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I am *convinced* there's major inflammation going on in my body. Granted, tinnitus is one of a handful of debilitating things I contend with, but if I take Tylenol or Advil or anything that reduces inflammation, not only am I knocked out within an hour, I will sleep like a baby in a way that...

It absolutely makes my tinnitus/hearing loss worse. I know I'm in for hell when allergy season rolls around because my response is severe. My problems are primarily with my left ear. My right ear has some tinnitus but no discernible hearing loss. I have some pretty severe anxiety and, along...

I had Botox done three times for TMJ, and it works like a miracle. Unfortunately, my body also flushes it out of my system so quickly that it's not worth it. $800 a session, and I get about three weeks' worth of relief. Everything relaxes. When I grind my teeth, there is no tinnitus whatsoever...

I didn't realize this forum was so overrun with Trump nutjobs. Interesting.

Awesome. I'm on both estrogen and progesterone. No difference.

Can I ask where you went? I'm in NYC and not too far from you. I also have pretty severe PTSD from other issues. I would love to know. Also, has anyone looked into Dual Sympathetic Block? It's supposed to be the "next level" approach.

Uh. Wait. WHAT? I have IBS *AND* tinnitus.

Doesn't want to get into a vax argument but makes an incredibly stupid comment about something being rushed when it wasn't and has been studied for many, many years.

I'm going to die with this, aren't I. :(

Apologies if this was already answered but, once Dr. Shore's device achieves FDA approval, how long after that can the manufacturing begin? Or can they legally begin manufacturing beforehand if they're sure of approval so that they can be immediately ready for distribution?

I trust the companies that fly under the radar more than the ones that are boasting. It's never the person shouting loudest that I want to pay attention to.

...100% of the US is. "We're #1!" :rolleyes: :rolleyes: :rolleyes:

Could someone please explain the difference, and how you'd know the difference?

Effexor. It's one of the worst ones. The brain zaps and dizzy spells that I got coming off of that medication were next level. Hell, even if I missed a SINGLE dose, the side effects were awful. I had been on it for about 4-5 years when I got off of it and I stupidly did it without a doctor's...

Lithium. I'm not bipolar but both my psych and therapist said they've seen good things with it. And my therapist is pro anything that will help me but, in general, is against psychopharmacology. My side effects on it are being managed and I've seen a marked difference in my mood, probably for...

I'll happily spend 9 months in a bubble, reading. Just give me the shot.

Thanks. I probably won't, although the evidence is theoretically stronger for the other issues. I'm on an antidepressant that's helping me ignore it a bit... and not get so upset. I wish I wouldn't have to be on it but... here we are. :(

That isn't accurate. I had mine done in 2019 and it was V5.

I'm asking what does Latuda do? Why was it brought up?

Does Latuda do it as well? My psych had suggested that.

I was asked to do a study on a medication like this (I don't think this was it). The idea of being off ALL antidepressants/anxiety meds plus edibles on the off chance that I don't get the placebo is too much for me. Then the fact that, IF you get the real thing AND it works, they take it away...

Thank you for reading. I have made no decisions whatsoever. At this point, I'm just trying to make it through each day in one piece.

You could contact them on their website: https://quralis.com/about-us/contact-us/ Or try info@quralis.com

He did. However, my situation is not as simple as others here. What I discussed with him is the following conditions: Tinnitus/hearing loss IBS/Gastro Anxiety/PTSD Autism So much of what I'm dealing with is interrelated. Since I woke up in November 2009 with a hearing deficiency, no...

I spoke with him this week and he told me they have several people coming to treat tinnitus but he said that he doesn't know the outcome of how the stem cells will work for it. I was impressed that he's so honest. I'm considering it because I have several maladies that stem cells might help.

You sound very, very much like me in many ways. I'm now thinking of doing the exact same thing. In addition to my hearing ailments, I also suffer from severe IBS and HF autism, which is exacerbating the mental aspects of my tinnitus. I'm considering making an appointment to talk to them and...

