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Gabapentin made my tinnitus much worse after only one dose so I stopped. I tried increasing Flunarizine but did not see much difference. I also tried to increase Pregabaline but higher doses makes you very very tired during the day. Now I am in the process of trying to swap Pregabaline for...

I have no idea.

Hello, Glad to hear your story. Can you tell us a bit more about how you are managing your tinnitus & hyperacusis these days? How could I make my tinnitus & hyperacusis to play a less important role in my life?

Glad to hear that Botox has helped you. You can continue using Botox every 3-4 months. Where exactly did you put the Botox?

Yes it has, slightly. I now feel confident to go out around London with earplugs and be fine. I still avoid noisy interiors, restaurants etc.

I am currently on Ajovy (Fremanezumab), which is similar to Rimegepant, but injections instead of oral tablets, and it is cheaper In the beginning I thought it did not help but I can now see the difference. I have been taking Ajovy for a month and I feel better. I am not as sensitive as before...

With Flunarizine, I saw improvements just after 2 days of taking it. Pregabaline only helps with sleep, and again after just a few days. I am still taking them.

Rimegepant did not help. I don't have noxacusis.

I am assuming that you do not have hyperacusis and/or reactive tinnitus (you said that you had an MRI without wearing hearing protection and your tinnitus did not spike) and probably you do not know what this is about. Please read on Tinnitus Talk about people's experiences with hyperacusis and...

Hi @DeepakB, I am a CBT therapist and something that I learnt in my consultations is that there are situations that will make you feel miserable no matter what, and having severe and reactive tinnitus is one of them. You cannot think positive when you have a catastrophic situation. You cannot...

With moderate and stable tinnitus it is easier to meditate and find peace. Since having severe intrusive, reactive tinnitus, it has been impossible to find peace for me. I just do not have the mind to focus on mindful activities like reading etc. I have been trying to use medication and...

Just curious, what is your tinnitus like?

It is now available in the UK via The National Migraine Centre. I am going to try it.

Hi @scared8, Sorry to hear about your pain and suffering. I also had severe fatigue and dizziness around 5 years ago after a stomach procedure, my ear problems started then too. I wonder if there is a connection. I am curious, why were you so protective of your ears before the MRI? Did/do you...

I am a tinnitus loser. It has come to a point where I am giving up the fight. I feel similar to you, the intrusive tinnitus, the life/social restrictions from the hyperacusis and the depression are just too much to deal with. As you said, each of us are different, different beliefs systems...

I totally empathise with your situation and understand your despair. Of course, I wish you were able to keep going but I understand and respect your decision to end your suffering, the psychological and the physical pain. I just send you lots of warmth and I hope you do not suffer much in your...

Easier said than done. 1. It is easy for someone who has never had severe tinnitus 24/7 to say that it is just a fucking noise. It is not, it is torture. 2. Most people's tinnitus worsens by taking antidepressants. 3. I can not ignore spikes as they are hell. Again easier said than done. 4...

I know that we think differently and that is fine, but I think it is wrong that you place your moral judgment on others who are suffering a lot and might have a different set of values, especially in this thread. It is a moral judgment because there is not any rule or law saying that your...

This is not the point. Telling someone who wants to terminate their life because of too much suffering 'do not do it because of children will suffer' will make them feel guilty for doing something that is actually compassionate. This is why it is manipulative. Euthanasia should be a human right...

I respect your thinking and your choice but my body is my body. First of all, I have a responsibility towards myself and my suffering and it is my right to want to live with dignity and without suffering. You might call it selfishness, I call it compassion.

Manipulative and so unfair! Please, this is a support group. He is not only speaking about the loss of silence but about a level of tinnitus severity that pushes you to kill yourself. I can totally understand that feeling and I am surprised by the lack of understanding here. I also hate that...

For how many years have you been taking this combo? For how long can you continue taking these?

Where are you from in Spain? I am also from south Spain. Don't you have hyperacusis? I do have severe reactive tinnitus and mild hyperacusis. I avoid any loud spaces, like restaurants etc. It is a struggle.

Hi MatthijsDJ, It is sad to see how people like you lack empathy in this thread. You are lucky that medication made you feel better and that it allowed you to start doing shit and feel more normal. But for you to then come here to tell people less fortunate than you that it is their fault that...

