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  1. preslys

    [Danny Boy Memorial Fund] In Loving Memory of Danny Boy

    Oh no Danny my old friend, sorry I had not visited this forum since 2015. RIP Danny :(
  2. preslys

    Brivaracetam — KV3.1 Modulator

    £5-a-day tablet 'a game-changer' in epilepsy treatment: New pill that reduces risk of fatals seizures welcomed by experts... and it's available on the NHS Give it a try...
  3. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    At first I thought that cholesterol was the cause ,so I have done alot of efforts to reduce it hoping to reduce my tinnitus but finally my tinnitus has not decreased despite my cholesterol levels decreased. So the cause still unknown .
  4. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    Yes amandine it is zero and if I get my vision 100% it will be perfect.
  5. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    Finally I didn’t have eye Floaters it 's an inflammation of the uvea,my doctor prescribed me Corticosteroids and this reduced the inflammation and makes my vision more and more clear. It’s a good sign guys ;)
  6. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    @papu @amandine Now I am fighting against eye floaters in my right eye. I don't know if trobalt was the cause of it .
  7. preslys

    Retigabine (Trobalt, Potiga) — User Experiences

    Progress Report Progress Report Date: Nov 2, 2015 Current Retigabine Dosage: none Current Side Effects: huge side effect after stoping trobalt but I didn't know if trobalt realy was the cause. Current Tinnitus Severity: 1 out of 10 Changes in Tinnitus: I hear only the silence even If...
  8. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    Hi @Danny Boy your T back , sad news it means that mine also could return :nailbiting: oh my god
  9. preslys

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    I'm sorry for this failure, that makes me hurt, believe me when I took my first dose of Trobalt I thought that autifony will succeed, especially that night of October 7 th 2015 when I woke up at 2:00 'I heard only absolute silence in my room.but it does not matter there's other treatment that...
  10. preslys

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Good results of course. I will contact autifony to tell them that potassium channel healed me.
  11. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    when I was taking my third box I took two pills perday and when I completed it I started taking neurotin one pill of 600 mg perday,the result was good but not like trobalt So I decided to stop neurotin for 15 days I ordered the fourth box ,so I took trobalt and neurotin togother and this...
  12. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    Hi all I received a lot of private messages I can not answer all of you I am off medication totally and I don't hear my tinnitus any more @nills .@letyO Yes trobalt and neurontin disappeared my T, 3 days after my last dose my tinnitus still 0 so it happened suddenly before bed my T was a 6...
  13. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    since 05/2014
  14. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    one take one pill If it is really thanks to this cocktail I have to thank GSK for Trobalt and Pfiser for Neurontin these drugs based really on real science. @Markku Can you delete all threads in research news and just keep the autifony and SciFluor threads :LOL:
  15. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    36 hours without tinnitus, hi my friends does my T leave me forever. Is it a natural cure or thanks to the combo drug of trobalt and neurontin,believe me now I'm not afraid to be in the place of this man 600 mg
  16. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    I know I took a big risk I have no choice I wanted to kill him whatever the price to pay .I feel like I am waiting for his return I am happy but a bit stressed I am living some very important moments of my life. Today at noon I took an other tablet of trobalt and neurotin despite my tinnitus is...
  17. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    hi guys great news woww I combined neurotin and trobalt and my tinnitus disapeared completly I don't know what's hapened to it.I took one pill of trobalt and one pill of neurotin last night I woke up at 2:00 I was looking for it I didn't find it any more I spent 15 hours I didn't notice it ...
  18. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    Here is my 4 th box arrived
  19. preslys

    SaluSTIM — tVNS Therapy Device

    I emailed the tinnitus treatement center to ask about any clinical result published and this is their reply: Hi Olivier Thank you for your email, I really appreciate you writing in and I hope that we will be able to help you. The SaluStim is a handheld, portable tVNS device that be operated...
  20. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    I completed the third box today and my fourth is not arrived yet I am afraid that my tinnitus back tomorrow
  21. preslys

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Don't forget 10 % of them had their tinnitus worsened, so in the future many new sufferers will hesitate trying AM101
  22. preslys

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    From a neurogical and functionnal (auditory system) point of view there is NO FREAKING DIFFERENCE between acute vs chronic T. if the drugs acts on the synaptic transmission, you could have had T. for 3 days or 300 years, it won't make a difference. Only plasticity cause a certain inertia.
  23. preslys

    SaluSTIM — tVNS Therapy Device

    Finland did it
  24. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    I don't know how much it costs a box of 100 mg I used to buy 200 mg 125 Euros in spain. I paid my fourth box 65.50 Euros but this time from Paris with prescription ;).
  25. preslys

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    I hope that all these questions will be answered by autifony team.
  26. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    the graph is about my third box. two weeks after finish my second box my T raised gradually
  27. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    I did it with my second box but it didn't stay permanent low .so this time I want to kill it for ever with high dose as Danny did it .
  28. preslys

