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  1. Aaron91

    People with Dysacusis, Distortions or Loudness Hyperacusis — Describe Your Symptoms!

    I no longer recommend that one. Ionic liquid magnesium by Trace Minerals is far better.
  2. Aaron91

    My Hyperacusis, Tinnitus and TTTS Are at Their Absolute Worst — Considering Going to Hospital

    The doctor may be right or wrong, but it would be foolish to not get your jaw checked out. There are cases of people who had hyperacusis where their jaw and/or neck was a major factor in their symptoms. Unfortunately medicine has over-compartmentalised the anatomy of the body, so there's not...
  3. Aaron91

    Hyperacusis Can Get Better! Gotta Retrain Your Reptile Brain!

    Tbh the answer to this is pretty straightforward. Some people heal IN SPITE of the fact they are receiving damaging sound "therapy". Others, unsurprisingly, get worse. I myself am one of those people. Ask all these auditory "professionals" to show you a single PLACEBO-controlled, blinded...
  4. Aaron91

    Lurking on Tinnitus Talk Since 2016 → Now with Pain Hyperacusis from Naproxen

    I would not go anywhere near HBO therapy. A lot of people have worsened and without surprise due to middle ear pressurisation issues. Additionally, free radicals from too much oxygen can potentially cause more damage. It's just too big of a risk. I'm not familiar with many people here who have...
  5. Aaron91

    Lurking on Tinnitus Talk Since 2016 → Now with Pain Hyperacusis from Naproxen

    I'm in Europe, so it's OTC here. I know people in America have a harder time getting access. I've previously bought from this place but they seem to be out of stock as well. Regarding ginger, don't bother with supplements. There are quality control issues and in any case you need high...
  6. Aaron91

    Lurking on Tinnitus Talk Since 2016 → Now with Pain Hyperacusis from Naproxen

    Play with fire, get burned. Same old story for so many of us here. Welcome to the club none of us asked to join. I'll try to address the rest of your post some other time, but regarding supplements, here's what worked and didn't work for me: High dose CoQ10 - 800mg or more. As you already...
  7. Aaron91

    Frequency Therapeutics — Hearing Loss Regeneration

    The bullishness of some people on here despite the results of the last trial was something to behold. I'm sorry for all those who got burned twice. Management has been shown to be completely untrustworthy and incompetent. Glad I sold most of my position last year - I'm actually embarrassed I...
  8. Aaron91

    Otonomy OTO-413 — Treatment of Hidden Hearing Loss

    Ah yes, shit management and hearing restoration biotech companies. Name a better duo.
  9. Aaron91

    Anyone Have Hyperacusis Periodically Switch from One Ear to the Other?

    I've never denied the possibility that psychological factors could play a role in the development of hyperacusis. I myself developed hyperacusis several months after losing a parent to suicide, despite the trigger being acoustic shock from a loud motorbike. However, it's one thing to identify...
  10. Aaron91

    Stellate Ganglion Block for Pain Hyperacusis (Noxacusis)

    I seem to remember reading somewhere that some people don't respond to SGBs well when given to one side of the neck but very well to the other. It's poorly understood, but perhaps something to consider before making your final decision.
  11. Aaron91

    Anyone Have Hyperacusis Periodically Switch from One Ear to the Other?

    I've spoken to many people with hyperacusis and until today I thought I was the only person who has had this experience. During the first six months, I had hyperacusis in both ears all the time. Over the next 6 months, I then had a lot of ear "flipping". Effectively, my hyperacusis seemed to...
  12. Aaron91

    Pain Hyperacusis in Relation to Acoustic Shock & Synapse Disconnection

    @100Hz hasn't posted here in a long time. I fear the worst.
  13. Aaron91

    Lion's Mane Mushroom

    I should probably make it known that I've actually since changed my opinion. I'm no longer convinced that the cochlea has a role in this chain (at least in most cases), and that the entire pathology is middle-ear related (which is sustained/worsened by negative feedback loops with the brain), as...
  14. Aaron91

    Exploring the Middle Ear Function in Patients with a Cluster of Symptoms

    I also reached out to Norena, sadly with no response. I'm not sure they appreciate how closely some of us follow their work. That or they're just so inundated with emails they don't have the time.
  15. Aaron91

    Computer Intel CPU Cooling Fan Noise Irritated My Noxacusis — Here's My Solution

    I can second this, they are silent machines, but if you want to play AAA gaming titles then a MacBook might not be for you.
  16. Aaron91

