All I Can Do Is Cry

[Ann23]

Hi- I'm new to the forum. My tinnitus started on 2/1/2019 with a migraine. I think I also had a sinus infection simultaneously. Although after a week of antibiotics, I feel better in many ways, the constant and loud buzzing in my head isn't improving. After reading some posts, I also now realize that I have hyperacusis. My hearing test today was normal. The ENT says there is nothing he can do for me. I'm so sad. I can't imagine living with these symptoms. I might adjust to the noise, I suppose, but the feeling of fullness and discomfort in my ears will drive my crazy. It seems that my only hope is for it to go away on its own at some point.

 

[Contrast]

I don't want to distress you but the goal is to figure out the cause of your tinnitus and hyperacusis.

Is your hyperacusis defined as "noises sounding to loud" or "pain from noise" or both?

Also audiograms aren't scientifically accurate in determining hearing loss outside of human speech range and these problems are sadly always linked to hearing loss even if minor.

Sorry for what you are experiencing, please let your ears rest and avoid loud noises, if you want to try to get a prednisone steroid prescribed go for it, it may help. I also recommend trying magnesium as it has some clinical evidence of helping but nothing significant.

 

[Contrast]

If it makes you feel better I had ear fullness and pain for like 9 months, and it went away. It was only totally awful the first 2 months before I even joined the forum.

 

[Bill Bauer]

My tinnitus started on 2/1/2019

Sorry, is this February or January? If it hasn't changed in one month, that is normal - there is still a lot of hope that it will begin fading sometime in the next two months. If it stayed relentlessly at the same level for two months, then it is a little less encouraging, but there is certainly still hope.

Have you been exposed to moderate noises (e.g., a vacuum cleaner, blender, hair dryer) between now and the onset?

Check out
https://www.tinnitustalk.com/thread...eone-else-who-has-tinnitus.26850/#post-307822

Regarding the title of this thread - I've been there myself:
https://www.tinnitustalk.com/thread...-make-you-wail-and-weep-uncontrollably.21797/

It gets better! In fact, ear fullness/discomfort goes away for most people. It should get better by the time you are at the 6 months mark, and it will hopefully be gone one year after the onset.

 

[OnceUponaTime]

I also now realize that I have hyperacusis.

So sorry, I understand how you must feel now. I have been there. But hyperacusis can get better/go away. I've had it twice and it didn't last for more than a few months. Just avoid loud noises/places for a while. By accident, I found out that by taking 5mg Flexeril took away my hyperacusis. (It was prescribed for a neck injury at the time).

Are you experiencing ear discomfort, burning??
Ice packs behind my ear helped sooo much.

The ENT says there is nothing he can do for me.

But there's much you can do for yourself to help you get better. This forum is full of helpful recommendations.

Great post to read.
https://www.tinnitustalk.com/threads/can-any-practice-help-—-while-we-wait-for-a-cure.33816/

Feel better, I'll say a prayer for you.

Once

 

[ganga66]

Please, please do not let either your tinnitus or hypercausis rule your life. I know from experience that it is easier said than done but it is possible to live with both. When it becomes unimportant it will fade into the background. There is so much help and support on this forum, you are not alone. It will improve.

 

[Contrast]

Please, please do not let either your tinnitus or hypercausis rule your life. I know from experience that it is easier said than done but it is possible to live with both. When it becomes unimportant it will fade into the background. There is so much help and support on this forum, you are not alone. It will improve.

nah, biomedical research is needed so we find treatment options, and patients need to be vocal for help.

is your hyperacusis pain from noise, or noises sound too loud?

Please don't ever tell anyone to adapt to pain hyperacusis, it is impossible for virtually everyone.

 

[ganga66]

nah, biomedical research is needed so we find treatment options, and patients need to be vocal for help.

is your hyperacusis pain from noise, or noises sound too loud?

Please don't ever tell anyone to adapt to pain hyperacusis, it is impossible for virtually everyone.

 

[ganga66]

I wasn't advocating that anyone "adapts" only that it is possible to live without feeling so hopeless that your life is consumed by tinnitus and hyperacusis, after suffering for 30 years I think I have an understanding what Ane23 is going through. Let's stay positive

 

[Contrast]

I wasn't advocating that anyone "adapts" only that it is possible to live without feeling so hopeless that your life is consumed by tinnitus and hyperacusis, after suffering for 30 years I think I have an understanding what Ane23 is going through. Let's stay positive

May I simply know if your hyperacusis is pain from noise, or noises sounding too loud? (or both)

 

[JohnAdams]

Sometimes I feel like crying but I just don't have any tears. It's like this has destroyed my emotions.

 

[ganga66]

Sometimes I feel like crying but I just don't have any tears. It's like this has destroyed my emotions.

May I simply know if your hyperacusis is pain from noise, or noises sounding too loud? (or both)

That is irrelevant it is how we react that is important.

 

[JohnAdams]

That is irrelevant it is how we react that is important.

oh ok.

 

[Contrast]

@Autumnly

That is irrelevant it is how we react that is important.

Pain hyperacusis is not the same condition as loudness hyperacusis, they could be subtypes of the same condition, but for better treatments doctors need to know what patients are experiencing.

 

[Autumnly]

That is irrelevant it is how we react that is important.

Painful hyperacusis is not a mental health issue. While your emotional reaction towards it might help you to cope better, positivity alone is not a guarantee that it will improve. For many people, painful hyperacusis (noxacusis) improves over time, but there are several stories of people who have made no improvements.

When it becomes unimportant it will fade into the background.

This is not the case for everyone. However, @Ann23 is still new to tinnitus and hyperacusis, and the chances are still high that she can improve over time.

 

[Ann23]

Thank you all for your replies. I'm new to the forum and wasn't sure how to follow my own thread. My problems started with a common migraine perhaps with vestibular migraine simultaneous. I'm waiting for an appointment with the neurologist. The hyperacusis happens randomly. Many usual sounds, often people's voices at normal volume, are too loud for me now. I also have fullness and discomfort in my ears along with the buzzing all of the time. I had migraine with head pain the other day, took a rescue medication, and it reduced the buzzing from loud to low for 5 hours. Given that the migraine medication had some effect, I'm hoping that a different med or combo of meds might keep it at bay. I could live with the low intensity buzzing, but the high intensity is significantly interfering with my life as is the discomfort in my ears.