A Few Stories I Have Heard/Seen...

[Mario martz]

Hey guys!,
i think its very important to keep this place full of postive stories / success / people who got rid of T
even if those stories are not ours (yet)
(trying to do my best since english is not my first lenguage)

1 STORY...
Just when i experienced T (last week) i called my sister erika (Shes a GREAT psychologist)
and she was the first person to even tell me the name of the condition, she was like "Yes you are telling me
you are having this buzzing in your ear, its like Tinnitus, right?) i wasnt aware of the name of the buzzing..
anyways.. she told ..."Yes i used to have a pacient that had that problem", she said the paciente went because she couldnt get rid of that "refrigerator noise" in her ear...
so they had a few sessions, her problem seemed to be "Psychosomatic" she was dealing with trouble in her life and its seemeds like the brain makes the ear buzz so you cant play attention to the real problem... so anyways, they found what the problem was.. by the 5th session the pacient came just to thank my sister because the "refrigerator noise" stopped.
look guys im not saying psychotherapy works for everyone or that its everybody case... but my sister aint lying,
i remember she told me about this a few years ago, and maybe the paciente she was helping was cured by casualty idk, but she got rid of T and thats whats matters
(this is the only story im 100% sure that it did happend)


2- STORY
there is a spanish blog about tinnitus just like tinnitus talk (but in spanish duh)
and this guy told me that he had T for about 7 months, the possible cause was after a cold/ sinus infection...
obviously first months were difficult he had the same problems we are experiencing...
but after 7 months it just stopped, he woke up and there was not a single noise in the room.
thats quiet amazing, i have talked to him and he told me that its been almost a year and the noise didnt came back, he didnt do anything especific to cure it.


3-STORY
ive been talking to this guy trough mail,
he had T after an acustic trauma, and he obvously has had the same struggle has you ( i dont wanna say that has me cause i been only for a week) but after a year he says that he bearly hears it.
hes been doing a lot of workout, yoga etcc.
he says the only thing he considers has worked on him is homoepathy
he even sent me the recipie of all the ingridients that has his homoepathy medication (im gonna give it a try)
he is not 100% recover of T free, but he says, this has worked on him.. a lot!!


4, 5 story...
this had to do with "Psychotherapy" as well....
IM NOT SAYING THESE ARE TRUE, but these came from a few blogs and they were not trying to sell anything.... so i kinda believe them

and the other one....

It's kinda long...
but here is the whole article
http://www.emofree.com/other-physical-issues/tinnitus/tinnitus-relief-crack-article.html

and this... (i think i saw this case in other blogs.. or here.. im not sure...)
http://www.emofree.com/other-physical-issues/tinnitus/tinnitus-relief-felix-article.html


theres another one about about a girl in the spanish forum, she cured her T too..
but i think it was an spontaneous sudden cure.

okey well thats it,
Lets keep our spirits up
and our hopes higher than out ear noises.
we can do it!!!

if you know more stories, please share.

 

[ceauses97]

Honestly, I'm not trying spoil your hope, but the fact is that tinnitus does NOT go away suddenly. It may go away gradually yes, but you don't wake up one day to realize it's gone.

Tinnitus caused by a medication or other temporary situation may cease if that element is removed, but the reality is that tinnitus does not just go away for most people. If your tinnitus hasn't improved after the first several months, accept the fact that this is something you have to deal with for a very long time.

 

[Zora]

@ceauses97 thats not true, Tinnitus does go away for most people! It can go away sudden in some cases depending on the cause. Why are you so hopeless?
I think @Mario martz just wanted to spread some hope. we are early at the Beginning of T and there is still a big chance that it might decrease.
Thanks Mario.

 

[Mithrandir]

I think tinnitus disappears when your ears are fixed...that's all !

 

[Mario martz]

Honestly, I'm not trying spoil your hope, but the fact is that tinnitus does NOT go away suddenly. It may go away gradually yes, but you don't wake up one day to realize it's gone.

Tinnitus caused by a medication or other temporary situation may cease if that element is removed, but the reality is that tinnitus does not just go away for most people. If your tinnitus hasn't improved after the first several months, accept the fact that this is something you have to deal with for a very long time.

We dont know anything about T to be honest.
even doctors and researchers they dont have a clue.
some people avoid sugar, some people dont, some people has t increase when they masturbate, others dont lol
all im saying is that we dont have to be closed for the sudden (inner) cure.
i woke up when day and the noise sudden appeared, out of the blue.
( i wasnt exposed to loud sounds, medication, or head injury)
once i read a book that says "what comes out of the blue, will be back to the blue".
i dont know if that makes sense...

accepting that T is something that we all have to deal with for a long time is good, trust me.
thats the first step to move on and continue with your life.
But most of the cases get better or dissapears within the first months.
lets all try to remain positive, we still have power over our thoughts

 

[ceauses97]

@ceauses97 thats not true, Tinnitus does go away for most people! It can go away sudden in some cases depending on the cause. Why are you so hopeless?