    Botox as a Possible Treatment for Pain Hyperacusis

    Thank you for sharing. I've had private access to this for a while but was unable to share it with others. I cannot stress this enough: if you have hyperacusis, you need read to this paper. The TLDR is that the researchers examined 11 patients with hyperacusis using a new ear sensor they...
  17. Aaron91

    Hyperacusis Cured/Reduced by Clomipramine

    It's on my list of things to try, but I'm currently exhausting a few other avenues first. I'd definitely be more inclined to try Flomax though than a tricyclic antidepressant. Clomipramine is one of the last things I'd try short of offing myself - it's a dirty drug and seems to have a plethora...
  18. Aaron91

    Making a Loudspeaker Sound Less 'Sharp'

    Buy a UAD or RME sound card/interface. Run through your speakers through the soundcard. In your soundcard software/console, you can run your signal through a processing chain, such as an equaliser. From there you can tame the frequencies you want.
  19. Aaron91

    Ginger for Noxacusis

    Try to take it for two weeks at least: Daily ginger consumption eases muscle pain by 25 percent, study suggests Assuming ginger's effect is related to CGRP and neurogenic inflammation, I imagine it could take a while to see some benefit as the effect is probably cumulative, particularly for...
  20. Aaron91

    Hyperacusis Cured/Reduced by Clomipramine

    Huh. I was actually doing a bit more reading into this and it turns out that Clomipramine is not only a sodium channel blocker (and therefore has some pain relief properties) but also an Alpha-1 adrenergic receptor antagonist, meaning it relaxes smooth muscle. Do you know what else is an Alpha-1...
  21. Aaron91

    Warning for People with Noxacusis: For the Love of God, Protect Your Ears!

    Did you have any sound-induced neuralgia in your jaw?
  22. Aaron91

    Hyperacusis Spikes After Trying to Start Living Normally

    Reactive tinnitus and hyperacusis are not the same - take it from someone who has both. They may be part of the same pathology, but in symptoms and experience they are very different. Reactive tinnitus sucks, but hyperacusis is hell on earth.
  23. Aaron91

    Hyperacusis Spikes After Trying to Start Living Normally

    I'm a bit confused you're talking about tinnitus, as this is a hyperacusis thread. Norena's model is about middle ear pathology in relation to TTTS and hyperacusis, not so much tinnitus, which can have dozens of causes. Regarding crackling when I swallow: yes, I have that, although it has...
  24. Aaron91

    DMSO & Magnesium Oil for Tonic Tensor Tympani Syndrome (TTTS)

    Thank you for taking the time to reply. I've just ordered my own micro current device so it will be interesting to see if I have any results. I think the MOA is slightly different to to your Alpha-Stim. Did you have any sound-induced neuralgia in your jaw?
  25. Aaron91

    DMSO & Magnesium Oil for Tonic Tensor Tympani Syndrome (TTTS)

    Hey @Lane, I see that you're one of, if not the only person on here to try micro-current therapy (albeit for other reasons). Do you think it helped with your hyperacusis at all, or did you only have TTTS?
  26. Aaron91

    My Tinnitus Is Almost Gone After 3 Years: It's Now a Faint Ringing — No Longer Hyperacusis Either

    Hey Vii, was just wondering if you could share any lifestyle behaviours or changes you made that you think may have helped you healing from hyperacusis? I'm also curious to know whether you had any sound-induced neuralgia in your jaw/cheeks/neck/face?
  27. Aaron91

    Hyperacusis Spikes After Trying to Start Living Normally

    I'm not convinced by potassium channel openers because I'm not convinced by the Fuchs model in general (although if you look at my post history going back a year or two, I was the biggest proponent of the type II afferent theory, so I'm open to being wrong). Regarding treatments, I think...
  28. Aaron91

    Hyperacusis Spikes After Trying to Start Living Normally

    I can't speak for Aleph but I think something important to note about the type II afferent theory is that it is completely experimental. In the 2015 Fuchs study, they ruptured OHCs from excised rat cochlea using a needle - a so-called "proxy" for cochlea trauma. Even if you accept that as a...
  29. Aaron91

    Ideas and Suggestions for Future Episodes

    Would like to suggest Arnaud Norena or one of his colleagues. His recent work is gaining a lot of traction in the hyperacusis community and think it could be a really coup to have him on.
  30. Aaron91

