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Hi Danny can I ask you please that when you were using Kepra and Campral how much of these did you use and did you take them at the same time along with the Trobalt, were they easy to come by or do you need a description, apologies for so many questions just that I need to get some more trobalt...

Hello Megatron, I have had the noise now for nearly two years and I still find I am totally freaked out by it and just wish that someday I could get my peace back that I know I never will so I always am in awe of those people that say they have habituated. I try to live my life as best as I can...

Hi Geo, yes I did get an element of relief and some days were better than others but I do think by the sounds of it that 3x300 may have a better effect, are you on anything at the moment to ease the T at all ?

Hello there Danny just want to ask you. I unfortunately ran out of my trobalt just over a week ago so I can sense another trip to Spain coming on which is where I purchased my last amount as you did I think, I was on about 6oo a day 200x3 and ideally really by the sounds of it I should have...

Hi Danny Boy, I am now down to my last pack of 200mg of which I bought quite a bit when I was in Spain last year, so i might have to go back for another visit as this is one of the few places I know where you can easily get this over the counter presumably similar for you ? Maximum dose I ever...

Hi Julian, what actually did you do to make your tinnitus get better after 20 years as that must have been incredible for you and how long were you on the diet for and are you still on some sort of diet, how wonderful it is to hear of your great success any advise would be much appreciated...

Hi there all and wonder if i can have some advice please as well. At the moment I am on 500mg a day and about to increase tomorrow to 600mg so therefore 3 x 200 over the day, my aim is to get to about 8 or 900 a day and see what happens as at the moment I have just entered my fourth week and...

Hello there locoyeti Sounds like you have had some relative good success with the drug, i have some that I may start to take soon but I am waiting to see if I am accepted onto the AUTIFONY trial here in London first, but my question to you is can you tell me please what sort of dosage you took...

Thank you all so far for your help and support it is good to know I am not alone out here I know I am one of many but at times you can feel so isolated and see everyone around you like you used to be it hits you some times how we all suffer, mind over matter and all that need to stay positive...

Hi all, really need some help, really do, i am struggling today and for the very first time ever I wish I was not here for some reason, my T is really loud and so affecting me and my well being my life is not anywhere close to what it was and I cannot ever see it being that way again, ever. I...

Hello there James, where did you order yours through as nothing seems to show on Amazon UK site? Thank you, Freddie

Hello there, can I ask any of you here if you experience this at all.? Virtually every morning when I awake and also at certain times during the day I can feel myself trembling and seems to be more apparent at times in my right hand, I remember having this at this time last year after my T...

Hello chamferman great to hear that you are on the study, do you mind me asking what hospital it was that you went to, I have an appointment at Birmingham this week, ideally the UCL in london would have been far better for me but they seem to have not to get their out patients organised yet, so...

Hello Gill, I did that telephone questionnaire as well and passed and as I have had mine for about 13 months I do fit into their criteria so at the moment I am waiting to be contacted with an appointment for the screening trial, this is at the UCL in London. They e mailed me last week to say I...

Hello there Lisa sorry for a delayed reply but I wanted you to know that I did in the end manage to talk with someone at UCL, they require a referral from your GP, I actually managed to get an email address so I then checked if they received the letter which they did and their last conversation...

Hi PhilB I think you are right about Belgium as to me that sounds odd as well and I noticed like you that with Birmingham the number is no longer there as I rang the yesterday and someone answered who took all my details and basically said that they were not ready just yet but would call back ...

Hi PhilB no I am based in London but I did manage to get through a few moments and the switchboard said that there was no one in that department today as she thought they were in London and to try again tomorrow, I need to find out what is going on at the UCL London as nothing is up there for...

Hi PhilB, just tried to call the number in Belgium but cannot seem to get through, what code were you using. Thanks

That does not seem that bad, if anything slightly cheaper than when I got them but the exchange rate was not good at that point, anyway are you going to try to get some and if you can are you willing to give it a go ?

Hello there DR Nagler I asked you a question last week regarding habituation and you kindly replied last Friday evening ( as below, just the first few lines ) Hi @Freddie - I have been really struggling with your question. I guess the best thing to do would be to answer it directly, and let the...

