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  • Users: Ngo13
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  1. Ngo13

    For Pregnant Women Afraid of Tinnitus Spikes

    I'd like to share my experience with tinnitus, especially since one of my biggest struggles when I first developed it was the fear of never being able to have (more) children. My tinnitus is moderate, and I also experience TTTS with pain and mild loudness hyperacusis. Here's how my experience...
  2. Ngo13

    ENT made me feel like absolute shit because I refused tympanometry since it caused be almost a...

    ENT made me feel like absolute shit because I refused tympanometry since it caused be almost a year of pain last year. Didn't believe me.
  3. Ngo13

    Double outer ear infection likely from earplug use ..prescribed ofloxacin ear drops which are...

    Double outer ear infection likely from earplug use ..prescribed ofloxacin ear drops which are ototoxic. What do I do?!
  4. Ngo13

    I have a 2.5yo and 3 month old...currently feeding the baby with my earmuffs on, reading a nice...

    I have a 2.5yo and 3 month old...currently feeding the baby with my earmuffs on, reading a nice book. You'll be ok!
  5. Ngo13

    Are you taking NAC? ALA? They helped with my pain somewhat and gave me peace of mind. If you...

    Are you taking NAC? ALA? They helped with my pain somewhat and gave me peace of mind. If you don't have custom plugs yet, I strongly suggest you get some.
  6. Ngo13

    As time goes on you will learn what you can handle. You'll go through situations and realize you...

    As time goes on you will learn what you can handle. You'll go through situations and realize you end up ok which will help ease the anxiety.
  7. Ngo13

    Deep breath, you'll be ok. Stop measuring how loud they are - you need to stop the obsessive...

    Deep breath, you'll be ok. Stop measuring how loud they are - you need to stop the obsessive thinking. I know it's easier said then done.
  8. Ngo13

    I got one last year. It wasn't particularly noisy although there is some noise. It had no...

    I got one last year. It wasn't particularly noisy although there is some noise. It had no effects on my T.
  9. Ngo13

    You can't approach it like that. Just go in talking about where your pain is and what it is. I...

    You can't approach it like that. Just go in talking about where your pain is and what it is. I was "diagnosed" with trigeminal neuralgia and even said I think it's from my ears but the neurologist said that is impossible (eye roll) but still gave me a med to try.
  10. Ngo13

    @Zigs congratulations on your new baby as well! I commented on your parenting thread but if you...

    @Zigs congratulations on your new baby as well! I commented on your parenting thread but if you have any tips (or miseries) to swap I'm here for it! I don't come across many parents with young kids and T/H.
  11. Ngo13

    Let's Talk Parenting: Tips and Experiences for Parents with Tinnitus / Hyperacusis

    My firstborn is the one who gave me tinnitus, hyperacusis and TTTS as a newborn. The acoustic shock from him crying near my ear just happened to affect me in this permanent way, which I've deduced is just really shit luck at this point. I've witnessed many occasions with others who were...
  12. Ngo13

    Baby is here and we are enjoying soaking up the snuggles. Happy to say that my T wasn't impacted...

    Baby is here and we are enjoying soaking up the snuggles. Happy to say that my T wasn't impacted by my delivery or hospital stay.
  13. Ngo13

    Prednisone might be a good choice. But it also might just take some time for your ear to...

    Prednisone might be a good choice. But it also might just take some time for your ear to recover, it probably startled you and activated your middle ear muscles which leads to the inflammation. For most people, acoustic shock symptoms tend to settle or go away with time.
  14. Ngo13

    Hi there, my baby was only inches from my ear. Toddlers are louder than babies though with more...

    Hi there, my baby was only inches from my ear. Toddlers are louder than babies though with more lung capacity. If symptoms are the same, I would definitely see a doctor. Acoustic shock is thought to mainly be an inflammatory cycle since there is no hearing loss usually.
  15. Ngo13

    I found the only way I was able to read for awhile was in a hot Epsom salt bath with my violet...