    Flomax (Tamulosin) Has Cured My Hyperacusis 100%

    Jesse, can you please come back to answer a few questions? I asked previously on here whether you had any neuralgia symptoms from sound, such as an achy jaw, and whether Flomax helped with that?
  31. Aaron91

    Hyperacusis Cured/Reduced by Clomipramine

    I'm not too sure what you mean by careful. As I said, I'm EU based so I can't comment on what US customs may or may not do if you try to order it from Europe. The site I have linked you to though is legit and is where I got my Ambroxol from. If you are based in the EU you can just walk into any...
  32. Aaron91

    Hyperacusis Cured/Reduced by Clomipramine

    I can't speak for America but it's an OTC drug in most of Europe. Try this link: https://www.apohealth.de/en/products/ambroxol-al-30-mg-tabletten-zur-schleimlosung-100-st-tabletten
  33. Aaron91

    Hyperacusis Cured/Reduced by Clomipramine

    I usually take 60 mg twice a day or 30 mg three times a day, but it has an extremely good safety profile even at higher doses. The only reason why I don't take more is because it can upset my stomach a bit, which seems to be the case for about 50% of people who take it, but many have no issues...
  34. Aaron91

    Hyperacusis Cured/Reduced by Clomipramine

    Ambroxol. It's a cough medicine, but has sodium channel blocking properties. Literally the only thing that has helped me manage my symptoms.
  35. Aaron91

    Ginger for Noxacusis

    I'm honestly not entirely sure. My post was somewhat speculative. I know that capsaicin is used in topical creams for pain relief, which would suggest this needs to be targeted, but obviously we can't use those for our condition. As for taking it in supplement form, I am trying to figure as to...
  36. Aaron91

    Ginger for Noxacusis

    Wanted to post an update to the above. As mentioned previously, ginger (in isolated, single doses) seems to make my symptoms worse for the reasons I gave above. I did find it interesting though that others on here seem to have benefit. So I dug into this a bit more and it turns out that...
  37. Aaron91

    Exploring the Middle Ear Function in Patients with a Cluster of Symptoms

    As some of you will already know, Norena is one of the few people looking at middle-ear involvement when it comes to hyperacusis. He's just released a new paper and I was hoping someone here can provide access to the full paper. Abstract can be found here: Exploring the middle ear function in...
  38. Aaron91

    Ginger for Noxacusis

    I would get instant fluttering, like a butterfly in my ear, which is the tensor tympani basically spasming. I can't comment on raw turmeric although high dose curcumin supplements do seem to help me. But in all honesty nothing makes sense. The fact @chinup seems to be getting better from...
  39. Aaron91

    Found Something That Works for My Tinnitus, Hyperacusis and Dizziness. Hard Work.

    Bumping this thread after reading an anecdotal case of someone seeing improvement in hyperacusis symptoms from supplementing creatine (while also working on neck muscles). I know creatine was made as a passing comment in this post but wondering if there could be something more to it...
  40. Aaron91

    Hyperacusis/Tinnitus Caused by Excessive Dopamine from Watching Porn

    I think it's hard to say with any confidence this is dopamine related, but a useful way to confirm this suspicion would be to take a dopamine-enhancing drug and see if you get the same symptoms (not that this is something I recommend). I am more inclined to agree with others here that this could...
  41. Aaron91

    @Christiaan very sorry to hear that. PTSD is a terrible thing and have been living with it...

    @Christiaan very sorry to hear that. PTSD is a terrible thing and have been living with it myself for two years. As for myself I'm not as active on here as I used to be but hyperacusis is still very much there and am still experimenting with all sorts of things in my attempt to get rid of it...
  42. Aaron91

    Christian, how are you doing man? I noticed you weren't active here for a while

    Christian, how are you doing man? I noticed you weren't active here for a while
  43. Aaron91

    Two Years In with Hyperacusis — Progressively Gotten Worse, Not Sure What to Do

    Some people anecdotally have tried anti-histamines with little to no benefit, but there has been the occasional story of something like Benadryl (not recommended long term as it crosses brain-blood-barrier) helping noticeably. The problem with anti-histamines is that they are usually selective...
  44. Aaron91

    Two Years In with Hyperacusis — Progressively Gotten Worse, Not Sure What to Do

    Magnesium is a natural muscle relaxant. If the tonic tensor is in spasm or overworked, it can help to relax it and calm it down. Many of us have seen benefit from it, some marginal, others more so. As for it being ionic liquid form, that's because that's the most absorbable form you can get it...
  45. Aaron91

    Myofascial TMD — Botox Into Tensor Veli Palatini (TVP) Muscle

    @Snow, did you ever have any success with this?
  46. Aaron91

    Fix for Sound Induced Pain — Stellate Ganglion Block?

