16 kHz Hearing Loss — Intratympanic Steroids or Stem Cells?

[Mymlan]

@Samir My dream was to live in peace. This is not peace. I never asked more from my life really, except for this.

 

[Juan]

@Samir I question that everyday, where was the "danger sign"??
They started that loud machine out of nowhere. I couldn't see anyone, and this happened on the weekend so I thought that no one was there. I think they stood pretty close to were I was walking, maybe just a few meters away. There were a lot of people passing this tunnel, including a friend of mine and her daughter.
It wasn't even my stupid idea to walk down in the tunnel in the first place. It was my friend's idea and she didn't even developed tinnitus, and I hardly believe anyone else did except me.

I never had any problems with my ears before this happened

It's like I died that day. All my dreams got flushed away.

That's really unfortunate, and a jackhammer is an extremely loud and ugly sound, plus the vibration it produces...

 

[vttbx]

@Samir It was a loud jackhammer (130 dB?) drilling on concrete for 30 seconds, when I was passing down a tunnel near a large building site in Stockholm, Slussen. The next day I noticed the tinnitus. So yea, it was like a gunshot. It's not a big chance that I will recover from that

Same here. My trama was at a train station and I was walking under the tressel with my wife. The train was going very fast and passed over us in 10 secs. And were are talking about a highly reflective environment. Damage is done.

I don't think I could risk the IT injections at this point. My state of mind isn't very good now. The risk of IT includes bleeding, infection, worsening of hearing, vertigo, taste change, persistent perforation, worsening of tinnitus. And you need to do four injections for four weeks. But it still is killing me knowing my hearing is bad forever. I'm torn by not acting now as 8k is also down -40,-30 so I do notice not having much at 16k.

 

[Samir]

Well she didn't try to prank me. She was just very stupid, because she knew that they were working over there that day. She did put her own baby at a high risk, and so did I. The difference is that she knew, and I did not. I don't hate her and this is my fault as well, but I never want to see her again, ever.

Yeah, she did put herself and the baby in an unsafe situation too. People just don't understand. But we have to put ourselves and our own best interest first. If someone offered me free tickets to go to a concert with him or her I would probably say no. I have a problem with saying no to people, but I'm getting better at it. I was in a situation like that today and I said no, I will not go with you to that loud place, I currently have a problem with my hearing. If they are your true friends they will understand. I really hate it that it has come to this, but I am trying really hard not to avoid hanging out with people just because of my condition. At the moment I have to avoid loud places.

 

[Samir]

Same here. My trama was at a train station and I was walking under the tressel with my wife. The train was going very fast and passed over us in 10 secs. And were are talking about a highly reflective environment. Damage is done.

I don't think I could risk the IT injections at this point. My state of mind isn't very good now. The risk of IT includes bleeding, infection, worsening of hearing, vertigo, taste change, persistent perforation, worsening of tinnitus. And you need to do four injections for four weeks. But it still is killing me knowing my hearing is bad forever. I'm torn by not acting now as 8k is also down -40,-30 so I do notice not having much at 16k.

What kind of IT injections? You mean steroids? I'm not sure what you mean by "acting now" but don't we all go through this mourning process? It's like having lost someone dear to us. I mean the realization that we have lost hearing and it's not coming back. That's tough! I have a -45 dB loss at about 1 kHz in my left ear, and it's no fun either. Everything sounds awful in that ear now. Plus all these new noises in that ear and in my head.

I see that your tinnitus started a very long time ago. So it's not an option for you now, but they do say that intratympanic (IT) steroid injections are an effective first line treatment of sudden hearing loss of up to -50 dB (if you a have a greater loss than that then oral steroids are better), it's just something I've read on John Hopkins website. I don't think this is a common practice, still, in the world today. It's probably more common in the US. In other places, they just tell you to play the waiting and resting game. I for one would have liked to get some steroids.

 

[vttbx]

What kind of IT injections? You mean steroids? I'm not sure what you mean by "acting now" but don't we all go through this mourning process? It's like having lost someone dear to us. I mean the realization that we have lost hearing and it's not coming back. That's tough! I have a -45 dB loss at about 1 kHz in my left ear, and it's no fun either. Everything sounds awful in that ear now. Plus all these new noises in that ear and in my head.

I see that your tinnitus started a very long time ago. So it's not an option for you now, but they do say that intratympanic (IT) steroid injections are an effective first line treatment of sudden hearing loss of up to -50 dB (if you a have a greater loss than that then oral steroids are better), it's just something I've read on John Hopkins website. I don't think this is a common practice, still, in the world today. It's probably more common in the US. In other places, they just tell you to play the waiting and resting game. I for one would have liked to get some steroids.

It would be IT injections of steroids. Usually, there is a short amount of time to try steroids for hearing loss. Sorry about your hearing loss as well. FYI, the IT injections are once every week for four weeks. You get injected in one ear, then lay on your side for 30 min without swallowing, yawning or sneezing while you keep your mouth open for the saliva to drip out.

 

[Samir]

It would be IT injections of steroids. Usually, there is a short amount of time to try steroids for hearing loss. Sorry about your hearing loss as well. FYI, the IT injections are once every week for four weeks. You get injected in one ear, then lay on your side for 30 min without swallowing, yawning or sneezing while you keep your mouth open for the saliva to drip out.

What happens if you sneeze? Do they have to do it again? I'm just curious... By the way, IT injections is how Frequency Tx will be be administering FX-322. It's a very common mode of access to the middle ear and now the inner ear in the "developed" part of the world. Hopefully this practice will spread throughout the world. Intratympanic injections of steroids is unheard of in Sweden, and I'm pretty sure it's very uncommon in all of Europe. Changing medical practice is difficult, even when evidence of efficacy is there in front of your nose... it's a sad state of affairs. I wish we had access to something like IT steroid injections at clinics over here.

I don't think I could risk the IT injections at this point. My state of mind isn't very good now. The risk of IT includes bleeding, infection, worsening of hearing, vertigo, taste change, persistent perforation, worsening of tinnitus.

So all these things you list, these are all possible consequences of IT administration of a drug? I have honestly not heard or read much about adverse effects of IT injections of any kind. Even Frequency Tx talks about patient's tolerance to the drug, there was not much mention about their tolerance to the method of administration.

I see your tinnitus started in 2001. Why are you interested in IT steroid injections now? To prevent further damage or decline?