    I found the only way I was able to read for awhile was in a hot Epsom salt bath with my violet noise mix playing. Sometimes a candle. Now I still read in the bath best but I'm able to do it in quiet. I read mostly fantasy, so it's my escapism and it's one of the only times I don't "hear" my T.
  16. Ngo13

    @ZFire Same, I haven't noticed my hearing being worse. I hope it's H improvements, that would be...

    @ZFire Same, I haven't noticed my hearing being worse. I hope it's H improvements, that would be wonderful! I'm surprised though if that's the case as I'm over the general 2 year window
  17. Ngo13

    I'm having more trouble hearing thru my earplugs. I used to be able to hear a whisper easily. Is...

    I'm having more trouble hearing thru my earplugs. I used to be able to hear a whisper easily. Is H getting better or T getting worse? Sigh.
  18. Ngo13

    You sure no TTTS? It is probably from the trigeminal nerve, which runs through middle ear...

    You sure no TTTS? It is probably from the trigeminal nerve, which runs through middle ear muscles. I get this sometimes and I thought it was from my TTTS
  19. Ngo13

    Repeated Bilateral Transcranial Direct Current Stimulation over Auditory Cortex for Tinnitus

    I've come across this trial for tDCS, and the results look promising. I'll admit I don't have a ton of knowledge about tDCS, but this trial found statistically significant results in lowered THI score, as well as distress and loudness VAS. It also included a placebo group and the results of the...
  20. Ngo13

    But I enjoyed playing with my son for awhile, even though having my earplugs in makes me sad. I...

    But I enjoyed playing with my son for awhile, even though having my earplugs in makes me sad. I don't want these moments to pass me by!
  21. Ngo13

    I wish I got a second chance or that mild type to start. Frustrating that I never got warning...

    I wish I got a second chance or that mild type to start. Frustrating that I never got warning before I was stuck with all these ear issues.
  22. Ngo13

    My son's bedtime story last night was about seeing fireworks. You know I added in that they put...

    My son's bedtime story last night was about seeing fireworks. You know I added in that they put in earplugs first! Gotta start 'em young
  23. Ngo13

    Antidepressants (SSRIs, SNRIs, MAOs, TCAs, TeCAs)

    Have you looked into Clomipramine? It's an old TCA mainly used for OCD, but there have been some anecdotal reports popping up recently that it has helped cure/greatly reduce hyperacusis and noxacusis in some people. From what I've read, you have to get up to a dose of 125-150 mg, but then it...
  24. Ngo13

    Carbamazepine (Tegretol, Equetro)

    Yes, everything I've seen says symptoms return upon stopping the medicine.
  25. Ngo13

    How do you get past the fear of worsening without living as a hermit in complete isolation? It...

    How do you get past the fear of worsening without living as a hermit in complete isolation? It seems everyone gets worse over time.
  26. Ngo13

    Itchy could be from inflammation, even from inside the ear (which some believe is highly related...

    Itchy could be from inflammation, even from inside the ear (which some believe is highly related to T/H)
  27. Ngo13

    @MadeleineHope could be sticking around due to slow nerve healing/central sensitization. Burning...

    @MadeleineHope could be sticking around due to slow nerve healing/central sensitization. Burning is definitely nerve. I would take TN meds personally & am planning on them when I'm done breastfeeding. Good to know about LDN as I want to take that too. Do you have TTTS? I think that +...
  28. Ngo13

    @MadeleineHope With pregnancy I can't take anything other than the NAC & ALA but yes when I stop...

    @MadeleineHope With pregnancy I can't take anything other than the NAC & ALA but yes when I stop taking them it gets worse. I only take 600mg NAC & 250mg ALA. If wasn't pregnant I would take 1200mg NAC & 600mg ALA.
  29. Ngo13

    @MadeleineHope thank you! I do still get the burning pain but frequency has reduced a lot...