I'm not trying to be hopeless. I want this to go away just like anyone else on this forum, but being relastic about your current situation is one step closer to habilitation. It's a myth that tinnitus suddenly goes away, the truth is that this medical condition can improve over time, but it does not go away quickly.

OP is only 1 week in, and no one is able to tell if his tinnitus is permanent or not. My advice to him would be to
reevaluate his situation after 3-6 months, if the tinnitus is still present and haven't improved by that time limit this is most likely a lifetime condition. Remember; I wrote most likely, that doesn't have to be the case. Time will tell.

 

[Mario martz]

@ceauses97 thats not true, Tinnitus does go away for most people! It can go away sudden in some cases depending on the cause. Why are you so hopeless?
I think @Mario martz just wanted to spread some hope. we are early at the Beginning of T and there is still a big chance that it might decrease.
Thanks Mario.

Thats right!!
all cases i have heard of, they all decrase all of the sudden.
i have never heard or read any sucess story about someone taking an specific medicine or drug for a period of time and then have it cured.
Lets spread hope!!

 

[Zora]

@ceauses97 its true, it is important to stay realistic.
You are now about 2 months in? did it improve at all since it started?
Who is OP?
@Mario martz well most of the time T slowly decreases

 

[Shaullazar]

It can go away just like that, I have two friends that had it for the long run and it did went away, so you saying that they lied?
I also have two other friends that still have it unfortunately,
Although they don't care about it at all.
Thank you

 

[ceauses97]

@ceauses97 its true, it is important to stay realistic.
You are now about 2 months in? did it improve at all since it started?
Who is OP?

12 weeks in. It has improved a little. but my reaction to the noise it is what has improved the most.

OP = Orginal Poster (thread starter)

 

[TMLB]

Dear Mario,

Thank you for spreading some positivity. There is always hope for those who still live tinnitus in it's intrusive state. I've had it 2 1/2 years and when it first 'hit', well...let's just say it was a dark place. I haven't habituated yet but the sound has adjusted from a high pitch squeal to a high static sound which is easier to tolerate. I just want to say that when I first developed tinnitus I was fortunate to meet someone who had tinnitus that went down over time, and he says, and I have no reason to doubt him, that one day he woke up and it was gone. He no longer hears it.

A good book to read written by an audiologist who has tinnitus but managed it to the point where she now has to listen for it is called "Tinnitus Treatment Toolbox, a guide for people with ear noise" written by J.L. Mayes, Msc., Aud

Good luck to you.

 

[Raggs]

Hi,
For the people who had it go away suddenly, was the noise consistent right to the point of it going away?
Mine sorta fluctuates, and, dare I say it, if I look back over the year I have had it, it is quieter, OR I'm habituating.
But I thought, and am sorta willing to accept that this is what it will be like forever, so what ceauses97 said actually gave me hope that maybe it will fade away albeit very, very, VERY, slowly! (or maybe this is what habituation is, slowly losing awareness of it..but that's another thread).

So either way gives hope, if you have consistent, (or not), it could just suddenly go away, or if it is fluctuating, (or not) it could start slowly fading away! My co-worker had it for 3 months, and hers was a fast fade away! lol

 

[InfiniteLoop]

Do not be naive and delusional, as times goes by the chances of tinnitus disappearing become smaller and smaller. In most cases, the damage in the auditory system is irreversible and intractable by the Stone Age medical knowledge we have in the early 21st century. This idea that because a problem is not understood it will go away is just wishful thinking. You can hope for the best, but you should really get ready for the most likely outcome. In a few months, you will have to accept that the T is a new part of you, and you can only try to manage it. Get ready for HABITUATION since it is the only effective treatment available. One can help it to happen with multiple strategies, but basically one has to shortcut the attention and the emotional systems to have neutral response to T. This a very challenging mind game, and not an easy one.

 

[Zora]

@InfiniteLoop are you habituated?

 

[Zora]

@Raggs yes. In most of the cases the T does fade away SLOWLY, until you only notice it in Silence, and if your lucky you might never notice it again.
When I said that in some cases it goes away suddenly I meant if the causes was a blood vessel for example, that got removed by surgery.
Or there was a guy who had the fan on all night long. So even while sleeping his ears couldnt relax. He turned off the fan, and his noise went away very quickly! But yeah...if your T is slowly fading, thats a good sign

 

[InfiniteLoop]

@Zora I am not fully habituated by any means. My process is being slow, really slow. My personality traits are the worst for T, and my T by itself is very complex (very fluctuant sounds and loudness, reactive, high pitch). I am making progress and listening to my T produces mostly neutral feelings, but I still hear it most of the time. I am feeling more stable and trying to develop a new inner world that is compatible with T. I have lowered expectations in life.

 

[Raggs]

@Zora thanks for the response! Sometimes I'm not sure if it is fading, or I'm just coping better..sigh..

