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I have been in ketosis for months while having tinnitus. That should tell you everything you need to know.

I haven't seen any of the initial trial outcomes for this drug. Is this even successful at all?

FX-322 was my only hope. I have waited over 2 years, tortured to no end by tinnitus, only to learn this drug doesn't do anything or work at all, with no proper candidate to alleviate my suffering anytime soon. I will now start putting my things in order and put an end to my suffering. It is...

I am somewhat skeptical, this seems like some placebo hogwash made to diverge actual tinnitus research funds. I haven't seen any actual research, let alone trials that would suggest a VR headset would alleviate tinnitus symptoms in any way.

So, after one massive spike 3 weeks ago that laster for 3 days and made me suicidal, my tinnitus dropped all the way to mild levels.

I want to die. I have been surviving with tinnitus since May 2019 and it isn't getting any better. This is no life. I can't picture myself living the rest of my life with this torture. The only possible hope I may have is FX-322 and I can't purchase any of it because "reasons". I can't wait...

The fact that FX-322 is still not available while people are suffering with no alternative treatment is a travesty.

The 4/13 figure was strictly amongst the no placebo group.

4/13 subjects with noticeable improvements in a controlled trial doesn't seem like a lot :/

Yet another so called "TED-Ed" video that presumes to tell us what tinnitus is and feels like all the while minimising the awareness as to the detrimental health effect of this condition. According to the author, tinnitus has "no inherently negative consequences", here is a screenshot of my...

They could technically release right now if they so chose. That said, it makes a difference if Frequency claims that they want to wait the result of phase 3 before releasing the drug to the market. Time will tell.

The spike has subsided, that's good news, I don't need my T getting permanantly worse.

I just got the worst and largest spike to date on a whole new tone. If this is permanent my life is done.

Is there a link to the presentation?

If Frequency fails, I am seriously considering booking at appointment at some clinic in Switzerland. I had had this torture for a year now, I know for a fact I can't stay my entire life with this. One way or another.

While all these investors meetings are going on, we, and many others, are still constantly suffering, despite Frequency Therapeutics legally allowed to sell FX-322 as we speak on compassionate grounds, I assume money is more important. So long as we don't have access to this drug, this is no...

TRT is a SCAM. Period.

It is more likely to be residual inhibition as showers cover a whole range of frequencies and it is likely you are hearing increased sounds at your tinnitus frequencies which stimulates your auditory system in some fashion. My tinnitus also appears to be quieter after showers, unfortunately we...

What's stopping Frequency/Astella or otherwise from selling their life saving drugs, which may very well be the cure for tinnitus and are known to be safe for humans (shall I kindly remind people here that no viable alternative treatment does exist for tinnitus, I don't consider anything...

I feel like I am finally habituating, I have been paying much less attention to T the last couple of weeks, it's still there though.

I am finally enjoying music again!

Does it though? Most people seem to report no improvement/change whatsoever.

You can get bilateral tinnitus from damage to a single cochlea because it often drives inflammation to the auditory cortex, which then creates phantom noises in the other ear (or in your head/center) even if the signaling is deficient/defective only in one ear, you would most likely notice...

This appears to be yet another palliative, money wasted, BS. We all know the only true treatment is to target the cause of tinnitus (some form of hearing loss for most cases), this goes through either: - Regeneration of the cochlea and its nerves/synapses (some drugs do exist that do just...

As would I.

Should you not ingest concentrated doses of NT3 you aren't likely see much effect unless it's distributed locally through an Intratympanic injection.

Because you have habituated doesn't mean everyone else will. Not all brains are the same.

Done.

My flight is booked, I won't have much time for tourism but I'll have plenty time to attend the assessment session.

The thing is there's nothing available as far as treatment goes, meanwhile, although something could be used that might alleviate, if not cure, tinnitus, people throw themselves off buildings because of it everyday, as, mark my words, tinnitus does kill.

My tinnitus is back to severe levels :/

After my tinnitus has remained severe non-stop for about 3 weeks, it has faded since this morning and gone to mild level,let's hope it lasts

Some parts just don't heal, if I chop off my hand, it's not suddenly going to regrow a new one.

Yeah except it's pretty darn impossible to get where I live (in France), I've tried, the best I could get was Oral Steroids.

Do you know if you received placebo? How did it go? Can you talk about it?

