24/7 Tinnitus for MONTHS, Help Me
- Thread starter deathbymigraine
- Start date
Member
u sound alot like me re drugs.
Hey @deathbymigraine: So sorry that you and the others on this thread who are suffering. I had terrible headache pain for a year following brain surgery in 1999, so I can sympathize. Can't imagine going through it 27 months. My tinnitus also was miserable in the beginning, to the point I questioned the reason for going on living.
Only thing I will say is: Be really, really careful about taking Retigabine. I haven't tried it, and wouldn't try it, although everyone is different and has the right to take their own path. But the warnings and possible side effects are pretty scary. One person here on the board also said they ended up in the ER because of it. No thanks, at least for me.
Only thing I will say is: Be really, really careful about taking Retigabine. I haven't tried it, and wouldn't try it, although everyone is different and has the right to take their own path. But the warnings and possible side effects are pretty scary. One person here on the board also said they ended up in the ER because of it. No thanks, at least for me.
I so FULLY understand your. Frustration and the feeling you want to die. You feel you have no life and cannot live like this and it's pointless. Debilitating and energy sucking and having a migraine is the worst pain imaginable but to have it going on and on and on...... I relate to what you are saying.
My problem started with vertigo and muscle spasms in my legs that were painful. Vertigo so bad I was bedridden for weeks. Couldn't even walk to the loo. I would pray not to wake up the next morning. I vomited day and night from the nausea caused by the vertigo. I had a headache migraine type thing at the base of my skull that was so bad I thought my head would be squeezed and pop off my neck!
I couldn't imagine living like this. I wanted to shoot myself! Then I got bouncing shaking vibrating vision and my eyes move uncontrollably. Later I got loud buzzing T and my eyes move exactly in time with the noise in my ear on the left. Nits sporadic T and comes and goes day and night. Nit comes on for seconds to minutes at a time and then stops for seconds to minutes at a time and always when the noise starts my vision jumps and leaps around in time with the noise.
I no longer need medication to stop me vomiting. My stomach is so used to it now that I only throw up two or three times a month. I can walk without a cane most of the time and take care of my families needs. It just takes me longer and is more exhausting than normal. I home school my thirteen year old and eight year old daughters. I have a wonderful husband who has put up with me for twenty five years. I don't want to die more than two times a month now ha ha . Most of the time I enjoy my life despite this frustrating problem by not dwelling on it and carrying on despite the noise and the dizzy feeling until I get so bad I have to eventually lie down. But I'm still happy. I have a lot to keep me busy. I'm also an interpreter for the deaf. I learned to speak Mandarin Chinese while going thru this hell. I walk two miles sometimes three, every day.
Don't give up. I thought I was doomed to lie in been throwing up for the rest of my days. I couldn't go to the toilet without help to walk there let alone cook a meal for my family. Now I take care of my family like any wife and mum. I teach Chinese people English and other things using my Mandarin. I help deaf people when they need an interpreter and I homeschool my girls. My problem hasn't left me for seven years day or night. I often fall. I need to holding Allan no my house to get around but I walk my dog every day and usually without a walking stick! Outside seems easier somehow.
Don't rush yourself. Don't panic and don't give up. Take it slow. You may find your T goes away but if it doesn't, you can adjust. And I hope that you can see a specialist to help you get rid of that headache! I get a migraine every month once or twice and it goes for three to four days and by the end of it I'm begging my husband to shoot me every time! But I'm still here and glad he doesn't comply ha. He must want to sometimes. Something that used to work for my migraines was a drug called mersyndol. Maybe you could try it?
My problem started with vertigo and muscle spasms in my legs that were painful. Vertigo so bad I was bedridden for weeks. Couldn't even walk to the loo. I would pray not to wake up the next morning. I vomited day and night from the nausea caused by the vertigo. I had a headache migraine type thing at the base of my skull that was so bad I thought my head would be squeezed and pop off my neck!
I couldn't imagine living like this. I wanted to shoot myself! Then I got bouncing shaking vibrating vision and my eyes move uncontrollably. Later I got loud buzzing T and my eyes move exactly in time with the noise in my ear on the left. Nits sporadic T and comes and goes day and night. Nit comes on for seconds to minutes at a time and then stops for seconds to minutes at a time and always when the noise starts my vision jumps and leaps around in time with the noise.
I no longer need medication to stop me vomiting. My stomach is so used to it now that I only throw up two or three times a month. I can walk without a cane most of the time and take care of my families needs. It just takes me longer and is more exhausting than normal. I home school my thirteen year old and eight year old daughters. I have a wonderful husband who has put up with me for twenty five years. I don't want to die more than two times a month now ha ha . Most of the time I enjoy my life despite this frustrating problem by not dwelling on it and carrying on despite the noise and the dizzy feeling until I get so bad I have to eventually lie down. But I'm still happy. I have a lot to keep me busy. I'm also an interpreter for the deaf. I learned to speak Mandarin Chinese while going thru this hell. I walk two miles sometimes three, every day.
Don't give up. I thought I was doomed to lie in been throwing up for the rest of my days. I couldn't go to the toilet without help to walk there let alone cook a meal for my family. Now I take care of my family like any wife and mum. I teach Chinese people English and other things using my Mandarin. I help deaf people when they need an interpreter and I homeschool my girls. My problem hasn't left me for seven years day or night. I often fall. I need to holding Allan no my house to get around but I walk my dog every day and usually without a walking stick! Outside seems easier somehow.
