Anyone Have Vestibular Migraine/MAV?

[danni1979]

Does anyone have vestibular migraine/mav??

I've just been diagnosed and was wondering if anyone else has any "ear" symptoms... one of mine (which freaks me out) is a sudden fullness with very loud tinnitus and sound distortion (bucket effect sound) lasts a good few hours...

Anyone else??

 

[danni1979]

 

[undecided]

A difficult condition to diagnose.
How did your doctor come to the conclusion that you have mav?

 

[danni1979]

My history,my symptoms,audiograms fine,pressur etest fine and balance test fine. Ive been a chronic migraneur for years and have suddenly had lots of new horrible symptoms.

 

[Lauren Morse]

Yes I have many of those symptoms, and am pretty sure I have MAV (self-diagnosed). Or, at least, I am fairly confident some of my troubles are vascular in nature, which probably means migraine.

Take today for example; temporary lost 10% of my hearing out of the blue in my left ear, whooshing/ringing sound,nausea, dizziness, cotton feeling in ears, etc. I feel it is migraine because all of a sudden I get random throbbing sensations across my head, start feeling like pressure is building in my head too, start dissociating, and get tingling in my body. It doesn't follow the pattern of Meniere's, and I was not diagnosed with that to begin with.

This has happened countless times but it doesn't always manifest in the same way, and usually has a different trigger each time (except for this time when I have no idea what happened). But I do tend to get migraine like symptoms every time it happens, so that is what I think it must be.

Do you also temporary (or permanently) loose hearing when this happens, or get any vertigo?

 

[danni1979]

Am so sorry for such a late reply,totally missed this!! Yes i do,its like my ear totally cuts out then i have this low loud tinnitus start with accompanying one sided pressure,i get dizzy,any noise vibrates in my head n makes me dizzy,my head pulses& other horrible symptoms.