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Was trobalt only developed for the early stage of epilepsy ? I think the answer is No.
  29. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    @amandine yes amandine it seems trobalt do its work well.but if I stop trobalt again will I return to hell (n). no I don't want to return :(:(:(:(:(
  30. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    Still I have 9 tablets tomorrow I will increase the dose to 600mg (200 * 3) for the last three days, I will see how it goes.
  31. preslys

    MuteButton

    Advancing the next generation of tinnitus treatment. Building on positive clinical outcomes and patient experiences, in September 2015 we secured significant investment from the international life sciences venture capital fund Fountain Healthcare Partners. This investment will be used to further...
  32. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    Fluctuations of my tinnitus during the last couple of week using trobalt. I started taking it since 21/08
  33. preslys

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Taking this drug for the rest of life or for a short time, the most important here is the relief
  34. preslys

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    http://www.iii.co.uk/brr-media/257296/autifony-therapeutics-company-overview
  35. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    just small update Las night I took one tablet of 200mg and went directly to bed ,I woke up at 1 am my tinnitus was really very low so I slept like a big baby until 8 am and as my T was very low I decided not to take another tablet,I spent the whole day in silence and even now as I write this...
  36. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    I whrote with my hand on this medical sheet trobalt 200mg:D
  37. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    Hi guys This morning I discussed with my GB, I explained him the mechanism of tinnitus he was very surprised .he told me that I am a scientist he told me wich drug works for tinnitus . I told him give me please a medical sheet. so I took my first pill and as usual just 15 minutes my tinnitus...
  38. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    @Bart I will take my third trobalt box at high doses I’ll see what i twill give. I hope this time I will cruch it like that.
  39. preslys

    Headaches and Tinnitus

    you have headaches because you are taking drugs stop drugs your headaches disapear.
  40. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    I took my firts dose of retigabine end of june 2015 and this for 20 days then I have done a break of 15 days I started taking my second trobalt box and this also for 20 days ,My tinnitus was very low. two week only my tinnitus returned gradually to its basic level and now I am going to take my...
  41. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    @locoyeti So if the members of this forum don’t take trobalt in acute stage they will regret not having tried it sonner ? My case is different with you locoyti and danny boy ,only two week after stoping trobalt my tinnitus returned gradually to its initial level :(.
  42. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    she does not know how you are suffering ,if she is in your case she will take all kind of epilepsy drug.
  43. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    Hi guys I will get my third trobalt box next week ,I hope this time Kill my T for ever . I will updat you all.
  44. preslys

    Otonomy Starting Phase 1 Trial in 2015 for Tinnitus

    Otonomy Announces Successful End-of-Phase 2 Meeting With the FDA for OTO-104 in Meniere's Disease http://investors.otonomy.com/phoenix.zhtml?c=234082&p=RssLanding&cat=news&id=2086343
  45. preslys

    Percutaneous Radiofrequency Lesion of the Superior Cervical Sympathetic Ganglion and Tinnitus

    Percutaneous Radiofrequency Lesion of the Superior Cervical Sympathetic Ganglion in Patients with Tinnitus Abstract Objective: The aim of this study was to determine the efficacy of radiofrequency lesioning of the superior cervical sympathetic ganglion for patients with tinnitus. Study...
  46. preslys

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Dr John Hutchison joins Autifony Therapeutics as Chief Medical Officer http://www.autifonytherapeutics.com/autifony-news.asp
  47. preslys

    How Old Were You When Your Tinnitus Started?

    @Danny Boy I totally agree, if there is no treatment in 2015 it is because people suffring from this condition do not react, they live in absolute silence in there societies .but they live in absolute noise in there head. today we know the mechanisme of tinnitus we know it's a neurons...
  48. preslys

    How Old Were You When Your Tinnitus Started?

    agree. but there's bad luck and good luck
  49. preslys

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Yo you are new here welcome read Retigabine thread and autifony thread then you will know what is the difference
  50. preslys

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    I am sure that during this long periode I will swallow a container of retigabine box. Lol
  51. preslys

    Floaters

    @Mark662 I am sur for one thing that both tinnitus and eye floaters are brain disorder Lol
  52. preslys

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    3 years at least to finish the study and may be 1 year for aproval so at all 4 years at least ,it's a long way guys.
  53. preslys

    Floaters

    glad you have not it ,it's a hard condition
  54. preslys

    Floaters

    why most people who have tinnitus have affected by eye floaters ?
  55. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    thank you for all what you have written in particular your experience with Trobalt thanks to you I have decided to take Trobalt and I have found much relief .I can not take trobalt for ever because as you know it's hard to get ,today I take Neurotin I feel better especially when I listen to...
  56. preslys

    Retigabine (Trobalt, Potiga) — General Discussion

    @attheedgeofscience you are unmasked lol