Don't rush yourself. Don't panic and don't give up. Take it slow. You may find your T goes away but if it doesn't, you can adjust. And I hope that you can see a specialist to help you get rid of that headache! I get a migraine every month once or twice and it goes for three to four days and by the end of it I'm begging my husband to shoot me every time! But I'm still here and glad he doesn't comply ha. He must want to sometimes. Something that used to work for my migraines was a drug called mersyndol. Maybe you could try it?
@Dubbayaman, and if you live, you shatter your hopes of ever getting peace. 
it all goes both ways, I'd say.
@Dana, good to hear from you. Long time no interact. ~hug
@deathbymigraine, I feel you. We are in the same sinking boat. Too young to die and in too much pain to call it life.
You could essentially eat DannyBoy and feel something.
Seriously though, meds are only a short-term fix if things hit rock bottom. Please keep that in mind. Too many here popping the pills like it's candy.
@Gosia, your avatar tells it all. So what are you taking ATM? Did your T improve at all?
it all goes both ways, I'd say.@Dana, good to hear from you. Long time no interact. ~hug
@deathbymigraine, I feel you. We are in the same sinking boat. Too young to die and in too much pain to call it life.
You could essentially eat DannyBoy and feel something.
Seriously though, meds are only a short-term fix if things hit rock bottom. Please keep that in mind. Too many here popping the pills like it's candy.
@Gosia, your avatar tells it all. So what are you taking ATM? Did your T improve at all?
@deathbymigraine, 1. actually T is hearing loss. As soon as the neurons in the brain don't get any data they go apeshit = T no matter the cause.
4. Obviously you don't have TMJ, which is typically misdiagnosed cos it's big money business.
About your writing,
'I said I envy those who only have T and no OTHER **real** health issues.'
This indicates that T may not be a **real health issue** in comparison with other ailments. Hence the outcry.
Certainly you didn't mean it this way but I hope you can see what I try to point out.
I agree with @Street there's absolutely nothing for T. Which is understandable since it's an invisible ailment and not taken seriously by anybody except those that suffer gravely from it.
4. Obviously you don't have TMJ, which is typically misdiagnosed cos it's big money business.
About your writing,
'I said I envy those who only have T and no OTHER **real** health issues.'
This indicates that T may not be a **real health issue** in comparison with other ailments. Hence the outcry.
Certainly you didn't mean it this way but I hope you can see what I try to point out.
I agree with @Street there's absolutely nothing for T. Which is understandable since it's an invisible ailment and not taken seriously by anybody except those that suffer gravely from it.
Been there. Suicidal threee times. Headaches, spasms, throbbing, ringing, twitching, thumping, desperation, anxiety, depression, sleeplessness, anger, all gone. I found my cure here on the forum. It took determination. It didn't cost a cent. It only took a few minutes a day. Once or twice a week I take a minute and do the method I learned here. So far so good. My T isn't going to go away but I trained myself to ignore it and I don't hear it. Please try this ... https://www.tinnitustalk.com/threads/back-to-silence.7172/
@I who love music thank you. I'll try that but don't really understand it
By the way everyone I am (re)starting Neuro feedback tomorrow (for both the migraines and T, and hopefully anxiety etc). Will update if I get relief after several sessions. It takes a while.
By the way everyone I am (re)starting Neuro feedback tomorrow (for both the migraines and T, and hopefully anxiety etc). Will update if I get relief after several sessions. It takes a while.
Hello Everyone,
I have suffered from chronic back, neck and shoulder pain for over a decade. My T started about 7 years ago and is 24/7. I have taken every pain med out there and found the side effects to be worse than the pain so i no longer take any pain meds. I have taken clonazepam for years due to severe panic attacks. My T is so bad i go for days sometimes more than a week without sleep. i also have chronic insomnia for which i take ambien, but again the side effects are terrtible, i walk in my sleep, i havee even driven in my sleep. i also have severe problems associated with sleep deprivation, I would do almost anything to tone down or get rid of my T. It is affecting my life, health, marriage and every other aspect of my life. I'm at point where giving up seems like a good idea. I hope someone has found something that can help before i lose the will to keep going.
I have suffered from chronic back, neck and shoulder pain for over a decade. My T started about 7 years ago and is 24/7. I have taken every pain med out there and found the side effects to be worse than the pain so i no longer take any pain meds. I have taken clonazepam for years due to severe panic attacks. My T is so bad i go for days sometimes more than a week without sleep. i also have chronic insomnia for which i take ambien, but again the side effects are terrtible, i walk in my sleep, i havee even driven in my sleep. i also have severe problems associated with sleep deprivation, I would do almost anything to tone down or get rid of my T. It is affecting my life, health, marriage and every other aspect of my life. I'm at point where giving up seems like a good idea. I hope someone has found something that can help before i lose the will to keep going.
I have had several hearing tests performed and several mri's as well as cat scans, heart tests and nerve tests they all came back fine, i have no hearing lose, in fact my hearing range is better than normal.
- Aug 29, 2015
- 7,069
- Tinnitus Since
- 2004
- Cause of Tinnitus
- Meniere's Disease
@tigger2016 ,
I find sleep a problem also with sever bilateral tinnitus .
I was on sleeping tablets for a few weeks but my doctor changed me over to nortryptaline Antidepressant 50mg to help sleep and it has minimal side effects .
Still not sleeping due to a procedure Thursday as in a lot pain so hope over the next week or two I will get some much needed sleep.....lots of love glynis
I find sleep a problem also with sever bilateral tinnitus .
I was on sleeping tablets for a few weeks but my doctor changed me over to nortryptaline Antidepressant 50mg to help sleep and it has minimal side effects .
Still not sleeping due to a procedure Thursday as in a lot pain so hope over the next week or two I will get some much needed sleep.....lots of love glynis
