Another Random Success Story

[maltese]

How can the guy have severe H and be at a crowded bar even with plugs ?

His H wasn't severe.

 

[Scared111]

Remember that the façade that you see can be radically different from what people feel in private.

this is very true!

 

[Ed209]

Come on guys, no ones life is perfect I know that all too well. This post was merely to reflect a very positive situation I encountered. I wasn't going to post about it because I knew it would be dissected like this, and I knew we'd end up chasing our tails again. I really wish I hadn't bothered now. This is the success section after all.

As far as research goes it's a tricky one. I'd say it's because the majority of sufferers either take no action (or just talk a good game without doing anything) or move on and then forget about it. It's hard to say with conviction what's at the heart of it, but my point is that you can turn your life around and still push for more research. You don't have to be miserably depressed to make a stand against it, or to raise some money and/or bring more awareness.

 

[GregCA]

You don't have to be miserably depressed to make a stand against it, or to raise some money and/or bring more awareness.

Yes I agree with that.

Sorry I derailed your thread - it's not appropriate for the "Success Story" section, but at the same time, you can see how negative expression can be considered "dissident thinking" (clearly you are upset that your original thread is now polluted with things that aren't all super positive):

This post was merely to reflect a very positive situation I encountered. I wasn't going to post about it because I knew it would be dissected like this, and I knew we'd end up chasing our tails again. I really wish I hadn't bothered now. This is the success section after all.

If we try to choke negative expression (not implying that you are trying to do that) we'll end up projecting a positive message that doesn't really represent the truth fairly, with the obvious ramifications to the rest of the world that we know too well.

I won't get into more discussions into this thread as I want to respect your initial goal (and I agree these kind of discussions would be better outside of "Success Stories").

Cheers.

 

[John Meyers]

This seems reasonable until you realize that this behavior muffles the awareness to the point that almost nobody (especially in the medical field) believes that T is a real issue.
It's particularly nasty in the sense that many doctors send you home with instructions to "not think about it" (and therefore "don't talk about it"), even to not look up anything about it on the internet (I've been told that a few times since onset). Basically pretend it doesn't exist.
To me, that leads the patient to suffer, keep everything to him/her-self, and let the medical profession think that people have good methods for coping with it (since they aren't coming back complaining).

On the contrary, I think we should be making noise about this condition. Keep complaining, but with moderation, so it's not counter productive.

When I see my doctors and they tell me "you look better than last time, it seems like you're dealing better with T" I don't hesitate to correct them and tell them "no, it just looks that way because T is invisible, but my suffering hasn't decreased since last time".

In my opinion, minimizing our suffering is doing a disservice to our cause.

Sorry, I didn't mean doctors. -- I meant that I don't complain to my family and friends..

 

[Rubenslash]

Come on guys, no ones life is perfect I know that all too well. This post was merely to reflect a very positive situation I encountered. I wasn't going to post about it because I knew it would be dissected like this, and I knew we'd end up chasing our tails again. I really wish I hadn't bothered now. This is the success section after all.

As far as research goes it's a tricky one. I'd say it's because the majority of sufferers either take no action (or just talk a good game without doing anything) or move on and then forget about it. It's hard to say with conviction what's at the heart of it, but my point is that you can turn your life around and still push for more research. You don't have to be miserably depressed to make a stand against it, or to raise some money and/or bring more awareness.

Your post has 25 ratings, of course you should've bothered.

 

[maltese]

. I really wish I hadn't bothered now. This is the success section after all.

Ed, there are some people here who appreciate stories like that.

Again, thank you for posting this.

 

[Lex]

It's not because they look happy that they are.

To be fair, the same thing can be said for people in general. We like to keep up appearances. Or we like to forget our problems for a bit, find a means of escape every now and then.

His H wasn't severe.

Yes, I agree. His H sounds moderate at worst. If H is severe, he'd have trouble moving around his house.

But from my experience -- and based on other people's as well -- mild/moderate H is harder to deal with than mild/moderate T. I've read more sob stories than success stories when it comes to H so I appreciate it whenever I come across a positive account.

 

[hopeforme]

I've had tinnitus since January. After realizing this might not go away I started reaching out and looking for people who have tinnitus.

I have found a handful and all of them say it gets better. Some from mild to severe.

My son's tutor just told me she is blind in one eye and deaf in one ear from a virus! She said it left her with severe tinnitus but she's had years to learn how to deal with it. She even went to an air show this past weekend without earplugs and said her buzzing was louder than her AC unit outside..but she was still just laying out and relaxing.

Use the hashtag #tinnitus on instagram and you will find people who share their stories.

 

[Ed209]

I've been to hell so many times it's like a holiday home. I know what suffering is so please don't believe that positive stories diminish our cause in any way, because they don't. At some point we have to move on because our life will pass us by, and you might look back and feel betrayed that you let T and H take so much from you. It's better to try and get your life back on track; then if a cure does arrive one day, see it as a bonus. Many people with other conditions are in the same boat, waiting for cures, but we have to realise that they may be decades away. Time is precious, so don't waste it relying entirely on a cure to help you.

