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@VRZ78 unfortunately, there is no way to turn the beeping sound off. He tried but it is part of the package .. If I knew that a huge spike in tinnitus is normal during the first session and that it always gets better with further applications, I would get the home kit designed by Wilden and try...

@Bobby B, no, you are getting things muddled up. I did not mention any test in 1986 (I think you are referring to the Acoustic Reflex Threshold Test, which I mention in my profile, which was performed on my ears in 2011 and which indeed caused me permanent Hyperacusis and Tinnitus). Here I am...

still scared

Hello everyone. A month ago I tried laser in my country, with Dr. Procházka, who has published several papers on the success of LLLT in the treatment of tinnitus in his practice. I only had 1 session, which unfortunately made my tinnitus significantly worse! I have been struggling with Tinnitus...

Hello! Please advise: can Hyperbaric Oxygen Therapy make Hyperacusis worse? I have heard that it is quite noisy inside the chamber and you can can hear your breathing - through the mask - extra loud. I am tempted to try it (as a treatment of my tinnitus) but I am anxious about the noise levels...

Hello there! How many have had considerable success with HBOT? Thank you, Katarina

We really cannot avoid loud sounds ... not even by moving to a sleepy abandoned village like I have! (I suffered a MAJOR acoustic trauma when I entered an empty bar nearby ... the owner, bless her, is half deaf and she had a very loud alarm system set up at the entrance to notify her that...

Hello Gosia, I definitely recovered from the alarm but have had many many other "acoustic traumas" since. This just confirms what others have said: that we ALWAYS recover from loud sounds. The challenge is to learn NOT to panic (like I do) and to gradually teach the ears to react less...

If I were to run to the doctor every time my ears encounter what I think is a dangerous level of sound, I'd have to take oral corticosteroids every month or two! I mean, it's impossible to avoid unexpected sounds like someone blowing their car horn, or a siren going off nearby, or someone's car...

Thank you, @billie48. This is most encouraging. I will follow your advice and read up on the success stories too to give me faith ... It's just that I have been dealing with this for 4 years now! .. but yes, I should not be thinking of how hard it is and has been, but at how things can get...

Thank you for that, @Rhea. I am not sure if the ringing was 70 db ... it seemed super loud to me .. but it is also the TYPE/FREQUENCY of its sound, which was particularly hurtful. There are a lot of deep sounds (like the bang of a big wooden gate closing shut) that do not bother me, but then...

@Street Spirit I did look at Danny boy's page but I found a couple of recent posts where he says he still struggles with T https://www.tinnitustalk.com/threads/do-i-have-middle-ear-tinnitus.8998/

:) we can talk more about it. Perhaps my medieval tower could one day become a commune for "sound-challenged" people like us!

@quietatnight and @Street Spirit thank you so much for your encouraging stories. I managed to sleep for 5 hours .. badly but still. My tinnitus is dreadful however. I cannot even go to the toilet without carrying my sound machine with me, with the soothing sound of the sea ... It is very...

You've made me smile, dboy. That's quite something given my situation! My ears are so "puffed up" now ... listening to rain sound to drown the din in my head. What an utterly maddening condition this is.

It is not really an island. I just use it as a metaphor. It is my own island ... a nature haven, in Italy, a secluded medieval tower .... The sea is not far. Neither are the islands.

Thank you, dBoy. Yes, I am very stressed about my impending move and have been stressed for several weeks now. Also, I have a neck pain issue too (from someone trying to fix my ears!!), which has been particular bothering me lately. So that does not help either ... It is all too much for me...

It did seem incredibly loud ... all the more so since I was sitting in a quiet room ... and right next to it. I've switched it off completely. Happy not to use a phone ever again in my life! Thank you LeQuack for taking the time to find out the volume level .. My sound tolerance level is...

Moving to an isolated island just promised me smaller incidence of acoustic traumas and bigger chance for my ears and nerves to heal ... It was supposed to be an experiment. A chance for me. It seems like it is too late though ... My ears are too fucked up. Four years of this hell and I am...

I am due to leave on Monday .... now thinking that I will not be there to leave ... I've had T since 1986 but it became a problem again after 24 years of not being a problem and it now has been 4 years since! Thank you all for your support but I am truly hanging off the edge now ... I

this is a true nightmare ...

