimulation (DBS) for Tinnitus

    My tinnitus spiked for no apparent reason this morning. I couldn't fall sleep for 3-4 hours as it kept getting noticeably worse. It still remains very loud, very severe. No clue why. Even before the spike, I haven't had a single day of relief since this has all started. I'd go for this...
  51. AVIYT

    What Do You Still Enjoy in Spite of Tinnitus?

    Movies. sometimes. Music. Most definitely, but much less so now with tinnitus. FOOD. Definitely..... Taking a hot bath with relaxing music while being served food? BEST
  52. AVIYT

    My Tinnitus Is Cured! Here's What Worked in My Case

    I have been taking over 1 gram of NAC (In the trial they used 2 grams of NAC, so for 1 month or so I took 1.8grams daily) since the very beginning. So... February ish is when my order arrived and I did my research? So 8 months now. Nothing. I also take Magnesium, Vitamin B12, B6, B3, B9, C and a...
  53. AVIYT

    I Think It's a Mistake to Bank on a Cure

    Medication doesn't work for all. There are some severe cases like mine where I cannot habituate, have tried very many things, it's only worsened in volume/intensity and medication has made mine worse. Had I not tried SSRIs, I think it might've been a lower volume. I gained a new tone thanks to...
  54. AVIYT

    What's on Your Bucket List?

    This is SO NOT TINNITUS friendly... but google "Brilliant exhaust" with Mercedes V12 S600 by effspot. It'd be my dream to put those exhaust pipes into a Maserati Quattroporte. It's the only thing that's insanely loud that I love.
  55. AVIYT

    In Search of Friends, Sort of...

    As more time seems to pass, I feel more apathetic. I lack a lot of emotion compared to the years prior, sometimes I just feel like my relationship will fall apart because I'm a different person. I don't interact as much with people anymore, I have no desire for pickup or dating (if I were to...
  56. AVIYT

    2018 Brought a New First Drug to Deal with "Migraine" — CGRP Class

    Btw, I contacted the journalist behind this video from Quartz. You should too on Twitter! Let her know @mrubez why Quartz should make a video on tinnitus and hyperacusis. It's a news channel with over 300K subs and she's got few followers on Twitter, so definitely big chances of her seeing it if...
  57. AVIYT

    Tinnitus at Age 19

    Are you still deaf in one ear? And do you have any coping strategies or advice that helped you survive this for such a long time? Congratulations.
  58. AVIYT

    Turmeric with Curcumin Seems to Be Helping

    I did another test with curcumin as the first time I tried turmeric and I believed it spiked my tinnitus. I then got normal curcumin powder in pills. I tried 1 and it did indeed spike my tinnitus. Then I waited a few weeks and anxiously tried 2 curcumin pills 2 days ago. It spiked my tinnitus...
  59. AVIYT

    Can Otoacoustic Emissions (OAE) Exclude Ototoxic Damage to Hair Cells?

    It's possible pregabalin slowly damages the nerves, as it affects the CNS. For some, like me, where probably my nerves were more prone to damage.. it showed up quicker. But who really knows
  60. AVIYT

    Antidepressants (SSRIs, SNRIs, MAOs, TCAs, TeCAs)

    Did your tinnitus spike from Sertraline? I couldn't stand it! Mine spiked 2 days into treatment, taking half of 50mg and then I took it for another 2 weeks after that but it was horrible. I got off it, but ever since then (months later) my tinnitus has remained higher. I can't test whether it's...