@Lex, I'd like to expand on what he said to me about his H as I know you're interested. I didn't speak to him for too long, but I did ask certain questions like: "what does it feel like?" etc. His response, which I'm paraphrasing here, was "when people speak it's like someone's stabbing me in the ear with a hot knife". From his description, it sounded pretty bad to me. He also mentioned a problem with his brain which I can't recall. If he attends all the events (I haven't got a clue if he does, maybe I should have asked), then I have a deep respect for him. It can't be easy to start attending fortnightly events with ear problems, but maybe he eased his way into it, or maybe he doesn't go. I'm not sure. What I will say though, is that I'd find it odd for someone to pay a monthly membership, only to sit at home.

 

[david c]

You can continue to have successful careers in many different fields after developing tinnitus - and thousands of people every year have done so. Of course if your job does involve prolonged exposure to very loud noise though you might want to find another career.

 

[RonnieCarzatto]

Ed209 thank you for posting this. Need these stories. They keep me going.

 

[Tom Cnyc]

I have both approached, and been approached by strangers due to wearing earplugs.

Most of them are fine. This story is more common than the person who doesn't return to life.

Even more common is over the first two years the intensity of tinnitus fades to a level
Much easier to habituate.

At this point I know many people with this affliction. Many have resumed a full happy life

 

[Kalle_Mustianoja]

great to read these positive vibes... I need more of those

 

[Teena Con]

Hello all,

I am teena my tinnitus started when I have my vacation last April 6, 2017 an airplane pressure started everything. I thought the pressure will go away after we landed but it never happen I came back to work my colleagues notice something about my hearing because when they call me i couldnt even hear them because my ear was clogged. Weeks passsed by and ringing is getting worst and worst my family is getting affected too I can't hardly hear them evrytime they talk to me it hits me really hard that sometimes I was thinking what if I dont really hear them what's going to happen to us my work is affected too I am a administrative assitant and I do purchasing too everytime the vendor asked me to call them I just email them back because i couldnt hear them clearly on the phone as well so i tried doing my works mostly emails. One time my collegue whisper something to me and I didnt hear a thing I just replied Oh yeah! And then he talk loudly to my ear saying "didn't you hear me there is no spoon in the breakroom" I was so embarrased. My situation makes me unconfortable in front of the other people. I cried sometimes but I also paryed to god to heal me because I still want to see my kids grow, feed them provide them with better future. My family prays everynight and before we finish the prayer my kids always end the prayer with my healing. I know I need to do something I went to my doctor she just talk to me, she take a look at my ear she said it was ok so she gave me a flonase which didn't help at all. After my appointment I suffer for 2 more weeks then I emailed my doctor again that flonase didnt help my situation at all they want me to go back but I said "NO" I just asked them to give me an appointment for ENT because that is all I need. I am not going to pay for another co pay of $70 just to talk to me I need help and I need to see a specialist. Finally they gave me an appointment to ENT after 3 weeks but then I patiently waited for that day to really know what's going on with me. That day came an audiologist did some testing on me and she found out that I have a liquid on my ear that causes the blockage and ringing in the ear she told me to comeback 4 days after and she will help me drain the liquid in my ear. After 4 days I came back I was so excited but a diffeent doctor checked my ear and she said to take antibiotic and instead and steroid to heal my ear. I cried in front of the doctor she asked me why are you crying I told her i have beens suffering with this problem for how many months now and my job is getting affected by it I told her I came here because the doctor tild me that she will drain my ear and I was expecting that today i already told my kids that when I came back I will hear all of you I will be better later. The doctor understand me so that she told me I will make an incision in your ear so the liquid can come out but you still have to drink the medicine and I smiled and said "YES". Then she started my right ear where I hear the ringing it was fast and no pain she vacuum the liquid inside and put some antibiotic. After the procedure I can hear clearly right away the ringing was still there but very low mode. I take the medication for 2 weeks and finally everything is normal the ringing left me for good and I am so happy. My life is back. I have so much respect now for people who have disability in hearing it is not easy it was horrible. For people who have tinnitus do not believe when they said that it has "NO CURE" because there is a cure. My advice go to ear speacialist they are the answer for our sufferings.


I hope that my stories will leave you hope that even you can get cure. Just pray and pray..

If I get healed you will too..

 

[Joe J]

I wish this forum had a "habituation" thread and an actual success stories thread.

While habituation may be the only option eventually, seeing stories of habituation in the beginning of getting tinnitus actually made me feel 1000x worse.

The threads of it going away were much more productive.

 

[New Guy]

One simple philosophy is to fake it until you make it. If you don't feel like you can smile smile anyway and you may catch that feeling. I know there are limitations to this theory. It won't always work and we won't always have the energy to try and make it work. I've been at the point of not being able to put my smile on more than once in life.

Even if the people you talked to were having a bad day I bet the time they spent talking to you they forgot about their T, even while talking about it. I've started going to a local deli and eating there just to people watch in a conveniently noisy environment. I can momentarily zone out while there.