That was the total price for everything, does that sound good to you, is that cheaper than you may have been quoted ?

Hi Marku, it was around 260 euro which is about £225.00, still a fair amount to pay but cheaper than some items on this thread that I have seen but I was just so amazed that I could walk into a Pharmacy in a fairly small village and just buy over the counter, it was so easy.

Hi all, I have been on this thread a couple of times but I thought it was worth any of you who wish to know that i too managed to buy some Trobalt / Retigabine recently when I was away in Spain, it was very easy to buy over the counter no questions asked and if they did not have the correct...

Hi Deb in Australia, I have had my T for almost a year now so almost the same length as you and trying to go the TRT route but I am really struggling some days, I think my T was mainly caused by stress that I was going through at the time and along with a slight loss of hearing in my right ear...

Hello DR Nagler I have spoken to you a few times before but again I feel I need a little bit of guidance from you please. I am in the process of doing TRT therapy and my therapist has given me an in canal receiver tuned to the small mid tone hearing loss I have in one ear so theory goes that...

Hello raymundo2245, this is way off thread so you can reply to me personally if preferred but can you let me into any tips that helped you to habituate so swiftly and what seems originally with such good results, what did you do that you found really worked for you that you may never have...

New User Information Gender: Male Age: 56 How Long Have You Suffered From Tinnitus? (Date of Onset): Nov 27, 2013 How Did You Get Tinnitus?: Unknown Explain How You Got Tinnitus: Unknown to me I had a slight hearing loss in my right ear that was discovered when I had my first hearing...

Hi Kathi like you I am unsure of the habituation scenario I too am hoping that it will fade and be hardly noticeable but i really am not sure if that is the true way, i thought it was really where you can master the whole negativity and the brain gets bored listening so it fades to a more...

Hi Rico Napoli, I have a slight hearing loss in the right ear which where the T is ( I never knew I had this until the T came ) I don't think I would have got the T if I didn't go through a stressful period that was happening to me then, so the idea of my TRT person I am seeing is to get more...

Can anyone out there on this forum give me any previous experience of having the one hearing aid in the ear where the T is coming from, I am currently seeing a specialist in TRT training and part of this process has been to fit me with an aid that sits directly in the canal of the ear and tuned...

Hello i have been on this thread a couple of times and something occurred to me that I hope one of you in the know might help with.? My T was not caused i don't think by any acoustic trauma, Drugs or similar but by a stressful period I was going through at the time and that along with a small...

HI Mpt I think everyone here is interested on your journey at the moment so what dosage are you currently taking and how long now have you been on the amount you are on, how much longer do you think you might go before you taper off. ?

Thank you Mark Mcdill you have written a good account there of our inner thoughts etc, it is good to hear that you have virtually habituated, I assume that means that you hear it still but it does not trouble you as much, it can be interesting to understand different peoples perception of...

Sorry, my reply was meant to be like this. Thank you LadyDi and Marlene for your replies, some days I feel better than others but I just do not know why it can perk up from one day being manageable to the next being so loud, or the perception of being loud as the TRT specialist i am seeing...

Hello all out there in TT world, do any of you get days when you wake up and for no reason the T is really loud and affecting you overall that you feel so anxious, for some reason i have this today, I feel really on edge and a bit shaky / trembly / weak overall. I think my sub conscience plays...

Hello don't know what happened there but my question was going to be is that Autofony say that they are targeting tinnitus that has come about due to a hearing loss and I assume that does not matter how much loss that is but I wonder if it will still work after 3/4/5 years with tinnitus as looks...

Hello there I have been following this thread with interest over the last few weeks and a question occurred to me which for those that may more be in the know may possibly have an answer in particular @benru who is doing some great work on the background of what Autofony are doing and hopefully...

Hi Washashore to be honest I am not sure now whether there is a lot of difference with what you are doing and what I am doing apart from having something in the ear to help, the whole theory of TRT is based on not having any negative emotions about the T and trying to accept and live with it...

Is anybody else here trying TRT and if you are is there anything else that you are doing to help yourself ?

