A Year Later, I Don't Know What My Tinnitus Baseline Is

[Nes]

Hello everyone,

It's been one year since my tinnitus began, and unfortunately, I haven't habituated yet because it changes every two months. I don't react strongly to it anymore (except when I get brand-new sounds), but I can't ignore it.

It started as a very high-pitched ringing in February 2024, and since then, I've experienced different variations, including just hissing, hissing with mid-tone ringing, unilateral ringing with hissing, unilateral low-pitch tinnitus that comes and goes, multiple mid-tone ringing, and reactive tinnitus.

For example, in November and December, I had just hissing. Then in December and January, I developed ringing with hissing. In January, my low-pitch pipe tone came back in my right ear after four months of absence.

I constantly get new sounds that come and go, varying a lot in loudness. Every single tinnitus sound I have is lower than 2000 Hz (although my first-ever sound was 12,000 Hz). I also go through periods where I get transient tinnitus every day due to my posture.

I have bad TMJ, which impacts my tinnitus a lot. Since I clench my teeth at night and can't do anything about it (yes, I have a retainer, but no, it doesn't prevent the clenching), every morning is kind of a surprise as I discover which "flavor" of tinnitus I got overnight.

The latest addition to my tinnitus is a buzzsaw sound that appeared after I accidentally watched a music video with the same sound for less than 20 seconds. It might be a coincidence, and hopefully, it's temporary since it's only been two days.

Over the past year, I've learned to cope better, but I'm getting tired of having to habituate to something new every two months—as if I could even habituate that quickly in the first place.

Does anybody else have no baseline? And how do you cope?

 

[Mark F.]

Hello everyone,

It's been one year since my tinnitus began, and unfortunately, I haven't habituated yet because it changes every two months. I don't react strongly to it anymore (except when I get brand-new sounds), but I can't ignore it.

It started as a very high-pitched ringing in February 2024, and since then, I've experienced different variations, including just hissing, hissing with mid-tone ringing, unilateral ringing with hissing, unilateral low-pitch tinnitus that comes and goes, multiple mid-tone ringing, and reactive tinnitus.

For example, in November and December, I had just hissing. Then in December and January, I developed ringing with hissing. In January, my low-pitch pipe tone came back in my right ear after four months of absence.

I constantly get new sounds that come and go, varying a lot in loudness. Every single tinnitus sound I have is lower than 2000 Hz (although my first-ever sound was 12,000 Hz). I also go through periods where I get transient tinnitus every day due to my posture.

I have bad TMJ, which impacts my tinnitus a lot. Since I clench my teeth at night and can't do anything about it (yes, I have a retainer, but no, it doesn't prevent the clenching), every morning is kind of a surprise as I discover which "flavor" of tinnitus I got overnight.

The latest addition to my tinnitus is a buzzsaw sound that appeared after I accidentally watched a music video with the same sound for less than 20 seconds. It might be a coincidence, and hopefully, it's temporary since it's only been two days.

Over the past year, I've learned to cope better, but I'm getting tired of having to habituate to something new every two months—as if I could even habituate that quickly in the first place.

Does anybody else have no baseline? And how do you cope?

I do have a baseline, fortunately. To those of you with reactive tinnitus, I truly feel for you. Hopefully, someone who can better relate to your struggles will comment soon. Stay strong!

 

[pants]

I'm coming up on a year in April, and mine also varies a lot. I have a Morse code tone, which is the worst because it's so hard to ignore. Sometimes it's in the background, and I don't notice it, but other times it makes it impossible to sleep.

I also have an ache in my other ear that fluctuates in intensity. I feel like if it were constant, it would be much easier to habituate. The constant variation is what makes it difficult, especially after experiencing false hope when it gets lower in intensity, making me think it might be improving.

 

[Nes]

I also have an ache in my other ear that fluctuates in intensity. I feel like if it were constant, it would be much easier to habituate. The constant variation is what makes it difficult, especially after experiencing false hope when it gets lower in intensity, making me think it might be improving.

I relate to this a lot. I go through cycles lasting anywhere from two weeks to a month and a half. Last November, I had just a hiss for a full month—I felt like my struggle was over. Then one day, it started ramping up again.

Over the past few days, it has doubled in intensity, and I have no idea why. It's super reactive, so it could be anything. Maybe it's my period, stress, or clenching too much.

But I know it can go lower again, so right now, my life just feels like waiting for it to calm down.