Thank you, Danny. I will read through there and give them possibly a try. My only worry is that they make things worse :( ... a lot of drugs are known to be ototoxic.

Hello Danny Boy, is Keppa not for epilepsy? I am not epileptic .. I just have T and H. Did Keppra cure your of T and H? Why then are you still on this forum then? (sorry, just wondering). Would be great if a magic pill made this hell dissolve ...

Thank you for taking the time to respond but it does not really help to know that you too want to jump out of the window (or whatever death you are thinking of). I was hoping to hear from people who too have been exposed to very loud sound and recovered ...

Yes, I am in the midst of hysteria. An alarm just went off next to me. And I panicked. My tinnitus hit the roof as a consequence of the noise exposure. I have a severely reactive tinnitus that goes up with noise exposure. The alarm was on Samsung 5830, a loud shrill ringing noise that...

Just one more question, dr. Nangler. As I explained in my previous question to you, there are no hearing therapists in my country who specialize in the treatment of patients with H and T. I have tried self help but 4 years have passed and I am still struggling with these conditions. There have...

Dear Dr. Nangler, I live in a country where hearing therapists - namely those who treat tinnitus and hyperacusis patients - do not exist. So please allow me to ask a question, which keeps nagging me - and thank you at the same time for the enormous help that you offer to all of us who suffer...

yes, I read about Trobalt - I guess it is safe to take if taken only occasionally, on those BAD nights. From what I've read, there is no sleeping drug that is safe to use long term. The question is, what is more damaging in the long run: chronic insomnia or prolonged use of sleeping pills?

Thank you for your suggestions. They make sense. I have read your other message and have looked up the medication you take when you cannot sleep. It seems to be much better for ears than the Clonazepam which I have been taking, which is known to be somewhat ototoxic. I hope that I have not made...

Thank you Dan! Which vitamin B. B 12? or B complex? Should I try all these supplements at the same time? Or one by one? Can you also give me quantities? I haven't heard of Trobalt - will look it up.

Hello again, dear fellow sufferers. (I've always hated groups but boy am I thankful for this one!) I am still here and still in the deep end of the tinnitus suffering. Following the Magnetic resonance, which spiked my tinnitus up, I had a 5 week treatment with Gingko and Cavinton. I had...

Hello! I did everything wrong again. After seeing improvements in my tinnitus (with a 5 week treatment with Gingko Biloba and Cavinton), I experienced a slight worsening. So I decided to try HBOT again, since it helped me the last time I did it. On day 5, I started having a cold - could not...

Thank you, @Tel Aviv Tinnitus for taking the time to write about your experience and your conclusions regarding Dr. Shemesh's treatment. Very helpful indeed.

Hello there. I come and go, as you know, depending on the status of my ears. When I am well, I try to get on with my life, without coming to forums. When I am unwell, I come here looking for support. And this is why I am here to day .. I need your help. Just a brief summary (you can skip this...

I will not email Wilden - there are 2 specialists in my country who use laser and I will contact them for their opinions. They offer laser treatments via state funded health system, so I trust that they will not want to "sell" me stuff at all costs.

The reason why I am looking for the "scary story" as you put it is because I have 2 very bad experiences with doctors/treatments. The impact of at least one of those treatments could have been avoided had I done my research beforehand. Had I known that there was a risk of getting worse (and...

yes, fingers crossed. I so hope the treatment will give you permanent relief (and us more hope). Now, I will repeat one question here - repeating it only because I have understood that for me, this is the only question (or rather the answer to it) that matters. Is there ANYONE who has seen...

I think it is totally wonderful that the treatment has worked for someone and I am very thankful for any success story! @FERNANDO GIL, thank Jacob for me! It is true that when people feel better, they tend to stop coming to forums. That's what I do when I feel good. I prefer to get on with my...

http://www.actiononhearingloss.org.uk/community/blogs/our-guest-blog/new-funding-boosts-tinnitus-research.aspx fingers crossed.

Hi @Carloflogical .. I was asking the same thing and got this answer: In the Czech Republic, where I live, laser is being offered to patients as part of the national health service. That is to say that doctors do not offer laser to make themselves rich by exploiting desperate people willing to...

thank you @FERNANDO GIL. I will just go for it (the laser) and see where it takes me. If it does not help, I try STEM. As for ear plugs, I am not sure .. I am also on the Hyperacusis forum and they are strong TRT advocates there (many have been helped by this therapy and have habituated their...