Thank you guys for the reply it's just so frustrating when you think you are doing well and feel you can eventually beat this then to be bowled over for no apparent reason ??? Thanks for the support

Hello all. I am now into my ninth month now with the T and have from about six weeks ago started on the TRT direction, I have a little in canal hearing aid that has been set to pick up the slight hearing loss I have in the high frequency area, whole idea here is of course eventual habituation as...

Hello there Dr Hubbard, I realise that ENT is not your expert area but I hope even in a small way that you might be able to help please.? In my right era which is the T ear when ever I move my head up and down or side to side I get a weird sensation coming from it, its difficult to fully...

Has anyone here used the audio notch site at all and can anyone give any reports as to it being any good at all as the theory of what it does seems to get pretty good press and seen some reasonably good editorial press out there but I don't see many reports of it here on T Talk. I tried earlier...

Hi Mr Cartman, so you get the trembling a bit as well do you,? I don't seem to suffer from any neck or shoulder pain I really do think it is down to nerves and stress and no matter how I talk to my self to say it will be ok and get better, live your life etc I still cannot seem to relax the body...

Hi all this seems the best thread at the moment to post this question on but does anyone out there suffer from the slight shakes /trembling, in the hands in particular,? as I do and for some reason more so in my right hand and can wake up in the morning with the sensation and although not always...

Thank you, I will look her up.

Thank you Martin for your reply, a little bit like you, somehow I have this theory that nothing will really help get rid of this apart from trying to get your mind in the right place and time, my T is really loud today and at times I cannot ever see my self habituating to this but I also read...

Thanks for your reply MarkD, I can see that you have not had your T for very long, early days I know but are you finding it getting any easier for you, is your T particularly noisy, do you have it on one ear or both ? Thank you Fred

Hello there Martin 69, I notice that you have had your T a similar amount of time as me and just like you I am trying hard to habituate but sometimes I wonder if trying too hard means we are still obsessed and giving it more space in our thoughts than we should, I would be interested on what you...

Hi Martin and Tellis I think you are both right, I certainly don't feel the same outgoing jolly person that I used to be although I do try hard but surely don't you think it is all in the mind. I was at a gathering recently with some neighbours and I found my mind wondering thinking how lucky...

Any one got any other ideas of potential drugs we might be able to take to ease any pain. The ENT consultant that I saw said take paracetomol which I have been doing but does not seem to be doing a great deal, I wonder if a lot of this is mainly just down to stress and tension, it really is a...

Hi all as this thread is about general aches and pains associated with the T I want to ask anyone if they experience what I do and if someone might have found a way of helping themselves ? My T is primarily on my right side and currently is a soft jangling of chains type of noise but at times I...

Hi all, can anyone suggest for me please what is the best tool to use to check what my frequency would be as I really don't have any idea and the last two weeks have been dreadful, although I am trying not to let it get too me i really am finding it hard at the moment. I want to have a look at...

Hello everyone, I wrote the below to Dr Nagler the other day about this topic and he also was not entirely sure of the reasons etc but I found some of his thoughts helpful and I was just wondering if there was anyone else out there who may experience the same feelings as I do and if it got...

Hello DR Nagler I have had my T for a little over 6 months now and like a lot of people I have good days and bad days my T comes from my right ear which is where i have a slight low frequency hearing loss but one thing that I have noticed in the last few months is this sensation of fullness...

That does help thank you, i think you did well to habituate so quickly, I have had mine just over 6 months now and have just started TRT so fingers crossed it all works out so I can get to where you are and it just becomes insignificant , did you do anything in particular as I try so hard just...

Hi Barry just intrigued to know, as sounds like that you have successfully habituated, but do you really now hardly hear anything unless you go looking for it as that how you would classify your self as that is fantastic certainly a position I think a lot of us would dearly love to bi in and...

Hello @HushTinnitus, I will likely go for the purchase during this afternoon. I just wanted to check with you if you felt there was a best length of time to be using the tones during the day or does it really not matter? I am assuming you just use it when you like for no matter how long you...

Thanks so much cullenbohannon I shall stay in touch and let you know how I get on.