Wow, it sounds devastating. Do you still have that level of tinnitus?

I hope that you realise that your comments are unfair, it is like telling someone on a wheelchair that it is unhealthy not to go for a run.

My symptoms are still distressing; severe and reactive tinnitus and mild hyperacusis. But I know that without Flurpax (Flunarizine) I would feel even worse and be in daily pain.

So why are you on this forum then? Following your logic, we should not trust you (as a random person on the internet). It is ok if you don't want to argue, but please allow everyone else to share their ideas and have a debate on this forum, it is a healthy practice, but don't take it...

I am taking 5 mg. I noticed an improvement in my tinnitus after the first dose, and in my hyperacusis after a couple of weeks.

I am taking another anti-migraine medication (Flunarizine) that is helping with my tinnitus & hyperacusis. This is why I want to continue exploring this avenue of anti-migraine meds. I have the consultation with my neurologist next week.

Did you or anyone else try Rimegepant for tinnitus and/or hyperacusis? I am tempted to try it. Diego

Sorry to see you in this thread. What is your story and your struggle?

Do you have any digestive issues? Also, drinking water makes my tinnitus worse. I don't know why but I had a stomach surgery a few years ago, just before the onset of my tinnitus so there must be a connection, I wonder which it is.

I also need to book a filling for myself. I have hyperacusis & tinnitus. Do you prefer electric vs. laser drill? Did you have another permanent worsening after using the laser one?

Thanks for sharing your positive story. I am also in the UK. Who is your audiologist?

For how long does IV Lidocaine knock out your tinnitus?

Did you respond badly to the Clonazepam from the beginning, or once you started tapering? Did it stop working for you at some point? That's confusing.

I am confused, last Monday Dr. De Ridder told me that someone can build dependency, but NOT tolerance to Clonazepam. I am surprised as many people on Tinnitus Talk talk about needing to up the dose for it to stay effective. I have recently been taking 0.5 mg every other day for sleeping, but...

Hi! Thanks for sharing your situation. My tinnitus got severe after developing hyperacusis and I am struggling to manage everything, but it has been just a year. I am curious to know how do you manage life with catastrophic tinnitus and how have you managed to stay sane for so many years? How...

How often do you take Klonopin (Clonazepam)? I am only taking 0.5 mg every other day because I have strong difficulties to sleep at all. I am thinking of swapping it for Quetiapine.

Thanks for your bright story. Can you tell me how do you protect your ears? What protection do you use and when (e.g., all the time when you are out in the street)? Have you noticed any impact from the overprotection?

I hope you realise that your current feedback and old posts are pretty much based only on your unique experience and often not applicable to most cases. I am sure that you mean well to help others, however, you might end up harming others. Also, most people on this forum are experiencing anxiety...

I agree with you. The NHS did not offer anything to me, apart from a hearing test and an MRI. At least, my private psychiatrist and neurologist (back in Spain) offered some drugs that are helping me.

What is Auditory Stroop Training?

What do you think is helping the most, Latuda or Lepraxo? My tinnitus spiked with Lepraxo 10 mg.

I feel that DBS is the only thing that might help my severe tinnitus. I cannot wait 10 years for it to be available for tinnitus. Does anyone know if I can have this procedure anywhere, apart from the clinical trials?

I dropped Deanxit after four days as I had a spike, but not sure if it was the drug or the tVNS I was doing at the time. But I decided to end it. Prof. Dirk De Ridder recommended to do the tVNS as he thinks my tinnitus & hyperacusis is related to my vagus nerve being damaged. The only thing...

Sorry to hear that you are suffering. Can I ask what happened?

Thanks for the feedback. I'm also meeting Dr. De Ridder this Thursday and I will do an EEG on the brain but am not willing to go for the brain stimulation. Are there other treatments that they offer like the Ketamine treatment?

Hi @Theezy. Sorry to hear about your terrible free fall. Suicidal thoughts in these situations are pretty normal because we do not want to suffer. I am also losing the hope of getting better. I also have pretty bad reactive tinnitus & hyperacusis. I need to use earplugs whenever I’m out in the...

What is your experience with Brai3n? Did you pursue other treatments? How many days did Deanxit take to start working for you?

It is still early days. This is my 4th day on this combo. I am surprised that there are not many people on this combo.

But do we know the formula?