Thank you @FERNANDO GIL and @attheedgeofscience for your messages and explanations. I must say I feel overwhelmed not just by tinnitus and hyperacusis but also by the many different messages I am getting from professionals and from fellow tinnitus warriors. It puzzles me to know that ENTs only...

I am glad you are feeling upbeat about the treatment @Nick J. and I sure hope the LLLT will bring you permanent relief (and thus more hope for me). I looked at my audiograms and no, here in the Czech Republic, they only test my hearing up to 8 MHz ... So if you are right, then I may have a...

I am getting a bit lost in this thread (someone has merged my new thread with an existing one). Please illuminate me. People here talk about improving their hearing with LLLT. I do not care to improve my hearing - I hear just fine (my audiometric readings confirm that). If anything, I hear too...

Hello again. I am struggling. My tinnitus - spiked after an MRI exam - is still very bad. In the days immediately following it, the sounds were in my head and overwhelming, but they were IN MY HEAD, not in my ears, and distributed evenly. So even though the tinnitus was loud, I could sleep at...

You are totally right. Unfortunately, my distrust of doctors and addiction to health forums have become pathological in their own right. It's a hard vicious circle to get out of .... with no way out that I can see.

Also, I emailed a specialist in Italy, have given him the back-story and asked him about the treatment. He told me that neither corticosteroids nor Hyperbaric Oxygen Therapy are helpful if there has been no evidence of hearing loss. And my audiometry revealed no hearing loss. I do not know if...

Thank you, Frohike. Are you saying that you had a relief from corticosteroids and vasodilators pumped into your blood? I admit that I am a highly anxious person, made all the more so anxious given SEVERAL negative experiences of doctor treatments. Doctor advice has not always worked for me...

Me again. I went to see an ENT. I had a test done to see if my hearing has been affected. It is fine. I do however have an evident increase in tinnitus and for this the doctor suggested a one-off dose of Corticosteroids (intravenuous). I freaked out ... was too scared to go ahead with it, as I...

i am sorry but what are ALA and NAC? thank you for the others. Will get them tomorrow!

Thank you, Danza. It's so trying this ... I'll try to relax and perhaps take a pill, to help me.

Thank you Yonkapin and Danza! Are there any contraindications when it comes to corticosteroids? I might have read somewhere that it can make H worse, possible? I do use Clonazepam sometimes, to sleep when in the grip of anxiety, but that too can be harmful to the ears if taken on a long term...

Hello. Please advise as I do not want to go to the doctors' unnecessarily or have treatments done which will only make things worse. My experience is such .. Yesterday I had to have an MRI done to my neck. I did wear earplugs, but one was not properly lodged in and loosened itself. I also wore...

Hello Joe, just a question: were you told to eat Vitamin E supplement during your HBOT? If not, did you experience any negative side effects of the therapy? I am freaking out a bit .. I already have 11 sessions behind me and I have just realized that instead of taking the stipulated 400 mg...

and they did not tell you that the first time you went there? I know all about the "I wish I had ... " .. I too have been there and many of us probably feel the same. It's a shame that doctors and patients are not always as well informed as they should be. On the other hand, you are not alone...

Just wondering: why are you doing the HBOT again if the 1st course did not help you? Or did it help you with things other than T?

As for the Avatar: Vincent van Gogh apparently too had a severe unilateral tinnitus. He tried to deal with it by chopping his ear off, poor guy. I never made that connection until I saw the old movie about Van Gogh with Kirk Douglas. The scene where he goes off rails is very suggestive and...

Hello Louise! yes, I too took a tranquillizer yesterday. I am not sure but it may well be that today's discomfort was caused by the fact that I did not take the pill today. I thought I'd be fine without it (that's how great the experience felt yesterday). I wonder if my difficulty with...

Thank you, Louise, for your reply. I did not see it immediately, so apologies for replying so late. I have had quiet a few attempts with HBOT but I am not an easy patient. The first time went well, since I was alone in the chamber. The second time I went, with 2 other people, I experienced a...