About Beethoven: http://www.beethoven.ws/loss_of_hearing.html One thing's for certain though, the large proportion of musicians, people exposed through their work to loud noises, corroborates the theory that tinnitus is not tied a "genetics" or a "different brain" or "maladapation" and...

What I don't like about CBT is that it does not fix the underlying issue, the damage to the auditory system which causes the tinnitus in the first place, which itself causes the depression and distress, whereas money that could be put towards an actual solution/cure (rather than some palliative...

I have had psoriasis ever since I was a teenager and it actually calmed down drastically 2 years ago when I stopped all junk foods. It never changed since then, even after my tinnitus onset 7 months ago, which happened since a noise trauma, so I don't think these conditions are related.

Well, I managed to book an appointment for next May.

Hi Michael, I do not have to believe anything (or feel entitled to) when an actual scientific study (sadly one that had to be funded, likely using yet again taxpayers' money) totally debunked it, even worse, this study is a RCT, it doesn't get any better when it comes to the hierarchy of...

I sent them another e-mail no later than yesterday, I guess I will give them a call and see how that goes.

I still have no news whatsoever from Neuromod after their initial reply from August 2nd and that's after multiple enquiries. I applied in last July! This is utterly ridiculous. There should not be a business that cannot/does not have enough staff to reply to e-mails in several months (if ever)...

Riiiiiight... https://www.tinnitustalk.com/threads/tinnitus-retraining-therapy-is-ineffective-latest-study-finds.35055/ Enough said.

1. Habituation does not work for everyone; "many people" isn't everyone, everybody is different. 2. Habituation is the result of a physiological process (a modification in your brain's chemistry due to chronic overexposure of repetitive noise), this is a very lengthy process that nothing would...

Not if it gets like Neuromod and it's over one year waiting list.

I have both as my tinnitus is accompanied of ear pain that extends all the way to the jaw, the ear pain is nothing next to the distress brought by the noise, the ear pain does not make me want to kill myself constantly, the noise does. I would chop off all my limbs if it could get rid of my...

I am contemplating suicide now more than ever, I don't know how long I will be able to endure this constant torture, I have been trying.

We are talking about making changes to your DNA, it obviously would require FDA approval, assuming this venue is even acceptable for human treatment (in a legal standpoint) in the United States.

It's actually pretty impressive given the very low dose administered during the trial.

I haven't heard of them before, that said, being in Paris myself, they aren't exactly nearby.

So you've never heard of the Tinnitus Handicap Index then? (or, assuming you have the budget for it, even more precise measuring done through functional MRIs). I shall add that, in the meantime, Neuromod has not provided any more proof of the efficacy of Lenire than Ring Ease and the Tonaki...

That's a good question, my guess is that they sell this as a "treatment" to forego the EU regulation on medical devices. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3326593/ As you can see from this document, should Lenire be sold as a medical device, they would have to sell it as class IIa...

Neuromod knew damn well what kind of demand they would generate and expect, when you sell something, including treatments or medical devices, you don't go blindly all in, you do a market study first. The truth is Neuromod chose the Republic of Ireland for its generous tax policies as well as...

Am I correct in saying that it is now 2019 (soon to be 2020) and there are still no hearing aids that cover high frequencies? (or anything above 10 kHz really). My tinnitus comes from a 14 kHz hearing loss in the left ear, and I find myself lacking any options thus far.

How is it not Neuromod's fault when they still do not deliver any other option than to go to the one clinic in the world that dispatches this "treatment"? They should have realized the kind of demand should be answered by more than a single clinic that's not even opened 5 days a week, it's no...

Indeed, investing in CBT when it should be done on research and telling people "not to think" about their affliction is akin to claiming that bloodletting will heal tinnitus. Unfortunately most tinnitus "experts" in the medical field are but crooks who make money off of our suffering. If they...

I am suffering from loud tinnitus and ear pain still

I still have no news from Neuromod and the more I hear about it from the people who have gone ahead with Lenire, the less I am inclined to go ahead with this regardless, considering the lack of positive results I dare say this increasingly feels like an elaborate scam. I hope I am wrong.

It's half the equation, once you have a drug that you know works, you can focus on looking for a better delivery system as you will finally have something to deliver, at this moment we have neither. I shall also add that plenty of people suffer from damages in the high frequencies region of the...

That's not so much the drug's fault and more the lack of a proper delivery method to reach the Apex though.