@InfiniteLoop I totally relate to the statement, "challenging mind game", I've even called it "psychological warfare"!
I've always lived inside my head, so this has been very intrusive and very sad.
Lately, I have had very tiny moments where even though I am listening to it, I'm not going into full panic mode..
I hope this isn't habituation. When someone has habituated, do they just KNOW, or is it still a mind game, and you have to convince yourself that you are?

 

[InfiniteLoop]

@Raggs There are different levels of habituation (habituation to reaction, habituation to perception), and I believe that they come gradually since we can not "force" them to happen. In my case, the feeling of normalcy (new normal) has become a common state of mind, and the feeling of being "at the edge" of a disaster is almost gone. My mood is starting to become independent of the tinnitus intrusion level. Still I hear it all the time, and still limits my day in some ways: I try to avoid noisy places, road noise really interacts with my T and my 45min drive each way to work everyday is always kind of annoying. My focus at work is improving, but is nowhere where I was before the T ordeal. I don't like to go out as much anymore. In summary, improvement and long way to go at the same time. Habituation to reaction happens first, and then the habituation to perception. In my case, my T is very fluctuating and changes so often that I do not believe that I can reach a full habituation to perception.

 

[Poyraz]

Let's fill this thread full of REALISTIC RECOVERY STORIES instead of hopelesness. One of my mom's friend had T for a month and than it has gone for good. She had no idea why she got it. A friend of my best friend had T for 6 months. It came out of nowhere and eventually it faded away.

 

[Sebastians]

One colleague of mine went to an open air Prince concert a few summers ago. Eventhough he wore (probably badly inserted) foam earplugs, he had mild T for about three months
Another colleague stated he had sinus-related T for some years, has some vertigo issues and his ear cloggs after workout. He doens't think about it much.
On a Belgian forum, a guys stated he had bad tonal T for 8 months after an explosion. It faded away suddenly to audible only at night. I'm hoping i will get as lucky as this guy, 5 months in after a gunshot trauma.

 

[noisebox]

I first got T after the birth of my second child in 1989. I was busy obviously and as it wasn't reactive and I didn't have H I lived normally and it went totally until I forgot I ever had it.
I got it again after noise in 2012, so over 20 years T free.
My 2012 T was also gone 99% of the time up to being given an overdose of a medication in February 2015.
That T I am still dealing with but it's going down, is that habituation or it getting better, who knows.

 

[Mario martz]

I first got T after the birth of my second child in 1989. I was busy obviously and as it wasn't reactive and I didn't have H I lived normally and it went totally until I forgot I ever had it.
I got it again after noise in 2012, so over 20 years T free.
My 2012 T was also gone 99% of the time up to being given an overdose of a medication in February 2015.
That T I am still dealing with but it's going down, is that habituation or it getting better, who knows.

Wow thats and interesting case Noisebox, im sure this time will T will fade too.
how long was T present during 1989?

 

[noisebox]

Wow thats and interesting case Noisebox, im sure this time will T will fade too.
how long was T present during 1989?

I honestly cannot remember. I remember seeing the GP regarding it and contacting the BTA helpline but nothing else. I was a young mum of 2 and luckily for me I just stopped noticing it.
I truely had forgotten I had ever had it. I lived a completely normal life of normal noise for over 20 years.
I don't even think the first T and the new one in 2012 are connected.

 

[Genevieve]

another success story here, Anthony Delon the son of famous french actor Alain Delon had Tinnitus for 2 years, the cause was a big depression after the death of his second mother (his nanny, because her mother was an actrice who traveled a lot), his Tinnitus disappeard after 2 years! you can read that in his autobiography

 

[Mario martz]

another success story here, Anthony Delon the son of famous french actor Alain Delon had Tinnitus for 2 years, the cause was a big depression after the death of his second mother (his nanny, because her mother was an actrice who traveled a lot), his Tinnitus disappeard after 2 years! you can read that in his autobiography

Sometimes i think my T is Stress/Depression related, since i havent cope with my mothers death and my recent 2 year relationship split

 

[Sebastians]

Read another story on a German forum. A woman with T is telling the story of her grandfather, a former Wehrmacht soldier who sustained a blast trauma during WWII. He was sent back to the front regardless. His T apparently sounded like the whistle of a boiling tea kettle. His T finally went away at the age of 60 until he died age 80. At least he got two decades of quiet before he passed away.

 

[Iowa54]

One colleague of mine went to an open air Prince concert a few summers ago. Eventhough he wore (probably badly inserted) foam earplugs, he had mild T for about three months
Another colleague stated he had sinus-related T for some years, has some vertigo issues and his ear cloggs after workout. He doens't think about it much.
On a Belgian forum, a guys stated he had bad tonal T for 8 months after an explosion. It faded away suddenly to audible only at night. I'm hoping i will get as lucky as this guy, 5 months in after a gunshot trauma.

I know this is a longshot but how are you faring now? I'm very interested.