    How are you doing now almost 2 more months down the line? Has your quality of life and hyperacusis improved since getting the botox?
  47. Aaron91

    Two Years In with Hyperacusis — Progressively Gotten Worse, Not Sure What to Do

    You mentioned numbness down the side of your face. Do you ever experience an achy jaw at all from sound? If so, it's possible you may have a middle ear pathology involving the tonic tensor tympani muscle and the trigeminal nerve. On another note, quit Lion's mane - it's high histamine and...
  48. Aaron91

    I Started TRT for Hyperacusis — Tips Regarding WNGs and Having Children in the Home?

    Ditch the white noise generators (snake oil) before it's too late. You will only get worse.
  49. Aaron91

    Hyperacusis — No Tinnitus — at Age 16 from Listening to Loud Music Through Earphones?

    If you genuinely think you have hearing loss you should get an audiogram ASAP. It is not exactly reliable in terms of giving a clear picture of what's happening in your cochlea, but it will at least show if you have serious damage to your outer hair cells. If the audiogram doesn't show anything...
  50. Aaron91

    Hyperacusis — No Tinnitus — at Age 16 from Listening to Loud Music Through Earphones?

    It's possible you have some transient conductive hearing loss from ongoing inflammation and fullness, but it's also very well possible you may have some permanent synaptopathy in your cochlea (death of synapses, which are what help you hear detail in noisy situations). Thankfully there are...
  51. Aaron91

    Hyperacusis — No Tinnitus — at Age 16 from Listening to Loud Music Through Earphones?

    So as I mentioned previously, this to me is consistent with acoustic shock because you are exhibiting symptoms of referred pain (see this paper, but don't stress if you don't understand it). It is more than probable that your neck and face pain are related to your ear symptoms. This is why I...
  52. Aaron91

    Hyperacusis — No Tinnitus — at Age 16 from Listening to Loud Music Through Earphones?

    I never said I was. I simply offered it, because that is what this forum is for. In fact, you were the first person in the entire thread to preach to everyone else about what we should or should not be saying. And even though I disagree with everything you say, I have never once said you...
  53. Aaron91

    Hyperacusis — No Tinnitus — at Age 16 from Listening to Loud Music Through Earphones?

    I take it you got ionic Magnesium in liquid form? If so, start out with 400 mg a day mixed with water or juice and feel free to up it to twice a day if you see benefit. If you take too much you'll know (you might get some loose stools, but nothing to worry about). Let us know how you get on...
  54. Aaron91

    Hyperacusis — No Tinnitus — at Age 16 from Listening to Loud Music Through Earphones?

    Just stay away from loud noises and people while your body heals. Preferably give your ears a complete rest i.e. no TV/YouTube etc for a few days/weeks (gauge it as you see it). Use ear protection if you feel uncomfortable. Avoid stressful triggers in your life. Drink ionic liquid Magnesium. Or...
  55. Aaron91

    Hyperacusis — No Tinnitus — at Age 16 from Listening to Loud Music Through Earphones?

    We do not even know if she has an infection. Key word: "can". In any case, I do not have time to argue biology with you. Treatment during acute stage of any injury often plays a significant role in long term prognosis. Fact. You will of course argue "we do not know if she has an injury". Maybe...
  56. Aaron91

    Hyperacusis — No Tinnitus — at Age 16 from Listening to Loud Music Through Earphones?

    There is nothing drastic about anything I recommended, nor is anything I advised irreversible. The same cannot be said for most clinical advice when it comes to hyperacusis. I also did not threaten. Terms are not important. What is important is clinical presentation, and she has a presentation...
  57. Aaron91

    Tinnitus & Hyperacusis 90% Cured

    Great question. The best thing I can recommend is to read Norena's paper on acoustic shock, which quite elegantly puts together a convincing pathology of what might be happening in the middle ear once it is inflamed. In any case, here's an overview of the model from the paper: To answer your...
  58. Aaron91

    Hyperacusis — No Tinnitus — at Age 16 from Listening to Loud Music Through Earphones?

    I repeat what I said earlier: we have no definitive animal models for hyperacusis/noxacusis. How are you so sure loudness hyperacusis is in fact strictly a brain issue? My advice to him is on the balance of probability and current clinical presentation. How do you reconcile swollen eardrums...