Thank you for posting this. I've been so horribly depressed lately. I know this ultimately means nothing for the next decade, probably, but these posts are the only thing that I can be hopeful about in life.

I will always have faith in greed. Always. And the only thing I have more faith in than greed alone is greed + fame. There's some company out there who knows that if they cure hearing loss, it will be massive. Monumentally massive. There's tons of things that we can do for sight but nothing...

As I've mentioned elsewhere: I've had 10 IV Ketamine sessions in the last year and a half for depression. Never had any impact on my tinnitus. In fact, it got louder at times when I was on my trip. Totally anecdotal. Hope it helps someone but it didn't help me.

Jeez... you sound like me. Is that a thing? Is there a name for it? I have autism and I know I have super sensitive hearing.

Hope is all some of us have. I say don't listen to what others say if that's all they say. I try to be realistic about possibility and science is ALWAYS changing. And my mindset can't allow naysayers and the constant negativity to affect my life. My hearing does a great job of that itself. If I...

What does "quality of blood cells during mild exercise" mean?

I know it's of little consolation but... you tried. There are many of us that would love to say that we were able to try something. Be proud of yourself that you're doing everything you possibly can to help your health. You could be sitting at home and miserable, thinking "what if." I...

It's not surprising. I mean. how many supplements are pushed on people with tinnitus? The medical community is filled with people taking advantage of people with health problems.

TBH, there's a large part of me that would hate this. I don't want to know how many hair cells I have left in that direct way. If there's no way of doing anything about it, it would just make me crazy.

I have many medical "issues" and tinnitus is just one of them. I have lots of problems sleeping (can you guess why?) and went to have a sleep study done about two years ago. For those that don't know, you stay overnight at the study location, they hook up a TON of wires to you to monitor your...

Nice work if you can get it...

I don't want you to think I was criticizing you. I wasn't. Just sad.

That dose of reality killed my Monday morning :(

So what happens to the damaged hair cells? How do they get replaced?

I'm hopeful for you. Hope for you is hope for us all. Please keep it alive and take each day as it comes.

Yeah. Unfortunately, that's completely me. :( Autistic and OCD.

Sorry to get off track but is that really a thing? Tinnitus created by anxiety and OCD?

I'm always on the lookout for new trials. I have *several* debilitating ailments (that, unfortunately, work in concert with one another) and I'm always completely honest with the people running the trial. I'm never going to bend the truth or flat out lie to get into something. It's not worth...

Let's get Jon Stewart on it!

They're expensive because, in the US, Ketamine hasn't been approved by the FDA for depression. Only Esketamine has been but it's supposedly not as potent. I went for the IV because I needed it desperately. At this point, though, I'm exploring the Esketamine option now as well. We'll see. They...

I submitted my information but never heard back. Did anyone else?

I was at 65 mg on my last one and they didn't want to raise it. I am on the spectrum and even small doses of medicine have a huge effect on me. If you can't walk properly afterwards, that's a problem because they want you out. I've literally had them tell me that they need the room for the next...

Each IV session is $500. Your starter dose is, I believe, 50 mg and they go up from there depending on how you react. And that $500 is just to sit in a room with an IV. No one monitors you. They check in on you about halfway through and that's it. When you're done, you walk out. It's a big...

I have done 8 sessions of Ketamine. It's expensive AF. :(

I'm willing to travel. I'm starting to spiral a bit these days and I'm scared it could move into suicidal ideation again. I'll do anything.

I can imagine it shouldn't be too difficult to find someone in NYC to help me out...

Could you expand on this please? I've never heard of "distortions."

I have gotten IV infusions of Ketamine for depression/PTSD. To date, I've had 8 sessions of it. It did absolutely nothing for my tinnitus. It did, however, save my life when it came to the PTSD and depression.

I have gotten IV infusions of Ketamine for depression/PTSD. To date, I've had 8 sessions of it. It did absolutely nothing for my tinnitus.