A Rant/Vent...

[Rae-Lee]

I am getting really frustrated with everyone in my "circle"...
Having an "unseen illness" is so anger inducing!
I know I look "normal", but in my head, I am screaming! I am crying! I am pulling my hair and trying to make it stop!
I am going on 3 hours of sleep every night and I am tired.
I know I am a house wife & stay at home mom, but I can't be the same person I was 3 months ago, because 3 months ago I didn't feel like I was going insane. I didn't want to continually bang my head into a wall until the noise stopped or sleep finally came... Either would be great...
Yes, I know you can't see it, but things like vacuuming or anything else too strenuous actually hurts my head. The pressure builds, the buzzing gets louder and I feel like screaming!



The first 3-5 days after I had my husband drive me to the hospital to find out what this was, people were great! Concerned with how I was etc...
As all of you probably guessed, I was sent home with nothing to help, because there's no "magic pill"...
Apparently 3-5 days is the extent of concern as I am now expected to be Super Mom/Do it all wife again... I want to run away! To just get in the car & go! I love my family, I just hate them now too...
Anyone else go from happy go lucky to hating everyone because they can't understand or relate?

 

[Ears Hurt]

YES!!! I hear it every day from family and friends. They say to stop stressing over it; you look fine. There is nothing wrong with you. Its all in your head. It will get better. It will go away if you stop thinking about it. Ahh, no! I tried that in the beginning, and its still &$*@#*^$ here!

And the hardest part is mine is due to someone else's stupidity (an 18 year old that can't pay attention to the road to not drive into a stopped vehicle or my ex that felt it was funny to harass me with my door buzzer).

 

[swc5150]

That's the unfair pitfall of hearing issues. We fall into one of the only illness categories where we often receive anger instead of sympathy, or at least understanding. I have some hearing loss, and simply have a hard time hearing some people speak, or at least deciphering their words. It sucks when people get pissed at me for repeatedly saying "what", or "can you repeat that". T is something that non-sufferers simply cannot understand, unless they're lucky enough to have a loud bout of it go away. My father-in-law just experienced wicked T after a concert. He was lucky enough for it to go away after 2 days, and now he gets where I'm coming from.

 

[April]

The tinnitus combined with a hearing loss can be daunting at times. I was embarrassed at first when asking people to repeat themselves or cupping my hands behind my ears because I couldn't decipher their words. I still struggle with the embarrassment at times but it's one of the little things that I have to put up with if I want to be around people. Rae-Lee your condition is still relatively new so I'm hoping that in time it will quiet down a bit or at least you will be able to cope with it better. I was a basket case when mine first started and the journey to coping wasn't an easy one and my family had to adjust to the 'new' me with limitations. It was hard on some family and friends who wanted me to just suck it up and get back to normal. Well, no could do and now even though they don't understand, they aren't pushing me into situation or activities that would be too much for me.

 

[Alue]

Absolutely! My tinnitus was caused by a single acoustic trauma at work because of an idiot coworker. Management and HR treated it like I'm making a big deal over nothing. It has effected my work and my sleep. Most of my co-workers don't even know about it because they wanted to keep it on the down low, I was even told by senior management that I shouldn't talk about my injury or symptoms with other co-workers or else "There could be consequences". You want to talk frustrating, tinnitus wasn't even my fault, I've always protected my ears because of my noise sensitivity. I get angry any time I think about it, and then the ringing gets even louder.

 

[The Red Viper]

Absolutely! My tinnitus was caused by a single acoustic trauma at work because of an idiot coworker. Management and HR treated it like I'm making a big deal over nothing. It has effected my work and my sleep. Most of my co-workers don't even know about it because they wanted to keep it on the down low, I was even told by senior management that I shouldn't talk about my injury or symptoms with other co-workers or else "There could be consequences". You want to talk frustrating, tinnitus wasn't even my fault, I've always protected my ears because of my noise sensitivity. I get angry any time I think about it, and then the ringing gets even louder.

That's a lawsuit waiting to happen, especially if your superiors told you to be hush hush about it.

 

[Alue]

That's a lawsuit waiting to happen, especially if your superiors told you to be hush hush about it.

The injury wasn't caused by a willful violation and it falls under worker's compensation which makes a lawsuit nearly impossible (that would require a tort). Worker's comp is a really shitty system in the US, especially for invisible injuries. It may work well for a broken leg, but something like tinnitus or chronic pain it only benefits the employer.

 

[The Red Viper]

The injury wasn't caused by a willful violation and it falls under worker's compensation which makes a lawsuit nearly impossible (that would require a tort). Worker's comp is a really shitty system in the US, especially for invisible injuries. It may work well for a broken leg, but something like tinnitus or chronic pain it only benefits the employer.

Completely forgot about that. Yeah you're SOL, unless you go after your co-worker in his/her individual capacity. However, the pockets aren't nearly as deep...

 

[Dubbyaman]

@Rae-Lee Whats funny about the assholes who say, "just get used to it, grow up, its not a big deal" are the same ones who get bent out of shape anytime they're around an annoying noise.

 

[Alue]

Completely forgot about that. Yeah you're SOL, unless you go after your co-worker in his/her individual capacity. However, the pockets aren't nearly as deep...

Yea, it's a real shitty situation, I'm miserable and feel trapped. To top it all off, I took the job because I had just moved and needed one, it was a huge pay cut for me and I know I got lowballed, now I don't feel well enough to work at my full capacity. I knew I never should have accepted the job offer.

 

[fishbone]

I am getting really frustrated with everyone in my "circle"...
Having an "unseen illness" is so anger inducing!
I know I look "normal", but in my head, I am screaming! I am crying! I am pulling my hair and trying to make it stop!
I am going on 3 hours of sleep every night and I am tired.
I know I am a house wife & stay at home mom, but I can't be the same person I was 3 months ago, because 3 months ago I didn't feel like I was going insane. I didn't want to continually bang my head into a wall until the noise stopped or sleep finally came... Either would be great...
Yes, I know you can't see it, but things like vacuuming or anything else too strenuous actually hurts my head. The pressure builds, the buzzing gets louder and I feel like screaming!



The first 3-5 days after I had my husband drive me to the hospital to find out what this was, people were great! Concerned with how I was etc...
As all of you probably guessed, I was sent home with nothing to help, because there's no "magic pill"...
Apparently 3-5 days is the extent of concern as I am now expected to be Super Mom/Do it all wife again... I want to run away! To just get in the car & go! I love my family, I just hate them now too...
Anyone else go from happy go lucky to hating everyone because they can't understand or relate?

Yes, you do look normal and people think that you are just like them. Unfortunately, you now have poor ears and they don't, this is a huge difference maker. You need to let then know, what is going on and how the noise level around you needs to be less.

I have separated myself from loud people and people that do not respect my situation. Since, you are a mom, you just have to communicate with them, it is tough..but you have no choice.