    @MadeleineHope thank you! I do still get the burning pain but frequency has reduced a lot. Currently going through a 2 week flare. Mine is definitely trigeminal related, sound doesn't trigger it as much as muscle/jaw movement or sinus pressure.
  30. Ngo13

    Anxiety from Tinnitus: How Have You Managed?

    I just want to chime in as a parent to a young toddler and soon-to-be mother of 2, that your children will still know you as the fun and loving person you were before - because you still are, you can be. Life isn't the same after tinnitus, don't get me wrong, but the vast majority of people are...
  31. Ngo13

    Tinnitus Week 2024: What Should Your Neighbor Know About Tinnitus?

    That it can affect anyone, at any time, for relatively benign or even unknown reasons. You can list them: a concert, a cold, an ear infection, covid, MS, SSRI use, Advil use, a car accident, headphone use, etc. You can use real people's stories of their onset. I would go with the most ordinary...
  32. Ngo13

    Copy success stories onto an offline doc on your phone. That's what I did and I forced myself to...

    Copy success stories onto an offline doc on your phone. That's what I did and I forced myself to only check those when I was struggling. You have to break the negative thought/reassurance cycle. You can do this. We will all be here when you check back.
  33. Ngo13

    Trying to stay off but my update is I'm 5 mo pregnant &very excited. I don't want to put my life...

    Trying to stay off but my update is I'm 5 mo pregnant &very excited. I don't want to put my life on pause in case I worsen& regret in future
  34. Ngo13

    Hope you are doing better as well @Juliane

    Hope you are doing better as well @Juliane
  35. Ngo13

    Thank you. I've been trying to take a break from this forum and it definitely helped my mental...

    Thank you. I've been trying to take a break from this forum and it definitely helped my mental state. I still check from time to time but try to stick to success stories and research news.
  36. Ngo13

    I wear my custom plugs around my son most of the time. This is mostly preventive in case of a...

    I wear my custom plugs around my son most of the time. This is mostly preventive in case of a sudden shrill scream or cry, as well as eases my anxiety as my TTTS is particularly triggered by him. Reducing pain for me has been time and I have found some success with antiinflammatory supplements...
  37. Ngo13

    TTTS Pain/Noxacusis from Tympanometry

    Hi all, I've hesitated posting as I have been trying to avoid catastrophizing but I'm a bit at a loss. For background, I had an acoustic shock in Jan 2022 that resulted in tinnitus in my left ear, now bilateral with my right ear joining in a few months later. Both my ears have felt full and...
  38. Ngo13

    @ZFire Urgent care doc said my eardrums were bulging but no infection on 9/1. Still having more...

    @ZFire Urgent care doc said my eardrums were bulging but no infection on 9/1. Still having more difficulty equalizing pressure when driving. It was not fun and brought lots of panic for sure.
  39. Ngo13

    @ZFire burning pain on the whole side of my face and ears and sharp pains. Not triggered by...

    @ZFire burning pain on the whole side of my face and ears and sharp pains. Not triggered by noise exactly - only by TTTS movement (which is triggered by noise, lol) but especially talking, chewing, turning neck, etc. I think it was the movement of my eardrum or those muscles.
  40. Ngo13

    Pain is gone now, back to business as usual. Convinced that my issues do actually stem from a...

    Pain is gone now, back to business as usual. Convinced that my issues do actually stem from a physical problem with my ears (TTTS) now
  41. Ngo13

    I think it's an eardrum injury as I don't find the pain triggered by sounds themselves. I hope...

    I think it's an eardrum injury as I don't find the pain triggered by sounds themselves. I hope it heals quickly. Stupid ENT. Need to get TTTS under control
  42. Ngo13

    Going to treat it as eardrum injury rather than acoustic injury. Neurologist said I have TN &...

    Going to treat it as eardrum injury rather than acoustic injury. Neurologist said I have TN & gave me meds. Might help TTTS. No change in T
  43. Ngo13

    I think the tympanometry tests bruised my eardrums in combination with my TTTS.Pain is more from...

    I think the tympanometry tests bruised my eardrums in combination with my TTTS.Pain is more from jaw/neck movement and TTTS thump then sound
  44. Ngo13

    @RunningMan sleep was better, but no sleep again last night. I stopped the melatonin but seem to...

    @RunningMan sleep was better, but no sleep again last night. I stopped the melatonin but seem to still have one sleepless night a week.
  45. Ngo13

    @gameover I had the test in the past twice with no issues. I wasn't having any issues before the...

    @gameover I had the test in the past twice with no issues. I wasn't having any issues before the test. My worse ear felt full after but the burning didn't set in until 2 days later. My jaw/ear made a snapping sound the same day it started as well so I'm unsure what's causing it. It is def...
  46. Ngo13

    @RunningMan it's persistent, burning pain. I think it may be related to by TTTS. I can't tell if...

    @RunningMan it's persistent, burning pain. I think it may be related to by TTTS. I can't tell if it's from sound or my jaw or what. It lasts awhile, dies down and then somehow gets triggered again.
  47. Ngo13

    It's my birthday and I'm pretty sure I got noaxacusis. No trigger for it except maybe a...

    It's my birthday and I'm pretty sure I got noaxacusis. No trigger for it except maybe a tympanometry test a few days prior. I can't do this
  48. Ngo13

    Another audiology appointment, another time of being told my hearing and ears are perfect. Why...

    Another audiology appointment, another time of being told my hearing and ears are perfect. Why can't my brain get that message!
  49. Ngo13

    Same. But we got to keep holding onto hope for better days ahead. You never know!

    Same. But we got to keep holding onto hope for better days ahead. You never know!
  50. Ngo13

    We are here for you!

    We are here for you!
  51. Ngo13

    Thank you. Had a decent weekend in spite of horrible T but my strength to pretend to be ok comes...

    Thank you. Had a decent weekend in spite of horrible T but my strength to pretend to be ok comes in much shorter bursts now. Really bad today. Hope you are doing better than me!
  52. Ngo13

    My son likes to have little dance parties where he he wiggles his butt in very slow...

    My son likes to have little dance parties where he he wiggles his butt in very slow, uncoordinated ways and squats up and down. His fav jam currently is Twinkle Twinkle Little Star.
  53. Ngo13

    I was there the past week, trying with everything I have to pull myself out now. You can do this!

    I was there the past week, trying with everything I have to pull myself out now. You can do this!
  54. Ngo13

    As they say, hindsight is 20/20. But there is no use dwelling on the past as you can't change...

    As they say, hindsight is 20/20. But there is no use dwelling on the past as you can't change it. There's no use obsessing over the future as you can't predict it. That just leaves trying to live in the present the best way we can.
  55. Ngo13

    Would You Trust a Genetic-Testing Company Such as MyHeritage or Ancestry with Your DNA?

    It really boils down to personal preference. It's a risk-benefit analysis. Yes, there is potential risk involved if it gets "into the wrong hands", but I personally don't think it's very likely, especially if using the biggest companies like Ancestry or 23andMe. If you aren't willing to risk it...
  56. Ngo13

    I'm in a bottomless pit of despair. No one to talk to. Therapist thinks I need antidepressant...

    I'm in a bottomless pit of despair. No one to talk to. Therapist thinks I need antidepressant but too afraid to risk tinnitus worsening.
  57. Ngo13

    Baby steps. Gotta give yourself some time. Sending a virtual hug your way.

    Baby steps. Gotta give yourself some time. Sending a virtual hug your way.
  58. Ngo13

    Thanks for the kind words. Helps me feel a little less alone.

    Thanks for the kind words. Helps me feel a little less alone.
  59. Ngo13

    Thank you @scared8. Let's hope for better days for us all soon

    Thank you @scared8. Let's hope for better days for us all soon
  60. Ngo13

    @ECP we tried but counselor said we weren't good candidates due to needing to work through our...

    @ECP we tried but counselor said we weren't good candidates due to needing to work through our own personal issues first :( hubby just started therapy, I've been in for a year